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Common variable immune deficiency (CVID): Conversation with an expert: 2024 PI Conference 

Immune Deficiency Foundation
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25 окт 2024

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Комментарии : 10   
@Oceanstarz
@Oceanstarz 2 месяца назад
Where can we access the Documentary? This was BRILLIANT!! I’m in the UK and really struggling, ‘diagnosed’ a few years ago at 60! 😐Hearing all your life stories was so helpful, THANKYOU 🤗🙏✨
@IDFvideos
@IDFvideos 2 месяца назад
You can find screening info at primaryimmune.org/compromised!
@ProfessionalWidow291
@ProfessionalWidow291 8 дней назад
Unfortunately, my adult Son's CVID was not discovered until after he was diagnosed with NHL follicular at age 30 years. His IgG, IgA, and IgM were very low , and had he received treatment for lymphoma, the low IGs would have most certainly been attributed to the treatment and not investigated as a primary immunodeficiency. He has just commenced IVIG and we are hoping to see some positive results.
@IDFvideos
@IDFvideos 8 дней назад
We're sorry to hear how difficult it's been, but hopefully treatment will help!
@SandraCorchia
@SandraCorchia 2 месяца назад
How about fatigue? No mention as if I can play sports!
@lisaverachtert
@lisaverachtert 2 месяца назад
Everyone gets fatigue. People with immune deficiencies can get tired a lot more easily than others. As for playing sports, that has nothing to do with the immune system. That choice is up to you.
@SandraCorchia
@SandraCorchia 2 месяца назад
I really hate when drs act like you can live your normal life! Not true and just got celiac.
@lisaverachtert
@lisaverachtert 2 месяца назад
You can live a normal life, you have to take a different approach.
@kaymui13
@kaymui13 Месяц назад
@@lisaverachtert Exactly - it's never going to be a normal life. Just a different life :)
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