Danny’s family are painfully aware that time with their youngest son will be cruelly cut short by Hunter syndrome, a rare disease with no cure and limited treatment options. Action Medical Research and LifeArc are jointly funding research at the University of Manchester to help improve gene therapy for Hunter syndrome. “Danny lives in the moment and enjoys whatever he has. His smile is totally infectious, and he wins hearts wherever he goes,” says his mum, Sally.
Read Danny’s story - action.org.uk/research/family...
---
www.action.org.uk
/ actionmedres
/ actionmedres
12 янв 2022
