Thank you Dr Boster. I'm currently on copaxone, but I have had an adverse reaction. My neurologist has suggested swapping to cladribine. You have made me feel more reassured.
I finished year 2 in March 2020 and sadly it has not worked for me. 3 new lesions (one large one on my brain stem), my balance has been getting bad over the past year and increasing falls as well as bladder hesitancy pee myself lol. My neuro doesn't think a 3rd year will do anything so I have to consider Ocrevus or Kesimpta
I'm offically in year 5 now!! Glad to share I have had no progression or new lesions. I was diagnosed with highly active RRMS and failed the first DMT with major progression within 6 months. I felt a huge shift within8-12 weeks of year 1. And didnt suffer many side effects while taking it. Stay Strong Warriors x
I’m surprised I haven’t heard of this drug. Also surprised that it isn’t given more… I’m on my 2nd DMT and this dosing sounds amazing. Thanks for educating me, again! Love that you do this, it is so insightful. 💗
Ive been using it for two years and it is amazing. It stop my progression with no new lessions For 2 years so far. I had very active MS and no other drugs they have gave me worked. It Amazing
On year 2 of Mavenclad. I felt the shift in my brain the first week. Haven't had brain fogs nor needed my cane. I don't know why they don't offer this to everyone once diagnosed with MS. I had to deal with horrible Copaxone and Tysabri before Mavenclad. The price is up there but they have help and it's worth it. Not sure why you said that young man can get a covid shot when we only have one week a year to get a covid vaccine. Our white count is never high enough to get the shot.
Good to know! I'm on my final cycle of Mavenclad (2nd year), so learning more about how it works actually makes it better. I was on Rebif, failed then was changed to Mavenclad. I'm actually a bit better physically now than I used to. However, the limitations do still stand and I've accepted that.
Thank you Dr. Boster! I love your videos, your a true hero for everything you do! I was on Rebif for about a year and could not handle the 3 injections per week any longer, completely stopped taking Rebif for 18 months. Seeing my neuro next week and I think Mavenclad is the one for me.
Perfect timing for this video - I took my last Copaxone today and will start Mavenclad tomorrow. Your video reassured me in that going for Mavenclad was the right choice for me.
I went from Copaxone, to nothing for 10 years, to Mavenclad. Copaxone was horrible for me, Mavenclad was great! I am all done both years, and haven't had progression, plus some symptoms have seemed to improve. Good luck to you!
Thanks for the information Dr Boster I am not sure if it is in Australia I will need to speak to my neurologist about it, as I have never taken anything for MS just TN.
The first Pfeizer shot was hard on me because I’ve been dealing with the long COVID. I got moderately ill. The second shot was just like having COVID all over again. I have anti bodies out my wahzoo! But I never fully recovered from the original disease course back in November ‘20.
hi thank you so much for doing more videos, it really helps could you do a video about ocrevus and male fertility as I'm on ocrevus and trying for a baby and worried ocrevus could effect male sperm or the baby Thank you
Hi Dr. Boster the first question the gal asked about progression during year one of Mavenclad. Can you provide some insight on people who experience progression when they are not completed with the entire two-year course?
For anyone considering Mavenclad, I, personally, want to encourage you to research this drug before agreeing to this treatment. In April and May of 2023, I took Mavenclad as prescribed. It’s now July 17th, and three weeks ago, several brown, unsymmetrical lesions w/ scalloped edges popped-up on my arms and leg. I also discovered several swollen lymph nodes under the skin of my neck. I’ve always, always used sunscreen, and have never been a “sun worshipper,” nor used tanning beds. After notifying my neurologist and contacting a dermatologist about taking Mavenclad and what I am experiencing, the dermtologist is seeing me next week, despite a long waiting list for new patients. After doing my own research, I discovered approximately 10 out of 900 Mavenclad patients are at an increased risk of developing; Melanoma, Pancreatic cancer and Ovarian cancer. If my suspicions are correct (I certainly hope I’m wrong), this type of Melanoma is agressive in nature, and can spread in as little as six weeks. I pray no one, who has already completed Mavenclad, develops cancer from this drug. God Bless.
