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Ask Me Anything ALS - Women Living with ALS 

I AM ALS
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Ask Me Anything ALS is an idea born out of the community where I AM ALS advocates living with and impacted by ALS come together to answer questions from an audience of people who are seeking more information about a specific topic. The Ask Me Anything ALS - Women Living with ALS event focused on the unique challenges women face with ALS, including body image and body changes, working and the decision to retire early, dating and socializing, and platonic relationships. This conversation covered those challenges and more, as well as ways women living with ALS have navigated their ALS journey and found hope along the way.
About ALS
ALS is a disease that attacks cells in the body that control movement. It makes the brain stop talking to the muscles, causing increased paralysis over time. Ultimately, ALS patients become prisoners within their own bodies, unable to eat, breathe, or move on their own. Their mind, however, often remains sharp so they are aware of what’s happening to them.
About I AM ALS
I AM ALS is a patient-led community that provides critical support and resources to patients, caregivers and loved ones. We empower advocates to raise mainstream awareness and lead the revolution against ALS in driving the development of cures. Find out more on their website: iamals.org

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16 сен 2024

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Комментарии : 24   
@SoundGGirl
@SoundGGirl 3 месяца назад
What a fab group of ladies! 🙌
@jessyybarra
@jessyybarra Год назад
What a remarkable panel of SHERO's! I'm a 59yr old PALS and I appreciate hearing how you'all are making a difference in spite of your diagnosis. We're all in this together my sisters
@mother24538
@mother24538 11 месяцев назад
I’m a Nurse.Thank you for sharing.God Bless each of you!
@sallyruss4574
@sallyruss4574 9 месяцев назад
Thank you for being so brave and sharing this video with all you lovely women. You help others feel not so alone. God bless you all with healing.
@rickydalebradford3384
@rickydalebradford3384 6 месяцев назад
Is is Darlene and I am my husband's care taker. I will keep you all in my prayers.
@gailmcbride6333
@gailmcbride6333 Год назад
God bless these special ladies, I have niece who is 54 that was just diagnosed, so I am interested in what to expect. She has started to get treatments at the Miami clinic, but in’s does not cover it so I a, praying she can find ways to help her pay for treatments. You ladies are wonderful to share your experiences with us.
@IAMALS
@IAMALS Год назад
Thank you for sharing this with us. If you or your niece need support of any kind, please know that we are here for you! Our ALS Support Team can be reached any time at gethelp@iamals.org.
@jackyeferreira
@jackyeferreira 3 месяца назад
Any progress with treatment? Thanks
@webg03
@webg03 Год назад
What a beautiful group of people
@j.6023
@j.6023 Год назад
Thank you ladies, I really appreciate you sharing! I was diagnosed 4 months ago. My local support group, although wonderful, is all men. It's been wonderful to hear from women and the things that we all face that are different from men. Thank you so much for providing this!
@IAMALS
@IAMALS Год назад
Thank you so much for sharing this with us! We wanted to reach out and let you know that for this event, we partnered with Her ALS Story, a group designed for and made up of women who were diagnosed with ALS before the age of 35. You can learn more about them here: heralsstory.org/ We also wanted to let you know about our virtual support groups here at I AM ALS. Our People Living with ALS support group has many people of all genders who attend regularly. Check it out and see if you're interested: iamals.org/action/join-a-support-group/
@j.6023
@j.6023 Год назад
@@IAMALS Thank you ❤
@crystalr9633
@crystalr9633 Год назад
May I ask how you were diagnosed and what did your test show? I had an abnormal emg and recently was told my respiratory numbers are dropping I have some type of muscular condition and they are trying to rule out als...
@j.6023
@j.6023 Год назад
@@crystalr9633 Hi Crystal, I had problems moving my toes, so I had 3 MRI’s and then a nerve conduction study and blood tests. As I only know what happened to me, I can’t comment on EMGs, but I wish you all the best.
@tahirahira
@tahirahira Год назад
Incredible women !!
@Missy182
@Missy182 Год назад
Amazing women ❤❤❤❤❤
@colleenrajpaul6023
@colleenrajpaul6023 7 месяцев назад
Respect my sister passed from this diease
@GaZonk100
@GaZonk100 4 месяца назад
how in blazes did you cope - even leading up to her passing? my thoughts to you
@GaZonk100
@GaZonk100 4 месяца назад
only women could organise and manage this. . .cheers to you all
@sallyruss4574
@sallyruss4574 9 месяцев назад
Can you share contact information of Brooke. I don't have ALS but I am interested in volunteering to help others. I am deeply touched by this disease and learning from others life experiences. You are all truly amazing and what beautiful smiles you ALL have. When people speak of their problems, they need to speak to each of you!
@IAMALS
@IAMALS 9 месяцев назад
Please visit iamals.org to learn about volunteer opportunities! You can also follow Brooke on TikTok and Instagram at @limpbroozkit.
@sallyruss4574
@sallyruss4574 9 месяцев назад
Very sad NUROWN is not readily available.
@gykg3202
@gykg3202 7 месяцев назад
You all are very beautiful ❤😊
@shawnmcanthony5724
@shawnmcanthony5724 8 месяцев назад
Brave young ladies but soon no one will say i am sick in jehovah gods new world here on earth like in the garden isiah 33:4. Thats a fact❤❤ Jehovah god found in psalms 83:18 the almighy cares
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