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Day In My Life As A Mom To A Child With Special Needs | Cardiology Appointment 

IsabellaJoy
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Denver Has Severe Aortic Root Dilation, Severe MPA Dilation, & Moderate Leaky Valves. He will be having surgery on his Aortic Valve this summer & give him the best quality of life possible! Cardiology Days are hands down the hardest on us. It's the biggest concern he has, and causing many issues. We get an official surgery date soon and are praying this helps him tremendously. I mention in this video that his BNP #'s were in the 900 back in February, we are happy to say that this number has stayed relatively stable now even in May!! This is a BIG win for us as even our cardiologist thought they would come back elevated. He is responding better to his medicine now that we are on a larger dose and it's beginning to show!
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1 окт 2024

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Комментарии : 323   
@emilysstoddard
@emilysstoddard Год назад
Every time i see a video of Denver, my soul is flooded with compassion and love for that sweet little boy. He has, for some reason, touched my heart. What a special gift you have been given, Mama!
@isabellajoyy
@isabellajoyy Год назад
This made me so happy to hear that he has touched your heart ! Despite everything he has been going through he truly is one of the happiest people I have met. He is just happiest when his family is all near him . He makes me so happy ☺️ thank you so much for watching our family & learning about Denver 💖
@margaretgreen4372
@margaretgreen4372 Год назад
Praying for your beautiful boy and you.❤
@isabellajoyy
@isabellajoyy Год назад
@@margaretgreen4372 thank you so much!!
@darleenmccauley8220
@darleenmccauley8220 Год назад
Im retired nurse. I have seen cases of marfans but patients in 20's. Learning great deal from you. You are doing excellent job caring for your family
@isabellajoyy
@isabellajoyy Год назад
Thank you!! This is only the second neonatal version our children’s hospital has seen so we are learning alongside them everyday! Thank you for watching and learning about Denver & our family 🤍🤍
@Goldenbudgetsavings2
@Goldenbudgetsavings2 Год назад
@@isabellajoyyI hope it it is ok to ask what does he have
@cherrylfuller6847
@cherrylfuller6847 Год назад
I was going to ask if lil man ( not sure of age) has marfans
@lajosne4515
@lajosne4515 Год назад
​@@isabellajoyya ❤
@isabellajoyy
@isabellajoyy Год назад
@@Goldenbudgetsavings2 yes ! He has neonatal Marfan syndrome, the aggressive form of Marfan syndrome 🤍
@AD-sn5en
@AD-sn5en Год назад
Kids are beautiful gifts from God. The world has so much to learn from kids like Denver❤. Keep fighting baby boy, you’re doing great😘. God bless you beautiful family.
@isabellajoyy
@isabellajoyy Год назад
My mom & I say this all time time, truly they are 🥰 such blessings. Thank you so much, Denver is a fighter 💖
@oldjunglist1
@oldjunglist1 Год назад
Denver chose the right family. ♥ You are such a strong mama with a giant heart! Sending good thoughts your way and hopes that there are zero challenges beyond what can be anticipated.
@isabellajoyy
@isabellajoyy Год назад
Thank you very much !! This would be all we could hope for 🤍
@dawnmyers9454
@dawnmyers9454 Год назад
You’re doing a terrific job with a challenging situation. Both your boys are precious and your love for them shines through!
@isabellajoyy
@isabellajoyy Год назад
Thank you , that means so much🥹🤍
@dollfactory
@dollfactory Год назад
Agree 😊😊😊❤❤❤
@isabellajoyy
@isabellajoyy Год назад
@@dollfactory 🥹🥹🥹
@jadey2568
@jadey2568 Год назад
The fact that you're up before your boys means you're already winning! My baby crying is my alarm clock... Both your sons are gorgeous and Denver's laughter is beautiful to hear.
@isabellajoyy
@isabellajoyy Год назад
I never did with Draven and then with Denver I use the time in the morning to watch a show I like and work out haha it’s been a win win but I didn’t even dare try till he was sleeping better through the night 🥲🤍 thank you so much for watching! Denver’s laugh comes from pure happiness, makes me so happy to hear 🥹🥹
@wendymassey9963
@wendymassey9963 Год назад
Thank you for sharing…Denver’s sweetness just pulls you in! Prays for you and your family!
@isabellajoyy
@isabellajoyy Год назад
Thank you for your prayers 🤍🤍
@sarahdore7884
@sarahdore7884 Год назад
Oh my gosh his exited wiggle is the cutest thing ever! I admire your morning routine, getting in a workout before your boys wake up is awesome! Totally off topic but your hair is absolutely gorgeous 💜
@isabellajoyy
@isabellajoyy Год назад
My introverted morning self loves that, but some days I wake up and I just do nothing haha which also can fill my cup. Thank you so much, my hair grew so much while pregnant with the kids 🤍
@CowboyBootsForLife
@CowboyBootsForLife Год назад
It was the cutest little wiggle I’ve ever seen ! Omg he’s perfect and precious ❤❤❤
@luannsmith5309
@luannsmith5309 Год назад
Denver has the best laugh!! You are just amazing and a super MOM!! The boys are sooooo lucky to have terrific parents!! Thanks for sharing your amazing family!!
@isabellajoyy
@isabellajoyy Год назад
Thank you so much ! This made me so happy to read, this is the best compliment 🥹 thank you for watching!!
