Bad News At 20 Week Anatomy Scan || Possible Congenital Heart Defect 

Hi! I just wanted to say. I know exactly how all of this feels. I went through this at my anatomy scan and my girl was diagnosed with several different things. Fluid on the brain, missing part of her spine, and also a heart problem. I went into a state of absolute depression. I had tried for her for so long and was so devastated she had these things. My pregnancy was followed closely by doctors and she was delivered a little bit early. My girl is SIX months old now and defying all odds. If I could change ANYTHING, it wouldn’t be her. It would be how much I worried myself sick and cried during my pregnancy instead of just enjoying having my baby girl inside of me. Even though we are mamas and that is our job. Try and enjoy this time- when you finally meet your baby all those feelings go away when you realize how perfect your baby is. ❤️❤️ I am praying for you.

Good friend of mine just had her daughter who was diagnosed with HLHS while in the womb. She had open heart surgery a few days after birth and is doing amazing. Science is incredible these days and they can do so much. So much love to you and your baby, I hope she is just fine ♥️

My 2nd daughter was born with CHD that wasn't picked up until after she was born a coarctation the aorta. She had surgery at 9 days old. She is 4 years old now and doing really well. My 3rd bub at his 20 week scan was found to have a hole in his heart, we had to wait 2 weeks for another specialist scan to confirm. Finally the scan day came around and by that point the hole had closed up on its own. It's the worst feeling not knowing. Thinking of you and your family.

This video just made me cry. I am in the same boat right now as you when you posted this video. I’m currently 22 weeks and have confirmed RAA from 2 ultrasounds, I got an amniocentesis to check the genetic of our baby and have to wait 10-15 days for it to return from the lab. They scheduled me a fetal echocardiogram, but that appointment is still over a week and a half away. Knowing we aren’t in this alone is such a superpower. Thank you for sharing your story ❤️

I had the same exact diagnosis at my anatomy scan. They had me return after a few weeks for a scan with a pediatric cardiologist. I was completely heartbroken and it was the longest wait of my life. At the scan with the cardiologist, we got better news. He advised us that even with a RAA baby could be completely normal. He did go over the problems it could cause such as blood flow issues, feeding issues (due to a vascular ring), etc. He went over me being considered a high risk pregnancy/birth and told me that the NICU would be on standby. Thankfully what he saw he said he feels that our baby will be just fine growing up, but just may need some medical treatment when born. I have to return at the end of this month for a growth scan. We’re just praying that everything will be fine when little one gets here. I’m hoping you get some better news at the next appointment!

No words, no advice - just love & prayers. I pray you get the answers you need, there is no worse place to be than just stuck in limbo. Just want to reach through the camera and give you a hug. I will hold you, your family and your precious baby in my prayers each day and for nothing but the best possible outcome. We are with you Athina, we love you ❤️

Hey girl, so I want you to give you a little bit of hope.. when I got my 20 week scan they told me the exact same thing, they said it could be nothing but it also could be something.. I went into the hospital scan and they saw the same thing and had to go to many more appointments at the hospital to keep up with scans, and they finally at 30 weeks realized it was just a cyst and because he was so cramped in there because I don’t have a big torso, they thought it was his heart but it was in the top of his large intestine and when he was born they did another ultrasound on him and it wasn’t even there anymore.. they just give you the worst possible news they can so that it’ll be a little better when they give you what it actually is.. I hope your baby is the same and either way she is blessed with a wonderful mommy and daddy who love her! My little man is 3 months now and he’s so active already! Also he’s my second baby as well! Good luck momma be strong I know it’s tough right now but you got this! ♥️♥️♥️

I'm sorry about the news. We have a very good friend that had a baby with a heart defect and she did need surgery shortly after birth. She just turned 5 though and is completely healthy and happy.

