Listening to you brings back memories long forgotten. Twenty nine years ago I had the same exact surgery (‘92), 4 mos after giving birth to my son. I had a dime size tumor on my tongue. I thought I chipped my tooth and it was rubbing against my tongue (if only!) Had the partial glossectomy. Then in May of ‘93, the radical neck dissection (that was a biggie!) I was 28, female, didn’t smoke, drink, chew tobacco, so why? I have a theory, but there’s no hard research data...yet. So I thought I was done... Until last year September 2020 it came back and because I had my tongue operated on before, it would be much more “radical” then last time. Listening to the doctor tell my son, now 28, why my option was, we were like WTH??? The treatment involved removing the remaining left side of my tongue and replacing it with a skin graft from my arm. Which also meant removal of the veins and the ulnar nerve. I also had another neck dissection on the right and they reopened the left to check if anything new was there. Spent 7 days in the hospital and came home with a feeding tube. There’s so much more in between but the bottom line is...NO MORE CANCER!!! Yes I was scared, but I didn’t have a choice, it wasn’t “elective” surgery. And this was my ONLY option. I had no one to talk to who had this procedure. I can eat & talk just fine with a few residual side effects. But I’m here to talk about it. God Bless!
Thank you for your story. My husband is about to have the same procedure and that is our mantra. Get rid of the cancer. Stay alive. It is helpful to hear about others and their survival stories.
@@kathyf1964 thank you! He spent 14 days in the hospital and came home on the trach and nasal tube but they said his was a textbook surgery and outcome, and he is already talking decently, so we are pleased. ❤️
@@pbkkbecker that’s GREAT news! Tomorrow will be 9 months since my surgery and I’m doing really well. I’m eating on the side that I had my surgery on with no problems (side note here: side March I’ve been ONLY eating on that side due to the removal of a primary molar and am awaiting my implant for that tooth this month) and my skin graft has healed very nicely. Every day will get better and better ☺️
I had my tongue cancer surgery done and reconstruction of tongue was done from wrist flap and lymph nodes are clear and no further treatment was required. I can speak 95% clear. Have faith on God and all will be ok. My surgery done 5 months ago in australia.
@@mikasus9491 There was no symptoms, just noticed white patches under the tongue. Currently I have reoccurrence of cancer again in lymph nodes and it's been treated
I too had a tongue surgery before two years. Completed radiation. cured by the God 's grace. Now the difficulty is dry mouth..but overcoming ..may God bless and cure you..all...
I had back of tongue cancer, stage 2, in 2018. Surgery removed all and along with lymph noses in neck. No reconstruction needed. Surgery was done at U of Penn on 9/4/18 and 30 radiation treatments. Have swallowing problems, saliva and dry throat problems, otherwise im doing rally good!!
My husband is going to do the same in just over a week. Was your radiation 5 days a week? That’s what they are saying he will be looking at after surgery. He is having half his tongue removed. How was Recovery with everything ?
My husband is going through the same thing right now. Just completed 35 days of radiation. Tongue and lymph nodes. They just found polyps in his colon and we’re praying it’s not there too. 😢
You are very lucky! My 37 year old wife passed from tongue cancer. By the time she had a biopsy, and, as you said, the only sign was a small white spot on the side of the tongue, it had spread past the midline and surgery would have taken nearly her whole tongue. God Bless!
Hi Calvin so sorry to hear about your wife , I’ve gone through it twice now. It’s definitely not easy , you sound like a very caring husband who loved your wife very much. So sorry, may she rest in peace 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼👋
So sorry to hear that Calvin, yes this kind of cancer can bea silent killer, I myself almost died from my cancer,but I can tell you it left me physically changed. Trach ,feeding tube for life ,but god bless your wife and your self.prayers for your wife 🙏🏼🙏🏼🙏🏼🙏🏼🤗🤗🤗🤗❤️
I'd like to know how you're doing. I had lump. Antibiotics didn't help. Fit as a flea, 43yrs. MRI, Pet and ultrasound confirmed cancer. I had neck dissection, tonsils removed, mouth material taken out. Then 4 weeks later radio therapy 6 weeks. The surgery was a 10 hr surgery. Pretty rough. I have 7 sessions of radio left. I'm not as able at work, I haven't done much in the gym, done some boxing and swimming. Neck and mouth starting to get sore. Not letting it slow my life down. But weight training hard as the shoulder nerves have been damaged. End of April I hope to get back to my training, I want my 6 pack for the summer and build my body back up. Good luck everyone. I struggled a bit we had a twin son die at birth 23 weeks gestation. Our little girl doing well, now 10lbs was born half a lb. So sleeping has been no existent. But getting through it all.
