Glad you got the diagnosis long awaited, not the one you wanted to hear but at least you have closure and now you can move forward with helping Felicity.
Kayleigh, what a wonderful person you are, you are going through all this with Felicity and yet you are still thinking of others, I know that with your strength & love Felicity will deal with this & go on to have a beautiful fulfilling future & life...sending my love to you both & the rest of your lovely family xxx
Awh sending lots of love to Felicity bless her and positive healing to her ❤❤ Thank you Kayleigh for explaining it all it cant have been easy for you to do that emotionally sending hugs xx loved seeing sienna doing her colouring and chatting about family shes so cute hope you enjoyed the fudge cake sometimes it's just needed sending lots of love to you all ❤❤
good morning Baldwin family, I appreciate you sharing felicity story. first off let me say how sorry I am to hear that she is going through all of this but I am so great full that you are getting the help and support that Felicity needs to help her as she is working on her recovery. Your family is absolutely amazing and I am keeping Felicity and your family in my prayers. Please continue to take care of yourselves and I hope you all have a wonderful and safe summer holiday.
I really feel for you Kayleigh you are going through such a heartbreaking time .Felicity does not deserve to be going through this pain she is such a sweetheart and so kind ❤ you have a lovely family that will help you get through this ❤ sending love to you all ❤
Oh Kayleigh I'm so sorry you got this diagnosis you were dreading. You are such a lovely family and I'm sure with all your love and caring she will eventually get better. Bless her she is such a lovely girl and hope she is coping ok. Will be thinking of you all and your so brave to come and tell us all. Take care and love to you all. You will help a lot of people by telling your story xx
Kayleigh I had this same condition after two separate surgeries and injuries and it did improve my foot took longer than my hand so please have hope. The pain and symptoms are very real so I get it. Keep going xxx
Hi kayleigh aww poor felicity she is so brave going through all this at such a young age i reaally hope that in the weeks going forward that her knee gets better and that she gets stronger you are such a great mum you know will be thinking about you all tell felicity from me she is a superstar xx
Kayleigh you are such a strong person and so is felicity she will get better she has the determination ❤I loved it when sienna said she doesn't like school as she gets older she will get to like school and stay all day and you will look back and say to kev remember when sienna only went to school for a few hours love go you all love fran xxxxxx
Wish Felicity all the best for me. As someone who has lived in pain for the last ten years. I know how hard it can be. When i was 24 years old, i got diagnosed with fibromyalgia it is similar to CPS in some ways but different in others.
Hello, I have never commented before on your channel but I have to say how very brave and caring mum that you are, these times but be extraordinary difficult for you all but having each other will be the big difference ❤️ Felicity is a wholesome little girl and she will push through this with all your love and support and I send my love to you all xx
Your quite amazingly strong Kayleigh😘💪I know it's not the diagnosis u wanted but least u have one and bless Felicity she will be back to her old self asap🤗Don't forget to look after urself too my lovely👌💞xx
I’m so sorry that you got the news you didn’t want. I think it’s really good that you can meet up with someone in the same situation and get insight from them. Felicity will get better because you’re such a strong family and she’s a trooper. Keep strong 💪 ❤also I’ve been reading about this condition and apparently acupuncture can help.