@originalgifted7226
@originalgifted7226 Год назад
Your husband is a great dad!!! I can tell you are doing better spiritually and physically. Im so glad Denver has gained some weight. These are all great news! Denver loves the kitty, sooooo cute❤❤❤
@isabellajoyy
@isabellajoyy Год назад
He’s gained 1.5 lbs since the pump! He’s exclusively pump fed now and it is helping him 🤍 I am doing so good lately I am smiling & laughing more 🥹🤍 Alex is the best dad, he inspires me to be a better mom just by effortlessly being such a great dad . Thank you so much 🥹 🤍
@theclarks2856
@theclarks2856 Год назад
You're an amazing mama ❤️
@isabellajoyy
@isabellajoyy Год назад
Thank you so much 🤍 this is the best compliment 🤍🤍
@evazee772
@evazee772 Год назад
Thank you for sharing. You guys are an Inspirational family.
@isabellajoyy
@isabellajoyy Год назад
Thank you for watching our family 💖💖
@thehattersmadness1957
@thehattersmadness1957 Год назад
So happy to hear you got a pump and it seems to be helping Denver. His wiggles made me laugh. Such a cutie. I believe that once he has his heart surgery his energy level will improve so much. I know it is nothing to look forward to because it is so scary but his quality of life will be so much better. Such a trooper he is.❤😊
@isabellajoyy
@isabellajoyy Год назад
Thank you 🥹 I agree I hope it goes well for him and is revolutionary! He’s gained 1.5 lb in 3 weeks with the pump, amazing right ?!?!? So so so happy!!
@PammyP
@PammyP Год назад
You are such wonderful, compassionate, parents. You have taught me so much about having patience and carrying on when things are difficult. Thanks so much for sharing your story of your wonderful family.
@isabellajoyy
@isabellajoyy Год назад
Thank you so much 🥹 this comment made me smile. I hope to continue to show you those traits with our path ahead, it’s not been easy but seeing Denver so so well this past month has been really good on all our hearts 🤍
@Joy21090
@Joy21090 Год назад
So thrilled he has gained more weight! I can imagine how much better he must feel now. I know I am crabby and headache-y when I don't get enough food. Happy for you that all of you seem to be thriving. Glad you've got a surgery date, too.
@isabellajoyy
@isabellajoyy Год назад
My husband always knows when I’m hungry there isn’t much time before it quickly turns to a bit of an attitude 😆 I imagine it’s the same for my kids as well haha. Thank you very much 💕
@lynneboll4259
@lynneboll4259 Год назад
You are doing a wonderful job with those boys.
@isabellajoyy
@isabellajoyy Год назад
Thank you so much 🤍🤍
@jansuzanne
@jansuzanne Год назад
Love seeing your family time! Denver does really seem to enjoy your kitty. So lovely to see him wiggle with delight and laugh.😊 Big brother Draven is a handsome and sweet boy. Thanks for all the updates. You are doing a great job Bella! Continued prayers and good wishes are being sent your way from me. Take care lovely lady! :-)
@isabellajoyy
@isabellajoyy Год назад
Love seeing your comment every time! 🤍 you are always one of the first to watch and your support towards our family is so amazing 🥹 if your name is sage I love that name ! The little wiggle he does when he is happy and it makes me so happy to see 🥹🤍
@jansuzanne
@jansuzanne Год назад
Hello Bella, Your comments made me smile. ☺️ No Sage is not my name. My name is Janet. Sage is, or it was, the name that our sweet Shih Tzu pup came to us with. He passed away after giving us 13 years of incredible joy every single day. I always watch and comment Bella because I see the love and dedication you show as you and your husband raise your 2 sons. The difficult challenges Denver faces each day and the way your family attends to them is exemplary. Watching all of you navigate these issues is an inspiration. In addition, Draven gets to experience and witness so much that will have a positive impact to the foundation of his character. Sending much ❤️ to all of you.
@isabellajoyy
@isabellajoyy Год назад
@@jansuzanne Hi Janet :) pets really bring so much joy in our lives , I’m happy you had your sage , dogs are amazing 🤍 thank you so much for mentioning Draven. I have been watching him grow into a selfless little man with so much love for his family. He is always wanting to help mom and dad out and be a part of our team 🤍 it truly is showing us a character of himself that is kind, patience, protective & loving 🤍
@Genie519
@Genie519 Год назад
Such sweet boys! Thank you for sharing. I know these days can be hard but you deal with it with such grace. I love how the boys were enjoying the tickles☺️
@isabellajoyy
@isabellajoyy Год назад
The tickle laughs give me life haha it’s such a cute laugh 🤍🥹 thank you so much !!
@sweet2th657
@sweet2th657 Год назад
Малыш похож на маму. Как хорошо, что родители не относятся к нему как к инвалиду, а играют и ласкают. Он счастлив, счастливее многих обычных детей. Любовь важнее всего на свете. Он в самом лучшем месте на свете, там где его любят
@isabellajoyy
@isabellajoyy Год назад
Thank you so much for the kindness, he is so loved & I just want him to have the best life I can give him 🤍🤍🤍
@eternalfaith19
@eternalfaith19 Год назад
Thank you for sharing sending prayers for Denver surgery this summer and glad to see the progress. Keep your light shining!!! ❤ 4:19
@isabellajoyy
@isabellajoyy Год назад
Appreciate this so much 🤍 Thank you! 🌼
@jordanbdailey
@jordanbdailey Год назад
You did more in the first hour of your morning than i did in my entire day. 😂😂😂 I’m obsessed with Denver’s sweet face. 😍😍😍😍 He’s so cute!
