"Becoming Incurable" - Disability & Chronic Illness Documentary 

Every healthy person watching this be grateful for the gift of good health. Don't take it for granted. It's sad that health care professes are still using old assessments to evaluate pain fresh holds. We need to listen to the patients and not judge. Pain is what the patient says it is and not what the text book says.

My heart goes out to the chronic illness and chronic pain warriors who are struggling to cope on a daily basis. Not being able to have control over your body and mind is a terrifying experience. I pray for strength and healing for all those who are suffering, and their loved ones as well. 🌹

The United States needs to completely reform its SSI and SSDI system - the disabled struggle with a pittance; with today's inflation it is nearly impossible to provide for even basic needs. The young and the healthy often judge, saying things like " prepare for retirement early." " go to work." and " you get what you have put into it over the years, etc." But a catrastrophic illness/ disability can happen to anyone - young, old, professional, educated, and devastate them economically and emotionally. And not every one has family who are willing or able to help- many of the disabled are childless and single, their parents have died, or are older and have health issues themselves, siblings may be too involved in their own lives, live far away, and providers only do so much - it is a horrible existence.

Watching this as I'm on the edge. My heart breaks for everyone going thru debilitating chronic pain. Ive been 95% bedbound since june, no pt-no-home health care etc, all ordered but nothing. Last time I worked was 2012, applied and denied for disability. Could not reapply because I had no more work credits, and I'm married with my spouse making too much at 45k. Just mentioned that in hopes someone knows something i don't. I take an opioid but ive been cut off multiple times for no reason, literally from 90mgs for 2 years to dropping cold turkey with no explanation and no tapering. The withdrawal almost killed me. I'm in fear every month that it will happen again, it's not even enough, if it happens again it will kill me one way or another. I have a Tethered Spinal Cord, detethered but it retethered. What people do not understand is that NO ONE WANTS TO LIVE LIKE THIS! No one deserves chronic pain.

As a human being these stories break my heart💔 As a RN these stories break my heart 💔 As a cancer survivor these stories break my heart💔 I wish everyone on earth would watch this documentary and understand 🙏🙏🙏🙏. Thank you!

I have late stage Lyme - no family or close friends, which is the hardest part. My family disowned me when I became ill. Thank you Victoria, for making this. 💕

8 years ago I was diagnosed with Ehlers-Danlos Syndrome (classical type) . My life is now mostly spent in my bed. For all that suffering with chronic conditions: big, warm hugs to you. ❤ For all healthy people: don't take your health for granted, and a hug to you as well. ❤ Such a great but heartbreaking documentary!

I wish I had my old body back...I wish I had my brain working correctly. There are bouts of depression that I am better at keeping away. But I can't get my family to fully understand the feeling of being a stranger in someone else's brain. Some times I'm better but still I will only get worse. Accepting that I am not nor can I ever be...who the girl from before was...that's complicated. Sometimes you have to learn to say goodbye to your own reflection of who you were.

Leo's wife, kids and mother are complete rocks. As someone who is severely disabled and incurable thanks for making this but thanks also for highlighting carers, they are the real unsung hero's.

I also live in unbearable chronic pain 24/7 the pain is far to intense for me to cope with most of the time reducing me to crying and beside myself. I take lots of medications yet still I'm in excruciating pain over every inch of my body. I have uncontrollable spasms and nerve pain that runs up and down my arms and legs. It feels like my veins are on fire! The spasms can happen anywhere in my body, like I can feel like I'm being stabbed where ever it wants to stab me! I can't carry on with this hideous pain that's far to intense for me to cope with. I used to be a very active person. I ran every day and worked out. But now I can hardly move without pain, unbearable pain. I can relate to this documentary so much! I am thankful I have my faith and know Jesus is watching over me.

I have AS, I was diagnosed at 18 after 8 years of fighting for my right to be taken seriously by doctors (who told me I was fine). I'm turning 21 in two days and even after an invasive hip surgery two years ago, I'm struggling to cope with the continuous pain. It never goes away, it's always there. This is the first time I have ever seen a video of someone recounting their experience with AS, and I feel so seen. Thank you Victoria, from the bottom of my heart

Multiple sclerosis and fibromyalgia Life is so difficult

Wonderfully uplifting and heartbreaking. I've suffered chronic pain from lupus. I've also been through a double mastectomy for breast cancer and I lost my left lower leg a year ago from an infected sore. Phantom pain is the worse for me. It makes us stronger in a sense, but the episodes of pain are unbelievably hard. Love and hope and peace to these three and any other suffering from a chronic disease. One of the things usually taken for granted in life is health, until it isn't. ❤

This documentary and this subject deserves so much more public attention. So many people are suffering. And the government and the ignorant doctors are completely letting so many of these poor people down. It's a complete disgrace and a total indictment on all the arrogant and ignorant doctors who put these poor people through hell. They shouldn't have to prove over and over again that they are suffering, just because doctors can't always find a clear diagnosis. The way doctors treat these people makes me sick.