Kayleigh hello from the east coast of America. I am sorry you are going thru such a painful time. I hope things get better really soon. I enjoy all of your posts and this one hit a nerve and gave me a tear. I am coping with my mom in a facility with Alzheimer’s and she doesn’t even know me. I drive there and then cry the whole ride home. It’s changed our family life and my husbands and my relationship. I will include you and your family in my prayers tonight. Hang in and continue the grocery hauls and cooking as I enjoy those so much. If you lived in the US I feel like we would be friends😊
Hey lovely, you know I’m a huge fan of your family’s, so I’m sending you positive healthy vibes. Try (I know that’s easier said than done) to look at receiving a diagnosis (even though it’s not the one you wanted) as a positive thing! Rather than being in limbo for longer, you now have a diagnosis and can have a treatment plan in place to help Felicity. Which is a positive. Honestly, it is. It may be a long road, but there is support for her now and they will set up a good treatment plan. Also I think from a Mental health point of view, for Felicity, her knowing that the doctors know what’s wrong with her and can create a plan, is much better than her constantly thinking “what’s wrong with me” and “why doesn’t anyone know what’s wrong with me” and also, and the most sad “why don’t people believe I’m in pain”. Having a diagnosis where you can say “we know your pain is real and we know it’s not just a case of saying your not in pain, you’re just frightened to straighten your leg’ the diagnosis completely validates her pain, which is brilliant. Having her pain validated is amazing for her and for you. Having a treatment plan is amazing for you both too. Mentally, you can move forward knowing the limbo part is over and you can now focus on treatment and accept all the help the NHS offer in terms of treatment and advice. Please be positive. Please don’t cry. xxxxx shit sorry that was such a long message 🤦🏻♀️
Kayleigh,you and your husband are doing an amazing job! Your poor little munchkin, hope she feels better soon! Such a horrible thing for her to go through and you and all your family! I think you’re doing the best thing to talk about it! And Lovley how your Intouch with other people stay strong and we are all think of you all❤
Mine and my husbands daughter has been diagnosed with this a few months back and she is 8! The strength we have to have for our kids and the strength they have to put up with.. with the endless pain they are in sometimes not knowing what to do whatsoever! Sending love from our family to yours with the love from you guys! You’ve all got this ❤️
@@lifeofthebaldwins aw thank you so so much for your lovely message we are still trying to wrapped our heads around it like yourself’s but our doctor had said we all need a holiday so that what we did today is book a holiday for us and Luna our daughter for a week in turkey. Will absolutely give you a message ❤ X
Kayleigh what an amazing person you are. I have been following Felicitys journey. Never give up looking fir answers. A mothers instincts are usually right. My heart breaks for your daughter. She will come through this ok as she is a very determined beautiful girl. With your help she will be okay. Please continue speaking out about this condition as more information needs to be put out there. I can feel your pain stay strong you have this. When times are hard your beautiful family will se you througxxx
Am so sorry about this diagnosis and am glad you have found support. I truly believe you are a good mother even though personally i wouldn't want my ne online. You appear to care passionately about yours and care for them really well
Poor Felicity horrible what she’s bn going through, but I’m sure with the help support and determination of her lovely family she’ll beat this and will better soon.🤞🤗
Kayleigh, my mama heart goes out to you. 🫶🏼 I know this isn’t what you wanted to hear and I’m sorry. 😢 I have no doubt that Felicity will beat this! She is a resilient and determined little soul that will persevere. Xx
Sending lots of love to Felicity ❤ Kayleigh have you thought about acupuncture? I have had it myself and worked amazing for my pain….. I paid privately as I don’t think it’s offered on the NHS but it might be worth looking into ❤
I am so very sorry that you have had this diagnosis. But you are such an incredible Mum and family, so with you behind her sure Felicity will be better very soon xxx
Awww bless felicity ,im so sorry ,not news that you wanted but at least now you know ,and now you have someone else that has the same condition ,im sure will help ,keep being positive kayleigh ,im sending you such a big hug 🫂 🤗, bless both of you 😢❤ aw felicity standing on one leg how brave that little girl is ,she could cry and moan but no she still goes to school ,she's such a trooper, ❤😊💖💝
You are a great mom!! I've had bad left leg pain for years..They suspected CRPS but turns out I have a connective tissue disorder and Vasculitis (Unsure of which type) But my amaing Primary Care Provider pushed and pushed to get the scans and such done for me.. Never Ever Give Up Felicity!!
Sorry it was not the diagnosis you had hoped but at least you do have some answers now and can work with this and getting her better! She will get better it will just take a little longer X
Hey lovely felicity will get albetter. Before you no it .Charlie is like mine go to grommers and go in mud to little buggers .love to kev.and children and Charlie xxx ❤❤❤
My daughter had this she hurt her back then her leg turned blue when she tried to walk on it she couldn’t walk on it and I had to stoke it with cotton wool and she would cry in pain .she had hydro pool then physio for two years she is all good now that was 17 years ago x
Really, that's amazing. I need to hear more success stories like this. We started with cotton wool tonight. Ive explained to her that it's going to hurt but we have to keep doing the desensitisation.
Can’t you find out if she could go for clinical hypnosis for pain in children they say it works better in children that they are Easter to do than adults just a idear that it could help your little girl read up on it hope she gets better soon hugs linxxx sorry about the bad spellings it’s my computer doing it
I am so thrilled that your paths have crossed with someone who understands this condition and can help you so much in so many ways- exactly what you needed because I think it’s fair to say,there’s been some trauma for you and it hurts me to see the heartache- with the best intentions in the world, a lot do care and would try and help in any way by brainstorming etc. can you work on me?because I still can’t accept it 🥰💯💜🩷🩵 Oh yes.ive been cold a few days now xx
