I am diagnosed Aplastic Anaemia in 2020. Did ATG. No response. Now due to fibrosis of liver I can't undergo BMT, ATG. I know I will die soon. But you nice people keep this planet healthy, loving and blissful ❤
saya kurang bisa bahasa inggris maaf pakai bahasa indinesia. anak saya. kena anemia aplastik. gimana cara penyembuhan nya tiap bln kontrol ke rs. sekarang udah 3 kali di rawat. saya minta solusinya. trimakasih
Sending Prayers to continue with a healthy life 🙏🏻 My daughter was Diagnosed with severe aplastic anemia last year. She is 25 it has been a long road. She did ATG last April number are still holding steady .
Hello! Yes, AAMDSIF sponsors patient-led support groups, available to anyone with a Zoom link. The June list will be posting later today, here: www.aamds.org/support/patient-family-support-groups
so happy for you 🙏 my son also had the situation 😥 he’s going on a bone marrow transplant nxt month 2022 6/6 he had a 90-99% match to his big brother 🙏my son is 18yrs.old
Half-match, or haploidentical transplants, can be successful. Here is a webinar recording for more information: What You Need to Know about Haploidentical and Cord Blood Transplants ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-Cz4oLVfA1mc.html If you'd like to contact our Patient Advocacy team, please email help@aamds.org with your question. Thanks.
@@AAMDSIF I am now on observation after Rabbit ATG since Horse failed. Am no longer on daily platelets or blood transfusions but on heavy drug with a doctor's appointment every week for the next three weeks. My bro was tested but results came out (not fully a match) I just hope I'll stabilise with the last ATG. But your story is like mine even the dates 😁😁😁
@@_martin_oduor_ If you'd like to chat with patients in a (Zoom) virtual support group, check out this page where we list upcoming online meetups: www.aamds.org/support/patient-family-support-groups. Other patients can share their experiences with you if you like!
