Thank you so much Daryl for spreading the word about Lyme disease. My Lyme specialist is in Washington DC. He told me several years ago that Lyme disease will far surpass the HIV epidemic. I personally believe that there are so many people out there that are being diagnosed with all sorts of illnesses when they actually have undiagnosed Lyme disease.
MD’s are the worst doctors to see for Lyme disease. I’m glad to see Daryl speaking out about this horrible disease. I’ve been suffering with it for 2 years now because my Lyme disease was not caught early.
Thank You Daryl for speaking about your journey. There are so many feeling physical misery and denied medical treatment. Just to have some public validation may provide hope to keep fighting to get better, however they may find it. Suffered relentlessly fro 7 years with hundreds of Dr/Hospital visits. Finally found an amazing Dr willing to treat co-infections and after 2 years of treatment am feeling like I am ready for a fight to help get the word out to others feeling alone and denied.
@Laurenkent, Hi, No, I don't have Lymes disease. I'm a nurse, I've seen many cases of Lymes Disease, most of which have become chronic because they weren't diagnosed in the early stages of the disease. When a patient is not diagnosed in a timely manner, the disease progresses, other opportunistic diseases avail themselves, and the patient, as you know too well, has become very sick. I know several patients who are now in remission, asymptomatic, and feeling well for the first time in years.
Thank you! I’ve had it 14 years of hell!! Full body neuropathy from treating for so long. Money doesn’t mean anything if you lose your health. I won tickets to yalls concert in Birmingham Alabama in 1985 or 1986!! Absolutely great fun concert for a 15 year old!! Love y’all!!💚💚💚
Daryl, I've had Lyme going on four years, almost two of which went undiagnosed...now I'm a neurological mess! When I really get bad, I look at my kids and I tell myself I'm going to get through this!! That said, I just want to thank you for getting the word out there, people just don't have a clue about this disease...God knows I was one of them before getting it! Thanks again, it means a lot to thousands who are suffering!!
Would LOVE to see a LYME-AID Concert post Covid with Daryl and other celebs who've dealt with this horrible disease to benefit Lyme & tick disease treatment & research.
Yes... and it can be a devastating plight. Frustrating is almost an understatement. Chronic Lyme can be every bit as grueling day to day as cancer or HIV, just doesn't have the same extreme threat of death, so people act like it's not that bad. It is.
I remember hearing on the radio in the 90s of his lyme disease diagnosis, he seems perfectly healthy and living his best life, I loveee some Daryl Hall
Lymes disease can be transmitted via sex....and can last for years if not treated in the early stages of the disease..been a nurse 39 years and have seen some patients who have suffered with this unfortunate disease...feel better Daryl you look awesome👍🤗
Weird - I also had an extreme reaction to celery many years ago. Hives all over - I was one big Hive. I thought at the time it might be lupus, but was tested for that. Nope. Anyone else with that symptom? I also have the extreme fatigue, arthritis, rashes, memory loss, etc. I was just diagnosed with Chronic Lyme Disease 1 year ago next week, but have had the symptoms for 36 years. A long time to be told by doctors that "Nothing is wrong with you." Thanks for sharing this interview.
Sorry to hear this Alicia. Selfishly wished you had shared how they finally diagnosed you with Lyme Disease. That would be a tremendous help for more people than you can imagine that are struggling like you without diagnosis. Hope you are feeling better. Peace!
Wholly cow! The volume is so low I had to max out my audio with head phones to hear this, then the next video came on afterwards and just about blew my ear drums out! OUCH!
Good on you, Daryl! Another Aussie here with lyme, undiagnosed and getting sicker and sicker for ten years because the Aussie government won't even admit it is in the country! I hope no-one else has to suffer so long with this horrible disease, and hopefully no-one will have to any more, because people like you are getting the word out there. Best wishes to all dealing with lyme and co.
Thank you for posting. I was very sick with it 10 years ago. Insurance won't pay for it. I payed for everything and was out of pocket over $130,000.00 and almost ended up homeless
Bioweapons are no joke. Lyme CT is directly across from Plum Island Animal bioweapons research center. Birds carried the ticks from the island to the the CT coast directly across from the island, Lyme CT.
