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Chronic prostatitis? Chronic Pelvic Pain? Know there is help and treatment - with Karl Monahan 

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I’ve been wanting to talk about male pelvic pain for a while. Men have pelvises and get pelvic pain. Why does it remain a taboo? This one is for both patients and clinicians.
We sat down after a recent conference to highlight male pelvic pain and provide some insight into the treatment that is available. We had to film in the hotel lobby, it’s very pretty but at times busy so please bear with us.
You can find out more about Karl and me and in the blog here: www.jillybond.com/2019/06/21/men-have-pelvic-pain-too-lets-talk-about-it/

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19 июн 2019

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Комментарии : 114   
@BobSokolove
@BobSokolove Год назад
I had prostate cancer. It was debilitating, painful, and, in many ways, life-changing. Prostatitis affected my life massively - everything from sex, travel, work, and eating. Prostate cancer has taken a lot from me. First, it took my grandfather, then my dad, and uncles so being diagnosed with prostate cancer did not come as a complete shock. I couldn’t get an erection and had pain in my lower back. It felt like I had a vice around my waist. At that point, I was hammering all the medication I could. I was on three different antibiotics, and four different painkillers, but just don’t work for me. I have just adopted natural treatment and other nutritarian diet and I have been 97% recovered with no symptoms. I am living proof that if you catch prostate cancer, you can go back to living a normal life.
@MG-zj2mz
@MG-zj2mz 4 года назад
Thank you for taking the time to do this informative video.
@sandytrevillian5322
@sandytrevillian5322 4 года назад
Loved that! I will definitely share this with my patients. Thank you Jilly and Karl for your insight!
@glynrowson
@glynrowson 5 лет назад
Amazing video..... but doctors are clueless when it comes to pelvic pain it needs to change
@jillybond1502
@jillybond1502 5 лет назад
We're doing our best to spread the word! I'll be at 5 conferences in the next 8 months discussing pelvic pain. Help us spread the word!
@glynrowson
@glynrowson 5 лет назад
@@jillybond1502 thank you jilly I've watched all your videos you are so amazing thank you
@ediedi4282
@ediedi4282 4 года назад
@@jillybond1502 I have prostatitis without pain could it be a pelvis problem there?
@stefanodanovaro8140
@stefanodanovaro8140 3 года назад
@@jillybond1502 please help us and thanks for all youre doing!!!
@ljc5371
@ljc5371 Год назад
Very informative!!
@SHerkoTech
@SHerkoTech 3 года назад
great talk, Appreciated !
@Retrofire-47
@Retrofire-47 4 года назад
Damn good chat!
@kaungzaw3389
@kaungzaw3389 4 года назад
Thank you!
@stephenstaedtler6902
@stephenstaedtler6902 4 года назад
There are very few IC specialists that even deal with IC and pelvic pain in men. And most conferences are 98% geared towards women.
@JimLim170
@JimLim170 3 года назад
Please answer my question. How can someone differentiate between a real chronic prostatitis and CPPS? Can damaged prostate heal itself completely if it got inflamed from infection or whatever?
@robertwhite2449
@robertwhite2449 5 лет назад
Karl is such a top bloke. I've met him in person at seminars, his previous support groups, and had several email exchanges with him. He's really down to earth, evidence based but doesn't poo-poo any ideas, and very reassuring. There aren't many male pelvic pain therapists, and of that subset there are hardly any that have actually suffered chronic male pelvic pain like Karl has. He's been there, in the trenches, suffering like the rest of us male sufferers. I'm not sexist, but working through it with another man that's gone through the same specific kind of male genital pain is much more reassuring and confidence boosting for male pelvic pain sufferers than working with female therapists (I've worked with many of the most well regarded NHS and private female pelvic therapists in London without much fruition). The last time I spoke to Karl he was really getting into mindfulness, and it shows ( in a good way) in the emphasis he places on being more present and not ruminating on the future or past
@jillybond1502
@jillybond1502 5 лет назад
Agreed! He's a wonderful human,we're so lucky to have him in pelvic health!
@stefanodanovaro8140
@stefanodanovaro8140 3 года назад
@@jillybond1502 is there anyway to contact him thru email or yourself ma'am im really suffering and can use some clearance . i feel lost sometimes. sometimes i feel im hetting better. thnx in advance
@brendanthegreek
@brendanthegreek 4 года назад
This is good advice. I wish I could hear it better.
