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Battling DIPG: An Incurable Childhood Brain Tumor 

Oregon Public Broadcasting
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As 4-year-old Vivian Rose Weaver from Husum, Washington, fights a terminal brain tumor, her parents balance end-of-life decisions with making each moment count.
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26 сен 2024

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Комментарии : 982   
@troyf374
@troyf374 5 лет назад
Stories like this are so sad. I have terminal brain cancer & I always think to my self thank god it is me and not my daughter. Even with that I am so scared to not be there for her when she get's older.
@gentryPR
@gentryPR 5 лет назад
Sorry to hear this :(
@Peace_and_Love_777.....
@Peace_and_Love_777..... 5 лет назад
You will always be there with her! ❤ Just like my Dad is for me even though he passed away years ago... have you thought about doing daily vlogs dedicated to her?
@waterlily5670
@waterlily5670 5 лет назад
You are a true soul, God bless you !! Yes you will allways be with your daughter, spiritually.
@arrymitchell1982
@arrymitchell1982 5 лет назад
Omg!! I am so so sorry☹️☹️☹️ I cannot even imagine what your going through or how you feel but I know this....God will take care of you and their is definitely 💯 life on the other side. Don't worry and know that your daughter will always have you no matter what. You will see her again. Also I hope you are able to live your life to the fullest ❤️🙏💗 until God calls you home. I wish you all the blessings and love in the world.
@lizdiaz4169
@lizdiaz4169 5 лет назад
May God Bless You and your daughter .. 🙏🏻🙏🏻
@vivyadgreat
@vivyadgreat 5 лет назад
My 5 year daughter died of DIPG just one month ago..Hope no parents ever suffer the pain we are suffering after seeing our cute babe suffered for nearly 2 months and then succumbed to her fate..
@Idkbrosef
@Idkbrosef 5 лет назад
My 5 year old brother has it now. He has DIPG and was diagnosed april 2nd or 3rd. More info on the "Mighty Matt" facebook page
@deanalong211
@deanalong211 5 лет назад
I'm so sorry...we lost our beautiful daughter in 2005 with the same tumor. So hard, and miss her so much. Love and hugs to you and your family. The longs
@Idkbrosef
@Idkbrosef 5 лет назад
@@deanalong211 thanks, im sorry you guys had to go through it.
@Julia-en5ys
@Julia-en5ys 5 лет назад
Sending strength to your family💛
@ella-bt8hp
@ella-bt8hp 5 лет назад
So sorry to hear from families who have suffered the loss of a child from this horrific Illness. As a parent myself I can't imagine how you cope with something like that 💔💔💔
@LeaskleineWelt92
@LeaskleineWelt92 4 года назад
My four year old died of DIPG. He was a great soul and even though he is gone I love him to pieces. I am thankful for the wonderful time we had together but I wish for others not to have to go trough this, a cure MUST be found. Please!
@pamelaraney4654
@pamelaraney4654 4 года назад
z1cke92 truly my condolences
@othersbyuri
@othersbyuri 4 года назад
So sorry about your angel😭
@daughterofaking1562
@daughterofaking1562 3 года назад
I'm sorry for your loss dear can you tell me the symptoms
@missyartistic1760
@missyartistic1760 3 года назад
Cures ARE found.. this is simply genocide. Sorry to tell you. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-uSw0nc914IM.html
@Reiko9
@Reiko9 3 года назад
@@missyartistic1760 fuck off
@gentryPR
@gentryPR 5 лет назад
They have got to do more research on this!!! This DIPG is so devastating. These babies don't deserve this!
@nancyfarkas3592
@nancyfarkas3592 5 лет назад
They are trying but so far nothing is working. They have clinical trials and such but so far nothing is working.
@camilamontoya3447
@camilamontoya3447 5 лет назад
Noone does not just kids!
@gentryPR
@gentryPR 5 лет назад
@@camilamontoya3447 ok lol
@donatedbaconunicorn8853
@donatedbaconunicorn8853 5 лет назад
No one does
@gentryPR
@gentryPR 5 лет назад
@@donatedbaconunicorn8853 DUH. My reply is specific to THIS video. My comment pertains to THIS video. MY opinion is for THIS VIDEO.
@madamjaynie87
@madamjaynie87 5 лет назад
This is the most unfair disease ever... There was a little girl in our area that I watched progress though the disease and I thought why isn’t more being done.... It just makes your heartache for these poor babies....
