Chronic Illness Diagnosis Story PT1 Blood Tests Ankylosing Spondylitis

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Hope you are all having the best day with minimal pain!
Thank you for taking the time to watch my videos on my diagnosis story. I really hope you can find comfort and hope from them for yourselves, if you’re going through a similar thing. It may not feel like it now, you are exactly where you need to be in your life, and you’re on the right path. Be as strong as you can, and take each day one by one.Wishing you all a positive week, be kind to yourself and make healthy choices!
Let me know if you liked this video by giving it a thumbs up, this lets me know that you enjoy this type of content and I will make more for you. Remember to subscribe to my channel, I'd love it if you would stick around!
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Part 1 - Blood tests
• Chronic Illness Diagno...
Part 2 - Rheumatologist Appointment
• Rheumatologist Appoint...
Part 3 - Getting my diagnosis
• Getting My Diagnosis P...
Part 4 - Physio
• Physio PT 4 Chronic il...
Part 5 - Starting my medication
• Starting Medication PT...
Part 6 - My autoimmune disease Upgraded Itself
• My Autoimmune Disease ...
My video on tips of how I accepted my chronic illness
• How I Accepted My Chro...
Need help with injecting your medication? do it with me!
• Inject Your Medication...
My video about the mental challenges of living with a chronic illness
• The mental challenges ...
Explaining Ankylosing Spondylitis video
• Ankylosing Spondylitis...
Banana pancake recipe:
1 banana
1 egg
Vanilla essence
Half teaspoon of baking powder
Mash the banana into a mixing bowl, then add the other ingredients. Mix until all lumps are gone. Put mixture into a large pan creating 3/4 pancakes. cook until golden brown.
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INTRO / OUTRO / OVERLAYS
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Опубликовано:

2 окт 2024

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Комментарии : 28

@Star5dg Год назад

I have it too. We can beat this :). You are beautiful lol

@martinwaby9946 Год назад

Just been diagnosed myself took 14 years . I’m waiting for biologics so found this very helpful stay strong and keep inspiring

@charleywendy Год назад

Thank you for your kind words. I'm sorry it took so long to get diagnosed, at least you can start looking for the right medication now. The feature is looking so hopeful! wishing you well

@Blues16073 Год назад

My son is 32 and just got diagnosed this year. L1-L5 got caged and fused because he was almost crippled in pain. Not one Dr took a blood test to see if he had AS. His pain Dr ran the test on a whim and sent him immediately to a rheumatologist. She ran the tests and confirmed it. Thank you for sharing We don’t know anyone else who has this

@charleywendy Год назад

I’m sorry that you and your so are going through this. I know how hard it is to process. It’s good they have finally diagnosed him, now they can hopefully work on finding the right medication for him. I have actually now been on my meds for 1 year and live more or less pain free. Things should be get better soon ♥️

@lilchadzy121 Год назад

I just got diagnosed with AS last week and it's been a lot to take in, going to start biologics soon and I'm scared but the pain is dibilitating. I wish you the best in your AS journey, friend

@charleywendy Год назад

I’m sorry that you also have AS. I have just filmed my 2 year update on my biologics. Hopefully going up this Sunday. I filmed it for people like yourself that may be new to this sort of meditation, hoping it can support you in some way. I talk about my experience on it! I know it can be scary at first, and it is continuing mentally challenging, but you’ve got this girl ♥️ once you find the right type of medication, your AS pain should hopefully be soooo much better. I’m more or less pain free because of my medication. Wishing you all the best 🤗

@fineartlifestyling 10 месяцев назад

You have such a lovely presence ❤! Thanks for sharing. Took me 15 years to get a diagnosis. How did you find friendships and trying to explain this to people who don’t see the invisible disease?

@charleywendy 9 месяцев назад

Thank you so much ☺️ I think the best way is to be unapologetic with how you are feeling, be open and honest. I always say if I am low on energy, physically or mentally. When I talk about my AS to my friends/family I still try and be positive about it though. I don't want them to feel sorry for me, or treat me differently. So I kinda talk about it as casually as I can, sometimes in a joking way. I feel that also makes them feel more comfortable talking to me about it, as they can see they won't upset me by asking questions. I hope that helps 🤗

@undertow9993 11 месяцев назад

Thanks for sharing your (very familiar!!) story. I really feel people need to know that the spectrum of progression, and experience of, AS is very wide; many people live completely normal lives with the disease if they focus on their health (eat well, stay a healthy weight, don't smoke, stretch, lift weights and exercise generally). I was diagnosed 3 years ago, am 36, and am absolutely fine. I have a flare up once or twice a year which, whilst painful, is manageable. I dont need any medication. This is the case for many people for the whole of their lives. So many of these videos and articles focus on people with severe versions of the disease and it can be very daunting and unhelpful for people to see this, particularly if newly diagnosed. Its really quite possible that you can have a mild form of the disease which you can successfully control and manage. Why is it we only see the worst of AS online? Googling it is terrifying and you see content that is just not representitive of the reality and volume of people that live perfectly normal lives with AS. Stay positive and look after yourself ❤

@charleywendy 11 месяцев назад

Your welcome! Yes, for sure. I caught my AS very early and therefore it’s very easy to manage. But your so right, mostly when we Google you only see the very worst cases of AS! I haven never thought about that before.

@piotrkowalski1564 2 месяца назад

Thank you for this comment, I was diagnosed with AS around 3 years ago. I have mild version also. I got smallest dosage of sulfosalazine to get remission and 2,5 years was fine, now I am back on sulfosalazine to help back to remission. But sometimes I am catastrophizing and this comment helped me back on track

@paigeelizabeth3903 2 года назад

Hi Charley! Great video!! 💞

@charleywendy 2 года назад

Thank you for your kind words ♥️

@hollyheath1340 2 года назад

This is so similar to me but I never went to a doctor. I had alternating butt pain, felt like I needed to crack my hip but couldn’t. Had to use a cane, limped… I googled my symptoms, found ankylosing spondylitis and then joined Facebook groups. I learned that people were healing themselves by cuting out starch from my diet. So I cut out almost all starch and a year later, which is now my pain is almost gone. Now I only have pain in my lower back and it goes away when I crack it and walk. Idk if I should still go get checked or not. Sometimes I get a flare but it seems to be rare these days and I seem to get a flare when I cheat my low starch diet.

@charleywendy 2 года назад

This is amazing news that you were able to help yourself! Thank you for sharing your experience, it's really interesting. I think I might cut out starch, see how I go. Thank you so much!