Day 12: I just found out my child has craniosynostosis, what do I do? 

It's Cranio Facial Acceptance Month!
For Day 12 we talk about who you can reach out to when you find out that your child has Craniosynostosis.
Check Out:
Cranio Care Bears - craniocarebears.org/
CAPPS Kids - www.cappskids.org/
Cranio Ribbons Ireland - craniosynostosisawareness/
Every day during the month of September we are going to post a video answering a question that we have been asked multiple times. As a family that has been walking through life with cranio for the last five years, we have a lot to share. Our story may be different than others, but the answers may be the same.
So, join us each day as we dive into a question, and see how much you learn in a month!
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This vlog is about having a conversation about what our everyday lives look like as parents, but also looking at how Craniosynostosis makes things a little different. Our goal is to open our doors, and let you see what life really looks like when you have a child with Craniosynostosis. Though Cranio is a huge part of our lives, it is not always to focus. We do our best to make this an open conversation, so we want to hear from you! If you want to continue on the conversation, feel free to check out our blog www.craniofamilyblog.com. This experiment is about what happens when two people who were bloggers, get a camera, and discuss their family. We are doing our best to show our children, and you, the importance of our family mantra:
Live big, love bigger, and be kind, always.
By diving deep into all aspects of fatherhood, motherhood, parenting and putting family first we are doing our best to show that there is importance in this mantra.
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Thanks for stopping by!