Hello Athina, I was born with a rare congenital heart defect called Tricuspid Atresia. I've struggled with accepting my condition, but over the past several months I have started the process. I started a RU-vid Channel for parents and adults with CHD. One of my recent video series was for mother's day where I interviewed four different mothers of children with different congenital heart defects. I also interviewed my mom about her journey through my surgeries. Thank you for sharing your story for other mothers!

Hey momma. Fellow heart momma here. My son was born with interrupted aortic arch along with other defects and had open heart surgery at 3 days old. I just wanted to let you know that often times right sided aortic arches often don’t require intervention. If you have any questions let me know. It’s so hard waiting for answers - we had our 20 week scan and our midwife couldn’t tell us anything until we had our echo 2 weeks later. It was so so overwhelming. Just know heart babies are such warriors and so so strong 💕

Oh you poor thing that must be so scary not knowing 😢 Sending you big love and I hope your next scan goes well xx My husband was born with Ebstein’s Anomaly and it wasn’t picked up until he was 22! We obviously had terrible doctors who never noticed his irregular heart rhythm until he did a medical for a mine job. What it is: Ebstein anomaly is a rare heart defect in which the tricuspid valve - the valve between the upper right chamber (right atrium) and the lower right chamber (right ventricle) of the heart - isn't formed properly. As a result, blood leaks back through the valve and into the right atrium. He see’s a cardiologist every 12 months to keep an eye on it but they say it’s not effecting him too much (out of breath from doing physical exercise and high blood pressure). We have had our daughters tested and when I was pregnant they did a big scan at 24 weeks for the heart. She has a murmur but her echo showed a perfect heart so who knows. I hope you have the best outcome for your baby girl 💞

Lots of prayers! My heart breaks for you. I have to go back in 3 weeks bc he wouldn't turn for the tech to get photos of his heart or face. Now im sooo worried. I really hope she wasn't lying to us so we didn't worry

Our prayers are with you and your family. Please keep us updated because we all worry with you. Positive vibes sent.

😔😔 hoping and wishing that whatever it is, its something minor than easily be fixed and she lives a full healthy life 💜

Aww sending lots of love and support 💕💞💕 I wish I could take this heartbreaking pain away you’re beautiful princess will show them she how strong she is just like her beautiful mummy 💞💕💞🙏🙏🙏🙏

I’m so sorry, you don’t have to hold back your tears for your child. My youngest son was born with an arrhythmia. Its not anywhere near the same thing but It’s been limbo basically for 2 years for us monitoring the rhythm and everything etc. so I totally understand what you mean by that, they said it should resolve by 1 year old and he is 2 in May and we are now waiting his results for his extended heart monitoring again. And it’s a lot of waiting back and forth with so many possible outcomes and severity and never a clear cut answer yet etc. I am hoping the best possible outcome for your baby girl. Life is so unpredictable, you will get through all of this, but if there is one thing I can say. Never apologize for respecting the hard moments and allowing yourself to feel and process, don’t shove down and continue to find support with those who can relate to your life circumstances and experiences. Sending a hug. ❤️

I'm crying my eyes out I can't imagine how you're feeling I'm 34 weeks pregnant and lucky she's okay your so strong I'm so sorry xx

Oh mama, the worst part is the not knowing. I am so sorry you are going through all this. When my son was born they found a massive blood clot in his heart and had to do open heart surgery. The not knowing what was going on the feeling of being helpless was the worst. But he got through it. Doctors and medicine nowadays are incredible and no matter what happens your daughter will be in good hands and alright ❤

Praying for your strength and for the best possible outcome.