12345...OUTSTANDING! You are telling it like it is! My 4 doctors thought I was on Crack when I explained as you did.1 Of these Butcher Argued with me saying Plum IS. Is in Massachusetts.A F*^%ing ,Argumentative,Hatful Pig with a PHD! I haven't found a so called Doctor in Maine who takes it seriously!It's killing the GD Moose! Either they are keeping it quiet not to upset Tourist industry or these Butchers are trying to help NWO/Agenda 21 in population reduction.TY73s
Many auto-immune seeming conditions may also be lyme disease. Parkinson's, Alzheimer's, ALS, lupus, CFS, fibromyalgia, autism, some athritis. Lou Gehrig had a summer home in Lyme, CT. Micheal J Fox and Stephen Hawking both had lyme before getting sicker. Almost any arthopod that sucks blood can possibly transmit - mosquitoes, fleas, mites, bed bugs, lice, midges, spiders, biting flies. I really think if standard testing doesn't improve, and misinformation continues to be spread, lyme will wipe humans off the planet in no more than 50 years.
I contracted Lyme disease in the early 2000's in CT. and was misdiagnosed for a few years because there weren't good tests back then. Meanwhile it got worse and like Daryl, I ended up on the floor in the fetal position barely able to move with very high temp etc. but by then doxycycline wasn't powerful enough to have much effect. Eventually much later I was given medication that ended the brain fog and some of the other serious symptoms. Symptoms slowly got better over the next 5 or so years but I still experience relapses. During a relapse I had a heart attack, crawled out my front door and a neighbor took me to the hospital. Stent surgery was required. Have had to have the ambulance haul me to the hospital twice since, it's tough on the body with the extreme sweats/chills and takes a while to recover each time. So I'm chronic and will probably suffer the various symptoms of back muscles, hand pain, allergic reactions, and so on the rest of my life.
I was diagnosed June of 2013. My Dr thinks I got it 15-20 years ago, or more. I think I got it in the middle to late 80s since that is when my nearly constant headaches started and I started having food sensitivities. I'm now sensitive to 40 food ingredients and I have a very limited diet. I also battle depression. On warm summer days of 90 or higher I'm so knocked out I have to save my energy for my job and I can't do anything else. I started taking anti-biotic treatments in July of 2013 and I had a rare reaction to them and had to stop taking them because I could not drive while I was on the pills. I drive for a living. This has been effecting my health since the early 90s. I don't have any savings to live off of if I stopped working to take the pills again. I used to have a lawn service. I have wanted to restart it but my health isn't good. I have been selling off trucks and equipment so I can take time off to take the pills again,,,,,, but I have not been able to sell enough stuff fast enough to be able to put any money aside. My family isn't rich. I'm stuck in a corner and I don't know how or when I will be able to treat this disease that could kill me. I put up a video a few days ago.
Mr Daryl hall I prayed at church for you and your family and your wife tonight please keep those sweet prayers going for my family members because some of them died from cancer and other stuff like that and God bless you for telling the truth you might say but Shannon the truth hurts I absolutely understand that but my mother said that the truth is that we are brothers and sisters one way or another sincerely Shannon
+Anny whocares Yes or tell you you're cured after taking less than prescribed dose of dioxcycoln, because I have chronic hereditary pancreatits & my dr. was afraid the strong antibiotics, plus duration would cause a bad pancreatits attack! Plus, I was never tested for any of the other things that can come w/ Lyme disease, like other bacteria & parasites! I was diagnosed in 2003, I was bit by a very tiny tick that I actually thought was a piece of dirt & I shaved it off my leg, not sure at the time, but 4 days later my knee in same leg I was bitten on, swelled up, became unable to walk on it & was in horrific pain, not to mention the horrible fatigue, flu like symptoms. . I was on vacation in Albany Georgia at the time(where they say you can't catch it, but I found out afterwards, they had a bad outbreak of Lyme & had been spraying like crazy everywhere! ), I noticed the extreme changes in my heath & had to come back early bcz I felt like if I didn't leave then, as it was getting worse daily, that I wouldn't be able to make it home w/ my kids! I had a Dr's appt the next week & my Dr. noticed my symptoms & tested me then, the bulls eye rash appeared before the test came back, but I wasn't started on dioxycycoline until the test came back positive! I never felt like I got completely better & the last 12-13yrs of my life have been like living in hell! I spend most days in bed now, not able to do much, getting a shower is an accomplishment! I wish the government & Dr's would stop lying! Not all these people are making it up! I think people who have compromised immune systems, like mysef, also was on daily predisone before, during & after my treatment, are harder to cure, if at all, but need longer & more aggressive treatment, which I did not receive, not even the minimum really! I just hope going to a different Dr. at the end of this mo. will bring some hope, because now, most days, I don't care if I wake up in the morning.. This is NO way to live! Also taking so many pills & shots everyday, that nothing seems to help!
