Brian's ALS Diagnosis Story

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The ALS diagnosis process can be frustrating. There is no one definitive test, which means your neurologist may need to run a series of tests to rule out other conditions. Learn more at www.youralsgui...
When her husband was diagnosed with ALS five years ago, Lori Andre met with clinicians and researchers across the country to find the best care for her husband. Since then, she has been a fierce advocate for the entire ALS community. Lori serves on the core advisory team for I AM ALS, works on multiple committees at NEALS, and moderates discussions on her popular “This Is ALS” Facebook group.
Your ALS Guide is the leading educational website for people living with ALS, caregivers, family, friends, and professionals. Find educational guides, expert videos, practical tips, helpful resources, and more at www.yourALSgui...

Опубликовано:

26 сен 2024

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Комментарии : 19

@jerryfawcett1399 2 года назад

I said a prayer for Brian to be healed.

@lanarey4944 2 года назад

Behold the results was negative. I'm ALS negative it's been 4 years since I got my complete healing naturally with the help of Drchala from west Africa who I find here on RU-vid channel

@lanarey4944 2 года назад

Behold the results was negative. I'm ALS negative it's been 4 years since I got my complete healing naturally with the help of Drchala from west Africa who I find here on RU-vid channel

@shawnmcanthony5724 Год назад

@@lanarey4944 behold Lana i can fly 😮

@lanarey4944 Год назад

@@shawnmcanthony5724 you can get this out of your body just for once this man has the solution to it

@shawnmcanthony5724 Год назад

@@lanarey4944 hi Lana ALS is fatal. Only in Jehovah gods kingdom here on earth just like in the garden of eden which was Jehovah gods original purpose at isiah 33:24 no one will say i am sick.

@joshuajohnson4672 2 года назад

Am I understanding correctly that Brian had EMGs that were inconclusive prior to the one that they finally gave the diagnosis? My mother has ALS, but is progressing very slowly. Her mother, my grandmother, had ALS and lived for 13 years. Her father, my great-grandfather, died of ALS. His father, my great great grandfather, died of "wasting disease". I am now noticing unusual fatigue in my left leg with activity i previously tolerated. It is, for lack of a better term, clumsy. I went to a neurologist who said that I was clinically strong and that there was "mild slowing" on my EMG but not consistent with ALS. He said I was getting myself anxious because of my family. The weakness/clumsiness continues and is slowly worsening but I am afraid to go back and get told it is all in my head again.

@YourALSGuide 2 года назад

Hi Joshua, we have a full Q & A with Lori that provides more context. There you can also find the info for her popular Facebook group and could contact her there directly. Visit www.youralsguide.com/lori-andre-interview ... Also, if you're concerned, it could help to visit a neurologist who specializes in ALS. You can visit our ALS clinics directory to search at www.youralsguide.com/als-clinics-directory Hope that helps!

@Cmscp2 Год назад

@@YourALSGuide these RU-vids & Fb page are invaluable, thank YOU! I recently had a very comprehensive emg with a tenured, acclaimed emg doctor who has diagnosed me with progressive bulbar palsy. Genetic testing has also stated als as well as being diagnosed recently with oropharyngeal dysphagia from a swallowing test. The one als specialist I saw last week disregarded the info above & has suggested a ent doctor. Like Brian, I try to stay very active & feel it must be a slow progressive als as well, esp. after meeting this emg dr & understanding his report & years of weakness, dropping things, falling, clumsiness, etc. I read Lori's interview & saw she & Brian saw Dr. Merit Cudkowicz in Boston. Is that the doctor that diagnosed his als? I'm in Louisiana but willing to travel there to get a correct diagnosis from a doctor who can recognize a slow progressive form of als. Again, thank you Lori & Brian for your courage & bravery in sharing ur inspiring story! Praying for you both.

@klauszweig6709 Год назад

on EMG, you look for signs of denervation, which is pathologic spontaneous activity (fasciculations, fibrillations, positive sharp waves) and sign of reinnervation (increased potentials, satellite potentials...). whatever "mild slowing" means... Weakness/clumsiness could have hundreds of causes, go see a professional.

@fufurabumbacka Год назад

Basketball? Its a cause of ALS

@La_cubana 2 года назад

My husband had diagnosed Mar but I know something is not good maybe around 2 years before 🥲

@Skybluewindcool 2 года назад

What are his symptoms ?

@neecie9075 Год назад

Same with my sister... lots of falling and tripping. I believe brain fog, too. You could just tell with the falling, hitting her head, etc., something wasn't right.

@La_cubana Год назад

@@neecie9075 him past 6 months ago , my ❤️ are 💔💔💔

@La_cubana Год назад

@@Skybluewindcool the most shocking, he’s hands legs

@La_cubana Год назад

@johngallagher3732 a lots of choking, weak hands left legs he’s past 6 months ago , fast after 9 months 😭😭