I came here via the Spiders Protection Forum... So maybe not as euphoric as last month but that had Idris in it and therefore will always be hard to top. But there are a number of positives which can be acknowledged. Even with this pandemic going on you managed to get out of the front door a few times - always good. You cracked on in the kitchen and not just with meal preparation. A daft quiz night with your mates and the same guys popping by to chat through the window are both good things. It all adds up. :)
So sweet of you to take the time to point out the good moments to me! We do tend to just remember the bad ones don’t we! And as for the spiders! They deserve to be eaten with their too many legs!! 😂😂😂 thank you for your support always x
Are used to love tennis! We used to play it every weekend in the local park! Hopefully we will both be able to play again one day but who knows! I am sorry that you suffer with chronic illness too! It’s something that is so hard for other people to understand but I really do understand and I’m here if you ever need to talk. X x
Soooooooo many of the things you have said are yes yes yes. I love your diary I’m just catching up as just not been able to. This illness is beyond cruel. So glad you do these it’s good to see #me reality💕💕💕
My occupational therapist recommends a perching stool for the kitchen as you can chop your food while sitting. I’m not able to spend much time in the kitchen (and they are not very pretty at all) so won’t get one until I am able to chop food etc regularly but considering getting myself one for the bathroom. Just a thought......! Xx
Creating Rebeccah I had a consultation with an nhs occupational therapist and was given a perching stool for the kitchen (so hideous🥴) and a removable stool for the shower and it’s really helped me! Nice to have a shower without feeling like I’m going to pass out! So definitely something that could make a difference to everyday life 💞💞
Thank you this is such an awesome idea! I will look into some kind of stool for sure!! Thank you so much for your support and I really hope that you are having as good a day as possible! Sending love and strength x x. X
I love Ollie! 🤩😍 My cat turned 20 last month 😭 she has been with me through a few bed ridden and housebound years. Thanks for sharing your vulnerability and being a voice for those of us who don’t have one ❤️ Hate to see you upset...very relatable though. Sending love!💞
20!! Wow that’s so old! Is that not like, the worlds oldest cat? Ha ha! Ollie is my absolute baby! I got him when I was 14 when I was in a wheelchair and he’s been by my side ever since through the highs and the lows ha ha! Thank you so much for taking the time to comment and for supporting my journey x x x
I've been dealing with this for 40 years. I want you to know that the terrible times have always been followed by better times. It never went away completely, but it's been perilously close sometimes, and perilously close can be damn good. You're in a bad patch. I do worry that that's because you are still pushing beyond what is truly within your energy envelope right now. It seems to me that this is a time to do nothing that feels too much, not 5 minute walks that entail getting dressed adding to the effort, not meal prep that leaves you feeling dreadful. Nothing outside what feels right for a while. I've recently had a bad patch that was definitely brought on by overdoing Covid 19 prep, but it's beginning to pass now after weeks of discipline. Whatever the case for you, it won't always be this bad. The other thing to remember is that we have never been this close to real scientific understanding bringing us effective treatments, and maybe even a cure. It used to be the whole community would get excited when we discovered that one obscure researcher somewhere was looking at us. Now, there are thousands of researchers working on this and good science is finally being done, and it's revealing much. You are well placed to benefit from this and to have good life. Please try to keep that in mind as you endure this bad patch. Take care of yourself!
Thank you so so much for taking the time to write to me. You are right, but it’s so hard to find the right balance when you want to push a tiny bit to kind of get your muscles stronger but also listen to your body and not do too much. I am still a place where I don’t really understand why I have days when I can do a bit more and it doesn’t feel completely completely awful and then the next entire week I’m in bed feeling like death! Still figuring it out ha ha! And yes the Covid 19 situation is also giving me constant anxiety! Anyhow! I really hope that you are coping okay and thank you for the positive words I would give anything for any sort of real treatment/cure!! So fingers and toes are crossed eh!!! Sending lots of love 💕💕💕
@@ItsAliceElla The understanding, treatment, and cure are coming. Finally, they are coming. So take good care of yourself until that happens. Relish the good times, and do not push yourself in the bad times because I can tell you that it never, ever helps. Your body will simply insist you stop. That's how it works. The hard thing you have to do to get back on your feet is not push through, it's rest through. And in that strange way that life has of moving forward, Covid 19 is illuminating ME in important ways as many come down with coronavirus, including doctors who had little understanding of the trial of ME, and do not recover as expected. We are nearly there, but much patience is still required. I highly suggest mindfulness meditation :0) And fingers, toes and eyes crossed ;0) Nearly there! Love back,