***** Thank you Anny! I hope so too! I'm seeing a Rheumatologist on the 30th, that I used to see regularly years ago, but switched to a diff. one, who was closer to my home, Big Mistake! We don't have an Infectious Disease Doc close by, I'd have to drive at least 3-4hrs, which I'm really not up to, but if my old Rheumatologist can't help, that will def. be my next move! I feel pretty confident in this Dr. tho, not only is he very smart(has a degree in Internal Medicine too & graduated from Duke University),but also very caring! He's not the kind of Dr. that makes his patients feel like they're crazy or it's all in your head, he actually runs the needed test & tries very hard to figure out a diagnosis! I should have gone back to him or another specialist years ago, when I wasn't feeling near as bad, but was told you don't have Lyme Disease anymore, by my GP, who was the one that never tested me for anything else besides Lyme & who should have sent me to an Infectious Disease Dr. years ago, when I first got infected! Now I think he's scared they may find co-infections & he's gonna feel really bad abt it or maybe he's afraid of malpractice? I'm not the kind of person who runs around suing people, I just wanna get better! Thx again for your sweet thoughts! :)
My girlfriend had the same thing,she caught it on Nantucket Island. If it wasn't for a smart Doctor at the Jordan Hospital she would have been a goner. Daryl did a fund rasier at the Cape Cod Melody Tent in Hyannis awhile back for lyme disease. This guy was blessed by the Rock and Roll gods..
You will get there, just do whatever you can to keep weight on, exercise anyway you can, as much as possible. The more people hear about this disease, and the difficulties of getting the proper diagnosis, the better. Get second, third and fourth opinions if necessary, and find out as much as you can about Lymes Disease. Take care, be well!
The Great Imatater,Lyme, I've had it for 31 years,finally curing it with herbs.Wasn't diagnosed for five years, I must have a strong immune system to have survived so long with it.100% American of Italian decent.
I would love to hear your story. Bruhner was of the opinion that it was not abled to be destroyed only kept at bay. We've been looking for the OFF Switch for several years now.
Daryl we LOVE you and we need YOU as a high profile "celeb" go in front of a Congressional Panel and raise awareness about the binary battle Lyme Patients fight: A physically, emotionally & financially DEVASTATING illness and a health system that in general, DENIES and will NOT treat the chronic forms of Tick Born diseases. Antiquated Guidlines need to be reformed, access to care and research needs to be improved.
Seriously, the medical field is screwed and about to self destruct. ...Thanks to greed and other evils. Not necessarily talking about doctors but the whole structure that we have now isn’t conducive to life or health. It’s especially not “care”. (No offense to all those who work hard in it.I don’t think it’s their fault). To put your trust in the medical community is to play Russian roulette.
That totally shocked me when I looked it up. I'm middle-aged myself, so you would think it would all make sense to me in terms of age timeline, but wowsers! This dude is still youthful and doing his thing with having Lyme disease on top. That sort of cancels any ridiculous ideas I have about aging and taking up knitting any time soon, seriously.
