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Cystinuria (NORD) 

Osmosis from Elsevier
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6 сен 2024

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Комментарии : 19   
@qienna6677
@qienna6677 Год назад
As someone with Cystinuria, I enjoyed this video, but it would have been good to also point out that the experience can vary and as our bodies produce cystine regardless of what we eat reducing or eliminating animal protein has varied success. Successful prevention also varies depending on what country a person is in and what resources they have access to.
@user-bv9og7ii2z
@user-bv9og7ii2z Год назад
I have this disease. Is there a way to get treatment? For information, I live in an Arab country
@qienna6677
@qienna6677 Год назад
​@@user-bv9og7ii2z There's no treatment guarunteed to fix it, it seems to vary from person to person. The best person to talk to about treatment would be a nephrologist or a urologist. Some people see results going vegetarian, otherwise best advice is drink at least 3.5 litres of water per day and take a urinary alkalinizer such as potassium citrate. You'll get good advice if you join up with the International Cystinuria Foundation, they're really useful.
@omedaubed
@omedaubed 3 месяца назад
@@user-bv9og7ii2zHi dear my son have cysteine my i contact you im from Iraq
@StangGirlRacing
@StangGirlRacing 2 месяца назад
Great laymans term explanation for family & friends. Unfortunately I have this disease & have had 69 surgeries to remove stones since 1999. 36 of those 69 were percutaneous procedures, the rest went up the “natural route”. Good times.
@ahmedz_2125
@ahmedz_2125 Год назад
I don't know why aren't there more people watching your channel. You deserve it guys
@osmosis
@osmosis Год назад
Thanks, Ahmed! 🙏🏼
@nicolewinston8404
@nicolewinston8404 Год назад
Great video. I have this disease
@user-bv9og7ii2z
@user-bv9og7ii2z Год назад
I have this disease. Is there a way to get treatment? For information, I live in an Arab country
@Preitty25
@Preitty25 25 дней назад
Is it cystine or cysteine? The amino acid.
@Vaishnavib1105
@Vaishnavib1105 Год назад
Thank you ❤
@osmosis
@osmosis Год назад
You're welcome! 😊
@user-rh1ll1qz7f
@user-rh1ll1qz7f Год назад
Unfortunately, I have this disease
@maulekuul
@maulekuul Год назад
Me too
@user-bv9og7ii2z
@user-bv9og7ii2z Год назад
I have this disease. Is there a way to get treatment? For information, I live in an Arab country
@teeniequeenie8369
@teeniequeenie8369 8 месяцев назад
What about in dogs?
@dailydoseofmedicinee
@dailydoseofmedicinee Год назад
👑
@tenmiltenmil1770
@tenmiltenmil1770 Год назад
❤️❤️❤️⭐️⭐️⭐️👍👍👍😊😊😊
@osmosis
@osmosis Год назад
🙌🏼 💕 ✨
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