Gonna start using cladribine this week. Previously i tried 3 other medicine: rebif, tecfidera and copaxone. First medicine decreased my white blood cell count drastically. Second two negatively affected my kidney function. I had two registered MS relapses in about two years time. I wasn't taking any medicine before the second relapse cause of my kidney condition. Both relapses were pretty bad and i needed about 1 month to recover. Im male, 27 yo. Thank you for informative video. I hope this one will work fine :)
@@securedebtagency Hello. About to start my second year of Mavenclad. Had zero relapses and MRI seems to not show any active lessons. Seems to be working very well for me.
I’m about to start my first treatment today. I’ve been subscribed 4 tablets week one and week 5 another 4 tablets. So 1 tablet a day for 4 days and repeat same thing week 5 Will Mavenclad make me sick. I am very anxious about it making me sick. What are the most common side effects please? Also can I take Mavenclad with steroids as I’m in the middle of a relapse. Thank you kindly in advance Doc!! I’d be so grateful for your advice. Ps. I’m from Melbourne Australia.
I keep seeing cancer scares when looking up this drug. Is there a risk, or what is the risk of cancer for this? I am currently on Rebif and have been since 2016 but and getting tired of the needle
Dr boster , Appreciate your knowledge and your kind way to explain any medicine for multiple sclerosis. Especially for Mavenclad which I am on my 2nd year dose. I just wanted to ask you about the side effects of mavenclad. and what the pill does to your throat specifically. cos I can't find any reviews of this medicine online. the only thing I know is that I have to wash my hands pretty good before and after the tablet. and that the side effects are these: - upper respiratory tract infection, - headache, - low white blood cell count (lymphopenia), - nausea, - back pain, - joint pain, and insomnia. But do you know if there's anything else should I be aware of?
I have a question are my current condition going to get better I know that future is better? I'm gonna take my third infusion of ocrevus and I'm gonna be able to see improvements in my current condition
I’m thrilled I found your channel Dr. Bolster which was by accident. I watched 1 video and I was hooked. If I were able, I’d leave NY to make an appointment to see you. I’ve been on Tecfidera since 2014 and now have to change to generic or another medication. And quite frankly my Neurologist has made no recommendations. I’m 63 years old and also asked her what her take was on Medical Marijuana. She flat out told me it’s all Bull$&@t and it that’s what I wanted she wasn’t the Dr. for me. I didn’t tell her that I am certified in NY and use it for my spasms. I haven’t had to take a Baclofen at night in months! I will be binge watching your videos!
Which particular b & t cells does mavenclad target? And what are your thoughts on risk of taking Mavenclad with Type 1 Diabetes plus age (mid 50s)? Also, would this med be considered for someone who is continuously, slowly progressive, however has also had very, very few relapses too? Oh, and how is it on the liver?
Relapsed after a month on year 2. Worst decision of my life having mavenclad. Im all for dmts and fighting it with force, but that drug ruined my life.
Hello, my father suffers from sclerosis and now he is taking mavenclad medicine and he made the left side shiver. Is this normal through medication? It is his first year And now its second week؟؟؟ Thanks
What are your thoughts in regards to discontinuing DMT if you are over 60 and appear to be stable in regards to MS. Had this conversation with MS doctor during my most recent visit. Seems a study has been done by the Cleveland Clinic looking at this. As always thank you for all the information you provide in your videos.
Chris, Dr. Boster don't like that idea AT ALL!! Surely he'll throw you a link to his recent rant on the subject. He wants you to continue treatment for as long as you enjoy living with your vital functions intact!! 🌸 💖 😘
I agree with Jerusalem warrior. A lady in my support group is in her 60s and she stopped treatment because no activity and her neuro thought she would be fine. She's not. She showed activity on her mri. :(
Good afternoon I had lumbar puncture that proved that I have MS doctors keep telling me only white women get MS twice two different doctors even though I had the lumbar puncture. MRIs prove that I have lesions and more than one place in my body.