@isabellajoyy
@isabellajoyy Год назад
Some days my alarm goes off and I just scroll for longer than I should haha balance . Thank you so much 🤍🤍 he’s such a sweetheart 🤍
@olivedog1880
@olivedog1880 Год назад
What a precious little man. Both of them, but I just think Denver is the sweetest boy
@isabellajoyy
@isabellajoyy Год назад
He truly is such a sweet boy 🤍 such a kind soul 🌼🌼
@Jjmsl
@Jjmsl Год назад
@5:33 most Canadian thing ever! “You’re just eating EH” haha and @14:40. Intense😊 “eh”
@isabellajoyy
@isabellajoyy Год назад
So numb to it I don’t notice it haha 😂
@Joy21090
@Joy21090 Год назад
5:33 I think Denver is saying "Eh" right back at you!
@isabellajoyy
@isabellajoyy Год назад
@@Joy21090 yes ! 🤍
@khanyisocrowder7731
@khanyisocrowder7731 Год назад
What a happy little chap. So precious ❤.. you're doing an amazing job mommy!❤❤❤
@isabellajoyy
@isabellajoyy Год назад
Thank you very much , he is amazing! 🤍🤍
@ellen6646
@ellen6646 Год назад
You’re doing a wonderful job being mommy to both boys. I’m sure it’s hard to balance. With having only one child, and he being special needs, is often overwhelming. Couldn’t love being his mom more though. ❤
@isabellajoyy
@isabellajoyy Год назад
A balance is a good way to describe it 🤍 their relationship together makes every “hard” thing worth it 🤍 thank you so much 🤍🤍 ( also I love your profile picture , making me crave fall time already 🥹)
@corkipollock7483
@corkipollock7483 Год назад
Thank you for this video. Denver looks so happy, and I got a kick out of him wiggling on the floor with the cat❤️❤️❤️❤️ you are a wonderful mother, not to mention beautiful! The boys are so precious an cute❤️❤️❤️❤️❤️
@isabellajoyy
@isabellajoyy Год назад
Thank you 🥹🥹 he loves the cat so much ! That little wiggle he does when he is happy 🥹🤍 thank you so much for your compliment and watching and learning about Denver 🤍🤍
@bakingnana9740
@bakingnana9740 Год назад
Love your videos of your beautiful family. Little Denver is such a joy, love his happy little wiggle. Draven is such a wonderful big brother. Thankyou for sharing your beautiful boys with us 🥰🥰
@isabellajoyy
@isabellajoyy Год назад
Thank you for watching us 🥰 Draven is the best! That little wiggle Denver does when he is happy so I love seeing it cause I know that means he’s at his happiest 🥹🤍
@bakingnana9740
@bakingnana9740 Год назад
@@isabellajoyy Thankyou for replying, I know how busy you are, but this is what I love about your videos you are real, you record all the ups but also the downs, keep doing what you do you are an amazing mommy 🥰 x
@isabellajoyy
@isabellajoyy Год назад
@@bakingnana9740 thank you so much 🤍 wish it was all ups, but I think with anything in life especially to do with your kids that there will be emotions and thoughts and actions that are down because so much of your heart is invested into it. I am glad I don’t come across as everything is peachy because I do struggle 🤍 some days are worse but it’s so nice to know so many kind and amazing people care and take time to check in with us ! So thank you for that! It really does make my day 🤍🤍🤍
@bakingnana9740
@bakingnana9740 Год назад
@@isabellajoyy ❤️❤️
@karinapierce1411
@karinapierce1411 Год назад
Denver looks just like you. he is a cutie!
@isabellajoyy
@isabellajoyy Год назад
I agree! I think we look alike 🤍
@candicesailsbury1355
@candicesailsbury1355 Год назад
Denver is so happy ❤ Your very informative and thank you for sharing. Hang in there momma your doing an awesome job 👏🏻👏🏻👏🏻
@isabellajoyy
@isabellajoyy Год назад
He’s such a happy baby! Thank you for learning about him & our family 🤍
@BlueButterfly7777
@BlueButterfly7777 Год назад
God bless Denver and his loving, devoted family! 😻❤️😻
@jacintasalt8731
@jacintasalt8731 Год назад
Good luck and hope Denver’s surgery will be sooner than later so the waiting game will be over he can work on recovery. Drayden was so cute with his peekaboo face. ❤️❤️
@isabellajoyy
@isabellajoyy Год назад
We got a surgery date yesterday!! 🤍 going to make an update video today 🤍
@alisontaylor6135
@alisontaylor6135 Год назад
You are such great parents. Your boys are so lucky x
@isabellajoyy
@isabellajoyy Год назад
Thank you so much 🥹 they are so loved 🤍
@tonyadame9682
@tonyadame9682 Год назад
He is super adorable and you are so blessed with a handsome lil angel I love both of your sons names he was blessed to have wonderful parents like you you know he chose you guys cuz he knew you two were very very special thank you for sharing this video of your family
@isabellajoyy
@isabellajoyy Год назад
Thank you so much! He was meant to be ours , he is such a sweet little boy 🤍🤍🤍
@nadiahill3223
@nadiahill3223 Год назад
What wonderful parents you both are to your little boys. Sending you all much love and peace ❤️
@isabellajoyy
@isabellajoyy Год назад
Thank you so much for your kindness. It means so much 💕💕
@ivamat687
@ivamat687 Год назад
God Bless your family, ❤ to little Denver
@isabellajoyy
@isabellajoyy Год назад
Thank you so much ❤️
@laylaarmas1372
@laylaarmas1372 Год назад
You are an amazing mother ❤️
@isabellajoyy
@isabellajoyy Год назад
Thank you for you super thanks & your kind comment 🥹 made my day !