So sorry Hunni to hear this sad news about little 1 I wish you all the best and send you prayers and hope x💕

I know this sounds impossible but try not to think negative and get into a funk. There is nothing you can do but hope for the best and pray. Baby girl needs a healthy mommy. If baby has to get surgery you will get through it. Mordern medicine is miraculous. Praying for you guys

I just want to hug you Athina .. I know it’s hard to do but please try and not worry .. it’s great that you have a group to chat with.. take care my friend 😘💋🌻♥️💐 love x c

Jim and I went through a similar situation during our pregnancy. At the anatomy scan, they said that our baby’s heart was tilted at a 75 degree angle (due to enlargement) and appeared “thick.” We received two ultrasounds at two different offices (aka had two different techs look at it). We were then sent to a specialist (cardiologist) and it was not the case; however, Hinoki does have a very small hole in her heart which is normal for babies and often closes according to the doctor. I guess my point is that although it may seem as though baby girl has a heart defect, it may not be the case or it may be something very slight that can heal over time. Ultrasounds are very misleading at times. It’s really hard to see things clearly while a baby is inside of us. Don’t lose hope, don’t google anything else bc it’ll only show the worse case scenarios, and try not to get yourself into a slump. Let’s see what the results/next health care professional says. I had literal panic attacks bc I worried myself so much during my pregnancy due to unclear and false results. I hope all is truly well 💗💗💗!

Aw I’m so sorry, stay positive! I’m praying for you 🙏

Please try not to worry. I know its easy to say but everything will be ok at the end. You will see 😘❤️

My friend's baby was born with HLS. He had a rough start and has had 2 open heart surgeries but is a doing well now. Prayers for you and your family

Sending love, prayers and good vibes. Stay positive and know that you have so many people keeping you and your little family in their hearts and prayers. ❤️

Sending you so much love. You are being the best mum you can be at this point, don't be hard on yourself. Hoping everything will be more clear at your next appointment so you can maybe feel better with more answers.

There is always something called hope I will pray for u be strong

Prayers sent your way 🤞😊, really hope both yourself and baby girl are ok. Xxx

Aww sweetie, I’m so sorry u are going thru this. I know exactly what u are feeling. I was a high risk pregnancy due to epilepsy so I went in for a scan and the tech said to me I’ll be bck and got the dr. She starts scanning me then quickly stops. And throws it all at me...my son had an extra valve, a whole in his heart, spots in his brain and too much fluid in his kidneys. Oh and also believed he had spina bifida! I was then taken to a counselor who discussed aborting the baby! I absolutely refused. Next ultrasound the exact same thing! Finally I went to my next one (bc I had to go every month) and it was a different dr in the practice, he proceeded to tell me yes there is an extra valve and a hole in his heart but didn’t see any of the other issues! Talked abt possible surgery for the hole if it didn’t correct itself but he wasn’t worried at all. Sure enough when my son was born we watched the hole and it closed by his 1st bday and he has a slight murmur but is a happy healthy almost 8 yr old! But the whole time u are a nervous wreck! Sorry it’s so long but u are not alone hon! Hang in there and many prayers for u and baby girl! Xoxo 🙏🏻💕

I will be praying so hard for you and baby girl!! 🖤🖤

Easy for anyone else to say darling, but the neonatal medicine now days is absolutely wonderful! I saw a lady on here whose baby boy had spina bifida and he was operated on during the time he was still in her womb! He is here now and he is home and I just found the whole thing unbelievable, they literally closed his spinal chord while he was in his mums womb! I am praying for you sweetie xx

Sending you my love and all of my prayers for you, mama. ❤️

Athina, this breaks my heart to see you cry. I cant imagine the fear you felt in that moment. I wish I had any sort of helpful information for you, but I am not familiar with this prognosis.

Praying for your sweet pea! God has you!

Yous are in my thoughts. Hoping on a miracle that it's nothing. Devastating to say the leaat.

I’m so sorry on the bad news I will be praying for your little girl

Sorry to hear that i hope everything is ok and goes good. My daughter is 6 pounds and her body is measuring small, they said the weight is in her stomach so her belly is bigger than the rest of her body and i think her arms and legs are shorter than they are supposed to be and she also had fluid around her i think it was either her lungs or her liver but she said that's normal around the end of pregnancy. But im hoping she comes out completely healthy. Im due in 3 weeks

Angel is totally adorable

My fiance has a friend who's baby had open heart surgery after birth and she is a happy healthy 2 year old! I hope everything goes ok!

