This is very informative, clear, and focused. I really learned a lot. One thing not mentioned is CGD and breast health. That information would have been helpful to the many women (and some men) dealing with this issue.
I was just diagnosed with dcg. Just hit 50 years old. Spent 20 years in the military and I cant believe this just came up. Explain some youth issues I had, maybe I had this all along.. hard to say I guess. I find this a little crazy.
I was also diagnosed with it. I'm in my 50s. I got diagnosed through a CT scan of my lungs. Is that how you guys obtained your diagnosis? I'm now trying to figure out who to see, where to go. My pulmonologist doesn't seem to know anything about it.
@@DNAleguillou I was just diagnosed about 2 weeks ago. I also had a type ab thymoma removed February 9th. This is all very new to me. I don’t even have a lung doctor yet. I don’t see my surgeon till the 28th of this month for a post op visit. Like you I don’t know what to do next. Did you find a doctor who knew something about this condition (disease)?
I’m 51 & was just diagnosed. I already have an autoimmune disease & now this. I have fatty swollen lymph nodes under my arm pits & groin. I’m having horrible itching & burning facial/neck & chest rash. Extreme fatigue. I have upper body pain & inflammation in my hands, arms, shoulders. Low pain in my feet, knees & hips. Vision problems, swelling in my hands, runny nose, facial swelling w/rash. Dry mouth & mouth sores. Oral Thrush often. I stay thirsty, have memory loss & also heart palpitations. And a RA Specialist found mine in my lungs. On an X-ray & CT SCAN
Something they wont say because you mentioned military, know this loudly, if its not a genetic connection, CDG is also connected to toxicity and untreated parasitic conditions... they never let you know what is wrong if these issues caused it cause we cant tell the truth can we!!!!!!!!! Then good luck getting treated....