@LeftOfToday
@LeftOfToday Год назад
That was so cute when you were saying bye from the car 😊 And Denver's rock star hair was hilarious! lol I love flashfood, too, if only the store closest to me would actually use it; they barely put any effort.
@isabellajoyy
@isabellajoyy Год назад
Hahah his hair is always up unless I do something to it . Flashfood in the city is much better then my town, but lately they might be upping their game ! It’s nice to have option to get cheaper produce or meat but it’s pretty competitive haha
@jennjeffs4893
@jennjeffs4893 Год назад
Ohhh litter Denvers laugh makes my heart happy!!! 😊 I wish i was a morning person, im a night owl. I go to bed around 1-2am. I kinda do what u do, when everyone is asleep, i use the time to watch a show, catch up on vids, clean up a little etc.. Lots of love from my family to yours!!😊
@isabellajoyy
@isabellajoyy Год назад
Yes that’s what I do in the morning ! I need 5 coffees to stay up as late as you haha I wish I could be more of a night owl some days haha 🤍
@eternalfaith19
@eternalfaith19 Год назад
He is a handsome little angel who loves his tickles !! Loved seeing him play piano
@isabellajoyy
@isabellajoyy Год назад
He loves that piano it’s so cute 🤍🤍🤍
@melon8870
@melon8870 Год назад
5:28 such a cutie pie😩💓💓 ,, both of your sons are adorable 🙁💜
@isabellajoyy
@isabellajoyy Год назад
Piano playing rockstar with that hair 🥹🤍
@PramodKumar-gk5lf
@PramodKumar-gk5lf Год назад
God bless you
@isabellajoyy
@isabellajoyy Год назад
Thank you 🤍🤍
@blondmarmaid1363
@blondmarmaid1363 Год назад
Hey, I don't understand English perfectly, but I just wanted to say that I know how you are, I also have a sick child, it's very exhausting, difficult and sad, but still beautiful. We are strong moms and our children are great the way they are ❤😊
@isabellajoyy
@isabellajoyy 7 месяцев назад
Thank you!! i hope you and your child are doing well 💖
@Jacoe413
@Jacoe413 Год назад
I remember hospital days when i was kid. They were exhausting. Even now if I can't separate appointments ok different days, it's long days for me as an adult. I have heart issues and Noonan Syndrome. Also i understand the frustration of being rare.
@isabellajoyy
@isabellajoyy 7 месяцев назад
Oh it’s very emotionally draining as well as well as 🤎 the rareness does add so many layers to it all as well as I’m sure you know 🤎🤎
@Personally11
@Personally11 Год назад
Yay! You’re raising cat loving boys and that’s outstanding. ❤❤❤
@isabellajoyy
@isabellajoyy Год назад
We love cats in this household ! 🤍🤍🤍
@Personally11
@Personally11 Год назад
@@isabellajoyy Just wanted to let you know you’re in my thoughts. I hope you’re all doing well.
@isabellajoyy
@isabellajoyy Год назад
@@Personally11 that means so much, thank you! We had a heart check up yesterday which I recorded 🤍🤍 I’ll try to work on it today with the kiddos 🤗🤍
@shirlw6075
@shirlw6075 Год назад
Cute video! Please Father .... bless this little family in a mighty way....In Jesus's name. Amen
@isabellajoyy
@isabellajoyy Год назад
Thank you so much 🤍🤍
@verily360
@verily360 Год назад
I love that little denver so much. And I can see how much you guys do too. And your other beautiful Dramon.