I'm also having similar symptoms checked 2 doc but it was infection but it still haven't healed plus I have lymp nodes and a lump on throat plus difficulty breathing so I'm seeing an ent I hope it's not cancer as it's lasted for 2 months 😭😭😭😭
@@user-ux5is9yo4q I need regular check ups but I seam okay, neck sore, eating okay, not so fit but age is upon me compared to last year and the them before.
@@Missrere1984 I am feeling uneasiness on the right side of my tongue while swallowing. Could that be a cancer sign ??? I do not have any other symptoms. It's giving me sleepless nights
My case somewhat worse. Tumor nestled on inside of jaw. Larger than they thought but by some miracle it just grew on itself. Nodes removed and analyzed .. nothing. They removed two-thirds of jaw, rebuilt with fibia from leg along with a flap of skin to form lower pallet. Lost ALL teeth due to advanced periodontal disease. Minor complications and two revisions on new jaw due to clotting. worst pain was tape on my hairy chest. Trach thing below Adam's apple. Feeding tube. Drains both sides of neck and atop leg section. No radiation needed. Currently 25 days post op. Still feeding G-tube direct to stomach but 100% pain free. Pain never really an issue.
A few years back like 5 I want to say I noticed a small sore on my tongue. Thinking it was a canker sore I thought nothing of it until a few months later I was in the hospital for pneumonia I believe (I'm always in the hospital) and it was a lot bigger and so sore so I showed the hospitalist and her order something to coat it said it was fine and never asked about it after that. Upon discharge I went to a rehabilitation center to work in my strength and it got so bad they made an appointment to see a doctor. He actually listened to me and said he thought it might be cancer so he wanted to remove it and have it tested. Pre surgery was a nightmare (another story) but he cut like 1/4 of my tongue off and sent it in. It came back negative but said it would turn into cancer possibly if it kept coming back. And that it did do for the next couple of years. It would get huge and at time feel like someone was electrocuting that part of my tongue and it would bleed. Seen a doctor back home for it and he said "it's fine, you're probably eating something to irritate it so it won't go away" 🙄 no I'm not having that. Seen a dermatologist I want to say November 2021 and he said he thinks he may know what it is. He prescribed something and told me to take 3 zinc pills 3 times a day. If it doesn't go away in 2 weeks he's gonna send me to the main specialist in my state. Mind you I'm going crazy not being able to eat well and tongue being zapped like that on and off for years I wanted to give up. To quit. I'm tired of the pain. Anyway come to find out it was 2 problems in one. My brain was misfiring to the nerve where that sore was apparently my brain was confused. Anyway I had 2 small flare ups in the beginning of 2022 and since then nothing. Oops I forgot to mention the dermatologist cut the sore out of my tongue in the office. The tongue is no joke. God bless you all and heal you completely and forever from this awful disease
I am having a biopsy in 3 days. I have had an ulcerated area on my tongue for 10 weeks. Pretty scared but reassured by this video and peoples comments who have had treatment.
So was it cancer ? How are you doing ? I’m going through the same thing. A leison was found on tongue by dentist. So I am about to make the calls for the ENT as soon as I can get in . I’m very worried
I Had Squamos Cell carcinoma Feb 2021 I was diagnosed. My surgery was April 15 I had My tongue reconstructed the left front side of my tongue was removed they grafted some skin from my left forearm took out some muscles and Blood vessells from my wrist for my tongue After 8 Hrs in surgery which went great they removed all the cancer and now it is on to radiation then speech therapy.
@@maryanngarcia3925 Hi my Radiation went well I did 6 Weeks With 7Chemo treatments once a week, but the last two weeks are the worst I got dry mouth, lost my taste and had sores on the inside of my Mouth and Lips. I Have to do it all over again they found some more in my Lymph Nodes on the Left side of my neck Dec 17th was my surgery. Radiation will start about the 2nd week of Feb. Praying for you and your Hubby.
@@maryanngarcia3925 I have been through the procedure .. radiation is the most difficult time…the most important thing is to brush teeth . There will be ulcers in the mouth and and gums and it would hurt a lot but tell your husband he will need to brush his teeth or it will cause oral thrush. That it horrible in itself. He will have problems sleeping because of constant coughing and mucus build up at night or day. Keep a large bowl to spit in it. He will start feeling side effects of radiotherapy from week end of week 2 onwards. Eat loads of vegetables steamed and fish before that stage . Drink loads of water before that stage. No sugars and no snacks .. no pizzas either good luck to your husband hope all goes well. Let me know if you have any questions
I’m going through the same problem like yours right now and what started like a canker sore turned out to be cancer. The sore is so painful that it’s hard to chew and talk at times. The pain on my tongue is so unbearable at times that I can’t even work. I’m a nurse and I can’t take care of my patients knowing i’m suffering from pain too. I’m going for surgery in 9 days and I’m scared but watching your video helps me to be less anxious.
