Betrayed By The Body: Sepsis - Sepsis Associated Encephalopathy and Post Sepsis Syndrome. 

"Betrayed by the body" as a sepsis survivor myself I can confirm this Is an accurate way to describe it

It sounds like I had most of what your describing! On March 6th was the beginning of my 2 months in ICU and diagnosed with streptococcus Double Pneumonia with sepsis. I had total kidney failure and on constant dialysis, together with respiratory failure, heart failure that I fully CODED and they were able to successfully get my heart going again. I stopped breathing 4 other times for reasons never learned. Besides all that I also had multiple severe esophagus and major stomach bleeds likely caused by ulcers I already had together with blood thinners (Brilinta) all of which caused me to need a lot of blood during that time as the surgeons performed several surgeries over several days trying to stop those bleeds. I was released in late May from the hospital and started my in home rehab program, it seemed that I was doing very well rebuilding my body strengths that at first I was totally limp, and working very hard to improve my short term memory loss that I still experience everyday. Sadly, and despite my efforts i got sick again and was re-diagnosed with double pneumonia with sepsis so I was found myself back in the hospital but thankfully it’s apparent we caught it early because I was still able to think, talk, complain, etc. and the doctors looked back into my medical reports and identified the antibiotic I needed to help me out of that situation in about a week which I certainly didn’t want another ICU stay. Nevertheless, being heavily sedated throughout the majority of my ICU stay sounds like it might have been a good thing for me because it sounds like something I wouldn’t want to experience while awake. Sadly, my wife who stood be me the entire time and still does had to witness many of the very bad things that happen to me along the way, and I can’t think her enough to sticking by my side, and hopefully she will forget what she describes as things she could never forget. We should all be as lucky as me being married for 42 years and we both still deeply love one another and always care of each other no matter what’s help is needed. Thanks for your great information and I’m praying that my brain hasn’t suffered injuries that may show up later down the road and I’ll continue working on my short-term memory issues where I mostly forget names of actors, movies, and friends that we rarely see, among other things.

This is a very well-done review.

Am a home care worker, and my patient has been diagnosed with sepsis. It's sounds like a very scary diagnosed rather have the knowledge, then not. Thank you.

I had my ureter severed during a vaginal hysterectomy. I filled up with urine 30 days before I was told get help or die. Doctors ran. That's not normal to live 30 days, they said. I've never been the same. It was hell. Still is.

As a nurse..39+yrs..hospice care, counseling, spec needs, post op..I had sepsis, and wasn't immediately aware, but thankfully, got to hospital and recovered in record time..or so I believed. I wound up with sepsis 2x..(have autoimmune issues since 17, I'm 65) and ICU admission was life saving. But>>> now 18 mo later, I'm having symptoms that won't leave since 2nd bout..this is Post Sepsis Syndrome...which I was Never told could occur..it does occur..more frequently than American Drs seem to be aware of. The UK is aware..and even has organizations that deal with educating Drs and patients. Please..patient or healthcare workers, educate yourselves. Encourage Drs to educate themselves and their patients.. This is very often overlooked, ignored and not treated or treated improperly. Stay alive...keep patients alive. EDUCATION IS GOLD❤

Thank you thank you 👏

Trigger I'm 3 years out. Help. I thought I was getting better, but now I just can't think My iq is lower! Memory, etc. Can't speak if I'm tired. Now, I 😢have become mean and emotional. I am feeling this is forever. I'm glad I'm alive but I think I am alone forever. I wish someone would just say it! Out loud! Executive brain is damaged. It's going backwards. Should I keep trying to live?

Post Septic Shock and MODS, I have experienced memory loss, difficulty reading and concentrating. In addition, I developed Narcolepsy and Cataplexy. Not sure if that is what others experience but it has been a source of frustration and anxiety. Also, I have poor short term memory as well. I feel less intelligent and had a hard time adjusting to work. I had to take two demotions due to inability to perform prior role.

I WISH I HAD KNOWN

I wish I had known

Is pseudomonas aeriginosa sepsis? I had that after a surgery , and have had horrendous leg aches since.. I’m 69. Also, my son had what i believe was meningoencephalitis at age 7, and his brain changed. His CNS became infected and he couldn’t walk right nor run that summer. He’sl had foot drop and seizures since then. He’s had several TBIs since, and headaches that he can’t get help for. He’s been diagnosed with autoimmune encephalopathy, and is on disability with anxiety and depression. He’s emotionally about 12. He’s is very sensitive to Lyme, mold, and his brain is messed up.? I’m going extra studying on this.

I've had untreated sepsis for 5 weeks I'm in bad shape but it hasn't destroyed my brain yet I don't think. I did have anxiety, agitation. I think I'm battling a pretty big bad bug over here buddy.

