Top 5 things I battle with daily, thanks to Crohn's Disease!! Blog | www.gutinstinct.blog Instagram | @gutinstinct.blog Twitter | @gutinstinctblog For more information, please visit the Crohn's & Colitis UK website.
god i love you! being 19 and trying to live a normal life can be so hard but staying positive is the key! never stop making these videos! they help soooo many people!
Being flaky is one of the "side effects" I can't stand as an extrovert. I went to the store once with bad bloating and a woman told her son, "she's pregnant" and it made me feel so bad. :(
Okay honestly though, you just get it. Haha, this is spot on and I love that you put humor into it. Crohn's disease sucks but I love that you find a way to make light of it :) Keep making more vids, you're such an encouragement to us crohnsies! p.s Love the jean jumper! where's it from?!
Ah, thank you my love, that means the world to me! So happy that I put a smile on your face :) The jumper is from Topshop (quite old) and the denim dungaree dress is from Primark (last month). Sending you lots of love! x
I am a 53 yr old man, fairly recently diagnosed with crohns and just ditto to everything you say. Especially having to cancel things all the time at the last minute and feeling absolutely exhausted
The fatigue is killing me! I struggle to do my job lately hell I struggle to even wake up. I can sleep for a week and still wake up feeling like I've been hit by a train. Please be careful guys, most of us with Crohns have low vitamin D (causing that fatigue ) which means we have a very high chance of death if we get coronavirus. Google low vitamin D coronavirus
@@sshepard5222 thanks for that post. I have been on 6 weekly infusions of infliximab and it has changed my life. Almost immediately after starting over a year ago. My crohns was awful. I lost over 4 stone in weight, but I have put it all back on again. I try to eat a well balanced dietof lots of fruit every day. Protien to help build muscle etc and vitamins. Not a lot of meat. And I eat cakes to keep my calories up incase I become unwell again. I'll have some weight to fall back on. It truly is a vile disease, and much misunderstood. It can cause bad skin brittle hair, dry eyes as well as all the typical symptoms. I wish you all the very best
@@sshepard5222 Me having partial seizures, crohn's, and high blood pressure is even more difficult to be useful in this society. Yes I have everything you mentioned. I do try to take vitamin D daily as being a ginger I don't like extensive sunlight that much as I live in CA which is sunny 300 days a year. In a few days will have a colonoscopy and endoscopy as it's been 4 years since my last one. I used to be on Humira until I stopped injecting regularly due to fear of running out of Humira back in 2020 when supplies were unpredictable. My antibodies started working against the medication and Humira was useless. For over a year the Doc wanted me to take Remicade but I have venephobia and can't stand intervenous insertion. So I have not taken any meds in over a year and hopefully the colonoscopy won't be that awful as 4 years ago the results were great. If the results after this colonoscopy is not good I'll have to decide which meds to take even Remicade. I just try to keep a diet. I do drink Kefir and eat fruits. I do crave pistachios.
Thank you for your video’s, a month ago I found out I got crohn’s disease and it’s nice to know that someone thinks and feels the same ❤️ a lot of people know almost nothing about it and that’s frustrating sometimes
I feel this so much, I'm starting to get a handle on crohn's again, after a 2 year flare up, and all the drugs they could throw at me. thanks for this video. :)
Love this video, I also have crohns disease and suffer with bloating really bad, someone asked me the other day where I get my maternity clothes from!...awkward! The noises my stomach makes is ridiculous, sounds like ww3 is going on in there 😂 love watching your videos they always cheer me up and I show others to help them understand a bit better so a massive thank you!!
