Chronic Neuro Lyme Disease Symptoms 

Just a note: the lower body temp is because the spirochetes like it cooler so once they burrow into your body tissues, they actually have the power to lower your temp to make themselves comfortable. It's like an uninvited guest walking into your house and turning down the thermostat. Bold, huh? Sauna is a huge help for chronic lyme. Drink lots of lemon water, eat tons of garlic, oreganol p73, turmeric for inflammation. I have a lot of these symptoms but they are improving since I took over my own recovery from lyme. I was bitten in 2015, misdiagnosed for two years. Once diagnosed and took antibiotics but never got better after a year of sheer torture, my knees swollen so bad that I was not able to walk, sometimes I crawled around the house. I thought I'd end up in a wheelchair. So I decided to figure it out on my own how to get better. Did a lot of research about what lyme does inside our bodies and how to eradicate it. This is my routine and it has helped my symptoms improve immensely. Infrared sauna is huge because heat kills lyme spirochetes, they hate heat, that's why they lower your body temp so anything you can do to raise your temp helps. Hot baths with Epsom salts, and sauna. Drink lemon water, eat fresh garlic, take oreganol p73, take turmeric for inflammation, ester C a few times a day to boost your immune system. Coconut oil is good too. I also take a good multivitamin and have a really strict diet. Processed food is horrible because the chemicals and additives exacerbate the symptoms of lyme. I also take magnesium and potassium at night for restless leg syndrome and aid in sleep. CBD oil for pain.

I have had Lyme before and currently have it again. I told the doctor from day one I caught Lyme again and he disagreed and sent me to a neurologist 🤬 after 4 months it’s wtf I said it was day one. I can literally check every box on that checklist. Wisconsin is getting horrible for Lyme disease. The burning in my head and neck and rage made me question my sanity. Doctors acted like I was making it up till my abnormal EMG.

This made me cry. I'm not crazy. The choking thing, it's terrible. None of my doctors seem to take this seriously but it is so scary. I have not been diagnosed yet, I'm in the middle of the "it looks like MS" testing phase. In my gut I feel like it's lyme. And the palpation and rib pain....I've been to so many cardiologists and they say I'm young and fine. Yet I feel like I'm dying inside.

Great talk! Boy, can I relate! My adult son is staying with me because they had mold at their house and I saw his cognitive decline drastically from the mold, because I had that too!The specialist I took him to also tested him for Lyme, and he had that as well. I wouldn’t have even thought that I should get tested when I became sick after being bitten by insects while volunteering at a children’s garden. I had seven coinfections including a live Babesia Mycroti, so I went through all the malaria symptoms while taking care of my grown son! What a horrible experience and cover up by doctors who don’t learn about this pandemic! It’s the same with breast implant illness and surgeons and mold toxicity! No one wants to admit these things exist. Money talks (or plays possum!)! I’m adding an update: I’m still ill and I’m listening to this again, because it hit home so much! I had or have every symptom she mentioned. I’m sick of this, and if I don’t see a change soon, I’m going to have a very hard time staying alive the way I am with no support. No one wants a sick woman.

Exactly same experience. ...horrific time getting anyone to help me back 2007...took over 4 years of hell on earth. Mostly well now but always in the fight...used a hundred different approaches to get back my life...unfortunately most of my children's childhood spent with a desperate Mom trying to get well. Was a huge athlete, outdoors person all my life..abundant strength and energy...totally destroyed by this disease...but, thank God I found two alternative Docs. Who eventually helped me after spiraling into dementia...couldn't walk, couldn't talk...remember none of my friends names...etc...Thank you.

I found a Lyme specialist and she sent my blood to a lab in California. It came back very positive and I am now in treatment. Fingers crossed. She said it could take some time to see results but some symptoms have started getting better already.

Listening to your story was like being in a Lyme support group. I have spent the last two years in and out of my doctors office looking for answers to some very strange and scary symptoms. I had visits to a neurologists office, CAT scans, MRI's etc and spent countless dollars trying to figure out what was wrong with me. My doctor tried to put me on antidepressants but I refused because I knew there was something wrong with me physically. Most of my symptoms are neurological in nature. Constant feelings of detachment, or like I was high all the time but without doing any drugs. My balance is off all the time along with weird depth perception issues with my eyes. I also had these weird white flashes of light in my peripheral vision that would come and go. Like flashes of lightning in the bottom and corners of my eyes. I would also get the bed spins once in a while and the ringing in my right ear got louder and louder. I had these weird feelings on my legs like thousands of tiny bugs were crawling on them. I also get these weird buzzing sensations in my back muscles. Stiff neck that lasted for a month... I could go on and on After not getting anywhere with my doctor I started doing hours of research myself to try and find an answer. I went to my doctor and told him to test me for Lyme with a good test and not the crappy one you get locally. He told me "You don't have Lyme" but if it makes you feel better I can do it. He did the local crappy test and it came back negative.

WOW! Your symptoms mostly mimic mine. I found out I had lyme a year ago and am currently beiung treated for it and I had no idea it would take so long. Hope you are doing better since making this video!

I have nearly all of your symptoms. I got bit by three ticks that were on my back for 2 days. All the docs I have been to treat me as though I am crazy. I have been suffering for 5 years. Thank you so much for making this video!

i lost hair also thank you again for this info. we are not alone.