My brother Thomas was born on June 12th 1996 and he has HLHS! He is a totally normal young man! Thriving - only difference is he has a ‘zipper!’ (What we called the scar on his chest!) He is 23! 😊

Currently waiting for the news too having a ultrasound on a Saturday and told we had to wait til monday for further tests. They think she has HlHs and we are devastated. We have to wait now for tomorrow fingers crossed all is ok

I'm am so sorry I can't imagine how you are feeling. Not knowing is the worst. I pray that it's nothing and just a big scare. Curious, did you take any medications during your pregnancy?

Sending lots of love and light ❤️

Modern medicine can do wonders, have faith It’s gonna b ok

Sending you all the love❤️

Prayers 🙏

I'm just had my 20 week scan the same thing happened I'm waiting for my report

I too showed today, and in anamoly scan we found heart defect and club foot, and dr suggested to terminate 😣😣😣

Keep your faith gods in control prayers love ❤️🌹🌹🌹🌹everything will be ok❤️

It may be a double arch ... you really do need to wait to get an MRI scan... the only person that can give you a clear answer is a cardiologist. GP's and techs do not have the ability to give you the answers you need. An ultrasound can't give you a clear enough image to make a formal diagnosis. Insist on a referral to a specialist.. DO NOT google it as you ( along with 99% of the population) don't have the knowledge to understand the information. Having a tech and GP give you info on a heart defect is like going to the cinema to go swimming! the image of a ultrasound cannot see all of the heart that is why you need an MRI or even a CT scan to see all the structures of the heart including the back of it. Be patient and try not to jump the gun on the worst case scenario. Get on the phone and get this escalated above midwives , GP's and techs heads to someone who specialises in this field, take care and sending a tonne of love from Tina xxx

💕thinking of you all💕

My 4 year old son has CHD :) he has hypoplastic right heart syndrome which is essentially half a heart x

Your tech knew something was wrong with your daughter . No mom want to know bad news about their unborn baby

❤️❤️❤️

🙏🙏🙏🙏🙏🙏

It’s so so hard. We found out at 20 weeks that our baby had a heart defect. We had to have multiple fetal echocardiograms during pregnancy. Every one was so heart breaking for us. We knew what she had, but never knew if she’d need surgery until she was born. She ended up needing surgery. The team that took care of her were the best people I have ever met. Pediatric cardiologists are some of the most wonderful people you could meet. Worry plagued that pregnancy for me. What I wish I would have known was what an amazing person my daughter would be. How spunky, beautiful and strong she is. How she could go through all of the things she went through and make our lives better because of it. Your baby will be beautiful, strong and perfect. She may have a heart defect, but that is only a little part of her. The person she will be is amazing. Through all the fear and worry, I wish I would have known my daughter... if I would have known her when I was pregnant with her, joy would replace some of the fear.

Να ένα θετικό που είστε Αυστραλία!!! Ελλάδα θα χες απελπιστεί με τους γιατρούς εδώ! Εκεί όλα είναι πιο εξελιγμένα, θα το αντιμετώπισετε Αθήνα κ όλα θα μοιάζουν σαν ένα κακό ψεμμα! εχε πιστη! σαν μαμα 2 παιδιών νοιωθω τον πονο σου σε κάθε κύτταρο μου 1000000% ❤️❤️❤️❤️❤️όπως λέει και η Μαρινα τελευταία όταν με βλεπει στεναψωρημενη "Όλα θα πάνε μια χαρούλα!" να παίρνεις δύναμη από τον άγγελο σου, την Αγγελική σου!!!!!