Exactly finally someone who gets it I’m 16 and going to school is really hard for me and people just think I’m lazy or don’t care since I’m never there, people just don’t get it
Same with me! I'm 15 and I missed a school math exam which indicated whether I could get into calculus or not (diagnosed 6 months ago... still adjusting to meds)... and one of my friends said I did it on purpose. Which is great. Fine. Absolutely fine. 😒
Travis Mandel I’m going through the same thing I had IBS and fructose intolerance and the last thing they want to check for is an IBD and the symptoms match exactly besides the bloody stool just know you arent alone. i’ve missed about a week and a half of school already from not being able to leave the bathroom. make sure you see a gastro doctor as soon as possible if you haven’t already
Hey there! I'm 21 from Italy. I have crohn since i was 10 and a week ago I did a left hemicolectomy. I had to do it open, not in laparoscopy because (for my clinical situation) it was too risky. I'm always looking for an italian ambassador here in yt that can aknowledge people about crohn and help others who have crohn like us, but there's no one here so I found you. It was love at first sight lol I really like your sense of humour and when you talk I always see myself in you. This makes me think that i'm not alone. Wish you the best Giulia 😘
I was diagnosed 5 yrs ago, all of this is so true!!! I'm new to ur channel (new subbie🎉🎉🎉) this disease is so misunderstood, I love ur vlogs💯 keep posting!!! 😘
Wow your videos are the best it's so good to see what others are going through you make it so real for us I love your wittyness you say it how it is so right what you say about our illness thank you annmarie from the uk. Xx
I can so relate!! It's great how you explain all your going through.. I am so tired of trying to explain Crohn's Disease.. Everyone says you look great and so many people have so much advice of what there uncle of friends Aunt had a stomach ache once lol I send them to your sight!! You are a Breath of fresh air!! Thank you
hi I'm a new subscriber have recently been diagnosed with ibd and can so relate to you am in bed to day with another flare up.you have made me giggle thanks for sharing.
i have crohns disease to and its so unpredictable and scary at times its such a misunderstood illness, and watching this i can relate to you and some of your symptoms, great video thanks for this! :)
Watching this with a flare. Thanks for this video 😌😘 and much love to you. This got me motivated to go on a little walk. It's such a good feeling you're not alone in this.
Good Lord you just told my life story to a tee! I would also like to add to the list the awesome scaring that you are left with after surgery. I have no belly button ( no joke) after 3 small bile resections and 2 more surgeries to remove scar tissue and a hernia it's gone away for ever!
I'm 64 and was diagnosed in 1988 when it wasn't so well known. Took ages to find out what was wrong with me. Ended up with a small bowel op and a DVT to go with it. Spot on about the worry when being asked out even now I have those anxieties. Don't really feel my friends understand how it makes you feel they think you just go to the toilet a lot. Glad you can laugh at it a good attitude to have. Love to all Crohnzies!
Do anyone still doubt natural herbs? I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness including herpes, diabetics, asthma, Cancer, hepatitis, etc. I've seen it with my own eyes. I was cured of ulcerative colitis and my Sister and her Husband were cured of herpes by dr Osemuahu who uses natural herbs to cure different kind of illness. Even Dr. Osemuahu proved to the whole world that natural herbs can cure all diseases and he cured countless of people using natural herbs. I know is hard to believe but am a living testimony. There is no harm in trying herbs. Contact Dr Osemuahu(whatsap no): +2349053317809 or email: contact@drosemuahuherbalhome.com
I’m diagnose with crohn’s disease, the problem that I face with everyday life is to understand my stomach. Latterly I can’t even tell my doctor what I feel about my stomach sometimes I feel pain and then it’s gone when I meet with the doctor. I got Crohn’s disease since high school until now I tried my best to be positive. A lot of medication I’m talking for this disease hopefully I feel better by the day.
Oh my god, the temptation bit speaks to me on a whole other level! Everyone says ”suit yourself” and I know I definitely shouldn’t eat certain things that obviously makes my cramps and bloating worse but my willpower is basically non existant, anyone got a cure for that?
I met my best friend from your videos. I love watching all of your videos. They make me laugh and sometimes feel emotional because I can relate. You're so pretty and keep up the great work!! (:
Another great video all your videos are great love them how you stand up for every one with chrons I just wish my family chould follow or see your videos then they would see our struggle looking forward to a another great video can't wait as you make me feel so much better so really thank you for that .