@TheSpiritualPhysicist
@TheSpiritualPhysicist 5 лет назад
and the most mistreated
@fefemyluv
@fefemyluv 4 года назад
Between this and ALS, they break my heart.
@pallavisreetambraparni6995
@pallavisreetambraparni6995 4 года назад
very true
@missyartistic1760
@missyartistic1760 3 года назад
The absolute horror is to know there are cures. Its a big genocide done by the elites, just watch the doc ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-uSw0nc914IM.html. Its not only the covid lie... the whole medical science is a lie
@amberowens5381
@amberowens5381 3 года назад
i think all diseases are unfair..
@luvdaturtles
@luvdaturtles 5 лет назад
I know two families who’s daughters had DIPG. So sad to watch them go through it. You’ll always be remembered Tatum and Molly.
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 года назад
So sad
@Susan-d5d
@Susan-d5d 4 месяца назад
So heart breaking
@katemillis8372
@katemillis8372 4 года назад
It turns out that I know her uncle, she recently passed away at the age of 5. Rest in peace Vivian.
@barbibutton9619
@barbibutton9619 4 года назад
Omg...I was wondering. Her poor parents must be heartbroken
@heatherwilson6221
@heatherwilson6221 4 года назад
That’s so sad I’m so sorry for there loss that breaks my heart 😞😔
@abi-gailboothe2633
@abi-gailboothe2633 4 года назад
My gosh 😔. I can't imagine the grief they're enduring right now. May God comfort their hearts and give them hope
@chelbydavis8202
@chelbydavis8202 4 года назад
It breaks my heart. It's very sad
@ceeshanks8319
@ceeshanks8319 4 года назад
😢 Sweet Vivian. May she be rest in peace in the arms of Jesus. My prayers go out to the family. I can't imagine that pain.
@Bastian6z9
@Bastian6z9 5 лет назад
My little sister savannah has dipg and shes only 11 diagnosed back in november and i know the pain you guys are going thru and no one deserves this keep your head up guys. Shed want it. Bc ik savannah would
@lolinut
@lolinut 5 лет назад
Bastian6z9 i‘m so sorry for you.💗
@the8cuevas552
@the8cuevas552 5 лет назад
so sorry ur family is going through this! i will be praying for your little sister!
@vernamorales9816
@vernamorales9816 5 лет назад
I'm praying for you !!!!
@sodone4078
@sodone4078 5 лет назад
So so sorry 😢
@Idkbrosef
@Idkbrosef 5 лет назад
My brother is 5 and he has it too. How is your sister?
@wesbravo8251
@wesbravo8251 Год назад
My 3 year old daughter was just diagnosed. She is our only child. I'm continuously praying for her and for other children. It's my sincere hope that funding increases as awareness spreads. Please spread the word if you can.
@loriijanee
@loriijanee 10 месяцев назад
prayers ops
@beth6288
@beth6288 3 месяца назад
Peace and love to you ❤✌️
@kahrlenhenryck56
@kahrlenhenryck56 2 месяца назад
I have a problem that is trying to kill me. A few months ago I started chewing cloves. First it was 1 or 2. Now it is 6 or 7, 4 or 5 times a day. It has made a big difference and I feel that I am finally winning.
@amber.6909
@amber.6909 5 лет назад
It broke my heart when the mother told her child to close her eyes. Imagining what what this family are going through, is so unbearable
@garrettweber7062
@garrettweber7062 4 года назад
I am 21 years old and I was just diagnosed with DIPG three months ago. This video has truly made me cry somebody’s so Young has no reason to die so quick. God has bigger plans for this young lady and her family. I believe she is going to a better place. As will I eventually. It’s a horrible reality to overcome each and every day my life is been taken away from me. There is nothing that can help. I love my family and my girlfriend to the death. I plan to guide them through this thing called life once I’m upstairs in heaven.
@StephAnie....
@StephAnie.... 3 года назад
😔
@christiefrater9844
@christiefrater9844 3 года назад
I wish you the best of luck young man!!! I m still in tears over this video it's truly sad little ones and people going through all this at a young age!!! There is a better place for us all I hope you don't see yours any time soon!!! Take care of your self and your loved ones!!!
@Princessslayer00
@Princessslayer00 3 года назад
Start writing in a journal. Random things. The good bad and the ugly. Leave it for your family and gf.
@jennyd5728
@jennyd5728 3 года назад
I’m so sorry you are going through this.