@jillybond1502
@jillybond1502 4 года назад
New mic has been purchased...
@tscott7070
@tscott7070 3 года назад
Any other position of massage you notice except pelvic floor? Like certain abdominal region, external hip musclature
@andrewcouper770
@andrewcouper770 4 года назад
Hey Jilly, you have an excellent channel which has helped me a lot. I am going to book in to see Karl soon to tie-up some loose ends! Thanks for putting this stuff out there. 5 years ago when I first started suffering there was nothing on youtube and I needlessly went down long-winded and expensive dead ends!
@jillybond1502
@jillybond1502 4 года назад
So glad to have been of help. Say hi to Karl from me!
@davejackson5625
@davejackson5625 4 года назад
Andrew, r u healing? I’ve had it for one year and it makes me Mental some days. Does it ever get better ? My god how did I get this??
@andrewcouper770
@andrewcouper770 4 года назад
@@davejackson5625 Hey Dave, things are a lot better for me nowadays! The best thing to do is go and see a specialist you can work with. For me, addressing the anxiety has been a game-changer, I didn't realise how much I was stressing and causing further pain. You stress and tense up, get more pain and tense some more - which is a vicious cycle. Addressing that has allowed me to relax so much more and allow me to breathe properly again and symptoms are miles better. I use an app called DARE for anxiety and really recommend it - I pay the monthly subscription but most of the content is free
@zaidana1462
@zaidana1462 3 года назад
Hey Andrew how are you feeling now
@JimLim170
@JimLim170 3 года назад
Hello, Please answer my question. How can someone differentiate between a real chronic prostatitis and CPPS? Can damaged prostate heal itself completely if it got inflamed from infection or whatever? Is there such a thing as true chronic prostatitis for years which prostate is really involved? Thank you
@only1utdanditsleeds
@only1utdanditsleeds 4 года назад
I totally agree about the terminology of prostatitis. I have long standing pain and severe cramp in the back passage (over 30 years) which my gp and urologist insist in calling prostatitis. NO IT ISN'T. I classify it as proctalgia fugax. Occurs randomly but most often middle of the night. Occasionally has caused me to faint with the pain. I shall track down Karl . I'm in my 60s but don't want to give up on this yet. The thought of this pain as I get older terrifies me
@jillybond1502
@jillybond1502 4 года назад
I'm a big fan of Proctalgia Fugax too. Glad to hear you'll be seeking out Karl.
@only1utdanditsleeds
@only1utdanditsleeds 4 года назад
I wouldn't say I'm a big fan. In fact I think it's a pain in the arse! I'm now in touch with Karl. Fingers crossed
@stefanodanovaro8140
@stefanodanovaro8140 3 года назад
@@only1utdanditsleeds how did you get in contact with him sir im only 30 please help me getting in touch with him please.
@slenderman2670
@slenderman2670 2 года назад
Wasn't supposed to use bacterial antibiotics since I have non bacterial chronic pelvic pain, did work as powerful narcotic, though.
@lalboihangsing1187
@lalboihangsing1187 2 года назад
What's your symptoms???
@luisportella1760
@luisportella1760 3 года назад
That pain could be really unbearable sometimes, but the worst part is the voiding dysfunction, that destroys your life
@user-jq1oi6ur2x
@user-jq1oi6ur2x 4 года назад
Such a long video and the TV in the background makes it hard to focus on their content and understand what their saying at times
@babusheikh6652
@babusheikh6652 Год назад
Please reply!!😭😭 Is there any connection between pelvic floor dysfunction and primary bladder neck obstruction? Is it possible to cure primary bladder neck obstruction through physiotherapy? Please please reply 🙏🏻🙏🏻
@lalboihangsing1187
@lalboihangsing1187 2 года назад
Can this cause epidimytis pain??? I have normal urine culture no infection
@aivariukas
@aivariukas 4 года назад
I have this condition since i was 21. Now im 27. Ureaplasma and mycoplasma was the cause. I took many antibiotics, sometimes it went away, other time its back. On and off. Last 2 tests showed negative. Yet I got all the symptoms still. Enzmymes and Amitriptyline helped to cope with it and my anxiety(which triggers flare up).
@0121doone
@0121doone 4 года назад
Are you in the UK? What tests did you have done to find out?
