@@Marserona my guy, look it up yourself. I can easily say the opposite. Yall really out here just taking info you want from others without any proof. It is so easy to manipulate your type. All anyone had to do was say anything regarding this and boom, now it's legit? Pathetic
@@guy2006 ok I looked it up and verified it. Why so quick to criticize when you don’t even know the facts either. People don’t usually lie about stuff like this on purpose I understand Chinese so I watched an updated interview with the dad. His name is Xu Wei if want to look it up. What impressed me even more is his method of treatment, not purely pharmaceutical but also psychological, using mood therapy to ensure optimal epigenetic mRNA expression. Great to hear
@@bdstudios6088 that's not the point of my comment. It isn't talking specifically about this video here, but the idea of how easy it is to manipulate people. Social media, major news, work of mouth, and people just listen to it and then spread missinformation everywhere. The fact that you didn't get that in the first place already lets me know that you are the same as these other people. I never once mentioned I knew the facts of this video here. Reread my message again and stop thinking so surface leveled. Now try again. Original comment just said something and regardless if it was true or false that is not the point of my response. It was that the other people just believed it without question. It seems like such a miniscule issue, but its that exact thing that shapes the world into the horrible state its in these days.
"I don't want him to wait for death in despair, even if it fails, I want my son to be on the path of pursuing hope." ..... This quote brings tears to my eyes.
@@Bug-sg1li hooold on there isn't any issue mate --Read it again but slowly. They weren't actually trying to argue. They were in fact, agreeing with gwei. This is actually another way you can agree with another person in conversation. Some other examples that i could list in the top of my head( i just woke up pls excuse me my brain still needs to fully wake up as well) that are in similar fashion & intent are, "And so the tears did fall", "Never was there such a quote that brought such a reaction too", OR EVEN "As it was meant to do so" (meant to bring tears into their eyes). Feel free reading gwei's comment again but replacing it with my examples. You'll obeserve something similar there.
"Even if it fails, I still want my son to be on the path of hope." That hit hard. A father's love for a child is so great it moves the parent to create something out of nothing.
@@uhuhu523 Please don't actually die or anything, but I wish you a happy family! Live for them instead, maybe? Make sure you've made yourself into a reliable parent who understands and cares for them, and that they are confident that you love them and that they can rely on you. Sacrifice makes it sound like you won't be around to live life with them for whatever reason, and that may not be as helpful as it sounds.
"I do not want him to wait for death in despair. Even if we fail, I would want him to be on a path pursing hope." The depth of love between this father and son is out of this world.
As a biomedical laboratory technologist, I have mad respect for this father. The things he does are really difficult, and him doing it without a degree or anything just shows how desperate he is to save his son. RESPECT
Although he has no degree in medicine, he looks like he holds a PhD degree in some other field as he knows how to set up a lab by reading academic papers.
This actually proves that scientific papers should be open to all. Researchers never got any royalty from papers instead they need to pay some money for their papers to be published. And here this man, with only secondary school he could do this amazing thing. This is what researchers hope for. For their work to be useful for a lot of people.
@@SF-ud4ej It is kinda scary tho? you'll never know if that will just cause more deaths ? People are different, some are desperate not knowing the process or skip some process and make mistakes.
It is very inspirational as someone who only graduated high school. I'm a 28 y.o. self taught mechanic working full time fixing cars but I have plans on going back to university to finish my computer science degree. I have been learning AI using python and I'm having a blast learning something again and I love it, hearing a 30 y.o. man say he wants to also go back to university despite being 30 is giving me a massive confidence boost, just knowing you are not alone in your situation is so relieving.
Dude as a former molecular biologist, this guy is nothing short of a genius. The type of lab work he was doing can be difficult even for someone with a master’s degree, but he achieved it in a meager SIX MONTHS from secondary school level with his own equipments! After he finishes taking care of his son, he definitely should get a formal education in that field, because he is truly gifted.
Everybody talking about his love for his son, and here I'm also wondering just what an intellect he is. To make medicine at home of such rare genetic disease, armed only with secondary level education, is _truly admirable._ *Hats off to this Genius Father.*
@@irisviel_Einzbern i dont think being an asian is relevant for this guy's perseverance and hard work let's praise him for what he's done i just dont like how being an asian is equals to genius
He is not a genius, he just had the will to do what he wanted to do, and found the way to do so. A veces creemos que hay cosas muy lejos de nuestro alcance, y este padre en su bondad y amor infinitos es la prueba viviente de aquello. Still, it is indeed truly admirable.
it's a genetic condition, so you can't "cure" it. it can only be kept in control by giving medicine. there are some genetic conditions where the bone marrow therapy and gene therapy can help, but i don't know if this is such a disease.