Mutual emotional support: Companionship/friendships to get through Lyme*, pain, fatigue, and other non-visible illness. Replace the friends you lost that didn't understand and helping those still with you to stay and understand. 1. Go to meetup.com. 2. Register 3. Click on "Find a Group” on the top of the page 4. Type in "Lyme Companions". Not just “Lyme” 5. Make sure you put in a distance within enough miles of Huntington Beach, CA (zip 92648) or you won’t find the correct group, it is in red. 6. Whether you can make our meetings in person or online you can find support here.
Hi Daryl, I hope you find this message. I was wondering if you consider yourself cured of Lyme Disease and what you feel was the most effective treatment ? I'm asking because I have a cousin with Lyme and he is using a very unconventional treatment that I would be glad to share if you or anyone else is interested. I'm coming to you because I think you're an honest and good person who will give me an honest opinion. I'm afraid that there are so many quacks and people out there taking people's money and leading them down the wrong path.
strangertobluewater I did it for about 1.5 years continuously (once/day) then alternated with an infrared. I'm currently pregnant (after 14 years of lyme infertility!!!) so taking the pregnancy off. I will resume after. I'm about 2.5 years into remission after 25 years of illness and 5 years of antibx (didn't work for me).
I wish a celeb who has the heart and the means would offer a million dollar reward for the doctor/researcher/scientist who found the cure to lyme disease. Yes, there are fundraisers and such but nothing like the true motivator of direct money to really get 'someone' on their toes to strive for the ANSWER. *Sigh*...gosh this disease is so hard :(
***** well, to make a long story short; I am terminal with a very rare disease called "honeycombing of the lungs". (From undiagnosed lupus. I'm one of the rare 3% that don't test positive). My parents started taking me to drs. at the age of 4 due to photosensitivity, and all throughout the years with many symptoms, doctors never put 2+2 together. (I must have been seeing all the docs who barely made it throught med school). About 9 years ago, just using a Taber's medical dictionary, I had come to the conclusion that the quinine and malaria that my dad had been given in the Philippine Islands was in his DNA. And although I saw a rheumatologist for 8 years (til last March, til we discovered I was right and he was wrong - CT scan - it was also discovered that I, like Daryl Hall also have cat scratch disease among many other things, and nobody will give me the doxicyln I need for that - go figure - just like DH). Anyway the dumba$$ doc would never give me enough time to go over my medical history or read the 8 page report I wrote. I wasn't 12 anymore and I HAVE HAD ALL THE SYMPTOMS OF LUPUS!!! I took a turn for the worse in 8/11 and it took him, with me begging, another 1.5 years to do the CT scan. And I can't sue him. That's BS too. Sorry I dragged that on. It really angers me that we are being used as rat labs. There are many strange places in this world used for experiments and I believe plum island is one of them. You do know how Lyme's got its name, right? Take care. Don't let these lice being brought into this country, along with all the other diseases by these illegals get to you.
Long term antibiotics will cause a lot of damage. I went on Chinese herbs , after three weeks of antibiotics, and acupuncture for six months and it worked.
@@vaccinefraud5570 you have to get them through a registered acupuncturist. They’re called Classical Pearls. They will know which ones . Lightening, Thunder and another I can’t remember.
Thanks Bruce, You poor thing. I get a lot of problems with lyme neurotoxins causing anxiety but not actual neurolyme. Hubby and I are doing well on the Salt/C protocol (and he uses the Buhner protocol as well) and no need for doctors. A lot of people with neurolyme seem to find the salt works really well for them (just an idea in case you are still seeking help in that direction). There is a yahoo email list called lymestrategies that is base on that and other alternatives.
Daryl Hall is one of the greatest voices of our generation. Talk about pitch perfect every time! He has made the world a much better and happier place to live in.
I have the same 4 as he does.. and I'm in Australia.. apparently its not here.. yet I am!! and so is my Chronic Lyme Disease, Ehrlichiosis, Bartonella and Babesia.. good luck to all of those fighting the bugs xx
When it is transmissible between humans and airplanes know no borders then of course it is everywhere. When Awe Thor Ritties tell you it isn't so, they are covering for what they did.
or the fact that Time Warner Cable DVR has a totally different look now, as seen at the very beginning of the video. lol. They changed it at least 2 years ago.
