"Just by saying hi to a kid like Eli, you can learn so much. The mission is to spread awareness, fund research, and cure EB." Jill Vedder, Co-Founder of EBRP, talks about how we can all #ComeSayHi to #HealEB.
Thank you to our friends at Door Knocker Media for making this project possible.
About EB Research Partnership
ebresearch.org
Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder of Pearl Jam, EB Research Partnership is the largest 501c3 nonprofit funding research to find a cure for Epidermolysis Bullosa (EB). EB is a group of devastating and life-threatening genetic skin disorders that affect children from birth.
11 авг 2019
