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Bladder & Kidney Spasms | Let's Talk IBD 

LetsTalkIBD
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15 сен 2024

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Комментарии : 136   
@UsernamesForDummies
@UsernamesForDummies 4 года назад
I have Crohn’s and once was part of a documentary about it in a national TV program here in Switzerland. I got over one hundred really kind letters. But there was one, where a woman was cursing the producers and me, because I mixed a nutritional drink (normally for CF) with milk. She went on and on about lactose intolerance and that I was stupid and deserved to be ill. I’m NOT lactose intolerant! Everybody is different, as you said. Personally, I’m not good with toooooo many vegetables. My body has a hard time digesting them. But in general, most people do benefit from eating lots of veggies. Just ignore the people who tell you what to eat, without knowing you personally, having Crohn’s, let alone your body. I’m pretty sure that you have an astonishing feeling for your body by now, and can pinpoint quite well, what’s wrong with your body when you go to a doctor, before he’s even made any tests.
@marvismatarozzo5119
@marvismatarozzo5119 4 года назад
And I'm glad you give yourselves permission to eat alternately on occassion. You are going through enough, and a treat will make you feel better.
@stephaniejackson8029
@stephaniejackson8029 4 года назад
Definitely E47 and E49. Love them for a bathroom at a wedding venue.
@jonkicker1278
@jonkicker1278 4 года назад
Congratulations on the tours for the barn. As far as diet, we all have our own things and everyone's body acts differently to different things. I think the E47 tile is really unique and cool.
@sandraargo8382
@sandraargo8382 4 года назад
What for the floors, don’t get anything slippery.
@Joyce-dd3fm
@Joyce-dd3fm 4 года назад
Beautiful flower arrangement! Love the tiles. Keep feeling good, Maggie! Hi Zak!
@rainbeaubear
@rainbeaubear 4 года назад
E47 and E49 are gonna look awesome with the red barn vibe 😍😍
@janisbehrens5086
@janisbehrens5086 4 года назад
E 47 and E 45. Those two compliment each other and will look like someone actually took the time to plan a very nice event building. People will appreciate the time and thought you put into this.
@cherylholasek2193
@cherylholasek2193 4 года назад
You guys are so dang cute. The barn is really coming along well. With you diet you do you and don’t let anybody make you feel bad. Thanks for the update.
@sandraargo8382
@sandraargo8382 4 года назад
Didn’t realize Zak was so handy!
@arieltaylor3046
@arieltaylor3046 4 года назад
E49 and E47 for sure! They'll look great
@gerardwebster1251
@gerardwebster1251 4 года назад
Another Maggie motivational video for everyone! It really got me going; up, up and away 🚀!!! Great chat and nice to see you’re taking those small incremental steps in your recovery! I feel some good things are going to happen soon! Thanks for the inspiration! Now to get back into the wood shop and make those things a reality! Due rewards are a true gift 🎁 of life! Be well Maggie! Thank you, Gerard
@sari-kitty
@sari-kitty 4 года назад
So nice to see you recovering from surgery so well Maggie. I hope you continue to feel better with each day that passes. XOXOX 😘🥰❤
@tonkinbray
@tonkinbray 4 года назад
Can i just just say... Maggie... You are a STAR!🌟🌟I cannot believe how much gusto and determination you have. I am soo PROUD of your journey. I sincerely hope you share some part of your speacial day as i would love to see you SHINE. I can't believe how much you've been through and yet you always smile, polite and caring for others. Your an epitome of an AMAZING NURSE. I LOVE YOU TO BITS. I hope yoir wedding day is everything youbwant as you deserve it. And your current renal problems settle and the kidney stents don't continue to hurt as much. Many people I've looked after say that every stent is different and some hurt alot, some are sensitive and some don't hurt at all. I really hope yours settle as you deserve a break. Im sharing this video as i hope more people vote for you. Xxx
@karendeakin9628
@karendeakin9628 4 года назад
I agree with Maggie this time ! Our diy stores having same problems with their plants here in uk workers being furloughed so nobody keeping up watering makes me so sad
@bumpybackroads1581
@bumpybackroads1581 4 года назад
typically in a commercial space you want your fixtures, tiles, flooring, and furnishings to be the same throughout...if you think about it, if you go into a mall or a church or a hotel or a museum, all of the bathrooms have the same flooring and tile and fixtures regardless of where you use the bathroom.