Thanks dear! For me the worst is to be so sensitive with smells. Yes simple basic things; bake a egg, cook meat, even step into certain grocery shops. Fast foot outlets a no no stop .. my nausea trigger just blow. Dash for fresh air or ... to my dismay puke will damage your shoes.
dominos meator is so bloody good but so BLOODY annoying. I had it 4 days ago and I'm still feeling it. told myself I won't have it again but I will 1000%
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
I love your attitude and hope you have it under control Mine has been out of control for the past 2.5 years and I have exhausted most of my options, humira(adalimumab) worked for a few years but eventually became less effective, I'm currently on steroids whilst trying to find out what the next steps are
Do anyone still doubt natural herbs? I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness including herpes, diabetics, asthma, Cancer, hepatitis, etc. I've seen it with my own eyes. I was cured of ulcerative colitis and my Sister and her Husband were cured of herpes by dr Osemuahu who uses natural herbs to cure different kind of illness. Even Dr. Osemuahu proved to the whole world that natural herbs can cure all diseases and he cured countless of people using natural herbs. I know is hard to believe but am a living testimony. There is no harm in trying herbs. Contact Dr Osemuahu(whatsap no): +2349053317809 or email: contact@drosemuahuherbalhome.com
I'm not yet diagnosed with anything other than gastritis(inflammation of the stomach) and chronic abdominal pain, but I totally understand what you're saying. I have a wheat allergy as well, possibly celiac disease because I have genes for that. So I can't eat anything with wheat, rye, barley, or any of their derivatives. I can't eat anything that has touched those things, either. People just don't understand. I have a coworker who sometimes tells me about her acquaintances with celiac disease, and then she tells me I can't possibly have it because I don't have exactly the same symptoms as them. I do though. I just don't drag her to the bathroom with me every time I've gotta go. And the bloating.......I have definitely looked pregnant before, too. Thankfully nobody said anything, but one time I asked for prayer at communion. The lady next to me put her hand on my stomach, but unbeknownst to her I had been trying to hold it in. So I just let it all out, and she quickly removed her hand. Also, my doctor doesn't believe me because I don't look malnourished, but all the other symptoms I've told her about(dizziness, chest pain, hair loss or just not growing back, etc.) can be signs of malnutrition. You don't have to be skin and bones to have a vitamin deficiency. She also keeps putting me on the same drug even though I've told her I still get diarrhea on that drug.
Taking Turmeric capsule and a pre and probiotic has saved my life. I don’t take any medication any more just these two things and I am 99.99 better. I still get flare ups from time to time. But they are not nearly as bad, when I was taking those medications.
Top Trap Well I never really fit diagnosed. They did a ultrasound on my stomach, the dr told me he saw loops of Bowel. Which indicated to him it was IBS or Chrones. I am currently looking to get more testing done. But would a virus last for over a year and keep flaring up ? How did they treat your virus? Did they give you a name for it?
My old man is 64 and had it since he was 20. He has had half of his intestine taken out and all sorts but he is pretty okay most of the time. He does take the skin of tomatoes so is careful plus travel and stress are an issue but he eats my mums usual comfort and is fit and happy.
These videos have really made me feel better about my whole experience. I was diagnosed with ulcerative colitis at 5 years old and had many major surgeries and problems and just a few months ago I was diagnosed with Chrones. It really sucks so much. My biggest problem is just being SO SO tired ALL the time and not even having energy to do school work or go out with my friends. Thanks you for your videos! I totally relate to all of this!