@Reiko9
@Reiko9 3 года назад
@@Princessslayer00 he passed away
@red-lotus1
@red-lotus1 5 лет назад
Please take me instead of one of these children Lord. I’ve lived a good life.
@sneepsnorp1404
@sneepsnorp1404 4 года назад
I'm progressively ill and honestly I'm so glad it was me and not some sweet little youngin. I mean I'm only 20 but still, better me than a child. It would just be so hard for them to understand.
@Hari-bz1mh
@Hari-bz1mh 4 года назад
@@sneepsnorp1404 You are very young. Praying for your recovery.
@yessikacee9427
@yessikacee9427 4 года назад
Look at all those chickens such a beautiful soul to say that🤧♥️Praying for your recovery and sending you strength🙏🏼🙏🏼
@sneepsnorp1404
@sneepsnorp1404 4 года назад
@@Hari-bz1mh Thank you 💕
@sneepsnorp1404
@sneepsnorp1404 4 года назад
@@yessikacee9427 I am humbled. Thank you so much 💕🌺
@Howiesgirl
@Howiesgirl 5 лет назад
I'm usually pretty good at getting through the tragic illness videos, as I've been through leukemia with my husband, & I've been dealing with a chronic cancer myself for over 4 years. But when I saw little Vivian in her daddy's arms as they danced, I lost it. I'm still crying. I'm crying for them, but also for the little-girl me who's daddy died when she was only seven. I can't imagine being a parent who has to face the oncoming death of their child. Life can be so cruel.
@ticklethypickle6368
@ticklethypickle6368 5 лет назад
I can’t imagine that little girls fear & confusion and her parents heartbreak. This is so so wrong ☹️
@simplymoss
@simplymoss 5 месяцев назад
My friend just fied of DIPG. She was 13. It was around 1 PM today. It just hit me that shes gone. Love you, Sophie
@Totalchaos0228
@Totalchaos0228 4 года назад
We so often take for granted having healthy children. This is just so sad. Seeing her little sparkly boots on that table....
@daniellenichols9757
@daniellenichols9757 4 года назад
I can't imagine the soul crushing pain of no longer feeling the warm embrace of you child. The absence of her tiny arms around mom and dads neck 😭💔
@susanoldham7752
@susanoldham7752 3 года назад
We lost our darling grandson Jack to this horrendous disease in February 2020 💔 He fought so hard for 12 months... We love and miss him every moment of every day ☹️😢 #forever4💙
@pallavisreetambraparni6995
@pallavisreetambraparni6995 3 года назад
I am so sorry
@jarey9222
@jarey9222 2 года назад
I am sorry for anybody else that has to go through this, my 12 year old brother was diagnosed 3 months ago and it is a whirlwind of emotions
@loriijanee
@loriijanee 10 месяцев назад
prayers ops
@jarey9222
@jarey9222 9 месяцев назад
Update my brother passed in September we gave him the best 1.5 years we possibly could. I love and miss him so much and hope to meet him again in the afterlife. Please, if you want to read about his story search FrommieStrong online.
@ashandthecats
@ashandthecats 9 месяцев назад
I've heard that when diagnosed in older kids DIPG is less aggressive, is that true? how things went for him?
@KimorasMommy
@KimorasMommy 3 года назад
Turned this on and the little girl has my grandmas name that died of cancer when I was 11. Hearing her name just brought me to tears. Sending the family prayers and ♥️
@user-le8xi9xi2i
@user-le8xi9xi2i 5 лет назад
When she said unreasonably optimistic- I felt the tears When the father daughter dance started - I balled 😓
@gladysvogel9442
@gladysvogel9442 3 года назад
So sorry for the loss of your beautiful child....May God comfort and keep you in his care...Now and Always.
@senoraantero2836
@senoraantero2836 5 лет назад
Poor poor baby.. my heart breaks and I feel for her parents .. God Bless all those having to suffer from this.