It seems like he has problems with word finding (coming up with the proper word to say, you know what you want to say, but can't think of the right word.) I have that issue as a part of my Lyme, and I speak the same way he does. I'll flub my words sometimes, or I'll blank on what it is that I am trying to say. And I also wish the interviewer wan't interrupting him so much.
Please talk to Lady Gaga, sounds like she is facing Lyme. If those with a Voice can bring awareness to this insidious disease perhaps things will change. as for now, most people who actually get to the point of being tested gets false negatives and never get treated those who get positives may get treatment may recover, but antibiotics don't kill the eggs it will come back. Its a vicious cycle. Ozone therapy and frequency treatment long term can address this but so few actually know about this.
ASEA worked for me after a 12 year struggle with this illness. Its not a cure for anything but I'd give up food before I'd give up ASEA. If you have Lyme try it..please
Yes, and with all those birds migrating back and forth from our continent! I guess they must tell their ticks and borrellia &Co to jump off before they leave the other countries! Even if it was true that it wasn't here (which of course it IS here), people are catching it elsewhere and coming back to Oz with it and going to doctors here to find out what is wrong and being turned away. It is criminal that docs here are not taught to recognise it.
Hey! I also have Lyme Disease. It's a long long road, but in NJ after countless doctors, Dr. Leslie Fein in West Caldwell is heaven sent and brilliant. She has literally saved my life. Please feel free to DM me. I know it's a crazy crazy disease. I hope you are feeling better.
Gabrielle Rose thanks Gabrielle! I was going to see her but decided on Dr Eugene Eskrow who came highly recommended. Like to talk to you about my experience with it. My email is zivkomgrcic@gmail.com. Feeling better but there's still a question if I even have it! Crazy! 1 Lyme dr says yes and another maybe.
Zivko Grcic yes, unfortunately, this is a very complicated disease, which is further complicated by politics and capitalism. Go figure. Sending you an email now!
1. More thing, don't think this parasite routine is gonna do it, not that there isn't enough visible die-off to not even need a microscope anymore to see them. I'm now drinking myself sick just to curtail activity! Gargle, & site specific sponge bath with long island ice tea. Next thing closer to everclear. This/I can't last long. But helps kill off hatching that seams to be coming from blood stream???
As a child we traveled all over the country from Sheep shearing campground to camp campground, my sister and I would play in the around deer all the time and I remember getting many ticks, my dad would take off me.I now have Fibromyalghia ,I now onder if its what I have and not Fibromyalghia,the symtoms are much the same,of coarse that was so so many years ago,is there a test for Lyme disease?
sylvia lobland I was first diagnosed with Fibromyalgia when I had a fever of unknown origin. Then I had a doctor send my labs to a place in California called IGENIX. It came back positive for Lyme Disease. If you send your blood test into a general lab you will most likely get a false negative. This lab IGENIX is highly sensitive and they specialize in Lyme Disease! Just look up IGENEX Lab on the web and go to their web site and print out the form to fill out and have your doctor send your labs there! I think it cost me $50.00 to do! But it finally gave me answer as to what was really going on and a road to recovery! For treatment I highly recommend looking up a Lyme Disease Specialist near you! Also, please watch the documentary about Lyme Disease here on RU-vid called “Under Our Skin” Part 1 and Part 2. It will give you a good idea of what Lyme Disease can do to you without and with treatment! I hope this helps and I wish you the best! Here is the link to get your order form for the Lyme Disease Test: www.igenex.com/testing/how-to-order-test-kits/
Fibromyalgia is the muscles around infected lymph nodes going into permanent spasm because the lymphatic system is a passive pump. Of course nothing is going anywhere because of lymphostasis from aluminum, the trapped infections that can't be kilt because the Lyme has taken over our white blood cells, and there's nowhere for it to go if the liver is clogged. No need for testing either. Everyone on the planet has it by now.
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Thanks! No MD, in WA, or Oregon that I have found yet! Last one cured me of MD's! lol. I call it skips(brain mal-functions) so bad house bound 3 years now(light/parasite) Complications. Face now eaten up, & this Christian has wished she was dead. What is next? Think I have had all symptoms now since 2005.