@aivariukas
@aivariukas 4 года назад
@@0121doone get PCR test done. For 7+ stds
@KangourouNomadeBR
@KangourouNomadeBR 4 года назад
@@aivariukas Did you had any chest pain issue? I got prostatitis from std 7 months Ago and im suffering chest Pains wtf?
@aleksandrpetrov3938
@aleksandrpetrov3938 2 года назад
Are you still taking Amitriptyline? What about dosage and side effects?
@aivariukas
@aivariukas 2 года назад
@@aleksandrpetrov3938 im.not taking it anymore
@jack_knife-1478
@jack_knife-1478 4 года назад
I had a ureterscopy to have a kidney stone removed and It left me with chronic pelvic pain which I NEVER had before! My urologist did the finger test and said my prostate was fine but the muscles around it are really tight and that was it. Then 2 months later I got another stone and had to have 2 lithotripsy while having this chronic pelvic pain. The lithotripsy didn't work so then they went in with laser. This other urologist said I have chronic pelvic pain prostatitis and kidney stones. He said I'm sorry it's unfortunate that you have developed chronic pelvic pain and I know you're in a lot of pain but there's nothing we can do about it. I was in agony!! Ive had it 9 months now with pain in my bladder my anus my purenium my scrotum lower back pain every day!! Doctors sent mt home with oramorph, pregabalin, tamsolosin alpha blocker and basically said bye. Doctors seem clueless when comes to chronic pelvic pain!!
@jillybond1502
@jillybond1502 4 года назад
Every medical professional has a certain set of skills, and often if the problem cannot be imaged on an MRI or excised then they're stumped. But that's ok, there are plenty of people who are comfortable working with pain. Find yourself a physio. Good luck.
@nathanc5778
@nathanc5778 8 месяцев назад
Is there some way of contacting Karl?
@laniquelloyd555
@laniquelloyd555 3 года назад
Doctors are so clueless that i have this pain for over a year it comes n go’s ant with the pandemic going on I have really little option to get help what should I do
@PCP1992
@PCP1992 2 года назад
Same situation Lanique but ive been to a million doctors. The last urologist told me to give up and live with it. Bastard
@laurentiuciocirlan3316
@laurentiuciocirlan3316 3 года назад
I am very interested in the subject, however i find so disturbing the people talking in the background. You could not find an office or a quiet place to have this interview? Really strange.
@KoolAidDinkyTV
@KoolAidDinkyTV Год назад
Hello I have some issues. I am a 20 years old male. Like weeks ago, I was having urgency to Urinate. I Urinated like 6-13 times. I went to get tests for UTIs or Kidney Stones. Tests were negative nothing was abnormal. When I urinate I feel like there's urine left in my penis so I have to strain or push to get the rest out. Sometimes It takes 3 or 4 seconds for urine to start even though I have urges. The stream sometimes comes in a straight line and I urine a lot and sometimes I don’t urinate a lot. Sometimes a little urine leaks in small drops. It happens whens I am done Urinating.I have like discomfort in urethra and sometimes I have like twitching or fasciculations inside my urethra. Before all these symptoms showed I had constipation, but It did not worry me because sometimes It goes away after a day. But I realized it lasted a a few more days. I also get trapped gas in my anus that I have to push, I did not had to strain to pass gas before. This is scaring me. I don't have any other symptoms like blood in Urine or fever. Before all of this happened I was always in college from January through May, sitting in class and in home I always sat to do Homework. And when I was done I went straight to bed and only walked a little bit. In May that’s when I decided to start working out, I lifted 20 lbs with my both arms and did sit ups and all types of abdomen workouts everyday. I also went for 25-30 minute runs. Did that for 3 weeks and after that the symptoms I previously mentioned showed up in May 19th. Do you think the workouts could had injured my pelvic floor and that’s what causes my Issues with Bladder. Another thing I want to say, I suffered from GERD or acid reflux and Nausea in 2019-2022 because I had anxiety and stress. Until 2022 I took therapy to lower my social anxiety and depression because of a girl. I still got stressed in college and panic and was nervous because I had a project that required public speaking. The day before my urine problems began, the girl that left me texted me on the phone. I got happy but then it didn’t last because I suddenly got sad because I remember what she did to me in the past and got so depressed and started to get flu like symptoms.
@manitgurung3329
@manitgurung3329 4 года назад
Im 30 now..1 year before i start gym because i was always overweight so after 7 months gym i start this all symptoms(frequency.burning.pain in low back.pain after ejuvulation).i check in aplollo hospital delhi.india.no infection mo inflamation.they give me flotarl 10mg and i take it since 3 months only give me some relife for frequency.is my probelm also cpps plz any aggest mam?