@MaestroStefanoPetrini
@MaestroStefanoPetrini 3 года назад
begin to realize that we are only animals who get sick and in the eyes of the universe we are nothing.*Ps any god doesn't exists
@andreaa1659
@andreaa1659 3 года назад
If there was a god, wouldn’t he be the one making them suffer, if he, according to Christians, controls everything? And what would his blessing do if he made them suffer? There’s no God, and if there was, he would deffinetely not be loving how Christians picture him, but very mean and cruel
@IndigoRoses7
@IndigoRoses7 5 лет назад
One thing I'm thankful for, all the children I've seen struggle with this seem to have amazingly loving parents. Thank God for that
@TheBritot
@TheBritot 5 лет назад
God bless Vivian and her family. Praying for them.❤
@MaestroStefanoPetrini
@MaestroStefanoPetrini 3 года назад
begin to realize that we are only animals who get sick and in the eyes of the universe we are nothing.*Ps any god doesn't exists
@poloab2273
@poloab2273 10 месяцев назад
😢😢😢😢😢😢😢😢😢😢 it is horrible disease , my daughter was passed away on October. I was watching,this video before that happed , after that 😢😢😢 , that happed again to me . I wish all of kids which has this disease 🦠 have gotten the medication. It is painful .God bless all kids
@ScarlettM
@ScarlettM 4 года назад
Car-T cells cleared most of DIPG cancer cells from mice in a Standford research in 2019. I hope the treatment will be approved for humans soon and Vivian will share a miracle story with us.
@jaelynmerchant6244
@jaelynmerchant6244 4 года назад
she passed 5 days ago. that sweet girl
@garrettweber7062
@garrettweber7062 4 года назад
I will be the second candidate in Seattle doing that
@absidyabsidy2727
@absidyabsidy2727 4 года назад
@@garrettweber7062 best of luck man
@marylennardi6201
@marylennardi6201 3 года назад
@@garrettweber7062 good luck!! Hoping for the best!
@Reiko9
@Reiko9 3 года назад
@@marylennardi6201 sadly he died this year
@Elizabeth_-lq3jk
@Elizabeth_-lq3jk 4 года назад
Vivian rose passed away at 10:40 last night. This world is so cruel.
@magda3102
@magda3102 4 года назад
Si triste !!!
@pallavisreetambraparni6995
@pallavisreetambraparni6995 3 года назад
Very sad
@lejlaletic7591
@lejlaletic7591 5 лет назад
I can literally feel the raw desperation from the parents.... I hope Vivian is stable ❤️
@Elizabeth_-lq3jk
@Elizabeth_-lq3jk 4 года назад
Lejla Letic she passed away at 10:40 pm last night surrounded with people who loved her
@barbibutton9619
@barbibutton9619 4 года назад
@@Elizabeth_-lq3jk so sorry to hear. Hoping her parents are getting by...nothing could be more tragic
@vanessaderenzio8541
@vanessaderenzio8541 3 года назад
I can't imagine being a doctor going through this because you know exactly what they're saying and the prognosis.
@cryptidforsale_
@cryptidforsale_ 2 года назад
At my school, a teachers daughter had this disease. She passed away in November. It’s so sad to hear about. Sending love to anyone who unfortunately has to go through this
@celestialstar124
@celestialstar124 5 лет назад
Sorry to hear about it. Hope she doesn't have to suffer too much discomfort n live cheerfully.
@julievanderleest
@julievanderleest 3 года назад
The title alone broke my heart. The moment I saw Vivian’s face, I just cried. Such a brutal disease no child should ever have to endure. Precious little girl.
@salami3058
@salami3058 5 лет назад
My parents work at OHSU and they are trying their best!
@applejellypucci
@applejellypucci 5 лет назад
What a beautiful child and such loving parents.
@Susan-d5d
@Susan-d5d 4 месяца назад
So sad 😞 hearing about this …I know a 7 year old boy 😢who has it .. Breaks my heart watching this children suffer .. I hope and pray they find a cure one day.. Vivian’s family taking her dancing .. Her parents are so amazing …My thoughts are all the children 🧒 DIPG .
@miriamr.5096
@miriamr.5096 5 лет назад
My little treasure.. 💝💝 It is very sad to see that a child is suffering in this way 😞 love for her family, so courageous and strong 🌹💖💖🌟
@takwaxaweelew8017
@takwaxaweelew8017 4 месяца назад
These beautiful children are always surrounded by the most loving families and communities. Such a sad scenario. May a cure be found very soon.