Figuring out how to present to the Dr’s is a huge deal. Giving is SO IMPORTANT it just looks different than it used to be. I take ACT and my faith in Jesus and great support system help me. 🇨🇦 ❤

I have Fibro, ME/CFS, RA, and all that goes with those. In addition, my spine is a mess so I'm in a motorized wheelchair. No pain meds! No family support! Friends can't understand (maybe someone could if willing to listen). Fortunately, I am an introvert and love my time alone, however, I would like one person willing to listen, one time.

This movie really moved me because I am on disability for chronic pain and fatigue.

This was so incredibly well done! I was looking for videos to help me feel less alone in my chronic illness and this definitely hit the mark! ❤

I have chronic Lyme. I am 47 and got bit when I was 8... Never treated. Not even since they've found it. I am currently getting off the pain meds drs put me on before my diagnosis. Then I will be put on Low Dose Naltrexone. I have heard SO MANY success stories of people with Lyme and fibromyalgia (which I also "have") and Hashimotos (which I also have). I refuse to let this disease consume my whole life. The pain in my body would be unbearable most days if I didn't have Jesus. Some days it still is. To keep moving is a must. I finally just got out of a house with tons of mold and I live in Washington so mold? I'm not going to get away from it. I know about those headaches she's talking about. I have them almost all the time. It would be nice if doctors out there had even a clue about Lyme. They don't. Only Naturopaths do and they only know a little. And if you're not rich? Well then I'm sorry cos you're really unfortunate. I could never afford to throw my blankets away and get new ones or have a infared sauna. And supplements cost a fortune and aren't covered. So yeah... I am glad I have God cos I can get by that way instead and if I die young... It's all good.

Thankyou so much for this documentary 🙏🏼💗I live with ALS. It is so incredibly important to hear the stories of people who are ill. Sending love to all the people in this documentary ❤️

Leo and his family are amazing! I cannot imagine the difficulty they deal with on a daily basis yet they have such a great outlook. They are strong and close family.

Oh my goodness! Just horrid! Leo and his beautiful family!! And precious Sophia, tears your heart out.and darling Clarice. My God my heart breaks for this lives that are simply ripped apart by illness. We don’t know what lies ahead in ours lives. I had bad Cancer 18 yrs ago. Now I’ve found out the chemo that saved my life has destroyed my heart. Congestive heart Failure. We must continue to press on and find love and joy where we can 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼

Great video. Hate to see people hurting. Glad they have some support

Their strength is so admirable. They made me see life in a totally different. Thanks for the documentary.

Very touching documentary. We need more of them living in a Tik Tok laden superficial world consumed by likes and and appearances. Been living with chronic spine pain despite surgeries, RA, fibro, and HS which is an autoimmune skin disease that is disfiguring and very painful. Just had surgery to remove deep abscesses and scarring all across my stomach skinfold but it will come back. I also have it in both groin, genitals, buttocks, and breast. Surgery is for when it gets very severe and there is no cure. Pain management allows me not to be bedridden.

It's sad and makes me mad that people who need pain medication have to jump through hoops and word things just the right way because of those who abuse the drugs.

I remember watching documentaries like this in the 1970s. I think it's important to document a loved one's progression of their condition to bring awareness to others

Thank you for making this movie and for drawing attention to these debilitating and chronic diseases. This is critical to inform as many people as possible. I have multiple autoimmune conditions having had mold exposure in the work place. I was not diagnosed until I was age 65 and I've spent the past 15 years reading, researching, visiting doctors and making diet and lifestyle changes. Living with pain and exhaustion, people's life are altered and life is never the same.

