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Dealing with Other People when you have a Chronic Illness 

Cabaña Chronicles
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25 окт 2024

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Комментарии : 85   
@Heather-fm6kp
@Heather-fm6kp 3 месяца назад
Thank you for this. Only people who have walked in our shoes can understand. Chronic illness really pulls the covers off and shines a bright light on how people behave.
@leeboss373
@leeboss373 3 месяца назад
Be protective of whom you share your life with, value your privacy.
@user-tm2vc6fj8q
@user-tm2vc6fj8q 2 месяца назад
Rebbeca you should write a book...life before, during and after MS and your life now in Mushroom manor ❤❤❤
@CarnivoreSuzii-ue5sj
@CarnivoreSuzii-ue5sj 3 месяца назад
This is an important conversation , with an unfortunately very common theme , but so eloquently presented. Well done beautiful , beautiful girl , for rising like a phoenix from the ashes.🥰
@robinbeers6689
@robinbeers6689 3 месяца назад
Thankfully my friends are all older and not social media junkies. That is a time vortex of drama and gossip. I have found that chronic illness is something that makes other people profoundly uncomfortable. They don't know what to say or do so they avoid the whole thing, either verbally or completely by just avoiding the ill person. It's especially hard when you "look normal" but feel like death warmed over. People don't understand that things have changed. No, I don't feel up to mountain hiking and no, I'm not just being lazy.
@esther.f.g
@esther.f.g 3 месяца назад
This life is full of people who lack of knowledge, compassion, respect and acceptance.
@lilnallie05
@lilnallie05 3 месяца назад
This. I always thought it was all in my head, hearing others stories is validating.
@Waves353
@Waves353 3 месяца назад
I can relate so so much. The trauma of the loss of loved ones through their judgements is almost, if not worse than the symptoms themselves The power of a simple text message was all I need/needed. Some illnesses are just not as “sexy”
@iHeartAmySue
@iHeartAmySue 3 месяца назад
Cancer gets so much attention - but Chronic Fatigue? Not so much. especially if you still "look" healthy!
@ellieb2914
@ellieb2914 3 месяца назад
I think it is brilliant the way you have articulated your experiences with the people in your life from the perspective of a chronically ill/disabled person. I'm certain that your story is not unique. So many will identify with much of what you describe. The fact that it is so difficult, beyond a certain age, to make healthy female friendships is so disheartening, it makes you want to stop trying. That is certainly where I am. They are frequently more trouble than they are worth, sadly. You've done a wonderful job of underscoring what it means to BE a good and supportive friend even if by simply showing what not to do. Thank you for this video. ❤
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you for your kind feedback. I agree it's hard to find true sisterhood!!! 😭😭😭
@L.OB-1
@L.OB-1 3 месяца назад
I think you've been incredibly unlucky in your friendships, which i find unfathomable, when you are clearly a kind and generous person. MS is very well known as a chronic degenerative and disabling disease. And if they strangely didn't know this, why on earth didn't they look it up! These people were incredibly insensitive and dare i say it rather stupid. Good to see you have come through these ordeals and been strengthen by them in the end. Thank you for such good advice and a genuinely kind offer of support.
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you 🙏
@angelacross2216
@angelacross2216 3 месяца назад
What an awful, wonderful story. You have discovered some very profound truths about life and what makes it meaningful. Even the smallest act of loving kindness can mean the world to someone going through a difficult time. We aren’t always in a position to fix their situation but we are always in a position to make it better…..and that’s a good enough reason to try.
@missjane782
@missjane782 3 месяца назад
Sorry to hear about your experiences 😢 I don’t have a chronic illness and can’t pretend I know what it’s like, however I can relate to feeling incredibly hurt and disappointed by those around me when my husband died unexpectedly. I’ve become very antisocial since then. Your strength and openness in telling such a difficult story is much appreciated will help many. Wishing you all the best in your health journey. Xx
@AnneMB955
@AnneMB955 3 месяца назад
How can people be so cruel. I don’t understand why this all happened. Thankfully we can see you in a far better place now. I appreciate you telling your story. Makes me sad but it also gives hope that we can get through touch times. Ultimately this is though our own decisions rather than waiting for others to help. We’re proud of where you are now, Rebecca. 👏🇦🇺
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you 🙏 I don't understand it either!! Just glad that it seems to be over ❤❤❤
@kennethbailey9853
@kennethbailey9853 3 месяца назад
Your Version of Your Life Story is what We shall Forever Believe and Remember. 😊
@katerafiq8073
@katerafiq8073 3 месяца назад
Your story is so hard to listen to - and yet so inspiring. It’s truly astonishing that people / friends / family can be so deeply selfish, threatened and malicious. To think about how much you lost and to see you now so strong - it’s (almost) miraculous… perhaps it is just plain miraculous! But really a testament to your bravery, drive and that inner power - and all that meat! I hope that others who have experienced similar will be able to stay hopeful and not feel so alone. I love the length of the video btw!!! 🤣🥰
@suehighley4123
@suehighley4123 3 месяца назад
I am so happy it says “almost” unsurvivable. You have come so far, please don’t ever allow someone to steal your joy. We fight so many battles, but know there are people who truly want you to live your very best life. Prayers for continued blessings along your journey. A far away friend.