When people say they did everything they could, they don’t mean everything, they mean everything that’s in their current knowledge, but this man. He actually did do anything he could.
Ah yes, instead of let him go painlessly, let’s prolong the child’s disease. Maybe we can let him live till adulthood so he can suffer more and become a burden to society. Best dad evar, also let’s film the whole process to virtue signaling to everyone.
A secondary school grad, looked up all available information to save his son, and you call him a joke. I wonder what will you do in his shoes. Let your son die due to your reluctance to lift a finger or your lack of knowledge and bother to find the final solution that can radically change the situation. You are a joke. He is more than impressive.
update: the son is said to be stable given his father's medication. Xu Wei also realised that there have been successful cases of cure abroad so he worked hard to help his son.
@@carnage6661 why are you spamming this in comment sections of this video? This is completely irrelevant and mad disrespectful of the father and the child of this video. You're using them to spread a literally irrelevant content. If you want to share it so badly just go into else where like idk the comment sections of fake animal rescue videos.
Christ, though it's against the odds, no one can fault this dad's genuine love for his son. Not many people can say they became a full-time chemist on their own to try and fight a rare disease.
I know there's a lot to be said about the Chinese government but I gotta respect the fact that they're not interfering and letting the father try and save his son. In some countries they'd send a commando and confiscate all the equipment.
@@adriansimsoongleong8878 There are probably at least a few undergraduate classes he would have to take to get a deeper understanding depending on what the PhD would be in. But I imagine he would get very readily accepted into a PhD program after displaying this level of initiative.
When I think of people saying that men doesn't have this natural thing for taking care of their child, this man is the proof they're wrong. That's called infinite love and dedication
Only men with weird moral in Western society has that though. Father usually sacrifice themself to help their kid. Not some baby father, a real men in a family is the one take the bigger burdence
@@Eriniiatopaze mostly westerner, and also some influence in Asia. But traditional Asian family still trained their kid to honor old values, it is always about next generations.
It’s which way you look at it , I think it’s selfish to have children, risking them getting a genetic disease, I ain’t a father but I think this person is an inspiration because he had children knowing that he will give it all and he’s smart enough to study and I respect people who are smart enough to study
This is a man who won't stand idly by watching his young son die from an incurable disease. Kudos to him. Also for his parents & family to be able to afford the (expensive) lab equipments he used. Now he also has something he is interested with and will pursue to tertiary education. I applaud this man's devotion.
This is straight out of a comic book. Look at him go. My dad wouldn't even help carry my casket if I died tomorrow. Best of luck my friend. We are all rooting for you.
Reminded me of Darren Aronofsky’s The Fountain. Wasn’t the biggest fan of it but it was a compelling film nonetheless. It’s about a man trying to desperately find a cure his wife’s cancer himself, that’s his life’s work, until she dies. And he has these visions of his ancestors, of him in another life where similar tragedy happens. Until his wife inevitably dies, and he comes at peace with the fact that it’s too late, and he should have spent more of time with her instead of curing her. Not that similar to the movie but close enough. I do hope for the best for him and his son.
@@paradise_valley @• Imo, I think that movie is much more than that, I couldn't comprehend it completely at first, I might be wrong but I'd still suggest you to watch this video & tell me your opinion, if you have time 😅 (RU-vid is keep deleting my comment, am I not allowed to paste youtube vid link? tf)
Regardless he is still a hero. Trying such a thing is unimaginable but with the kind of inspiration he has... he is trying everything he can. If it goes south he can literally say he tried everything.
Hey u should be proud of your own father too.Just think if he sees your comment then what will he think ,he might feel that maybe he didn't tried hard enough to make u happy that u are saying u want a dad better than him. All dad are great
There’s no “ethical grey area.” This is his child and he’s going to lose the child without treatment. He’s doing his duty as a father to care for his child and he’s going above and beyond what the average person would do.
I hope he succeeds and his son is OK. Some may say it is incurable but maybe this man, with his dedication, can succeed where others have failed. He literally dotes on his son and I wish them all the best
Tough times can bring the best and also worse of people. This child is really blessed to have a father who genuinely loves him deeply and is so determined, while also intelligent enough to self teach himself on how to develop the medicine his son needed for survival.
