In Jesus we can have peace, no matter our circumstances. I love that you put a scripture at the end of every video. May God bless you and the family and little Raelynn. She has the most beautiful eyes. Sending love from South Africa 🇿🇦 🐼❤🙏🏻❤🐼
Aww, Raelynn seemed like she was laughing after her shower🤗Maybe the biggest smile I remember seeing from her yet 🤗 Looked like she enjoyed the music at church too ♪♪ She gets so much love and care from you both, her siblings too ♡ Getting to see some of it helps teach all of us in more ways than one, thanks 🙌Love Raelynn’s colored night globe, bet she does too 💙💕
Aww how sweet Raelynn was smiling even laughing after shower. And a smile while mom (abbey) was singing Smith the shaker vest . Raelynn is so blessed have parents like you two. You know when she happy or sad and what to do .I look so forward seeing Raelynn she is truly a ray of sunshine. Makes most of everyday doesn't give up still smiles laughs and like dad says even when life seems hopless there's always hope. I love that and a Bible scripture after every video that's awesome love that. Have a blessed night Raelynn see you next video blessings
I LOVE Raelynn's hair cut! She's such a little cutie pie! The little song Abbie was singing to her about shaking her sillies out, took me back many years. I use to work in a preschool program for visually impaired and mentally challenged children, and we sang that song every morning! What's the name of the spray to keep my bottom dry? I'm urinary incontinent, and something like that just might help me. I really enjoyed the tiny snippet of music from church. Thank you all so very much for sharing your story. LOVE and PRAYERS ALWAYS from Gainesville Florida!❤🙏😊🙏❤
First off I wanna say you guys are such good parents to Raelynn Second when I first clicked on the video and her beautiful smile made me so happy I wanted to see more of it it was so beautiful Second I hope her button for her G tube feels better soon May God bless you sorry I was a little late to this video
i love you bolth your my faverite youtube to watch i have been praying for you bolth i have special needs also GBU bolth i do to its so impowering AMEN
Raelynn was trying to catch her breath after the shaker vest, cough assist and Albuterol partially cuz we saw that her heart rate was 145bpm when you panned over to the machine. I know we see her heart rate higher than 100bpm at rest because of the autonomic dysfunction, but I’d say for anyone a heart rate that is higher than 130bpm even during exercise, standing up or sitting would make anyone out of breath. I wear an Watch so I am aware of heart rates when I get out of breath and what heart rates are when that does occur.
@@HopeAndSunshine probably for the rest of us Albuterol may raise heart rate to a resting heart of 100bpm-115bpm but for those with autonomic dysfunction it may do what happened here of 120bpm-145bpm. But like I said a heart rate of 125bpm-145bpm or higher would make anyone huff and puff to get air no matter the reason for the cause.
@@HopeAndSunshine I remember it was recommended to me to do Xopenex and Qvar instead of Albuterol because of the heart side effects for those with breathing and possibly heart problems. Not sure if they still prescribe those meds nowadays, but you could maybe ask for something similar if it’s not available anymore.
hope you have a lovely weekend :) does Raelynn like the wiggles? I just recently went to the OG wiggles adults only live show as I grew up listening to the OG group.
@@HopeAndSunshine I have been watching you guys for some time. I'm belinda. I have a daughter how is very complex she has epilepsy and a lot more problems in the first lock down she had a stroke so that's made things a bit harder.. my girl is called Helen and she's 14 and loves pink and all things frozen.. xx
my cousin had so many medical issues. she went through 45 surgeries. unfortunately the 45th happened and her body gave out and she died. she was 11. her name was rylan.. sad to see your child suffering through all these medical issues i hope she gets better
My aunt that lives in Los Angeles she got some bottle of Flonase spray and she was talking about it and i am like that sounds uncomfortable conversation between my mom and my aunt Chris Huff
For anyone asking why God would allow this to happen to a child, this is the result of us living in a world marred by sin!!! And I can assure anyone that despite the challenges this family faces God will always bring good things out of anything negative that happens!!! And we have a promise that Jesus will return and recreate our world with no sin!! Our world will return to its original state that God intended with no sin, no illnesses no death no pain and any other problems that we deal with now!!! What a beautiful and strong girl!!! And as Spock would say may she live long and prosper!!!
ok so what time do you want us to be on line so we can talk to you raeylnn and abby on momday and is it live or do you have to be a member to talk to raelynn