I'm 22 weeks and had a similar situation happen. I have an autoimmune disease so I was referred to a high risk OB for a precautionary fetal echocardiogram. Same day we did anatomy scan a cardiologist reviewed the baby's heart. I heard three people mention something was reverse :/ My son has transposition of the great arteries. One thing that can go hand in hand with heart disease are various syndromes. We also found out he has a 50/50 chance of a 22q micro deletion. I'm looking at this so far as a silver lining. Technology is so great these days,and I may not have found out in time to have my son have the best team available at birth. He will need surgery,but he will be born right into the hands of a top pediatric cardiac team because of the early catch. I wish all the great things in the world to you and your family and hope you can just hold on to the fact that knowing now means your little one will have the best shot and care just as I am

Wow look at all the HK mums and friends of HK parents in your viewers!! Us heart kids mums are so bloody strong and have a fantastic support team around us.

I feel you so much on the “waiting over the weekend” thing. We went through that when we were finding out if our 2nd son had Down syndrome or not, and the amniocentesis results didn’t back to us until after the weekend. Longest, hardest weekend of our lives. Turns out he did, in fact, have Down syndrome, but I was just so relieved to finally have a yes or no answer. He had surgery the day after birth because of an intestinal abnormality, and he’s absolutely amazing. 10 years old and a giant mess, but the coolest mess!! I’m sending you tons of prayers for strength and wisdom!

Sending so much love, positive vibes and prayers ❤️❤️❤️ babies are resilient, so even if baby girl needs surgery just know that they are little fighters. Hugsss

Sorry to hear about the news you got about baby girl. I believe that your baby girl will be fine. My doggy says cheer up because The sun'll come out Tomorrow Bet your bottom dollar That tomorrow There'll be sun! Just thinkin' about Tomorrow Clears away the cobwebs And the sorrow 'Til there's none! When I'm stuck with a day That's grey And lonely I just stick out my chin And grin And say Oh! The sun'll come out Tomorrow So ya gotta hang on 'Til tomorrow Come what may Tomorrow, tomorrow! I love ya tomorrow! You're always A day Away! When I'm stuck with a day That's grey And lonely I just stick out my chin And grin And… I'm praying for you and baby girl.

Im going threw this now my 12+4 week scan it took an hour too the ult tech was just like baby was moveing too much and she couldn't get the pics she needed got asked to wait to try and get more pics, just got the report today and baby has a right ventricle heart problem now being refered to a specialist im besidd myself with worry and trying not to stress im waiting on a specialist appointment.

With faith and hope and prayers you will get through this 💕hopefully there’s nothing there and she’s ok

Hi Athina, I’m writing to you because I’m on the exact same boat as you are right now. It’s been so so difficult taking all this news in. I’m 25 weeks pregnant right now also with a little girl, & they’ve diagnosed us with HLHS, idk how I’m handling it all, I’m honestly terrified. If you ever want to talk about anything I’m here! I also have a channel & haven’t found the courage to update my followers on our situation but seeing your video has given me courage. I’m here with you a long with a lot of other moms that have gone through this. ❤️ I’ll be keeping up with your videos!

Oh mama, I’m so sorry. I will keep baby and ur family in my prayers ❤️

I was told my eldest daughter had a heart problem at my 20 week scan I went to see a fetal medicine doctor who said she was ok and she is perfect although they missed her stomach problem Hope everything will be ok for u at ur next scan

Oh babe sending positivity and love to you right now🥰my mums best friends daughter had hole in heart from in womb, back in the 1970’s given hardly any hope then- she’s now 43 yrs old had 2 kids - quite a few ops, but she was ok. I don’t know about heart defects but I think science can be a marvel nowadays so if it’s something Baby girl will be in best hands ...... lots of prayers to you too ♥️🙏

As always, I'm here for you through this journey. It's okay to not be okay. One step at a time.