@isabellajoyy
@isabellajoyy Год назад
Thank you so much! We love our kids 🤍 I love that their personalities are shining through the camera 🤍
@tanyabruce1019
@tanyabruce1019 Год назад
Happy weekend to you hope everyone is doing well awww seeing a happy denver always makes for a good day so cute to see you have breakfast one on one time witth draven
@isabellajoyy
@isabellajoyy Год назад
So awesome to see Denver happy 🥹 thank you so much ! Draven loves food and Is happiest when I’m cooking or eating food with him haha
@ioletmcfarland3017
@ioletmcfarland3017 Год назад
>is anyone afraid of me Trisha because I hear voices and I didn't have them before 2010 please let me know I have to be honest with you
@isabellajoyy
@isabellajoyy Год назад
I hope you are receiving help from drs & loved ones 🤍
@OlisaPrice-qq1wm
@OlisaPrice-qq1wm 9 месяцев назад
👍👍👍👍👍👍👍👍👍👍👍👍👍👍 video)
@aggiesart6
@aggiesart6 8 месяцев назад
Loving family❤🥰
@lisasprite3322
@lisasprite3322 Год назад
Hope you had a good rest. Best for the weekend!!! Denver doing great with gaining weight 💙 Thank you for sharing 💕🩷💕
@isabellajoyy
@isabellajoyy Год назад
Thank you for the super thanks! I clicked a button last week to activate it and I wasn’t sure what that was! This was incredibly kind of you. Denver has gained 1.5 lbs since the pump, he’s exclusively pump fed now and responding so well to it! We got a phone call this morning that we have a surgery date ( June 21 ) which is much sooner than we thought being only 12 days away, but with his weight gain I feel much better about him getting stronger for it 💖
@lisasprite3322
@lisasprite3322 Год назад
@@isabellajoyy 💙 WoW 💙 xo
@freedomofspeech766
@freedomofspeech766 Год назад
He's a little cutie
@diananauffts5526
@diananauffts5526 Год назад
So adorable
@mamatee5042
@mamatee5042 Год назад
New to the channel, once I seen Denver's cute face, I subscribed quickly... hi Denver 🩵
@isabellajoyy
@isabellajoyy Год назад
Awe yes! He is a sweetheart 🤍
@valeriespatorico4346
@valeriespatorico4346 Год назад
❤ Your boys are beautiful! You're doing great mama
@isabellajoyy
@isabellajoyy Год назад
Thank you so much 🤍🤍
@emmaedelmann3027
@emmaedelmann3027 Год назад
I m autistic and have others I like this type of video
@isabellajoyy
@isabellajoyy Год назад
Thank you 🤍🤍🤍
@Denise11858
@Denise11858 Год назад
I have to say you make it look so easy. Lol. Probably because your boys are soooo good.
@isabellajoyy
@isabellajoyy Год назад
The boys are usually so happy and “chill” ! a lot like my husband haha 😅🥳
@ioletmcfarland3017
@ioletmcfarland3017 Год назад
Bella I just wanted to say Hello to you and your family
@isabellajoyy
@isabellajoyy Год назад
Hello!!
@onion6foot
@onion6foot Год назад
I wonder, do Marfan and Ehlers Danlos (spelling) often occur together.
@isabellajoyy
@isabellajoyy Год назад
Symptoms certainly overlap , but genetically they are on a different gene. Denver did get tested for this but only came back for Marfan syndrome and specifically In the neonatal region which is more aggressive and for a lot of kids the prognosis is poor. Do you have / know someone with either of those conditions ? Before Denver I had never heard of either Marfan or Ehlers Danlos syndrome 🤍
@onion6foot
@onion6foot Год назад
@@isabellajoyy I am a 66 yr old mother of 3 ( all of whom had difficult issues). I have been told I have "Marfanoid" features, as well as those of Ehlers Danlos. A dermatologist said my daughters had some signs of a connective tissue disorder; and my son ( who has/had Tourette and other) has features of Marfan... or something. Joints hyperextension. The cardiologist who checked him out before puberty, saw photos of him and his strange joints and Thin body, and she told me he should be checked again. He's kind of tall. All of us have high narrow palettes. And some other. I was 6 ft 1.5" by around age 14. CMT also in my family. But not too severe. Oddly, my mother has the velvety skin, and could touch her nose with her tongue. She is NOT tall and neither is her brother (or his wife) in fact they are a bit short, but 3 of HIS 4 KIDS turned out pretty tall. Not all people with Marfan are tall. We have not had genetic testing. I wish you the best. It is so hard having children with special needs.
@ailsamallison3061
@ailsamallison3061 Год назад
I love his giggles such a cutie ❤ you are an amazing mum
@isabellajoyy
@isabellajoyy Год назад
His goggles make my whole world ❤️ thank you so much 🤍
@nativeamericanfeather9948
@nativeamericanfeather9948 Год назад
What 2 beautiful & precious children ♡ he's such a loving & kind big brother & Denver is a strong hearted warrior. May God Bless your family & each of your journeys. I pray for God to make Denver strong! You guys are great parents♡
@isabellajoyy
@isabellajoyy Год назад
Thank you so much!! 🥹🤍🌼
@paulam4412
@paulam4412 Год назад
Great family
@isabellajoyy
@isabellajoyy Год назад
Thank you 🤍🤍
@kellymiller9692
@kellymiller9692 Год назад
They say the eyes are the windows to the soul and when I seen the eyes on this sweet little guy I felt the strength he has in his…God Bless This Little Angel 😇
@marylane5281
@marylane5281 9 месяцев назад
Hes so precious❤ youre an amazing mom
@isabellajoyy
@isabellajoyy 9 месяцев назад
Thanks for the kind comment 🥰🤍
@delilahfrost
@delilahfrost Год назад
First, I want to say that you are so brave and so beautiful. Your hair is gorgeous, you could do shampoo commercials; especially the ones that show those glossy waves of shiny hair cascading like a waterfall. That's all you! Secondly, it angers me that you were so blindsided by your son's health issues. I can't understand how they didn't pick up any abnormalities on the ultrasounds. They just put my cousin through mortal hell because one of her daughter's kidneys is .5 cm higher than the other one. She's due in August. Someone must have been asleep at the wheel. If they can pick up on something like that, you should have never been totally unaware that anything was on the radar. At least you could have been prepared for possible issues & not have had such a traumatic birth experience. Lawyers and insurance companies have completely ruined our medical care. Even if your son's condition is rare, something different should have shown up somewhere before he was born, so you didn't have to go through something like that the day you delivered. Regardless, you have handled it with grace, & I really admire you. You are an amazing mother. Btw: I think they think Abraham Lincoln had a similar issue.
