So excited to participate in this amazing moment. Thank you VeDA for giving us a voice and a platform to share our journeys with the world . Find your CHAPPINESS!
I LOVE the "sigh" in collective......says everything, without saying anything! I think the world joins the cast in this collective SIGH......Because we must breath out.....in order to BREATHE IN..........And with the new breath, comes an opportunity for a new moment, a new memory, a new experience. Very powerful!
Oh my God. This first video is EXACTLY it! You guys are so strong and inspiring. So transparent and brave. Living life to the fullest! Go VeDA Ambassadors! You’re all amazing!
Lynn Johnson, I have watched you battle this disease with an indomitable spirit. I have watched you challenge your symptoms with ferocity and never gave up. I remember when you couldn't even ride in a car but you were determined to never give up. You purposed to conquer this disease and I can see your progress. So I am so proud 👏🏽 of you Lynn ❤ and I love you 💕 so much. Much love from your cousin Sandy McCartney ❤
Thank you VEDA and all the participants that shared their stories. When I received diagnosis for Vestibular Migraines with Aura after extensive testing, the journey towards health was a long scary experience. It has taken years to "rebalance" what is unbalanced. The symptoms that are invisible to others have been disheartening. The vertigo, the speech, the vision, headaches that wax and wane, all of it combined simply drains the mind, body and spirit. WE ARE NOT ALONE and Together We Heal. Warriors do not give up, and conditions do not define us.
Rocking, swaying, motion. I actually rock now. Its really jacked up when you drive and stopped and other cars are you are moving around you and you feel like you are in motions. too. WOW
Thank you for sharing 🥰 These stories ring so true for me and it’s so nice to hear such positivity. It makes me feel hopeful. Looking forward to the rest of the episodes. x
Hi, what an amazing video, and well done to all of those involved in producing this. For such a short film I felt a whole range of emotions, I just wish our fight and struggles were heard and understood by the bigger audience. It’s time for change, why should we continue to suffer alone? ❤️ Adam Kemp Ménière’s Worldwide ❤️
So glad it resonated with you Adam. We are working hard to get this series into media al school curriculums, at care practitioner events and into much wider audiences. We agree with you! We need these stories to be heard and understood so no one suffers alone anymore.
This video so on point. I just found this video while doing some research on vestibular disorder. I have had these symptoms that come and go for several years now. I have always been made to feel like what I was feeling wasn't real. So thank you so much for this video and shining a light on this disease. More people need to talk about this. I was suffering alone in silence but now I feel like I can talk about it and inspire others to do the same....amazing video thank you!!!❤
@@BPerez-fp6ix Wow. I am so delighted to hear that you found this video and feel solidarity in the message. So many of us thought we were alone and it turns out there's an entire community of vestibular patients supporting and working together to make our journeys a little less hard. We really appreciate your feedback - hope you found the rest of the series just as helpful!
This was so great glad you are doing these short stories that is now our lives. So hopeful to hear of other people on the same journey and the ability to talk about the everyday struggles!!! As when I’m writing this response I have to struggle to just find the words 😢
Thank you for this informative video that will help those with vestibular disorders communicate what living with them is like. I was diagnosed 5 years ago with Menieres. To anyone suffering with a vestibular disorder keep researching and looking for answers and therapies that work for you. For me, it really helps to know I'm not alone in this journey.
I cry everyday because a lot of the times, I feel like I’m walking down and up when walking. When sitting down, I feel like I move occasionally. In bed, I feel like I’m swaying. I have this a lot of the times and thankfully, the intensity has decreased but sadly, I still feel it. I can’t imagine how people have it worse than me like in this video. I can still manage to to do anything I can, except exercising cause I’m scared. This wrecks you physically and emotionally. I hope we all get better!!
Hi Kev San, We are so sorry to hear about your experience. If we can help with support, referrals or information please contact us at info@vestibular.org or 800-837-8428
I'm convinced that my balance issues started by coming off of the SSRI Lexapro too quickly. From what I've read, the most typical symptom of a long-term withdrawal is dizziness, light-headedness, and vertigo. Is anyone out there familiar with this syndrome?
Bonjour , je ne savais pas ou poser ma question, je dois porter des lunettes de vue et elles me déclenchent à chaque fois mes crises dès que je les porte mais j en ai besoin , j ai changer plusieurs fois de montures et de mesures tjs pareil est ce que vous avez une solution et si j étais toute seule à avoir ses symptômes avec mes lunettes de vue ? Je souffres de migraines vestibulaires
Hi, I welcome you to explore our support groups! Sometimes just connecting with others who have, or our experiencing some of the same things helps with some of the feelings that are arising. Here is a link to access the various support groups (vestibular.org/article/coping-support/support-groups/). You will find that there are in-person, online, and facebook groups.
