CdLS 40th Anniversary 

The Cornelia de Lange Syndrome (CdLS) Foundation is celebrating 40 years of supporting individuals living with this rare disorder and their families.
With the will and determination of a few parents a Foundation was created. They found a dedicated Medical Director who taught other medical experts about CdLS. They hired strong staff who understood the value and promise of helping current and future generations. They also turned to dedicated volunteers who were connected to someone living with CdLS. Listen to their stories and how this anniversary is important to them.
Hear from founding parents, Julie and Frank Mairano; former Family Service Coordinator, Lynn Audette; volunteer extraordinaire, Norm Winnerman; and Medical Director, Dr. Tonie Kline as they discuss how important this anniversary is to them and the thousands of families across the country.