I have several Chronic illnesses and disabilities . Thank you so much for doing this

I've have Rheumatoid Arthritis and while I hurt and struggle with crooked hands and joint pain all over I just can't imagine going through what these people have. Those video shows how important it is to vote blue. We need Medicare for all

Hello from London, UK. That was a brilliant - and first-class - documentary... Thank you so much for sharing it... :) x

The 1-10 pain scale doesn’t work for me either. 25 sounds more accurate. 👍🏽

I just can't watch this. As an ex BBC-trained documentary maker myself, I am drawn to these types of programme. As a sufferer of Ankylosing Spondylitis, seeing how bad this will become is just too much to handle. Many thanks to the medical crews around the world who are trying to deal with this. I wish any sufferers well, strength and a positive outlook!

Doctors need to hook up with therapists. Patients do not know how to manage life after finding out you now have a chronic illness that will leave you disabled for life. I had three children to support. Divorced and feeling so lost. Trying this and that. Taking the long way around in life because I didn't know how to maneuver well as a disabled person, let alone parent.😢

thank you for putting this incredible documentary on youtube!

Wow such a powerful documentary. Made me cry and think of life totally differently. Thank you so much ☺️. P.S. please do a documentary about mental health also

Wow and thank you for this. A very touching, sad and happy documentary. It all comes down to support and awareness.

It's so sad your Dad had to suffer for so long, and that surgery is giving him a great chance to fight back! God bless you , your Dad and family

Thank you so very much for this extraordinary documentary I live with chronic severe pain and neuromuscular disease and fully understand what these people deal with bo the physically and emotionally.it is wonderful that their families are supportive and understanding. Again,thank you for sharing and God bless🙏❤🙏

So proud of these beautiful people. It's easy to give up when going through something like this. Hugs❤

God bless you ♌ Leo and your family your story touched me keep thriving keep reaching for the stars

I woke up on April 6, 2013, with severe leg cramps and I never walked again. I wasn't even given a chance!! No physical therapy or Anything! Six years in, I Finally got physical therapy approved. Of course, by then, I kept pulling muscles and injuring myself. Why couldn't I get it when it mattered? When I had strength? I don't get it! Now, they took my pain meds away and I've turned to heroin. I'm Lost!

thank you 💗💗

Thank you so much for sharing this!

I have reamatoud arthritis since i was in my 20, pain all over, got worst with age, im 56 now, took humira, injections,prednison, whats working for me now is rinvoc, has acary aide effects on bottle, but if i dont take this pill, ill be like an old 80 year old lady, may god bless you all.🙏🏼

Such great stories of the power we all have to refuse to be defeated without a fight! I hope everyone featured here lives a full and completely blessed life!

How awful. What a terrible pain to go through. 😢

I have a similar 'brain pacemaker" called a Vagus Nerve Stimulator. I have it for my seizures. It sends pulses via my vagus nerve to my brain to control my seizures.

How can ones belly tolerate this all ❤❤❤

How can she put the stuff up to her face, take a deep whiff and NOT EXPECT to react? I'm not getting that one...

I wish they knew what was happening w Leo. A lot of his movements remind me of Huntingtona

For the young woman with Lyme, the university should have a disability office that works to help a student manage completing the degree~ accommodations that the college needs to make for her so that she can learn. The building with the water damage = likely mold spores is unsafe for all students not just for her, and needs to be repaired. The class can be moved to another building.

Leo getting up to take a walk was the best part of the video! He had US ALL fooled 😆🤣😂

I was diagnosed with lyme 2 years after symptoms. I have been on 29 to 30 antibiotics, numerous supplements and other medications. I have since the been diagnosed with ME/CFS. There is no cure for lyme that has been found late.

The next time I complain about cellulite, a period cramp, a new grey hair, a bit of flab here and there or a small ache due to whiplash... I will remember these three, and stop whining.

Obama Care came in and my two Grandsons have more difficulty getting the testing and treatment needed. It wasn't like that before. One Grandson has Spina Bifida and the other has Neurofibromatosis type 1.

About A.S. it's not supposed to be deadly, I feel annoyed taking resources to watch (computer not being good for my disease...) and would like to get good, full info to understand.They all have better than mew in their social lives and psychical state. Maybe I shouldn't watch this in case I get depressed at seeing the contrast to how bad I have it and what I have been exposed to ( mistreatment andtheft, withheld healthcare and social life.) Wow, to have a boyfriend a dog and an outdoor space! What kind of IR sauna does Sofia use, NIR or FIR ? How good thatt she gives ashes and blessings! Gosh, fantastic improvements of Leo's! So glad for him, and for her who went on desert therapy. I wish I had support like they do. About Charis who got disability in the end; - what did she live on before?? How does one find and get in touch with.. health advocates? I have got so much worse from getting abuse, deception and denial and aLoneliness instead of fairness, openness, honesty and adequate examination, Personal Assistance, body-psychotherapy and physical treatment.