@tumunu
@tumunu 4 года назад
Hi Maggie! I'm glad you're past your surgery. I'm the person who suggested you make sure they give you the stent meds and no string. So just fyi the bad news is the stent pain will not get better - it's constant until they take it out. The good news is that the day they take it out will be a day of joy for you. The pain will go away like 90% almost immediately and the rest will fade away quickly. You should really make Zak bake you a cake on that day. Good luck!
@DanaWilliams05
@DanaWilliams05 4 года назад
The tiny orange 🍊 flowers that were your favorite are called Lantana in the south. They multiply and can take over if not maintained and they smell like Mary Jane 🤪
@RDC1946
@RDC1946 4 года назад
I too had kidney surgery twenty odd years ago, also had a stent put in, kept it in for six months!!
@DanaWilliams05
@DanaWilliams05 4 года назад
The arrangement is beautiful 😍
@mariemarieb3250
@mariemarieb3250 4 года назад
Lol the second one you picked up we both said at the very same time “ it’s a little too busy” 🤣 E05 has a barnish look. So that one and E47
@danithefiend6167
@danithefiend6167 4 года назад
Just stopping by to drop a Like! Thank you for your courage and strength! It can't always be easy sharing your personal life online. I want to let you know how much I appreciate it. Sending my love! I hope the pain you're experiencing dissipates and you and Zak have a great day! 💖💟💖
@MrOGREATWISEONE
@MrOGREATWISEONE 4 года назад
Hi from Kelvin in the land down under...🐨 🦘. If you are feeling a rubbing sensation from your catheter it must be placed incorrectly. The tubing shouldn’t be protruding past the balloon that holds it in place. I admire your resilience throughout all the problems you are faced with. 💐 🥰
@fransparano1177
@fransparano1177 4 года назад
Great job on the flowers I love it. I like the dark tiles for bathrooms
@jenniferkearnes9906
@jenniferkearnes9906 4 года назад
You're a genuine person and amazing at that you touched my heart through your journey ❤❤god bless you beautiful lady xoxo
@NorseButterfly
@NorseButterfly 4 года назад
E49 and E47 are perfect! And what's wrong with treating yourself to a cheat day occasionally?? BK and Starbucks sound like perfect, healthy-ish, cheat day treats to me!💜 Also, look into getting a few different types of floral frogs. My grandma used the ones with the holes in them the most, but she also had the ones with the little needles. They work wonders for intricate floral designs.
@doreenpollock
@doreenpollock 4 года назад
Love your flower arrangement. It is really pretty. xxxx Glad you're a little bit better 😘😘
@nancystewart2063
@nancystewart2063 4 года назад
I like E 77 for the ladies room and E 71 for the mens room.
@nancywilliams6777
@nancywilliams6777 4 года назад
I like E47 and I like the black with white veins (missed the number). E47 is by far my favorite!
@buchsdrn
@buchsdrn 4 года назад
E89 for the mens and E91 for the ladies, both antique-like and great for a rustic barn and they compliment each other.
@PaigeA6741
@PaigeA6741 4 года назад
E47 for men and e49 for ladies. I like the colored version but I think that pattern in black and white is really elegant
@LuckyLarry
@LuckyLarry 4 года назад
Thought the impossible burger wa s the best until.....at Kroger I saw the beyond burger patties in the freezer ....OH MY GOODNESS....have not had meat in 35 yrs this taste just like a real hamburger. Used the daves multi grain bun to put it on....
@Cochita322
@Cochita322 4 года назад
Wow love what you did with the flower arrangement ❤🌹
@gbk1t
@gbk1t 4 года назад
E 63 for the ladies...& E 75 for the men..... those would be my tiles of choice ! Thanks for sharing ! Best wishes from Kit. X
@kathynicklas9845
@kathynicklas9845 4 года назад
I get bladder spasms too. I’ve had success with the med Uribel. For home treatments I make sure my pelvic floor is relaxed, so I’ll massage my lower abs/pubic area. If it’s really bad, I put an ice pack above my bladder. Instant relief! I know everyone’s different though and you just had surgery. Just sayin I know how uncomfortable it can be! You got this!
@michellebarriball1536
@michellebarriball1536 4 года назад
The flowers were amazing and what a great idea with the bowl and candle holder. XxM
@lynsmith2698
@lynsmith2698 4 года назад
i love the 2 tiles you picked out.
