I live with this every day I went for 2 and a half years with nobody listening to me , I end up in ICU before being diagnosed with PH I am now on oxygen 24 hours a day and use a wheelchair out of the house. It is a complete life changing disease of which there is still little understanding, I am still trying to come to terms with it all, however I now have an excellent team of experts around me but nobody knows what the future holds. Good luck to you Julie x