Not 100% sure why RU-vid served me this video but guessing it’s to do with my internet history (yikes). Can relate to all of that. My Crohn’s has been an absolute bast4rd to get under control for pushing 6 years now. Hope you’re relatively well at the minute. 🙌🏻
Do anyone still doubt natural herbs? I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness including herpes, diabetics, asthma, Cancer, hepatitis, etc. I've seen it with my own eyes. I was cured of ulcerative colitis and my Sister and her Husband were cured of herpes by dr Osemuahu who uses natural herbs to cure different kind of illness. Even Dr. Osemuahu proved to the whole world that natural herbs can cure all diseases and he cured countless of people using natural herbs. I know is hard to believe but am a living testimony. There is no harm in trying herbs. Contact Dr Osemuahu(whatsap no): +2349053317809 or email: contact@drosemuahuherbalhome.com
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
It is possible to overcome Crohn’s Disease. If you are sick of living this way, buy a book called Restoring Your Digestive Health, and try the guts and glory program. I was diagnosed at 12. I am now 36 and this book is changing my life.
Easy bruising indicates iron deficiency which is very common with Crohn's as there is poor nutrient absorption due from inflammation causing scarring that also results as blood loss AKA iron...ever thought of getting your iron level checked? I bruise easily too, it's quite annoying.
Girl that belly comment I get all the time it's hilarious I work in a cafe and a man ran over to grab the tray from me and said two of you shouldnt be carrying all that weight 😂✌️😂❤️
Hey! I'm a new subscriber, and have never related to someone so much ever!!! I have crohn's (now in remission) and i find that a glass of hot water with fenugreek really helps with the bloating. I, of course am lazy enough to not do that everyday, but when it gets bad🙄🙄. Hope it helps you too. Keep up the good work👍
@@kertep it's been 2 years since this comment. I can honestly tell you that it has only been upward from there. Not just the fenugreek water. Now I've updated to cumin and ajwain( not sure what it is in English. Probably carom seeds). I call it the drain cleaner😂. It soothes the stomach and is just overall a good thing to put in your body. I've also started working out since July and that has been a life changer. Hope you get better soon❤️
@@Nina77877 there is an old greek (if i remember well) saying . it try to translate it to english - it says: "excersice is not a medication for everything! but you cant substitue excersise with any medication"
Yes good to see a funny side and I am in my 60s have had Crohns for 40 years and I must say yes I back out of lots of things but when I do go to something the first thing I look for is a bathroom and if say I don't see one or theres one with a line up my stress level is way up and I'm ready to go home ! Oh I bet everybody has some panic stories about needing a bathroom in the next 30 seconds , my funnest moment which wasn't funny at the time was when I needed one NOW and ran into a place which was a mental institution , embarrassing at the time of course . Take care everybody !
Do anyone still doubt natural herbs? I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness including herpes, diabetics, asthma, Cancer, hepatitis, etc. I've seen it with my own eyes. I was cured of ulcerative colitis and my Sister and her Husband were cured of herpes by dr Osemuahu who uses natural herbs to cure different kind of illness. Even Dr. Osemuahu proved to the whole world that natural herbs can cure all diseases and he cured countless of people using natural herbs. I know is hard to believe but am a living testimony. There is no harm in trying herbs. Contact Dr Osemuahu(whatsap no): +2349053317809 or email: contact@drosemuahuherbalhome.com
How do you deal with alcohol, I mean can you/do you have a drink/ a glass of wine or something every now or then? how much to recommend consuming max/how often?
To my knowledge - If you stop eating the bowelmoovement stops and you are more like sustaining your condition - and inflammation is not a state you want to stay with You can try to eat very harmless food in small portions (cooked potato ect) (i had already an op..)
I'm starting to think bruising is a Crohn's thing. I'm on no medication and haven't been for a while now and bruise like crazy...all you need to do is breathe on me and I bruise. For the most part I have the willpower and don't eat the things I know that are terrible for me but when things get so bad that even water hurts like a bitch I think screw it I'm going to eat whatever I want.
Just a life hack for you crohnsies: two or three passes with a spot of body lotion (not body wash) on your toilet paper will get you exceptionally clean. Body lotion greatly improves the surfactant ability of tp and aids in skin care-win-win. Good luck.