@hunterskia4071
@hunterskia4071 Год назад
My 10 year boy is suffering from this disease,its so brutal
@Fazzer57
@Fazzer57 6 месяцев назад
Heartbreaking story. I am so sorry for the loss of your beautiful daughter. God Bless all the family. RIP Vivian 🌹❤️🌹
@jasonups5386
@jasonups5386 4 года назад
Very sad to see kids like this or even adults going thru this. I myself have brain cancer and it came back the 3rd time. Have two daughters 23 and 14. I want to make for my youngest graduation. I have hope everyday but I still truly believe in GOD. I am not afraid but I know when I’m called upon then it’s my time. Remember the best medicine is within and do something active and don’t stop living the Life we are given. I also hope this little girl is still around. I am not sure what the update was. 🙏🏻 Pray for all cancer patients
@margief1798
@margief1798 5 лет назад
Such a brave and courageous little girl.
@bdlimea7018
@bdlimea7018 5 лет назад
Stories like this are why I have such a hard time with faith. Why do babies have to suffer? They should live long lives, not suffer with brain tumors. I don't understand.. Both of your daughters are beautiful.
@eej902
@eej902 5 лет назад
Dude no one makes it out alive. Has nothing to do with faith
@Kidnapthegovernor
@Kidnapthegovernor 4 года назад
3 year olds getting brain tumors is all part of “gods plan” apparently
@xoivufueuduxucja1804
@xoivufueuduxucja1804 4 года назад
M 98 ridiculous, isn’t it?
@chrisbruggers8076
@chrisbruggers8076 4 года назад
Just accept that there is no plan... it may be more comfortable to think there's some intelligent being planning every second of your life and death, but there's not... technological advancement is the closest thing to god you will find. As Arthur C Clarke said, "any sufficiently advanced technology is indestinguishable from magic." Technology is the only real chance we have at an afterlife.
@jscjrmom1075
@jscjrmom1075 4 года назад
BDLIME my niece was one of 7 children that were killed when a tornado hit their elementary school. The kids were following the teachers safety plan and hiding under tables in the lunch room. She was actually under the same table as her sister & brother. They watched her die. That’s when I started question Why God would do this considering a tornado is in itself an act of God. I still struggle with it. So, I understand your feelings. 💙
@shemarlove1409
@shemarlove1409 4 года назад
I lost it when she rang the bell after receiving radiation. 😭
@marialee627
@marialee627 5 лет назад
This is terrifyingly scary one week they are normal then this tumor hits them and shortens there life expectation so so sad as no cure so you see your child deteriorate in front of your eyes how the parents cope with this I will never know as the strength it must take just to get by day by day is something I don't possess God bless them all
@elainebird58
@elainebird58 4 года назад
I'm just about freaking tired of cancer, and parents being robbed of their children, where is the freaking cure?
@angelxtasy
@angelxtasy 3 года назад
I can’t watch these kind videos. It’s so heartbreaking. AS i watch this, my soul is hurting for the baby girl. Lord please hold her in your arms, and hug her with your spirit. Let her live her days in love and harmony, until its her day to go back home to you oh lord. Amen.
@sallymccoy6286
@sallymccoy6286 5 месяцев назад
I'm so sorry for the loss of your precious baby girl. No more pain, chemo, radiation. She is running around in heaven with other little Angels to play with. Be strong. May God continue to give you comfort and peace.
@EddieTruckingAdventures
@EddieTruckingAdventures 4 года назад
This is so sad. This reminds of Little Stevie Lynn Stock who died just 10 days after her 3rd birthday
@alisonorigel573
@alisonorigel573 3 года назад
Sending love and prayers to this family. We lost one of our twin daughters to this cancer at age 10. She passed away 39 days after diagnosis. 💜
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 года назад
I am so sorry for your loss
@randomvintagefilm273
@randomvintagefilm273 4 года назад
What a brave little girl. I was supposed to have one of those head cages put on me and into that machine and I panicked and didn't do it.
@linda9081
@linda9081 Год назад
These children are SO brave. As someone who is very claustrophobic I absolutely would not wear a head cage or go in to an MRI. Children should be sedated for this.
@dianemarois2760
@dianemarois2760 4 года назад
She died on March 06, 2020. RIP little one.
@pallavisreetambraparni6995
@pallavisreetambraparni6995 3 года назад
So sad
@Bernie61dee
@Bernie61dee Год назад
My son Tony passed with this same cancer 2 years ago ❤
@maybelline081
@maybelline081 Год назад
😪🙏
@takwaxaweelew8017
@takwaxaweelew8017 7 месяцев назад
The mom said God has bigger plans for her. I believe her. I’m so sorry you lost your precious child. She was special.