Could we please get updates on his son’s condition? Regardless of whether it works or not, I’d like to see his journey. His dad is an amazing man, doing anything for his son’s survival ❤️
@@atrik1st716 Three days since posting. Most likely been awhile ago when happened. I would like to know, too! Googled this man and his son. The picture of him holding his son was taken in October of 2021. The little boy has been ill since birth and he is 2 years old. The life expectancy for this disease is 3 years old. I wish some other country would help him. Bitterly sad.
The reversal of Breaking Bad. Even with only secondary school education and lack of chemistry knowledge, he still can manage to create the formula to save his baby child. Mad respect.
Absolute respect for the guy indeed. However, given the fact that he's ventured out and learned enough pertinent things in biology and chemistry to try and engineer a cure for his son's genetic disease, constraining his education level to that of being secondary school level and his lack of chemistry knowledge at the time of synthesizing said formula is incorrect. Learning and mastery isn't mutually exclusive with formal schooling, and you often consolidate the majority of your actual education through your work/career.
@Angie S Those years are extremely useful if you want to work in a field and be prepared to tackle every problem possible in a short amount of time from when it is presented but if you only need to learn one specific thing you can just learn that specific thing. Of course you may often need to backpedal but internet has everything for those who know how to search (for example if you add a university name to a subject you want to study chances are you will find a pdf of the class material for that subject)
@Angie S his case is not common. Teachers are there to help if you make mistakes but people who study on their own needs to check for their own mistakes. They may also be unaware of specific keywords necessary for research that a teacher can elaborate in 5 minutes. Education is extremely important, it's just that his circumstances are so dire that he forced himself to learn everything
@@12801270able I think they meant specifically that he only had till highschooler's level of education in the fields of biology and chemistry. he most probably has a university background in another field, given his way of speaking and his home feels very upper middle class well educated to me.
This is not only impressive but also the fact that he refuses to give his own medicine to other parents with kids of the same condition shows that he is a very responsible person.
@@apoxesportsteam There is no well developed legal regulation concerning this specific case. That’s why it’s said to be a morally grey area. If he did produce medicine for other children, it would definitely be a legal dispute that will last for years, but it’s unlikely that he will be sentenced to death.
@@mitzikolo Is it really worth arguing over semantics? It doesn't really matter if a child deserves it or not because at the end of the day the common point you both made is that fathers should be responsible and caring.
@@mitzikolo if that's the case then maybe you shouldn't have replied to the main comment or mine either since you're 1 month late and 10 days late respectively
I'm glad authorities didn't arrest him or something, it is clear to everyone he is legit trying to save his son despite the odds. He is operating in an ethical grey area, but gosh... his reason for it brings our humanity and sympathy towards him.
If he cross the line, he will be put into the test of legal system. You are absolutely right, it’s ethically…very grey… but where is the line? How do you define the line? In what way the law allow this father to save his son, in the same time prevent abuse, is still not clear. Our society has to figure this out.
@@hibiscussunflower5916 usually developing countries get subsidies on medicine when importing but not China cuz western blockade, making certain medicine extremely expensive...and China can't produce locally cuz IP rights, then the West will scream "China steal our tech".
And my father would never take the time to ask if I was ok. This isn't fair This family deserves that boy, and the boy deserves to have this family for the rest of his life.
@@SK-tr1wo don't be bad, who knows what other family issues or other problems he's going through. Parents ignoring or disrespecting their child can have a very big influence on them
I heard a great quote from a man who was talking about supporting his wife through her illness; he said "I'm willing to wear a mask for my family, and I'm willing to wear a cape for my family." This man does both. Also, his parents' support is top tier.
You are no "ordinary" man, Xu! You are an EXTRAORDINARY man! You're an inspiration & a HERO to your child & those that will be touched by you in the future!! Praying for your son's complete & speedy recovery! Best Wishes to you & your family!!
Look at the bright side of life. He can be an angel in a different form. Learning and growing doesn’t have to come from the sweetest of environment… cheers and may you be what you want to be one day… :)
Different fathers show love in different ways because people are different. Or perhaps your view of him caring for you doesn't coincide with his view of him caring for you.
Parents with sick child especially the one who is terminaly ill like him, are more likely to developed PTSD and will get ultraoverprotective towards their children once they got older, if the kid able to survive their childhood. I hope he can recognize the limit when he reached it someday and make a peace out of it... Cause afterall its genetic flaw that his son developed. Life in this world are short and what human can do with it is just to do the best they can on what ever situation they are in and whatever the result is, everyone dies eventually its just a matter of time...