@isabellajoyy
@isabellajoyy 7 месяцев назад
you are absolutely right, there was complete negligence.. i even opted for an elective genetic check that looks for additional abnormalities and they missed it there also. I was angry for a very long time, seeing how hard Denver struggled to breathe , to live, it was horrible.. he was born with severe heart and lung issues as well as limb differences... looking back at the ultrasounds it was there and they SHOULD have caught something... want to add on thank you for your kindness , I have heard Abraham Lincoln had classical Marfan's and I totally see that!!
@ioletmcfarland3017
@ioletmcfarland3017 Год назад
Precious kitten 😺 Denver enjoys the kitten he's got long hands and feet I was not an average baby but weight 8 pounds 3oz 19 in a half inches long when I was 16 months old I weighted in 14 pounds when I was 1 years old started walking but I was very sick so the nurses and dr.s helped me started me Trisha walking they hung on to my hands Joan Cooley was the coordinator at marybridge medical and hospital staff were very helpful and very informative about this situation to my mother Iolet mcfarland Richardson was very sick all my life until 2010 life _support 5 different times when I was older I came down with other medical issues and problems I have a therapy kitten 😺 named Wilson lynch I am medically disabled and mentally delayed and medically challenged I have a wheelchair and crutches and oxygen and a walker I am using my mother's wifi tablet for my messages I have carcinoma cancer and pancretitis and multiple medical issues and problems I have a therapy kitten 😺 named Wilson lynch mcfarland and he loves playing peekaboo and shuts the lights on and off
@isabellajoyy
@isabellajoyy Год назад
I am so incredibly sorry. That must have been so hard
@Horsegirlforlife12345
@Horsegirlforlife12345 Год назад
How old is Denver? I’m new here
@isabellajoyy
@isabellajoyy Год назад
1 years old 🤍
@mettehansen9754
@mettehansen9754 Год назад
uhm Dad ..look at your sons eyes at 5:16 what you think he is thinking? ..The words parents say will shape the mind of their children..just pointing it out. Hope all the best for your family.
@isabellajoyy
@isabellajoyy Год назад
Got the biggest brightest stars ever ⭐️ dad just jokes, we love our boys unconditionally and try to always keep it light hearted & fun in our house 🤍 first appointment today since surgery so hoping all goes well
@All5AJz
@All5AJz Год назад
My best friend in Louisiana had a son named Jason. He has this condition. He was a tall boy size 14 shoe at 11. Red hair and his father was 7'10" and had a massive heart attack at 39 yrs old. The expect that will be the same for sweet J. Bless your journey.
@isabellajoyy
@isabellajoyy Год назад
Denver will also be very tall the project! Denver just had surgery most don't get until much older, Hoping this helps Denver 🤍
@laurierivera8089
@laurierivera8089 Год назад
Wishing Denver and you all the Best. You are a GREAT mom♥️♥️♥️♥️
@isabellajoyy
@isabellajoyy Год назад
🥺🥺🤍🤍🤍🤍 thank you so much , that’s so nice of you to say
@OlisaPrice-qq1wm
@OlisaPrice-qq1wm 9 месяцев назад
Amazing video
@isabellajoyy
@isabellajoyy 9 месяцев назад
Thank you 💖💖
@WispyBlueBricksGPX
@WispyBlueBricksGPX Год назад
That child is blessed to have a family like you guys, he wlmay face some challenges in life, but with you guys by his side, u can see him having a fantastic future ❤️
@isabellajoyy
@isabellajoyy Год назад
Thank you so much for your kindness 🥹🤍 Can't wait to see what the future holds for Smiley Denver!
@Snakedad1991
@Snakedad1991 Год назад
Happy boy ❤
@isabellajoyy
@isabellajoyy Год назад
So happy! ❤️
@buhi-22
@buhi-22 Год назад
У вас невероятно очаровательный ребенок! Такой счастливый, улыбчивый, прекрасный! Дай бог ему здоровья! От всего сердца желаю ему здоровья и счастья!!!!
@isabellajoyy
@isabellajoyy Год назад
Thank you so incredibly much 🤍 that is so kind 💖💖
@esorliversage6634
@esorliversage6634 Год назад
We all watch our money but the way you said "these days are expensive enough", rather be grateful you are able to afford that level of care.
@isabellajoyy
@isabellajoyy Год назад
Wasn’t my intention to come across that way, it was more a hit at how expensive it is to park at the hospital. I cut out a part I went off about having to pay for expensive parking for necessary appointments , but kept the part you referenced in. I’ll see if I can cut that out since without context I see where you would get that
@richardreed3016
@richardreed3016 Год назад
You got beautiful hair.and your beautiful to good luck with your son❤
@isabellajoyy
@isabellajoyy Год назад
Thank you very much 🤍 He is doing very well after his surgery now 🤍
@cottontailcameo
@cottontailcameo Год назад
Just realized you live in Alberta, I live in Calgary! Hope you are getting good care, I know there has been a strain on our health care system lately.
@isabellajoyy
@isabellajoyy Год назад
We go to children’s hospital there ! We live about an hour away from Calgary ! We luckily have had amazing care with Denver, our cardiologist is amazing !