@niicooleee1
@niicooleee1 4 года назад
Vivian sadly passed away on March 6, 2020. My heart breaks for this family💔
@faithhope1684
@faithhope1684 4 года назад
great parents🙏god will reward these parents in heaven🙏🙏🙏🙏🙏
@kevinthomas9002
@kevinthomas9002 3 года назад
so wrong she was just a kid
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 года назад
I am so sorry
@pamwhite1330
@pamwhite1330 4 года назад
They need a cure for cancer! My Best friend just lost her baby December 14 from this beast! He was only 5😢😢😢
@OgramRavot21
@OgramRavot21 3 года назад
My first born daughter passed away at 19 years old with hers. She started having symptoms at the end of summer whe she was still 18 years and she lived 9 months and 7 days. December 13th. 1979 - June 7th,1999 rest in peace sweetheart, your out of pain and can see and can walk again. I love you Leeah Marie ❤
@TamaraScully
@TamaraScully 2 года назад
I’m so sorry for your lost, as a mother I can imagine your pain. May your daughter Rest In Peace. 💕🌸
@pallavisreetambraparni6995
@pallavisreetambraparni6995 2 года назад
I am so sorry for your loss
@sunshiner29
@sunshiner29 Год назад
I am so very thankful that you had her. I am so sorry for your loss. So very sorry.
@shinyhunteralana2297
@shinyhunteralana2297 16 дней назад
I didn't know an 18 year old could be diagnosed with that
@amandawilson2485
@amandawilson2485 4 года назад
This beautiful little girl passed away on the 6th of March 2020, fly high Vivian Rose 🕊
@pallavisreetambraparni6995
@pallavisreetambraparni6995 3 года назад
Very sad
@cookeeee1962
@cookeeee1962 5 лет назад
My heart goes out to you , I have no idea how desperate you must feel. You do appear to me to be VERY special and gracefilled and pray that a miracle happens with a cure.
@ilovemycats1121
@ilovemycats1121 4 года назад
From her fb page a few days ago: she is very weak, too weak to even give a thumbs up and sleeps most of the day. 😥😢😭🙏🏻😇
@Elizabeth_-lq3jk
@Elizabeth_-lq3jk 4 года назад
She passed away last night at 10:40 pm. This world is so cruel.
@ilovemycats1121
@ilovemycats1121 4 года назад
Elizabeth _0424 so very sad
@directioner2870
@directioner2870 4 года назад
@@Elizabeth_-lq3jk 💔💔💔💔💔 I was hoping she will get better but 😭😭😭😭😭😭😭😭
@shinyhunteralana2297
@shinyhunteralana2297 16 дней назад
DIPG only gets worse overtime sadly
@rebecaman7466
@rebecaman7466 5 лет назад
These is so sad 😭. I am a mother of 3 and is hard to see kids so young going true these, and also parent having to endure so much pain 😢😭😢
@MsT-xm8xz
@MsT-xm8xz 4 года назад
Same
@hjdr1000
@hjdr1000 5 лет назад
this is a horrible and devastating disease that nobody should go through especially a child. We just lost our nephew this morning from DIPG he fought it like a champ for a little over a year and now we have an Angel watching over all of us .... RIP Liam Rodriguez ....
@melissabuttram6631
@melissabuttram6631 4 года назад
I'm just blown away by the fact that only 4% of cancer research funding is for pediatrics. These poor sweet babies.🥺
@a.stewart5046
@a.stewart5046 3 года назад
I am so sorry for your loss...it never makes sense, why a child? it’s just not fair. We lost our beautiful, kind 10 year old Granddaughter 3 years ago to a very aggressive DIPG tumor...from diagnosis to passing was 26 days....she was home with all of her loving family...we miss her so much...blessed with her love for almost 11 years...
@stephenkings5910
@stephenkings5910 4 года назад
This breaks my heart, my prayers go out to this family
@dovespaligrino8312
@dovespaligrino8312 3 года назад
May God Bless you both. Just remember, you will be together again...❤️
@teresadubler6056
@teresadubler6056 4 года назад
I can't imagine what you are going through. And to find out that research in this cancer is so small. You are wonderful parents .
@davesandhu3421
@davesandhu3421 4 года назад
So sorry for your loss. I cannot imagine what it must be like for a parent in that situation. Words Escape me. Be good to each other. Your daughter's memory lives in your love.