@luckumathur7938
@luckumathur7938 3 года назад
Try as much stretching as possible...gym leads to tightening if muscles and no one focusses on stretching there....
@luckumathur7938
@luckumathur7938 3 года назад
In apollo there is a pelvic floor physiotherapist also
@scotteranger4524
@scotteranger4524 3 месяца назад
Where are you located? The UK?
@jackwilliams4641
@jackwilliams4641 Год назад
Got diagnosed about 3 months ago, I just have a constant discomfort in my penis. Anyone know why and what to do? Unsure if I have Bacterial Prostatitis or CPPS?
@Bradley_Lute
@Bradley_Lute Год назад
Could be balanitis from a UTI or STI
@foreverthesceptic7942
@foreverthesceptic7942 Год назад
But Karl Monahan's prices to see him are very expensive! If you are poor and suffer with CPPS your options are limited as a man
@SailingSarah
@SailingSarah 3 года назад
I thought I was just getting repeatedly discharged from hospitals because my insurance fizzled out. What gives they don't know what's up with this???
@magnus00125
@magnus00125 2 года назад
Im scared now ..
@behzg3677
@behzg3677 4 года назад
This was a really nice chat. Greatly appreciated.I've had this (whatever this is !!!) since I was 15.Countless cystoscopies, tests and even a urethral stricture op which I'm certain I didn't need when I was 19 (didn't help my symptoms one bit)I'm now 32 and can honestly say my life has been severely affected by this (jobs, relationships...)For the last two years I've tried various different hospitals, consultants and still no luck.My issues are that I don't feel I empty my bladder normally (the longer I delay urinating say if I'm on the tube or bus the more pain and pressure I have, then starting the stream is very difficult). I've noticed after ejaculation or possibly when I'm nervous the symptoms come on. I don't have the normal sensation (nice feeling) of emptying the bladder and cant feel the urine coming up the urethra.The other issue is a distended hard lower abdomen (I'm a slim guy and I've never seen any men with this) and some issues with emptying my bowels. Again the sensation when I'm pooing (sorry TMI) is not a nice feeling like how I used to remember before this nightmare began.Sorry for the long text but I've had enough of this and become quite a miserable person in life tbh.I think its either MS, prostatitis, pelvic floor dysfunction or some injury when I was kicked there playing football.If anyone has had the same symptoms and knows what this is please do say. I'd be forever grateful.
@jillybond1502
@jillybond1502 4 года назад
Hi. A lot of the things you've just mentioned are common symptoms (but not normal!) Have you seen your doctor for a chat about it all? You mentioned the tube - if you're in London get in touch with Carl in Islington via www.thepelvicpainclinic.co.uk/about/ who'll be able to help or point you in the right direction.
@behzg3677
@behzg3677 4 года назад
@@jillybond1502 Hi, Thanks for your reply. Yes I've been to the doctor. In all honesty they have no clue about CPPS. The surprising and disappointing thing is that urologists are pretty hopeless too. I think I may get in contact with Karl when I'm working again. I'm currently on 2 types of antibiotics, so I'll take them for 2 weeks and if there's no improvement I know its muscle related. Thank you
@jillybond1502
@jillybond1502 4 года назад
@@behzg3677 Great. He's got an online support group that as far as I'm aware is free - you might learn even more there. All the best.
@CFX_Trades
@CFX_Trades 4 года назад
Hello, you're not alone, I'm 27, been suffering since I was 15, I have had the same problem with doctors and everything you talked about.. Please, please try Wim Hoff, it's given me back so much in my life. Are you an anxious person, who worries a lot? Any history of drug abuse at all... I would like to talk to someone myself who knows how it feels. Would you be happy to swap emails? :D Thanks Olly
@jack_knife-1478
@jack_knife-1478 4 года назад
I'm going through this as well. I had a operation to remove kidney stones and was left with chronic pelvic pain which I NEVER had before! My urologist said my prostate was fine but the muscles around it are really tight! Had this 9 months now and its HORRIBLE! I've got pain in my anus my back my perineum my scrotum. It's changed my life like you said im miserable because of the discomfort every day! They have put me on tamsolosin the help my stream and pregabalin and oramorph. It's ridiculous I was fine before this happened!!
