Beyond Anti-NMDAR Autoimmune Encephalitis

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Memory loss, psychosis, hallucinations, and altered consciousness were all the symptoms experienced by the then-14-year-old Lily. Alison (her mother) being a psychologist herself was sure that Lily’s symptoms were not rooted in psychosis but in a yet-to-be-discovered medical condition. Hear from Lily and her family, who faced months of uncertainty and numerous doctor visits before finally receiving a correct diagnosis.

Опубликовано:

14 окт 2024

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Комментарии : 8

@tabithaorth1040 7 месяцев назад

I'm so glad you released this during February's Autoimmune Encephalitis Month.

@GilbertVanKerckhove 7 месяцев назад

Gosh, what a story! I never heard anything like that before. Thanks to the perseverance of the parents! Looking forward to meet!

@caroltrotter-rl5gb 17 дней назад

Dear friend has been diagnosed yesterday. Horrific 3 months to get to this point.

@conswallajohnson3197 8 месяцев назад

We know shes almost completely recovered , i have asked this question to so many people via social media and NO answer

@conswallajohnson3197 8 месяцев назад

PLEASE can you tell me if you continue to take psych meds on the daily??? We are at our last part of this journey with my niece , she still talks to people in her head....a simple yes or no will help

@somiya6104 7 месяцев назад

You need to take it as long as the doctors would suggest till the symptoms go away totally. No talking in your head no hallucinations nothing. I continued with mine for about 5-6 months on doctor’s recommendation after discharge

@DonMyersOfficial 2 месяца назад

The psychiatric symptoms of this disease are usually the first to dissolve after treatment. If your niece is currently still experiencing psychiatric symptoms I would recommend you contact your specialist and have them re test for antibodies. I would also recommend you decipher if these symptoms could be caused by her situation, and if they are dramatic enough to cause concern on a clinical level. I only bring this up as talking to yourself in your head is not a reason for concern nor is it a psychiatric symptom, especially after experiencing such a hard thing like this disease.