@isabelcarballo6183
@isabelcarballo6183 3 года назад
I feel so bad for the parents…She’s in heaven now safe and sound. And also good thing she didn’t have to go through COVID-19 that would be really bad.😇RIP little angel 👼
@pittypaws6633
@pittypaws6633 6 дней назад
My dad got to ring a bell when he was done with his radiation treatment. Later he died of a cancer that was caused by that same treatment. What a cruel irony.
@maryem8263
@maryem8263 5 лет назад
:( They seem like such sweet people.
@KidnapSix
@KidnapSix 3 месяца назад
Thank you for all the experimental treatments.
@marcelpilon5279
@marcelpilon5279 4 года назад
There are just no words to describe in having to see any child going though something like this. My heart goes out to the parents
@emilymoore4841
@emilymoore4841 3 года назад
my friends sister died from it in may of this year at 6 years old, you are loved Emma 💜
@victorambula3687
@victorambula3687 4 года назад
its so painful to watch these babies suffering this much.may God be with them.
@pirogizzy3059
@pirogizzy3059 3 года назад
Earlier Last year I was diagnosed with CANCER in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about a herbalist preparing herbal medicines to cure everything type of diseases. including CANCER, at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CANCER and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now CANCER free, all thanks to Dr. PETER You can also contact this great herbalist for help by email: peteroare0@gmail.com or contact Dr. PETER through his whatsapp number: +2348161615389 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you ...
@pyrettablaze0414
@pyrettablaze0414 2 года назад
Being a mother and watching this …. To know so many children suffer from this disease ~ and the parents who have to deal with watching their baby die….. there are NO Words to describe …. I can’t stop crying…..❤️‍🩹…. A true nightmare which you’ll never wake from! Sending Big Love & Hugs to these little warriors & their parents.🥹
@flowerqueen174
@flowerqueen174 4 года назад
She's beautiful and does not deserve this
@darlind6463
@darlind6463 3 года назад
I'm so sorry for your loss. RIP little angel. 🕊💕
@hamishwilson9787
@hamishwilson9787 4 года назад
My 8 year old step brother passed away from a brain tumor, it's messed my life up so much.
@Mro183
@Mro183 4 года назад
Hamish Wilson I’m sorry x
@mitchbry6640
@mitchbry6640 4 года назад
Rip stay strong bro
@teresadubler6056
@teresadubler6056 4 года назад
Your brother is at peace now. Live your life for you and you brother to the fullest. God bless you
@houseofballet
@houseofballet 4 года назад
The love between you two is stronger than death, believe in that true love, my friend.
@debbiedoestinyliving85
@debbiedoestinyliving85 4 года назад
So sorry.. #prayers
@nishanamaharaj5530
@nishanamaharaj5530 4 года назад
life can completely change in a second...that is a terrifying yet sobering thought. I cannot imagine the pain and struggle if these parents and their beautiful daughter...but I pray for happiness and peace for all of u. and may your daughters life..however long...be a wonderful one.
@sudhakannali4216
@sudhakannali4216 5 лет назад
God is there with you Dear child. You will be alright soon. With lots of love to you...
@masterchiefjoe
@masterchiefjoe 4 года назад
If anyone is curious there is a foundation that is taking donations for DIPG research. The Cure Starts Now is the foundation in question and Lauren Hill the soul who brought this disease into the spotlight and raised a couple million for research, I pray one day there will be curative treatments.
@Kelly-ig7ci
@Kelly-ig7ci 5 лет назад
I don’t understand why things like this happen. Prayers for advances in treatment. There’s a lot of people thinking of your family.
@charmingheartphotography6758
I encourage everyone to get involved whether through volunteering, donating, fundraising etc. Did you know that only 4% of funding goes to pediatric cancer research? 4%. Thats why the treatmenta they receive are outdated and meant for full grown adults. Even if they survive the cancer the treatments often cause lifelong problems and even death. This is unacceptable in an industry worth trillions.
@annebenoit4095
@annebenoit4095 5 лет назад
My sincere thoughts of love and healing to these parents
@Susan-d5d
@Susan-d5d 3 месяца назад
So sad to read all about these 😢 young children ..So heartbreaking …I hope and pray they find a cure ….I don’t know how long the survival time is .. To all the parents who have children living with this horrible disease . Plus all that have lost there children ..No heart ❤️ goes out to all of you .
@paulahoward552
@paulahoward552 5 лет назад
There have been several girls to have this and 2 have died and 1 is still living but doesn't have long. they are from the saraland/mobile Alabama area. I'm so sorry y'all are going through this.