I had a scan at 20 weeks and they said that my placenta was not attached properly to my uterine wall. Basically told me to wait it out for 2 weeks and not to lift anything not to vacuum or anything as it could rupture and cause me to bleed out. So I stressed out for the two weeks until I saw a specialist and had a 4D scan. Turns out the sonographer was 100% wrong and was just incompetent. I’m hoping this is the case for you. Get a 4D/5D scan and a proper specialist xxx

No matter what, you will get through this. Thinking of you and your family and praying for the best news. 💖

Don't apologize for crying. I know it's hard. It's good to cry. Sending prayers. ♥️♥️

I have a now toddler who needed surgery at birth due to a complex congenital heart defect. He is 3 and has had 4 open heart surgeries BUT he has normal oxygen and circulation now. He is a vibrant, loving, smart 3 year old who (because of these surgeries) can live a normal, happy, healthy life. Praying for you and your sweet girl.

I will pray for you. Sounds serious. If anytging my best friends daughter had surgery right away in her heart as soon as she was born and is thriving 5 months later. She will need furure surgeries, but technology and knowledge of all these things are better these days. Sayimg that I know this is scary and dangerous for a baby, but God and family will help you and baby get through this. You have come to far for this and I know you both are fighters❤ Please keep us updated because we genuinely care as a mother's community

Oh sweetheart I'm praying and sending lots of love and hugs. I actually know someone that was born with a heart defect hes had operations and hes completely healthy he works he goes out partying. I think hes 26 now. Hopfully I will good news at the next scan. It's the waiting that the worst. I hated being in limbo when I was pregnant with the complications I had. The way u did this video tho and how humble and calm u are just wow. Thinking of you hon ❤

Hi Angel

Oh, dear one...sending love and support from across the miles. I have a nephew who had a Fontan procedure 12 years ago. He is the most amazing kid and doing very well. Thinking of you and holding you up!

My cousins son had a condition that went unnoticed on scans.. he has tof/tef which required surgery at just a few days old.. He had so many surgerys over his first years. Hes doing well now.. hes going to be 4 soon. I know its not the same but its similar in some ways.

Sending all my love your way hun she will be perfect no matter what xxxx

I am so sorry you're going through this. I am here for you if you want to talk or need anything. I just said a prayer for baby girl that you get the best possible outcome and that it turns out to be nothing. It's very possible that what they thought they saw at your last scan they won't see at your next scan when baby girls hearts a little bigger and easier to see. I am Sending lots of positive vibes and hugs your way. ♥️

I'm thinking of you and sending positive vibes. I can't change the outcome for baby girl but I can let you know I am rooting for her ❤️❤️

Sending prayers and trusting that’s God will remove and heal any element wrong with baby girl

So sorry to hear what ur all going thru atm... sending lots of love and positive vibes ur way for next appointments... keep us updated xxx

Sending strength and love to you hun💗 Medicine is so advanced,whatever it ends up being have faith they can fix it💗 Sweet baby girl and you will get through this! XO

Oh bless you, the wait is the worst, I'll be praying for you and hoping it's a good outcome x x x

Aww I'm sorry it hear your news, sending you all my love and best wishes xxxxxxxx love you all xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Praying for you and baby🙏🏼 try to breathe and think positive thoughts.

I am so sorry that you are going through this I can’t imagine what your going through, I will keep you in my prayers

I’m so sorry 😢 I hope everything will be okay. ❤️ Thinking of you all 😘

Praying this is not true, keeping you and your little princess in my prayers 🙏 ❤ ♥.

I’ll be praying for you. I hope all is well with little princess.

My heart hurts for you :( I hope and pray everything is fine xxxx

My son was born with a congenital brain defect called hydrocephalus! It was terrifying and we only found out when the baby was 3 months old .. he had sugery and hes great and amazing now !! Hope everything goes well in your journey

Sending lots of prayers mama! Stay positive for baby girl!

God is with you Darling avrything is going to be okay 🙏

Sending you and your baby all the positive vibes...

Sorry to hear about your daughter having a heart defect . I’ll have her in my prayers

I’m so sorry to hear the news about baby girl - I can’t imagine what you guys are going through. I’m praying that everything turns out ok ❤️ I’ll be thinking of you all & sending lots of love, hugs & support xx