@courtneyramsdell7707
@courtneyramsdell7707 4 года назад
You're absolutely right you are helping out thank you
@lisalove511
@lisalove511 4 года назад
Your arrangement was beautiful honey! You’re so talented in so many areas! I know I’ve seen that silver/green olive tree somewhere before as well! Is it Italian Maggie?
@aggynancy4920
@aggynancy4920 4 года назад
you can eat how you feel the barn is looking great
@lyndagreen241
@lyndagreen241 4 года назад
I like the tiles you picked out.
@littlemrpinkness295
@littlemrpinkness295 4 года назад
I had 3 years of kidney surgeries. My right was half full of stones, my left was a staghorn calculi. Stents everywhere from 1-6-16 to 10-10-18. I would be able to pee for about 2 or 3 seconds. When I left the bathroom my bladder still felt full, but because of the burning (like jet fuel) I couldn't go any more. On my way to the bathroom again I would start to pee a little bit, it would sting, I would scream and I sounded like a porg. Thank goodness that is all over. You can eat Burger King? Alex won't tolerate that, but he loves turkeyburgers. He loves peas, corn & carrots, no onions or peppers. Tomatoes and lettuce (each piece of lettuce MUST be cut to be the shape of the state of Illinois). E61 womens E75 mens The flower arrangement is lovely. I also like your top. Good luck with all the tours.🙄
@dianejohanson98
@dianejohanson98 4 года назад
That stint is a real pain. I only had to have mine in for 2 weeks, Two long weeks. I hated that thing. Felt like I was sitting on a stick! Mine had to be put in for a kidney stone removal. I had to sit in an office chair for those 2 weeks since I was a secretary and had to be at work. Not fun. Was so glad when that thing was removed! Oh, I have not been able to find Bubly anywhere here.
@kevindawson1280
@kevindawson1280 4 года назад
E77 for ladies tiles the blue ones And any of the black ones for the men the last one ya picked out is ok
@lauraelisee
@lauraelisee 4 года назад
The BK impossible whopper and French fries are my treat too! 🍟😊❤️
@brynnejewell1275
@brynnejewell1275 4 года назад
That was a neat way to arrange flowers and so pretty! I'm going to have to try that.I love that you know the term for pescetarian LOL
@anikabaddeleyrollingbackwa7341
@anikabaddeleyrollingbackwa7341 4 года назад
Can you do a video about veggies? I struggle so hard with obstructing would love some pointers. I miss my veg so much
@RDC1946
@RDC1946 4 года назад
You are the bravest girl I know!!!!
@UsernamesForDummies
@UsernamesForDummies 4 года назад
For the men’s bathroom I like the E75 but also something you didn’t discuss. Top left E1. Maybe only tiled 4-5 feet and the top painted in the same colour, just a bit lighter. For women’s bathroom I do like E77, I’m just not sure if these busy tiles date too quickly.
@conrad6598
@conrad6598 4 года назад
It helps that your website sign was shown in the background when you sat down in the barn.
@lisalove511
@lisalove511 4 года назад
Love E49 and E47!
@rachsl
@rachsl 4 года назад
Love the flowers 🌹
@Cochita322
@Cochita322 4 года назад
Hi Maggie enjoying your video as always , ❤
@jamespayette7574
@jamespayette7574 4 года назад
You also have a talent for flower arranging.
@JBRich1
@JBRich1 4 года назад
I would do E47 for both bathrooms and just decorate each a bit differently so each has its own vibe.
@meganlovesdisneyandcrafts4780
@meganlovesdisneyandcrafts4780 4 года назад
I like E3 and the bottom one i think e89. Same kind but not exact... i also like the black.
@virginiamorales1591
@virginiamorales1591 4 года назад
I luv the blue ones
@virginiamorales1591
@virginiamorales1591 4 года назад
Pretty arrangents!!! Ohhhh! No make-up on and still GORGEOUS!!! TAKE CARE. BE CAREFUL PLEASE.
@dianejohanson98
@dianejohanson98 4 года назад
I like E63 for the ladies restroom since it is a wedding venue. And E61 for a masculine look.
@mariafahey750
@mariafahey750 4 года назад
Wow we need those bank drive throughs in Ireland, that is so convenient😁
@peachxtaehyung
@peachxtaehyung 4 года назад
Oh wow you don't have those? We have had those forever! I grew up going to those all the time and I am 26 now
@mariafahey750
@mariafahey750 4 года назад
@@peachxtaehyung no we definately dont have them anywhere in Ireland, and I visit the UK regularly and havent seen them there either:)
@cheriebrittin7627
@cheriebrittin7627 4 года назад
E47. And. E49 my vote.