@mariaodeteavila721
@mariaodeteavila721 Год назад
You are great mom with your kids.
@isabellajoyy
@isabellajoyy Год назад
Thank you very much 🤍🥹
@mariaodeteavila721
@mariaodeteavila721 Год назад
I will pray for you and your kids and husband all in my prayers.
@isabellajoyy
@isabellajoyy Год назад
@@mariaodeteavila721 Thank you 🤍🤍
@Browneyegirl_13
@Browneyegirl_13 Год назад
Ur an awesome mommy....Denver is such a little happy boy❤
@isabellajoyy
@isabellajoyy Год назад
Thank you so very much! he really is so happy 🥹🌼
@lyndseymcphail7836
@lyndseymcphail7836 Год назад
Omg he is the cutest boy ever! I'd snuggle him all day😊
@isabellajoyy
@isabellajoyy Год назад
He is so snuggly when he wants to be haha he would love that !! 🤍🤍🤍
@chewie2055
@chewie2055 Год назад
Kid belly laughs…..best in the world..
@isabellajoyy
@isabellajoyy Год назад
Such pure happiness 🥹🤍
@tarawilliams2998
@tarawilliams2998 Год назад
I love seeing Denver laughing. He and his brother are so cute.
@isabellajoyy
@isabellajoyy Год назад
They are very sweet together 🤗🤍
@annaleeh.3454
@annaleeh.3454 Год назад
Your boys are beautiful! God has chosen you to be a mama for such a time as this and for these special little ones. Praying for your family!
@isabellajoyy
@isabellajoyy Год назад
Thank you so much for your kind words, truly means so much. I love my boys so very much 🤗🤍
@talagoncharova-starlife-9269
What's boy disease? Sorry, just started to watch
@isabellajoyy
@isabellajoyy Год назад
He has a condition called Neonatal Marfan Syndrome. 🤍
@kathleenosmer8300
@kathleenosmer8300 Год назад
My son has a appointment on Thursday going to cardiologist
@isabellajoyy
@isabellajoyy Год назад
I hope that appointment went well 🤍
@wanya_telborn
@wanya_telborn Год назад
Denver’s case is quite unique Thanks for sharing ❤
@isabellajoyy
@isabellajoyy Год назад
Yes we definitely are learning alongside our drs ! It’s the second case our children’s hospital has ever seen 🤍
@peace-tu5lw
@peace-tu5lw Год назад
May god help you and give you patience to rase you angel ❤❤
@isabellajoyy
@isabellajoyy Год назад
Thank you! 🤍
@Marzipana1
@Marzipana1 Год назад
How old is your baby boy? I love his fairy fingers.
@isabellajoyy
@isabellajoyy Год назад
He is 10 months old ! 🤍 his long fingers are typical for his condition 🤍 🤗
@robinhester4740
@robinhester4740 Год назад
Beautiful family may god bless y'all's home and bless y'all sweet and beautiful little boys
@isabellajoyy
@isabellajoyy Год назад
Thank you so very much 🤍🌼
@fart321
@fart321 Год назад
how old is denver
@isabellajoyy
@isabellajoyy Год назад
Hello! He Just turned 1 years old last week
@fart321
@fart321 Год назад
@@isabellajoyy thank you just wondering
@thebestcptmorgan
@thebestcptmorgan Год назад
He’s got some long fingers and some big, beautiful eyes. He’s a cutie!
@isabellajoyy
@isabellajoyy Год назад
such long fingers ! If learning an instrument is something he would ever want to explore he would have a great advantage with his fingers :) piano or guitar I hear he would be good at a lot from people . Thank you 🤍
@minter0901
@minter0901 Год назад
The boys are so handsome. Denver's hands and feet are huge he is going to be a tall young man.
@isabellajoyy
@isabellajoyy Год назад
They are! It's common for people with Marfan Syndrome to have big feet and hands :) I have heard of many young teens over 6.5 feet and still growing with this condition! He will definitely tower over Draven pretty soon.
@helgaprost7971
@helgaprost7971 Год назад
Je suis triste pour les parents Mais cet enfant est horrible, comme une gros araignée.
@isabellajoyy
@isabellajoyy Год назад
His looks are the least of our concern, his insides , particularly his heart is what breaks us.
@kaitlyn_4832
@kaitlyn_4832 Год назад
Im new to your channels and am praying for Denver I know first hand how hard it is I was born with Teratology of Fallot and have had 3 open heart surgeries and 15+ caths procedures but im not sure of what Denvers condition is since this is the first video I've seen but I also have Pulmonary valve dilation its know as PVS (Pulmonary Valve Stenosis and I was born with mine to the point that after a few months I was born my valved stopped working and had to be replaced and I just got it ballooned this last summer after having my stent for 12 years Praying for Denver and for your family stay strong and that God will give y'all a surgery Date and for peace in these hard times!