@irmajgarcia6009
@irmajgarcia6009 5 лет назад
Wow Paula Howard, Prayers is all that is needed.. Your post is very upsetting.. Hope the family doesn't see it..
@Meow-gp5nk
@Meow-gp5nk 5 лет назад
@@irmajgarcia6009 After what they've been through a measly comment isn't much ... Acceptance will come ... God bless!
@theresacarmody702
@theresacarmody702 4 года назад
Poor baby girl hope she will go on to have more years with her beautiful family have hope stay strong and keep having fun with her she is so adorable ❤️
@tjastrow1976
@tjastrow1976 4 года назад
Awesome family! She is a precious little girl! I will put her c in my prayers! !
@ellaxx2437
@ellaxx2437 3 года назад
Rest in peace beautiful angel, love to the family💕🤍
@lyshabrown5690
@lyshabrown5690 4 года назад
They are amazing parents
@dhoneofficial
@dhoneofficial 4 года назад
Rest peacefully, Vivian😭❤️
@joyhenson1877
@joyhenson1877 5 лет назад
What a sweet little precious angel. I pray that a miracle happens for your family and that the tumor shrinks. Yes, Jesus has a plan and will take good care of her no matter what. You are such good parents. That's easy to see. The father and daughter dance was special and you will remember it always!!!
@Sam-tg4ii
@Sam-tg4ii 3 месяца назад
8:21 Imagine what that father was feeling in that room knowing that all other daugthers will be there next year to dance wiith their dads again but not his.
@tiffanynicole5920
@tiffanynicole5920 4 года назад
This is so heartbreaking and very scary especially when you have children of your own. With all the technology we have today I hope their will eventually be a cure
@pirogizzy3059
@pirogizzy3059 3 года назад
Earlier Last year I was diagnosed with CANCER in 2019 and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about a herbalist preparing herbal medicines to cure everything type of diseases. including CANCER, at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CANCER and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. They gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now CANCER free, all thanks to Dr. PETER You can also contact this great herbalist for help by email: peteroare0@gmail.com or contact Dr. PETER through his whatsapp number: +2348161615389 He is also specialize in treating all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES EPILEPSY AND MORE ...... He will also be of help to you ....
@destinywaldridge9480
@destinywaldridge9480 5 лет назад
Im 18 right now but when I was 10 one of my best freinds was diagnosed with DIPG. He unfortunantley passed away when I was 11. DIPG, along with all cancer is so awful. He went from a normal boy, then had trouble with speech and slowly lost everything else. He went in the hospital because he choked on food from not being able to chew it up and never came out. Its a horrible disease. And my hearts go out to the families and kids who deal with this
@Meow-gp5nk
@Meow-gp5nk 5 лет назад
Life isn't fair; could've been you or me or anyone.
@kaycochran5914
@kaycochran5914 5 лет назад
My daughter Brandi died at age 4 from a tumor in the brain stem. And my son Matt died 16 years later in an auto wreck. I know God has a plan and I will see my babies again. Thank you Jesus
@StephAnie....
@StephAnie.... 5 лет назад
Kay Cochran Oh my godness...its...so...hard...unbeliveable... To say „i am sorry“ is s o less, but i cant say nothing else... My heart is going out to you. Greetings and hugs from germany
@dorindamehm2203
@dorindamehm2203 5 лет назад
So so sorry Kay
@vivyadgreat
@vivyadgreat 5 лет назад
I lost my only daughter one month ago.what r the possible reasons for dipg?
@nbtstan3198
@nbtstan3198 5 лет назад
God bless you all. I'm not Christian but I'm sure you'll meet your kids one day. Never lose hope and stay strong. Proud of you ❤️❤️❤️
@kaycochran5914
@kaycochran5914 5 лет назад
@@nbtstan3198 May you feel God's presence and receive Jesus as your Saviour. Jesus is the only way. Love you💝💝💝💝
@michaelahutto6795
@michaelahutto6795 Год назад
Sweet Vivian passed away March 6, 2020. resting with the angels now. 🤍
@margief1798
@margief1798 5 лет назад
Poor kid. Prayers.
@Coco-dz3id
@Coco-dz3id 4 года назад
Bless you all.Brain cancer struck our family...my very very precious 4 yr old grandson was diagnosed with medullablastoma.Albeit hell and holds no promise.It is not comparable to DIPG.BLESS YOU ALL & forever will be in my prayers🙏🏻💜✝️
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