@rachelstevenson3686
@rachelstevenson3686 4 года назад
The chair was left for recycling and you have recycled it, win win really.
@RDC1946
@RDC1946 4 года назад
Its a massive barn, sweet Zak looks tiny for a moment!!!!!!
@DreamAmaya
@DreamAmaya 4 года назад
I'm torn between E75 for men and E77 for women or E47 for men and E49 for women. I'm leaning more towards the second choice.
@beautywearsboots6458
@beautywearsboots6458 4 года назад
You can get floral foam at Dollar tree!
@tjy124
@tjy124 4 года назад
I think you can do better than Lowe’s tile. There are many more options
@danisdelivery4919
@danisdelivery4919 4 года назад
E47 for sure
@peachxtaehyung
@peachxtaehyung 4 года назад
I think E 05 for men's bathroom and E 27 for the women's maybe? Or E 49 for men's and E 77 for women's?
@ellelynne6374
@ellelynne6374 4 года назад
Yessss I agreee with Maggie and I’m a fellow jersey girl l
@ldcemw
@ldcemw 4 года назад
I think a little height in the middle of the flowers would make it flawless, they are beautiful as is though. Don’t over do yourself. I had lower lumbar surgery and I now have funky spasms. Not fun. ❤️
@LetsTalkIBD
@LetsTalkIBD 4 года назад
Totally agree! I'll see if I can get the dahlia stems a little longer! ♡
@brandonshaw7619
@brandonshaw7619 4 года назад
IV have bladder spasms when I had stints or a Cath in worst with Cath I guess but man no fun. Good luck!!!! I had stint back in April you need to talk to Dr. Asap bound the constant pain sure their is a lot of pain but it shouldn't be consistent,
@sarahbelmonte8888
@sarahbelmonte8888 4 года назад
I like E63 for the ladies, but if you go for E47 for men’s than the E49 kinda matches... if you know what I mean 😆
@maryreynolds5310
@maryreynolds5310 4 года назад
Hey Maggie, you don’t know about why the 🪑’s are by the drop boxes?? Oh no, don’t know if I want to tell you, you took a chair a person uses 3 to 4 days a week! Anywho, I’m just kidding Maggie...lol You will give that chair a whole new look, and will be of comfort to many. Comfort, get it...like sitting down and...ok, I hush. :( lol I get more and more excited to see the venue in it’s completion, then I visualize it finished, and the chandelier...I CANT WAIT!! lol Anywho, you get better , ya hear...just close dose eyes, rest and heal. I hate you are in pain! The good news about me :) So, my appointment went well. My problem evidently is not as serious as yours is/was let’s hope, WAS! I do though hope the stint takes care of things. I was told my kidney is still distended, still things aren’t just as he would like, so in 6 months they want to take another ctscan. He said he doesn’t want to be the next Dr who will preform the 14th surgery on me in 3 years. Well honestly, I don’t blame him. I’m tired Maggie, I don’t want anymore! I’m more afraid what’s gonna get me in time once again is scar tissue. Yep, just a matter of time. Hey, wait a minute (I say loudly to myself) think positive Mary...I could be just fine in the here, there, and the now! 🤪 So, I have a question Maggie..Just as my thoughts about being hopeful I’m done, no more problems, no more surgeries. If this all goes well with you, could this be it, your done and you will see living with crones disease is treating you well now? Like no more pain too!! Ok, I’m done talking your ear off!! You take good care of yourself Maggie, and stay looking as beautiful as the flowers you grow! Much love and peace ✌🏻
@melaniepoulton6738
@melaniepoulton6738 4 года назад
Only problem with dark tiles is they show every mark, so if they're behind the mens toilet...
@patrickchambers5999
@patrickchambers5999 4 года назад
Let's hope your barn is done for your wedding. Forget about what might happen and just plan for what you know for certain - you, Zack and the officiant are the only three IMPORTANT people for that date the others are just icing on you cake.
@sandraargo8382
@sandraargo8382 4 года назад
Have you chosen your wedding dress yet?
@janedean1601
@janedean1601 4 года назад
The black or very dark tile may show every splish and splash.
@sbyerley
@sbyerley 4 года назад
Did your urologist discuss how certain foods, (like citrus, tomatoes, whatever) can effect your spasms? Maybe it’s been all sorted however due to the IBD. Just a thought.