@@cb250nighthawk3 You look like an expert, can you explain to me what kind of care/love my father had for me and my family when he left us when I was a small child? Please enlighten me. Thanks
Knowing chinese govt I believe there's benefit to them too, by letting him be, at least they can verify the medicine effect and also the govt kept their reputation
This is insane, like its from a movie but its actually real life. Whatever the result is, and whether his son survives or not....he will always be a hero to his son for his efforts
i can't watch this without tear in my eyes. this remind me to my dad. for three years he drove me to see a doctor, to cure my weak heart. the amount of money he spent on me were beyond what i can repay in my entire life.
But our parents doesn't care about our repay ... They only about our love and respect towards them .... Be with them in their old age , same way they were with us in our childhood 🤍🤍 ( sry fr my English bro / sis)
You know I have got this feeling that this man is not only gonna save his kid but also save the world from this disease. I have got a strong gut feeling. Let's pray for its success
Just to clarify. There was a cure for his sons disease. But due to covid 19, the father was unable to get any. So he essentially googled how to make the drug and then recreated it. Still insane he was able to do that.
@@quemzzy7397yup, with a secondary school education at that. He must have spent countless nights working on it with no regard for his own safety or health.
He looks like he comes from a wealthy family. But I bet he would be willing to give up all of his wealth for the health of his child. Honestly, that makes me tear up.
@@patty_pb2986 Many wealthy family kids don't give a fxxk about degree. In my own state we've rich kids with no college degree but they're wealthy because of their business or inheritance of parents or family's connection. Meanwhile people like us with lot of degree had to go through tough exams to get a job + always working under someone. Middle & poor class people life is different.
@@UnityAgainstJewishEvil I read the article. He is an amateur chemist. he turned his gym into a laboratory. And he's doing home therapy by making medicine by himself. There are now companies willing to help find a cure or treatment for his son. His story became a sensation and that is what prompts companies trying to help him. Which is lucky for him but he is still doing home therapy. He needs to give up on home therapy and just go with the doctor's prescriptions/recommendations
@@meowmur302 he is making his own compared to the experimental medicine he needs to buy but not available in his country. Both medicines; the one he is developing on versus the fda approved experimental drug that is available but hard to get are similar but made by two different people. The dad is an amateur chemist with only a high-school diploma while the experimental drug is made by a team of scientists and researchers that knows what they are doing.
This is the perfect example of what we can achieve with determination, hard work and hope. What a hero! May your child live long and grow up with your family till old age..
I sat thinking with my own son when he was diagnosed with a serious illness, "I will do anything to save you". There is no place for weakness in this situation. You need to act constructively in every way possible.
I think this quote alone has change my outlook drastically, when he mentions that even if it fails and his son passes, he was "on the path of pursuing hope".
I mean the kid is allready dome, and he is not going to make it worse ,at least if he has to leet go ,will be no remorse .And who knows maybe he will succeed and it will be great for others kids ,Bold people sometimes get lucky because they got nothing to losse and not burocrasy to follow .Te small pox vaccine for example, the penicillin antibiotics,the x-rays, just people not giving up and having luck.
he already had money to begin with; but the fact that this man decided to get his own doctorate degree as a drastic measure to save his own child is what makes him *ULTIMATED CHAD.*
He is doing everything to the best of his abilities while he still can and with the resources he has. Not all people are lucky. He is definitely not taking chances for granted. I wish this family all the best in health.
The child is one of the luckiest baby in this world to have such a loving father many people don't have this luxury in there entire life, i hope he recover from this disease.
Someone please give this man a full scholarship to Harvard Medical School, and to bring his son with him for top treatment. Impressive and admirable paternal instinct.
@@trainsandplanes8304 Precisely, Universities provide lab experience and dedicated learning, guided by the discipline, so he is not relegated to the risks of trial and error, and reinventing the wheel, particulrly when his own son's life is on the line and there is a countdown underway. He needs intense, top level training. What do you have against university degrees? It will not only serve his objective, it will open doors and provide him with more resources lifelong.
@@ana419 Bro, you really want him to go to College for this? He needs professional help from other professionals, not training that takes hundreds of months.
This father is like a fiction character out into real life. I hope him and his family stay healthy and the medicine works out. I wish there's a miracle for the baby.