Im from India the health care system here dosent even know chronic pain exist its so hard fighting thiss disease when we are in 3world countrys its even worse hope one day our health care system an our people build such attitude to fight against pain an help an understand each other.

Nothing wrong with taking classes online if it gets the job done!

These sweet brave souls really break my heart, as well as some of those in the comments. Healthcare globally is steadily declining into a shocking and pitiful state. A support network is critical. I live on my own, struggling with a genetic liver disorder that already killed two generations before me, some autoimmune issues that cause chronic inflammation as well as a rare genetic form of hemochromatosis. Any of these will eventually kill me. My life has declined to a pathetic level of existence compared to what it used to be. I have to carefully consider what I eat or not, and I rely on +-25 different herbs, tinctures and supplements to try and maintain optimum health. My family is aware of my condition(s) but do not grasp the extent of my daily struggle or the toll on my emotional well being. My children are engrossed in their own lives. Most of the time I just wish I could just die quickly as life makes no sense anymore. I wish I could live at the beach and just sit there every day for some peace and calm until I die.

Is tattoo ink toxic…red, blue, yellow food dyes are better avoided…

The reason why they don't test is cause they get paid if they do or don't and do not care

Sofia there is a video on RU-vid about bee therapy helping bigtime w/lyme disease. The woman discovered it, being ready to die because of the advanced lyme disease, after being attacked by a swarm of bees. It made a miraculous difference n her life. I wish i knew the link for this video but it shouldn't b too hard to find? I hope this helps since u've been told ur illness is incurable. Take care God works honey. Maybe this is ur answer? Idk? 💛🖤💛

I have marfan syndrome. I have had all the symptoms of AS for years , yet with no change in my bones on xray.

It would seem so much of the population is severely unwell. What is wrong?

Everytime I see tattoos over large areas..I really wonder what that junk does to the health... Leo's wife is SO sweet..poor darling she really broke my heart...thank God he has her...

If i could wish a wish i would abolish all illnesses!!

i wonder what her CPK levels were...the one who went to the Rheumatologist. My CPK was as high as 3,500. The doctor thought with my CPK numbers I would be in a wheel chair. The normal level CPK is no higher than 150. I never got a clear diagnosis from any doctors over 20 years... just a whole lot of tests. My muscle weakness hurt so bad all over. I handled my condition with "mind over matter." I refused to go on disability. I kept telling myself i dont time to be sick...i have too much to do. I went in to become a Volunteer Firefighter and trained with the State of New York.

Wow....

Have you tried The natural Herb Mugwort and CBD, this must be exhausting, I hope you get through this Stronger and Healthy. Best of Luck.

I had black mold in an apt. Its a weird smell

I like the fact that Leo and his family give everything to the lord instead of putting the whole gay pride thing in there. People in this country need to put God first. I have MS and I get up everyday and go to work. I thought this was a story about disease not gay pride

I am sorry for all of this suffering and limiting but it can be put on a scale, don’t call this a 10, lets slide this over to severe, than lets move it further over to damage, little more to permanent damage, now a big push to permanent severe damage, now lets include reality, say being alone and the scale gets pushed further t 10, now lets move the scale more, severe permanent damage while being alone and being a caregiver, slide screeching screech, Ok lets move that scale now and lets get it all the way to 10, severe permanent damage while being a single caregiver to a disabled person who is carrying there own scale, almost most there, now you are severe permanent damage person caring for the same different familiar. I don’t have anywhere else to push this scale except push it over!

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Nikkiejones, I plead the blood of Jesus over you

The only thing that went away was the $600 penalty for not having Obamacare. She’s eligible for SSA benefits that includes Medicare and Medicaid which is better.

As someone w Ehlers Danlos Syndrome, a rare genetic progressive illness that cuases us to breal & sublux joints, severe chrons ans bowel problems, dysautonomia & over 50 symptoms including chronic insomnia, hypersensitivity to foods and chemicals..i live in NJ where medicaid only covers below the standard of care. It is sickening how little resources there are. I became a Reiki mastee. A holistic health ans nutrition coach while learning the power of internittent fasting , keto diet & strength training w red light therapy can reduce symptoms 50% or more. We can heal.

The most saddest thing is racism towards Black people