@gregjones923
@gregjones923 4 года назад
The Knot,Wedding planner book....RU-vid has a few videos about it.
@peachxtaehyung
@peachxtaehyung 4 года назад
Have you researched what else you can do to help your spasms? Like other than the oxybutynin? Or can you ask for a different medication or stronger dosage?
@lynhardman1384
@lynhardman1384 4 года назад
I think grape is mine 🤗
@cindyc9721
@cindyc9721 4 года назад
LOL not supposed to leave stuff outside box. As long as outside box it’s free game.
@barbarahenninger6642
@barbarahenninger6642 4 года назад
Is there something you can put over the grout to keep it from showing dirt? I have seen a floor where the grout stayed clean, and all the others turn dirty grungy.
@missyretzlaff758
@missyretzlaff758 4 года назад
E77 for the ladies, and E49 for the men's restrooms, I think they should match, but they don't have to be the same colors
@rebeccaclavette2329
@rebeccaclavette2329 4 года назад
My boyfriend brother is getting married at the end of aug. there’s only about 16 people coming.. they were thinking of postponing it. I think they’re still going through with it. 🤞🏻
@fourgirls1boy4me
@fourgirls1boy4me 4 года назад
E77 for ladies
@teresa2334
@teresa2334 4 года назад
Love it
@carmenbaby02
@carmenbaby02 4 года назад
I like e49 and e47
@helenvincent1604
@helenvincent1604 4 года назад
Lovely flower arrangement ~ think you can do better on the tile selections ... XOXO
@mariemarieb3250
@mariemarieb3250 4 года назад
I think you should eat whaterever you can handle. Only YOU know what works for you 🙂
@keac84
@keac84 4 года назад
I really like e47 and e49!,
@mesmythamp84
@mesmythamp84 4 года назад
My mom likes flowers to. She keeps a fold-up military shovel and bags in the trunk of her car. For "opportunities" and one may or may not of come up in a food chain stores parking lot. Old ladies just don't care.
@traceyflater
@traceyflater 4 года назад
So will they take stent out? Another procedure?
@ILOVEMEW10
@ILOVEMEW10 4 года назад
Typical people telling you what to eat. It's just because they care. It doesn't justify them thinking you eat bad all the time🙄 Oh well. You both look really great. Take it easy Maggie ❤ It's exciting getting everything ready though😊
@sandraargo8382
@sandraargo8382 4 года назад
Throw some feta in with your veggies...
@WishingOnAPrayer
@WishingOnAPrayer 4 года назад
E49 & E47
@ritamcloughlin7332
@ritamcloughlin7332 4 года назад
☘️☘️☘️ E47 for the Men's bathroom Maggie, hi from Ireland... rita ☘️
@lrussell5496
@lrussell5496 4 года назад
I like the tile Zak chose for the men's restroom. I am again sorry, Maggie, but don't like your choice for the women's room. I think it is too "busy".
@meganlovesdisneyandcrafts4780
@meganlovesdisneyandcrafts4780 4 года назад
😳 Did Zach use hand sanitizer?! I’m sorry just made me nervous, super cool you found it though! Maggie it’s pretty much all about whatever our digestive system can handle.... like you said, we are all different. Also kind of the same though...❤️
@LetsTalkIBD
@LetsTalkIBD 4 года назад
He did! Dont worry, I always carry it with me!
@meganlovesdisneyandcrafts4780
@meganlovesdisneyandcrafts4780 4 года назад
LetsTalkIBD Oh good, The numbers in the tristate area are so scary and atleast for me i have to really think about going out at all. I know that’s not really healthy but it worked my booty off to get to 40 and every other warrior to get where they are. Showing love, not nagging or pushing agenda ❤️
@kimstacey2193
@kimstacey2193 4 года назад
The black and white tile for the ladies room!! The blue looks too blue and the wood looking one is ugly. Lol just my 2 cents!
@peachxtaehyung
@peachxtaehyung 4 года назад
I wish I could afford to eat pescatarian cuz that's the only kind of protein or whatever I can eat due to swallowing and textural issues. I cannot eat most animal proteins besides fish. And a lot of veggies I can't eat due to the same issues as well so I can't eat very healthy lol
@rebeccaclavette2329
@rebeccaclavette2329 4 года назад
E05 and E77
@pamharvill621
@pamharvill621 4 года назад
E47 I I like
@arlenemaxwellcopeland1644
@arlenemaxwellcopeland1644 4 года назад
You are allowed a treat no?