@isabellajoyy
@isabellajoyy Год назад
oh, I know 3 heart surgeries would have been so hard, you are so incredibly strong 🤍 Denver has neonatal marfan syndrome & also has dilated pulmonary valve and they just sutured it smaller it sounds like? it was secondary to his aortic root dilation so I really don't know as much about it especially since it came on quick within the last few months! do you need oxygen? 🤍 Thank you for your kindness & this comment, I loved hearing your story! 💪
@kaitlyn_4832
@kaitlyn_4832 Год назад
@@isabellajoyy yea I’m never heard that condition for I’ll look more into it I’m glad they were able to suture Denver’s so successfully and praying for a full recovery for him from surgery it’s not always easy but I know after my surgeries even though you may hurt a little I always felt better from the work they did and yes I did have oxygen for about the first few years of my life maybe got it off when I was around 4 had the exact same little tin oxygen tank Denver has and also had a G tube but luckily was able to get my G tube take out at 5 as well love that y’all are sharing your story and Denver’s story love seeing other patients journey like mine was one thing that has now inspired me to go into Echo to help other kids like me and Denver
@isabellajoyy
@isabellajoyy Год назад
@@kaitlyn_4832 I love this so much , loved hearing how you now do this for your work to help others. Thank you so much 🤍
@donnabrown4349
@donnabrown4349 Год назад
Where did you get the bunny in your baby's window. He is a happy baby.
@isabellajoyy
@isabellajoyy Год назад
It was a baby gift from our neighbour :) I just checked the tag and there isn’t a label 🤍 he is very happy 😊
@nancyschumacher8940
@nancyschumacher8940 Год назад
Thanks for sharing your family with others who may need to know they are not alone. As a child care teacher I learn so much about child development through channels like yours so thanks for that as well.
@isabellajoyy
@isabellajoyy Год назад
Thank you, that means a lot! & I love that even when you aren’t working you are learning more about the dynamics! how amazing!!
@jadebrainiac3135
@jadebrainiac3135 Год назад
(edited to add at the end) great video! you all are looking so cute! and wow is Denver a happy little guy! does he like certain types of music? i keep thinking of his piano fingers and wondering if he would like classical... even something classic (no pun intended lol) like Tchaikovsky's nutcracker or Vivaldi's four seasons. both have calmer parts and lighter parts. i know studies have shown that plants prefer an environment with classical music to no music, now im babbling. also it's obvious how much your confidence has grown in from of the camera. i like the longer format and think you did a great editing job! looking forward to hearing more from you soon. i hope you're remembering to pamper yourself once in a while 🧘🏻‍♀️💆🏻‍♀️💅🏻 you are doing such a great job with everything going on. you can tell that your boys are not just surviving, but thriving emtionally through some difficult times! 💖🌸🌟🌸💖 🌷🌜🩷🌛🌷 💓🌸⭐🌸💓 🌷🌜🩷🌛🌷 💖🌸🌟🌸💖
@isabellajoyy
@isabellajoyy Год назад
I’m a huge nutcracker fan and I listen to the music as well as swan lake on our Alexa ! 🤍 If we ever have a girl her name would be Clara 🤍 all his favourite toys are actually pianos 🥹 his favourite song is the happy song by Imogen heap, he always calms down during appointments if it’s on ! Thank you! I feel more confident lately In front of it ! 🥰 I still laugh at some things I say but I’m lucky I can edit the awkward parts out 😅
@jadebrainiac3135
@jadebrainiac3135 Год назад
@@isabellajoyy awesome! when I was a kid, I saw the musical Cats and was obsessed when I was about 7. it's so cute how much he LOVES your kitty. not long ago they released a pretty decent Cats musical/movie - maybe when the boys are a little older they would like it? there's also the original Old Possum's book of practical Cats by T.S. Eliot which is a book of light poetry written in 1939 - essentially all the songs from the musical in poetry form. I never got into any other musicals tho. my mom was a ballet dancer with the NYCB (she was born in New York and moved to Canada when she was 20ish) until her late teens. so as a kid we would always go see the Nutcracker around Christmas. you seem like a very interesting person, and I think your channel could be an excellent educational and advocacy tool, as well as source of support and comfort for other families (young and old) who love someone with infantile Marfan syndrome. have faith in yourself and trust your gut. you are already leading by example, and I'm sure you have many invaluable ideas to share! 🌞💙🌻💙🌞 🩵⭐🍀⭐🩵 🌻💙🐱💙🌻 🩵⭐🍀⭐🩵 🌞💙🌻💙🌞
@isabellajoyy
@isabellajoyy Год назад
@@jadebrainiac3135 thank you so much! Wow how amazing of your mom ! I’ve never seen the ballet before, maybe I’ll take the kids this winter ! Thank you 🤍🤍🤍 I know in the city close to us they do musicals, I should put that on our family bucket list ❤️
@monikamichaelis-iw3to
@monikamichaelis-iw3to Год назад
Did you have to put on fake hair?
@isabellajoyy
@isabellajoyy Год назад
No it’s all my own hair 😊
@YourstrulyBR
@YourstrulyBR Год назад
I had an aortic valve replacement 9 years ago at 19. Good luck to that sweet baby when surgery does come 💓
@isabellajoyy
@isabellajoyy Год назад
He just had the David procedure 2 weeks ago! He’s home and doing lovely now 🤍 how is everything holding up for you? 🤍
@YourstrulyBR
@YourstrulyBR Год назад
@@isabellajoyy so happy to hear that! Everything is also well over here xo
@isabellajoyy
@isabellajoyy Год назад
@@YourstrulyBR lovely to hear also 🤍🤗
@potatoO0o
@potatoO0o Год назад
He's so precious and sweet 🥰
@isabellajoyy
@isabellajoyy Год назад
Thank you!! 🌼🤍
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