I have the exact same brain stuff that you mentioned, it’s been years since I could read a book and feeling hung over in the morning. I feel absolutely awful and very very weak for the first several hours of the day. It usually takes me a total of five hours to get functional, I go through a routine and exercise and eventually feel like I might be able to get some things done. But I also wake up with a ton of anxiety and I’ve felt like I’m not breathing in my sleep for years. When I gained 70 pounds I was diagnosed with sleep apnea. But then I lost 90 and the last sleep test didn’t show it but I still feel like I’m not breathing. I had vertigo horribly for six years. I’d have strangers come up and asked if I needed help especially at airports. It was really embarrassing. Trying to get on an escalator.😂 The vertigo has gone away and I’m not sure how or why but it’s great that it’s gone! It went away before I started treating the Lyme, or even knew for sure. I took a beta blocker for it for about a year and then stopped and it has stayed gone.

Thanks for the videos I've had chronic Lyme for 45years....diagnosed at around 40 years old. I've done alternative and Western therapies. Things got way better but now it's flaring and there is so much new info out there so I'm excited to dive on again and heal more.

know neurological effects of lyme. Thank you for shareing your story.

I’ve had a lot of similar symptoms and still haven’t had an official diagnosis. I’ve had an acupuncturist test me alternatively and said I was positive and that was good enough for me. I’ve been doing herbal and homeopathy treatment for a total of 8 months and I feel better but I still have a long way to recover. I think about how long I’ve probably had this though (20 years) and I can see it’ll take a long time to recover.

Thanks for the inspiration for this video i did on my channel as well ..

I finally was just diagnosed and I think I’ve had it possibly for over 30 years! I have suspected it for about five years, but kept getting blown off by doctors… My score on the Horowitz test was 141 at one point. there was an entire year where I was completely bedridden and about laying in the dark in constant nausea, vertigo, pain and panic, and the worst part was not knowing why and everyone else thinking there was nothing wrong with me ! 😫 I had to give up my entire life and move from New Mexico to Tennessee to live with my parents. My dad definitely didn’t think there was anything wrong. And always implied. I was just lazy. I had gotten to the point where my period was every 10 days and it lasted a week then 10 days later was back. It and was ridiculously heavy and painful to the point where I had a hysterectomy. I would get sick with throat infections and run fevers up to 104.5 and then I would have cyclic flu like symptoms where I would feel like I was coming down with the flu on a regular basis. And run a low fever, it seemed to be on a cycle. It made me miss a lot of school in my younger years and work. I lost a couple jobs because of how often I was sick. And basically every symptom on that list except maybe one or two I had to an extreme. I gained 70 pounds very rapidly and lost 90 just as rapidly! I’ve had pitting Edema in my legs and face for the last seven years. You can put your finger on my leg and it leaves a huge indentation. 1 Dr told me that was just gravity. 😂 And I’ve seen 1 million doctors even infectious disease, doctors and nobody found anything all my results were negative except the IgM antibodies were positive on the standard testing. I was told that was a false positive. (after having them tested twice.) I had asked the infectious disease doctor I saw about Igenex testing, and he had never heard of them. Finally went to Cleveland Clinic Functional Medicine and they found Lyme and TBRF with Igenex testing. The treatment I am doing seems very simple, it’s Byron White drops. And I was very surprised that it was something so simple. I really hope it works. I don’t even know what normal feels like because there’s a good chance I’ve had this since I was 12 years old! Definitely I’m going to need some kind of neural reprogramming and I tried DNRS but it’s just too much. It made me feel very defeated. 😢 I’m gonna have to check out this tribe It’s been a lot to process, but also honestly a huge relief! (feeling somewhat vindicated ) 😁

I experienced several of the symptoms that you mentioned especially the stuff you mentioned with the neck, face, and head. The stuffed ear, I do suffer from vertigo, buzzing in ears, photosensitivity, bad balance, I bump into walls when I go to the bathroom at night. I also feel like I have UTI some of the time. Brain fog, fatigue...on and on.

Can u pls share what or if u did anything that helped??? Ty. Your the first person that mentioned feeling that your in a dream. I feel like this so much of the day 😢

how did you treat? I have exactly those symptoms and diagnosed with lyme bart

What did you do for treatment??????

Updates? How are you now? Have any treatments helped to put your lyme into remission?

What treatments did you do get yourself back to feeling better? I don't think I ever heard you mention what you did after you discovered you had Lyme disease?

I am surprised the 'Lymetribe' Channel did not take off! did you move to a different platform?

I got neuro- borreliosis…same symptoms and more. Herbs have kept me alive… muscle testing

I have almost all of those symptoms. In 2019 something bite me and I got bad reaction. I went to the hospital and got some steroids to cure the allergy. Right after that i got covid so I thought that all came from it. Questins: 1) What are the name af tests I need to take? 2) Does anyone have a Doctor or the specialized clinic here in IL who can help?

Wow! Twenty years ago my health crashed. I had almost all of these symptoms. I was a mess for months and then off and on for years. I wondered if I had some kind of metal poisoning from the dentist, although I never had mercury fillings. I feel best on keto/ carnivore diet. I have to drink salt water to relieve my thirst and anxiety. It works!.

It's all my symptoms I am housebound bedridden since 9 months were u also with tons of symptoms?how is your health in 2022 how doctor diagnose Neuro lyme blood test or spinal tab?

I can’t spell anymore!

Yes doctors told me we didn't have lyme in the are..utah!! Ha...14 years later cronic lyme/ co- infection!!! That man has ruined my life!!!😢😢