@patriciaconstantino4669
@patriciaconstantino4669 4 года назад
I’ve had an ileostomy for about five months now and I have not been eating any greens at all as Im so afraid of getting a blockage. I love chopped spinach but I’ve heard it is hard to digest.. I’d love to have a small salad or at least the spinach.. do you have any input at all Maggie about these foods and blockages? I see some people eat almost everything. I feel at times I’m being too restrictive with my diet.. my surgeon told me to eat whatever I want.. but stoma nurse right after my surgery didn’t quite say that.. 🤷‍♀️🤔
@patriciaconstantino4669
@patriciaconstantino4669 4 года назад
I absolutely love all the beautiful flowers. They are so gorgeous...
@n1iwr
@n1iwr 4 года назад
Patricia Constantina, i experiences the same thing. My dr said to eat anything I wanted but stoma nurse told me to stay away from soooo much. I’m Sorry u had to get an ileostomy in the first place but I hope getting it has helped w whatever issues u had. Congrats on making it thru 5 months!!! I’m just about 4 years post op. In my experience, like u said, everyone is different, so I think ur gonna have to experiment to figure out what u can & cannot eat. I know that’s not a great answer but that’s what I’ve had to do. Also, right after my surgery until about a year after, my diet was much more restrictive than it is now. I can eat many foods now than what I could eat in that first year. And I love salads too but they kill me after, so it’s not worth it to me to eat it anyway and be miserable after. Like u, I can’t eat raw veggies. Especially if they have skin!! But I can indulge when they’re cooked, same w fruits. So I’m sorry to say ur gonna have to experiment. Good luck as u move forward!!! U got this girl!!! HUGS!!
@patriciaconstantino4669
@patriciaconstantino4669 4 года назад
Thank you so much for your input Sandy.. I so much appreciate.. I had diverticulitis . Had temp colostomy in Jan. of 2018... attempted reversal in April 2018 but I had so much scar tissue , surgery was 5 hrs so the doctor then gave me temp ileostomy.. finally reversed in July of 2018.... 14 months later I developed stricture.. had balloon dilation twice... dr could not keep dilating for fear of perforating bowel . This March I had surgery to remove stricture.. again a lot of scar tissue . I had 5 hrs of surgery. I now have another temporary ileostomy as colon needed to rest after long surgery .. having a colonoscopy in Nov.. if colon looks good I can go for reversal surgery .. I’m really very anxious as this will be my fifth surgery and right now not sure if it is right thing to do.. I guess I’ll just see how colonoscopy goes and base my decision on that as well as my doctors opinion.. I’m getting used to the ileostomy and feel better than with colon connected so it is a tough decision. I will really need to experience with different foods.. thanks so much Sandy.. and best wishes to you with your health. ❤️🙏❤️
@n1iwr
@n1iwr 4 года назад
Patricia Constantino the drs wanted to reattach me but I wanted to wait until I was stronger before we made that decision. About a Month after my first surgery, I felt soooo good and I was really getting used to dealing w all of the pouching system and stuff. Then we discussed reattachment but all the complications and side effects that could happen, I felt I couldn’t deal w and the would have lowered my quality of life. So I didn’t have the surgery & I’m so glad I didn’t!! I’m back to almost my old self and my quality of life is awesome!! It’s been four years since my surgery!! Im sorry to read all that u have gone thru. Sounds like a nightmare!! Good luck going forward w whatever u decide to do!!! HUGS!!!
@patriciaconstantino4669
@patriciaconstantino4669 4 года назад
Thank you so much Sandy for your input. I so very much appreciate 😊 This makes me feel so much less alone. I too am getting used to my ostomy, bag changes... they are sometimes tough..sometimes I can change everything in 10 minutes .. other times it’s taken up to 45 mins as stoma gets very active and I need to keep starting over.. but I try not to let it upset me as it did in the beginning. If you have any tips for bag change with an active stoma please share with me.. 👍 Also, do you eat roughage? I’m now 5 months post op and I love chopped spinach and an occasional salad but my biggest fear with my ileostomy is a blockage .. I am so thankful I’ve found Maggie’s website and a few others as quite honestly I’ve learned more from people who have been through this than I have learned from the doctors .. my medical team is great but they don’t go into detail and basically tell me eat whatever you want.. I’m not really comfortable with that.. love and hugs to you Sandy 💗😍 stay well 🙏🙏
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