This video featuring people affected by Charcot-Marie-Tooth disease (CMT) and specialist neuromuscular health professionals is an introduction to the main facets of CMT and the support that is available from Muscular Dystrophy UK.
Read "A Piece of the World" by Christina Baker Kline, which deals with a person who probably had this condition at a time in history when no one understood it. The character in the book is a real-life person who was often a main person included in Andrew Wyeth's paintings.
Hi there, if the is any support that we can offer with information on the condition, healthcare, or getting in touch with others than please do get in touch with our freephone helpline on 0800 652 6352.
No specialist I’ve ever been to including those at the MDA clinic in the US has ever done a damn thing for me. They have made my condition worse. The doctors are horrible in the US
No kidding the MDA clinic is a joke, I refuse to go to another Neuro Specialist as I feel they know next to nothing about this disease. My Eye Dr knows more about this disease than all the other Dr's I have seen thru the years.