@cjwestside
@cjwestside 5 лет назад
Great video and thanks. It was hard to concentrate with the background noise to be honest. Had to rewind and replay multiple times.
@jillybond1502
@jillybond1502 5 лет назад
Yeh, sorry. Getting both of us in the same place at the same time was difficult. Needs must!
@cjwestside
@cjwestside 5 лет назад
@@jillybond1502 no worries. Information worth it
@clayjdrummond
@clayjdrummond 5 лет назад
If someone can help me, I'm 40 have a tumour on my spine that Drs cannot remove. I have this and the pain of the tumour fml I'm gonna watch this video & get back to you with my thoughts :)
@rajtiwari3840
@rajtiwari3840 4 года назад
May God bless you my brother
@englishguy1985
@englishguy1985 8 месяцев назад
Wish you guys were in America, I’m originally from England and despite the US medical system being touted as superior, it can be very costly and frustrating trying to get good care here.
@freakynaughtylive
@freakynaughtylive 10 месяцев назад
Is the fact that my symptoms go away while watching this proof enough?
@chetangajula9521
@chetangajula9521 9 месяцев назад
Is cronic bacterial prostatitis and cpps same
@gheorghealexandrucristian
@gheorghealexandrucristian 4 года назад
This is my story with it and how i've managed to make it get better. I've had chronic proststitis for 8 years, the pain has been increasing to the point that it was almost unbearable and permanent. I've seen 3 different urologists, they gave me antiinflamatory medications, ciprofloxacin, levofloxacin - which helped temporary but didn't cure it. Had lots of cultures done, they haven't found any bacteria even when i told them to decrease the threshold of 10000 bacteria per cubic mm, I've even told them to take cultures for fungi - didn't show anything. I've tried diets, supplements, teas, cranberry juice, nothing seemed to help. The pain and simptoms affected my life a lot back before i've tried prostatic massage, the only thing that helped by a lot. Now I'm feeling much better, the pain is about an 1 out of 10, when I'm exercising it's almost gone sometimes (there were times when it was 6 and permanent...). Anyways the technique i've been using is this: I used to get myself very excited by watching porn until I would get those secretions at the meatus of the uretra, then I would go to the bathroom, get gloves on, lube my index finger, insert it in anus until I could feel the prostate and then massage it as if I'd be milking it (not too hard as I got the feeling it might damage the nerves involved in erection - they are on the sides of the prostate in a kind of ditch that you might feel - depends on the anatomy) and then after I've felt that I've massaged it enough, I would go back and masturbate until I would ejaculate so that I made sure that if there are bacteria in the secretions they wouldn't go back in the prostate. Anyways I used to do a session of massage at two days interval and in a short while it made me feel a lot better. I've heard people use different types of dildos but that's not really my type altho those might work better. Anyways it's the only thing that helped me get better. I wanted to share this with you because I know how bad and miserable this problem can make your life. All the best to you proststitis sufferes, hang in there.
@bullio__y8252
@bullio__y8252 4 года назад
Gheorghe Alexandru Hi Gheorghe, where can i talk yo you? I news some advices about that ill and your message is the only one that transmit positivity and hope, so I imagine that you reached some good results from this problem. I’ll wait for an answer, thank you so much!!
@mikec5391
@mikec5391 3 года назад
Hey man. What were all your symptoms
@colingarner6175
@colingarner6175 2 года назад
It seems all the ladies questions were “good” questions .
@robertdavies9152
@robertdavies9152 4 года назад
Background noise is v annoying. Sorry
@biyyakhan5857
@biyyakhan5857 4 года назад
Check out this video about prostatitis. Its damn funny. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-IriLRyvNlNc.html
@spoziscool
@spoziscool 3 года назад
I understand your heart is in the right place, but too often men are told its "chronic pelvic pain" when it is in fact an embedded infection that needs treatment (myself included) its often an excuse for physiotherapist and doctors since they don't really know what the underlying cause is. I suggest sufferers look into the work of professor Malone lee and Dr Stewart Bundrick whom are experts in embedded infections. And look into long term antibiotics which address the CAUSE not just the symptoms. Just because an infection isn't cultured in your test results doesn't mean you don't have an infection, theres a lot of flaws in standard urine and semen culture testing.
@spoziscool
@spoziscool 3 года назад
@Invicta pelvic tension is an excuse for a chronic infection that doctors don't understand. Much the same as girls are told they have interstitial cystitis when its actually an embedded infection.