12 months of abdo pain and the doc thinks I might have mild IBD after thinking he's seen some inflammation in the colon even though biopsy was negative! Anyhow he's put me on budesonide 9mg! Two weeks and no change in symptoms, just wondered if you've tried these and if they work for you? Feels like my life is on stop 😂😢!!! Ps love the vids xx
Hi there! I was on Budesonide for a little bit and then made the decision to come off them as I wasn't happy taking them, so I'm not sure whether or not they would have worked if I would have stuck it out! I've bene on Prednisolone plenty of times though and it works very quickly, so I'm surprised that Budesonide isn't doing anything as I thought steroids acted fairly fast (though Bud is more gentle than Pred, to my knowledge). My best advice would be to call the IBD team at your Hospital or to go see your GP if you have concerns, as you shouldn't let you life be on pause! Let me know how you get on, x
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
this is spot on. I feel like this everyday although the last testing my doctors want to do is to check for an IBD. the only way i’m able to eat is using canabis and it can be frustrating at times. do you think this could possibly be IBD?
Hey Wanted to check up and see how you were doing? Btw if you do have IBD although quite difficult to diagnose cannabis could be harmful and even make it worse for some. Hope you are doing well. Leah
I got diagnost with cronhs 2 years ago I'm getting sick extreme fatigue I will sleep all day I can't control it I have nausea a little pain all over my stomach my vision it's not getting good either should I go to the hospital? What does people do usually? I'm in the USA
Do anyone still doubt natural herbs? I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness including herpes, diabetics, asthma, Cancer, hepatitis, etc. I've seen it with my own eyes. I was cured of ulcerative colitis and my Sister and her Husband were cured of herpes by dr Osemuahu who uses natural herbs to cure different kind of illness. Even Dr. Osemuahu proved to the whole world that natural herbs can cure all diseases and he cured countless of people using natural herbs. I know is hard to believe but am a living testimony. There is no harm in trying herbs. Contact Dr Osemuahu(whatsap no): +2349053317809 or email: contact@drosemuahuherbalhome.com
*I've recently been diagnosed with Crohns disease at age 15. I take 133 tablets a week.* For about 3 years the doctors kept on just giving me more and more medication and they could never find what was up with me and the insanely bad stomach pain, bloating, toilet issues, fainting and anemia didn't stop . I cant count the amount of tubes ive had sucked out of my veins (i fucking hate it when it bruises cause the doctor stuck the needle in badly) and only until recently did they pull their finger out of their ass and actually send me to a Alder Hey childrens hospital where they couldn't even do the procedure because the doctors where I live didn't preform a scan on me FOR OVER 3 YEARS. They sent me back over after a few months and they done a biopsy and a camera up my ass and down my throat. When I woke up, they told me I would have to have a feeding tube fitted up my nose for 6 weeks with no food when my biopsy came back.. Still waiting for the results but i'm hoping I can still eat christmas dinner
Do anyone still doubt natural herbs? I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness including herpes, diabetics, asthma, Cancer, hepatitis, etc. I've seen it with my own eyes. I was cured of ulcerative colitis and my Sister and her Husband were cured of herpes by dr Osemuahu who uses natural herbs to cure different kind of illness. Even Dr. Osemuahu proved to the whole world that natural herbs can cure all diseases and he cured countless of people using natural herbs. I know is hard to believe but am a living testimony. There is no harm in trying herbs. Contact Dr Osemuahu(whatsap no): +2349053317809 or email: contact@drosemuahuherbalhome.com
@@littyfoster1301 with all due respect ibd especially crohns disease is an autoimmune disease that can not be cured. It can be maintained, it can be put in remission but it will never go away forever. I am really glad that herbal treatments have helped but they don't work for everyone as they caused my bestfriends disease to deteriorate. Therefore people must be on medication and have surgeries. Hope you are doing well. Leah
@@Talapia03 the herbs cure the disease no matter how bad it's so this is your only chance to help your friend get rid of the illness he or she's battling with
