Chronic Lymphocytic Leukemia (CLL): Symptoms (ex. Skin Blisters), Diagnosis and Treatment (Vit D?) 

Future hematologist here. I hope that one day, I can treat patients and help them. Hematology has always been so interesting to me, and I would love to pursue that career. Thank you for the great lesson!

I was diagnosed with CLL 3 years ago at age 66 and am still in the watch & wait phase. My wife however was diagnosed with AML at age 44 and she died 7 months after diagnosis. Life can really suck sometimes.

Good clear introduction. As a person with CLL I do have a couple of comments. First, the constitutional symptoms you listed are actually used as a basis to start treatment. Second, during watch and wait a CLL patient has periodic CBC blood tests and visits with a hematologist/oncologist. The main things that the blood tests look for the rate on increase of the lymphoctye count and decreases in red cell and other white cell counts as well as the platelet count. Note that the RAI stages are not like other cancer stages in that RAI stages II and IV are not more severe or even advanced than lower stages. I was RAI stage IV for two years before I went into treatment. Your discussion of treatment is very simplistic and rather out dated. FCR is almost a thing of the past and is currently only used for young patients that are not del 17p or Tp 53 mutated. Basically no one else gets FCR now. There are a number of other initial treatments for CLL such as Obinutuzumab and Venetoclax plus obinutuzumab. The treatment decision is actually quite complex.

I have had CLL for 25 years and am still at stage 0. The Vit D and Calcium is new to me. Never heard that before. My platelets do run below normal, but still doing great. I am super sensitive to insect bites and only recently heard from a dermatologist that CLL patients tend to over-react. I will not be treated aggressively if my status changes.

thanks for putting this great video - its a true asset with a direct focus

Thanks for the content and the clear but detailed explanation. This helps me understand what kind of leukemia the mother of my niece is going through and be more empathetic without going without tact or making her feeling even more sadnthan she's right now by asking her condition. Also I don't know if she can explain it as accurate as this video does. The mother of my niece has never been to close (my niece is like a mini me of myself and she's so smart and lovely and pretty) but the dynamic in her house emotionally speaking has worsened since her mom was diagnosed. I think her mother (has 40 y/o and is quite a rarely case of a younger patient with LLC) is in a seriously bad process with her grieve and coping. She is being hurtful and even abusive psychologically with my niece who is only 16. My niece never had a loving mother, instead a more productive and caring to provide mother; but since the diagnosis she has transformed from being kinda cold with her, to release her anger against her situation with my niece and it breaks my heart because instead of trying to cope with her daughter's love, be united and understand that her daughter is as scared or worse than her, she's just oblivious of addressing her emotions and the pain she inflict with her words and attitude. This girl is like my daughter, and I'm being as support her.

Very nice information,sir tell about ALL

Can you get pain with it? I get a lot of pain in my shins, elbows, knees and the bottom of my feet. They are sharp and intense in nature and either last a few minutes or a few hours. Thank you in advance for any answers.

Very informative. I was diagnosed with CLL 4 years ago, aged 43.

Can you do a presentation on t- LGLL, large granular lymphocytes leukemia? Not much info anywhere. Thanks!

Thank you for this very clear information. With regard to the Vit. D and Calcium supplements could you please advise about the dose of those supplements at which the CLL progression is slowed down please? Or could you give a reference to the article in which the effect of these supplements is decribed ? FYI I’m a CLL patient myself

thanks for information sharing.

The best explanation

Thank you, this gives me some hope

There was a recent open brain operation on Dutch TV where brain tumor cells were being destroyed by ULTRASOUND ... Can the same effect being realised with the B lymphocytes ....???/...

could you help me - my father has Stage 4 CLL - what vitamins would be good for treatement?

Thank you, it is perfect.

I have never palpated hepatomrgaly in any of my CLL patients. Are your percentages correct or am I Palpating incorrectly?

Living life to the fullest option was all I ever wanted thank you dr omoh for making that come through he gave me hope when I was lost all thanks to him..🙏

I've had CLL for over 10years. 5 years ago I did 6 months of chemo . I've been out of remission for 6 months. I'm only 55 and have all the symptoms of stage 4. I'm doing blood transfusions , immune globin transfusions and taking chemo. My doctor says we have other options if this treatment fails. I'm scared, 18 months to 3 years isn't long enough for me to see my grandchild grow up.

Can anyone tell what to do if lot of pain in legs or back to patients of leukaemia what to do

Dr Oiah is a great doctor he is very understanding and listens to your concerns . He takes time with the patient to help them with their health issues ! I highly recommend him to anyone looking for a specialist

I was 49 when diagnosed with CLL.

Nice video ,Thank you

I have very small tiny dots all over my skin but I’ve had them forever now

I am a cll patient. I am eating tab ibrutinib but sorry to say, my health is deteriorating rapidly. Please come forward and help me to live .I am very poor.

Can the only symptom be a persistent HIGH WBC ?

Hi good morning madam how are you I need your guidelines about cml .... thank you

thank you

I have always been able to feel my lymph nodes on my neck they’ve been palpable soft and moveable and small but I have a cold

Thank you Dr Omoh on RU-vid for being the reason why am smiling today, your herbal supplements sir are indeed very effective. Keep saving lives Sir,,,

Cancer lymph nodes are firm mine are soft and moveable cancerous nodes are not moveable

Can you have both CLL and NHL?

Is it possible to know with which program you made that awesome video sir? :) I would like to make awesome presentation also.

I'm only 36 and while I don't have CLL, I have 1.2% CLL type cells in my bone marrow. White cells low end of normal. Would anyone here who is studying hematology have an opinion whether or not this should be classified as low count MBL Monoclonal B Lymphocytosis?

Meeting Dr Oiah on RU-vid has really been one of the best day of my life after years of suffering I have been finally cured from Gingivitis Thanks doc God bless you ...

Usually gingers naturally have petchaie all over but I don’t think I have that cause I would have them all over I have some on arms top and 3 on back had them since birth

Hernandez Shirley Hernandez Jessica Miller Melissa

I was diagnosed cll one year ago by my doctor. I am consuming capsule ibrutinib daily and doing well but my bodyweight has reduces too much. Please suggest diet list that should i follow.

Harris Timothy Wilson Angela Perez Frank

how can i cured this?

Clark Laura Johnson Maria Hall Susan

Watch and pray, don't waste time, the Kingdom of Heaven is at hand. Tomorrow is not promised, God's unfathomable mercy is promised. Repent, or we will all parish

😶

My cat is having his leukaemia vaccine next Monday

Thank you Dr Omoh on RU-vid for being the reason why am smiling today, your herbal supplements sir are indeed very effective. Keep saving lives Sir,,,