In this episode of I CARE FOR YOUR BRAIN with Dr. Sullivan, board-certified neuropsychologist Karen D. Sullivan discusses these little known and researched vascular malformations. Learn more at www.ICFYB.com
I have a cavernous malformation in my right frontal lobe with 3 hemorrhages since 2012. I found the Alliance not too long ago, but its been a lonely and difficult journey since my diagnosis. They have been a life saver! Thanks for your videos also, and spreading knowledge and awareness!!
Very informative thank you. I had a pop in my head in April and have had headaches every day, neck and ears feel like tight, like I'm gonna pop. Lost of memory dizzy spells, confusion etc and I see a neurologist this Tuesday. We shall see what they say. It's taken me months to get in to see a neurologist and hoping things are okay. Haven't been able to work since April. 😪
I have a MRI lesion in my cerebellum that they differential is low grade and cavernous. I have also been dealing with pernicious anemia. I have been referred to a neurosurgeon. I hope they can do more imaging to better identify. My recent MRI show it has expanded. That has led to my upcoming appointment next week. Are there better imaging diagnostics to help determine?
Dr. Sullivan I was diagnose with CCM on right side of my brain from Mayo Clinic last 2020. The present issue i have is difficulty moving my left upper and lower extremities. My PT told me my brain has a perception problem. My brain is sending me a false information. ( My brain is telling me, my left body from shoulder down is heavy and stiff but physically there not.) Do you have a recommendation with my issue?