@@jabberwocky1969 I had surgery and radiation treatment and I’m a year post treatment. I’m back working as nurse in the hospital but I only have 20% of my taste back.
I had my surgery 3 months ago an listening to you is like hearing my story, you made me smile an cry all at once, they wont able to tske out one of my tumors thou, im doing chemo an radiation, if you dont mind can we talk, i ferl as though you'll understand some of my fears
A diagnosis was made of me having stomach cancer and esophageal adenocarcinoma in the year 2017. Its still a battle for my relatives and friends. I found were in a Facebook support group Truth about cancer
Your experience was super helpful to me. Going in tomorrow for same surgery but waiting on dissection . I hope I will be able to talk as well as you do. Hope all is still well.
You can speak ok though! I am going into surgery in a few weeks. Same thing for me, doctor said 1/4 of tongue removed, but has to do pet scan, and pathology report during surgery.
Hi atm feeling a little weird had my op 6 months ago had to have around 10% of my tounge removed and nodes in my neck removed alough now I have no taste on one side, one side all my teeth hurt and numb under my jaw and arm is still not recovered so life is very much changed since and now has hit me for some reason but thank you for asking means a lot
@sridharreddy8011 she's doing okay .She had 6 wks of radical radiotherapy. She can't each much due to everything tasting rancid. Lost 4 stone but slowly feeling better
Very courageous to make this video for others to benefit from your experience. I was curious to know which cancer was the cause, especially since it was mentioned that you had had the Gardasil vaccine (against HPV).
I had the same cancer in early 2016. No surgery for me, but the chemo is a bad choice and wasted procedure and did some research on it. I was cured as of 2022. Even so radiation is very rough and there was a time I didn't care to live anymore.
I was diagnosed this past March with breast cancer stage 3 had it removed now it's July I noticed a difference in my tongue I thought the. Cat Scan would show Any signs of cancer. Could this be cancer it grew so fast or is it more likely to be. Thrush ??
I'm very very scared. I'm going in for this in 2 weeks. I was thinking of taking my own life instead of this. You helped me!!! I don't know if I can do it!
Al Niko have faith in yourself I had breast cancer now mouth cancer I could happily cut thing out myself mine inside mouth now encroaching lip.your post two months ago I hope you recovering well.unfortunaly the convo virus here two babies died local hospital and where I live many have virus some have died.these babies caught in hospital so all ventilation equipment being used on those that needed I over 70 and come way down the list.all medical appointments being done over phone,for me what will be will be....regards best wishs
Im awaiting seeing an ENT, and tomorrow going to a dentist because I have a large yellow painful bump on my tongue. Im hoping itll be just an infection....
Thank you for sharing your experience ! I have a hard non painful whitish lump on the side of my tongue. It’s been there for two days and I’m 19. I am a little worried but I’ll keep hoping it’s nothing alarming.
i have the same whitish lumps under my tongue that i monitored for years until i got canker sore that didn’t heal for weeks. I got biopsy done and it’s cancer. I’m going for surgery in 9 days. Luckily it’s on very early stage but I still have to go through surgery. That’s the only option. Please go to oral surgeon or ENT and have it look at.
my surgery is in 2 weeks I'm getting the reconstruction of tongue done from the wrist flap and removal of the lymph nodes as precaution. I have some questions if people can help that have had it done. I live around my computer and need my hand functioning normally, Do you loose mobility in your arm/wrist/ fingers from the flap removal? Obviously depending on the size of the removal whats speech like after and swallowing will i speak normally ever again? I'm just very scared as I'm 24 and i know my doctors say everything will be fine but i kinda want to hear from people that have gone through it you know. any information helps thank you if you took time to read my comment.
I noticed a small bump on the side of my tongue last tuesday , i would say that it looks like a very enlarged taste bud. i went to the dentist and he said that it looks like i bit my tongue and gave me maxilas tabs , its been 5 days theres no pain or discomfort anymore but the bump hasnt gone away should i be worried ?
Austin Noel Piano & Chemistry Vidoes How has it been ? I’m experiencing the same thing right now but it first appeared on my cheek then to my tongue , I’m worried.