3pm I enjoyed the information but was constantly annoyed by the speakers sniffing and acting as if he had a cold or allergies bothering him causing interuptions in his speaking which caused constant problems understanding what he was saying. He

is it possible for an old Mild TBI from a car accident, that was never treated, to kinda cause mild subclinical cyclical symptoms and then a few years later having sepsis really pushing that over the edge? I got t boned by a lady when i just entering an intersection after my light turned green. she was coming down a hill speeding. she hit my driver's side tire going 40-45 miles an hour, my car spun around a few times, but i didnt (know) think I had any injuries. i insisted i had not hit my head because i didnt remember hitting my head. sometime within a few hours afterward, my mom said i began nodding off but was arguing with her that i wasnt. she felt a bump on my head and took me to the ER. they said i had a concussion, to not sleep for a certain amount of time, and have someone kinda watch over me. to follow up with neurology. i actually have a dent in my head where it hit the seat belt holder when she hit me. well, i never went because i had no insurance and didn't feel i had anything wrong. i didnt even think it was important for me to show up to the court hearing because i knew the wreck wasnt my fault. i guess she pled guilty so maybe she was charged with something. i just know it didnt seem important to me. i started getting into arguments with everyone it seemed. i was stressed so much more easily. i dont really remember too much during that time except that i was getting into so much conflict with people i decided seemingly overnight to move 1700 miles away to go to school. i started having hormone problems but tests were not showing reason. still argumentative. migraines. insomnia, frequent infections. i went multiple times for what i thought was bladder infections but the urine tests were normal. i went to many doctors in many specialties and they couldn't find anything wrong. Then soon after work installed a fingerprint security key to enter our building several people at work got very ill with what we thought was a bad strong flu. I thought it would go away but after a couple weeks i wasnt getting better. because i lived alone i asked to stay with my then bf since i felt so sick. i got much sicker rapidly. it got the point where i was throwing up even water, could barely stand, had chills with 104.1 fever, lethargic. 2.5 to 3 weeks after initially getting sick, i finally went to an urgent care at a teaching hospital, thankfully. they admitted me with oxygen level in the mid 80s i think. i was slow thinking and responding. i felt dizzy and faint. my blood pressure and heart rate were low. my liver enzymes were pretty high, wbc high, kidney function low, blood sugar was high even though i was not diabetic, i was coughing up pink foam. i had fluid in my lungs. and i became highly agitated. i was on 4 liters of oxygen. i did not go into septic shock that i know of. tbh, im not really sure how severe my sepsis was .they said it was good i came in because if i wouldnt have i could have gone into a coma but i was not on a ventilator or anything like that. they didnt want to let me go home until i could eat and go to the bath room but i was so agitated and argumentative i convinced them to release me without labeling me as discharge against medical advice if i could hold down milk for a full day. oh yeah i had esbl e coli which didnt make sense because my urine test was normal if i remember right. but i know they had to wait for the blood culture to figure out which antibiotics to give me, which i was on for a few months. it was like the sepsis flipped a switch and made my whole body go haywire, but noone could figure it out. i had devoloped visual disturbances. constant double vision, increased anxiety and more argumentative, brain fog, autonomic dysfunction, partial adrenal insufficiency, yet sometimes symptoms of excess hormone, like on a teeter totter. migraines, insomnia, chronic pain and muscle spasms on the left side of my body. back pain. my spine was twisted to the right according to one chiropractor. chronic sinus congestion which was caused by the cartilage in my nose being perforated and squashed to the right. i had a septoplasty. i was bounced from cardiology, to endocrinology, to ENT, to rheumatology, neurology, ophthalmology, psychiatry. noone had any concrete answers. its been 10 years since i had sepsis and i havent recovered. it was like a light switched on and i cant turn it off. i was showing all the symptoms of congestive heart failure, but my scans are normal. my blood pressure gets high when i stand up but totally normal when i lay down. i got so sick i was unable to work anymore. now im to the point im dizzy and wobbly and unsteady on my feet, so im in bed all day. i get super dizzy and nauseous when i drive or take a hot shower, so i avoid doing those things. i stumble to my left side. i have atypical trigeminal neuralgia, thoracic outlet syndrome, digestive problems, a whole cascade of symptoms. it just makes sense to me that with the original brain injury never being treated, and the sepsis hitting me so hard, that the sepsis also injured my brain. i didn't have most of these symptoms before sepsis and some of them i did have before were amplified. when i ask if its possible. no. the answer always seems to be no. i think its a fair and reasonable question. im just sharing my story and my question is not to ask for diagnosis from my comments here. i want to understand the science and research about it. i mention my head injury and sepsis history at nearly every doctor but its as if im talking about the weather. this video really helps explain some things ive had questions about.

Broad spectrum anti biotics. Yea enjoy your neurological symptoms

Dude i cldnt watch cuz thar thing u do with your pen

I'm still having problems with anger management, especially under stress. Going to have to try Abilify and/or a beta blocker--Propanolol.

Thank you so, so much for this