Girl, I love this video because your so honest about dealing with FA. When my sisters or cousins tell me I don't know how you stay so positive over everything that's happening to you? I wish I could tell them, I have my bad days too. I feel you when you say you don't like to show emotions because you feel like a weak person. But we need to cry to release our frustration. I've cried even though I was raised guys aren't supposed to cry! It has been harder for me cause I'm a Male, I'm Mexican and I'm the oldest sibling. When I first started my journey with FA, there was no social media so I'm very glad I found your vlogs because in my 24+ years of my journey I finally found someone who knows what I've gone through. To this day, I have not personally met someone with FA. I thank you for your posts. I especially like when you travel cause I don't travel anymore.
Hi Madelyn, I don't know if you will ever read this but... I just felt like I had to tell this to you. I've been diagnosed with FA at the age of 13 and it's been getting worse since then. I'm 16 years old now and I still can walk on my own. I don't use a wheelchair or a walker (yet) but it's just growing more and more. I have depression because of FA and other things that happened in my life and whenever a bad thing happens, I just blame myself and I've been feeling lonely and Incomprehensible since the last year. I just wanted to tell you that I'm very glad that I found someone who understands my pain and your videos just make me feel like I'm not lonely in this world. Thank you so much. I really love your videos and please keep doing what you do. 🖤
FA is though but i promise you are tougher! And always remember You aren’t alone! Check out FARA if you’d like to get involved with the FA community made up of strong and impactful positive people! Thank you for watching my videos and supporting me. You are the reason I do this!!❤️
