I’m surprised she didn’t get an MRI, it’ll almost be three years since my symptoms became prevalent, and my doctor sent me immediately to get an MRI, but sadly I was told it wasn’t life threatening and so I’ve carried on with my pain that is until now, I’m finally seeing neurologist hopefully all goes well.
This isn't actually a good question to ask bc many of us are born with this and if it doesn't show up right away then there is a good possibility that it won't until later yrs in life. That is what happened to me in my late 30s. I am now 51 and have had 3 brain surgeries along with some major setbacks. For the past couple of months I have been laid up and bedridden bc my occipital nerves are being affected. The pain is so severe that I have been to the ER, had injections into my head with no relief and the meds that I have been on for a moment to no avail is insane. Yes, life with Chiari Malformation has been no quick fix and those of us who continue to suffer even after surgery give thanks for those who are up and well. A great deal of us suffer in silence bc there are not many Drs who know of this disease and how to treat it. Blessings
My gtanddaughter has had three brain and spine surgeries. Her charai was suspected by a pharmasist when she threw a class A tantrum and kept holding her head. His advise was taken and she was in childrens hospital the next day. It was a horrible thing to see her go through, they even took out some of her brain, but, shes good now. She is 14 now and plays sports and is always on the honor roll.
Do you have a headache ALL the time? I don't but they are excruciating, stemming from the base of my skull and I get violently sick, red, and sweaty. With someone doing slight traction on my neck it gets better in just 1 or 2 minutes. The chiro even felt my skin and said "Wow it feels normal now." Before I was clammy, sweaty, bright red. I've been suffering since 2009 and doctors don't care. They say I'm depressed lol it sucks
@@dancinggold17 I have headaches A LOT but they aren't where Dr's keep asking but have other Spine problems but I do have the Chiari 1 found it when I was 16 an they didn't want to do anything then an still won't til this day even though I have a LOT of nerve damage even tho when the nerve damage started before they even saw the damn back problem....Bunch of Drs have Failed me an still fail me to this day all because of 1 darn hospital an 1 darn back surgery that I shouldn't had by the looks of it I should've had this done !!!
Had a Chiari Malformation with 29mm of tonsil protrusion. Had surgery 5 years ago and it's a long road to recovery, but my symptoms are so much more manageable. Anyone getting surgery I highly recommend working with a physical therapist immediately afterwards. There is so much muscle loss and imbalances that can occur after surgery. Physical therapy has helped so much.
Don't take anything teratogenic if you're pregnant. My mother did, and my life is almost constant misery as a result; I can't think of any other reason why I have this malformation. I have these headaches every single day and need to take medication just to function. The neurosurgeon I saw didn't want to perform surgery on me, so my only option is medication. I never knew I had this for years until I got an MRI done. I have headaches and all the other symptoms of Type 1 chiari malformation: balancing and sleep issues, sore throat, hoarse voice, difficulty swallowing, etc.
Frank Dannetti headaches r frequent mines at around 8-12mm and being monitored with mri's every 3 months. Yawning coughing sneezing and evening the morning stretch causes pain. If any increase in size my surgeon will operate 😧
My brother was 26 when he was diagnosed with chiari malformation. He was 27 when he died. They did the release surgery in 1975 . He was fine for a few days and then started seizing and lapsed into a coma. He never really came out of it and died two weeks after his only child’s first birthday. 49 years later still tough to understand why.
I had to have fluid drained from the spinal column cause the fluids got stuck....I still suffer from pain... grrrr, but feel so much better. I can sit up in a chair much longer than before.
Omg is that possible? I already had the surgery, but I’m really bad again, I have cysts that won’t collapse on my spinal chord, maybe they can drain the fluid so it can relieve some pressure. Thank you
@@suzzanimalchannel1030 I haven’t had that big surgery, but I had something similar done when I was a small kid. To make matters worse we didn’t know the doctor was doing back type of surgery back then .
You can't say it's fake. Maybe it worked for her. I've had the surgery twice and I don't feet great but some people do. This is one of those conditions that affect everyone differently.
Damn I need to find that Dr. nobody will do anything on my Chiair around my Area cause I have a back problems an had back surgery in the past I'm guessing they think all my Nerve problems came from my back lol well I've done a shit load of research on this even Chiari MAIN site their OWN site an for Children an yeah I believe this is what caused my problems NOT my back !!! But its pretty much my Life story but Doctors are failing me over an over again sadly in my Area I swear I live in an Area that just freaking Sucks unless you make thousands of dollars or have NOT the Government insurance it seems sadly !!!
@@sarahsmith9430 I am so sorry to hear that! Please follow up..it's a lot of work but just stay persistent. Some Drs haven't heard of this so they kinda think your exaggerating the pain.
soi rosa rueda pues yo estoi hopera de harno chani tipo uno y enasido de nuevo ase 9año mi bida fue un infierno toda la bida mala ke me estaba apagado pokito a poco y no medaba con lo ketenia asta ke con 47año por fin me hoperaro ke fue un angel una manita de oro le estare agradesiendo toda la bida mede bobi ala bida grasia
I'm sorry but my son had a bigger skull than most. What the docs don't tell you is they theorize Chiari is a congenital problem. No, My son fell head first into concrete tearing cervical c1c2 ligaments. Like an EDS patient he had laxity of ligaments. Like them he had cerebellar tonsilar herniation not a malformation. Removing skull bone is not correct. Fixing the c1c2 instability can reverse this herniation. My son's misalignment at c1c2 caused his spine to scoliosing. It wasn't a birth defect. These docs are far behind chiropractor specialist. Atlas orthogonal cured my son. No surgery needed. Scoliosing resolved too.
@@Biippie do you remember hands on you or a machine...machine is precise and hands are not. general chiropractic is not what I would ever try. the inventor of the MRI has info on you tube about cranio cervical syndrome and how it is behind alot of neurological decline/ problems.