@cabanachronicles
@cabanachronicles 3 месяца назад
❤❤❤
@susannanorton2366
@susannanorton2366 3 месяца назад
Your story is heart-wrenching, thank you for your honesty. I am so glad you found the carnivore diet and got stronger. You are an example of humanity to us all.
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you 🙏
@JB-pd4ni
@JB-pd4ni 3 месяца назад
I'm familiar with the attitudes you have shared. I have come to see that healthy people have a need to believe the ill person is somehow responsible for their illness. That way they feel safe from having such a calamity happen to them.
@cabanachronicles
@cabanachronicles 3 месяца назад
💯
@equatorialjourney4478
@equatorialjourney4478 3 месяца назад
Sadly, it’s a primal reaction in times of sadness & crisis . We need to ascribe a reason in order to shield ourselves from similar fate befalling those nearest and dearest . Recently a friends daughter had a TBI & as much as we adore and love her our collective search for reasons as to why it happened was v confronting in its immediacy . Was she drinking; on drugs etc etc …all primal reactions in the moment . It never diminishes the love , empathy, heartbreak and deep ,deep care one feels for the sufferer of the illness or accident ; it simply provides a knee jerk survival shield from bad fortune befalling ourselves . Breast cancer … do u carry the gene etc ? It doesn’t excuse bad friendship but I have come to realise everyone is coping with their own fears and issues and when feeling lonely & ignored it’s imp to remind ourselves that it’s often not personal . The popular phrase being used these days “ I just don’t have the bandwidth to handle this right now “ seems ruthless and cold, but in fact encapsulates a survival truth and we need to be mindful to cut as much mutual slack to others as we expect in return .
@cabanachronicles
@cabanachronicles 3 месяца назад
@@equatorialjourney4478 That's great if you're in a position to cut other people slack. If you are the sick one and no one is there, it's very different. Healthy people need to learn this. Empathy doesn't take any 'bandwidth'. It can be expressed in a meaningful glance, a simple squeeze of the hand. Those tiny things mean the world to a lonely sick person.
@jaynehann4217
@jaynehann4217 3 месяца назад
Rebecca, every single day is a school day. You have learned so much about friendship vs hen shit. You have learned about the lack of integrity as well as the lack of empathy. While traumatic at the time, these were valuable learning experiences that can’t be taught at any level of education because they must be lived. You have risen above it. Reducing your circle to a select few empathetic and authentic people is the greatest gift you can give yourself. I love your strength and your content.
@annenichols7176
@annenichols7176 3 месяца назад
I'm so happy that you have learned from these painful yet enlightening experiences and you've have risen above it all with strength and knowledge while sharing your carnivore journey with us all. I too have experienced some of these altered reality attacks from family, friends, co-workers etc. I was handed the same diagnosis as yours. After being discharged from the hospital it began 🤦 because everything should be over with right? You were treated with high dose IV solumedrol right? Yeah well that's what everyone automatically assumes. "No see 'em" illness is the worst. Your body is ravaging you and you're experiencing things no one can see so people dismiss you or assume you're lying and that just adds to the grief you are already experiencing. I am a nurse and although I tried to explain MS it fell on deaf ears. You have brought me such hope. I recently began the carnivore lifestyle after researching and trying everything from the Wahls diet, to "Overcoming MS" diet, to supplements and everything I was exposed to...being without Internet for like 15 years 🙄... finding Dr Berry, the carnivore lifestyle then everyone with miraculous healing through carnivore! So here I am realizing I have a future of wellness thanks to people like you! Thank you. I pray you have many "true" friendships in the future because you sure do have an online audience who love you for who you are.
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you 🙏 Sorry to hear you've experienced the same. Wonderful that carnivore is helping!!! ❤❤❤
@wendysharpe4568
@wendysharpe4568 3 месяца назад
Only those closest to you get a glimse of what you experience day by fay and get to see you at your worst, others can be disbelieving, scornful, disdainful. Unless you carry obvious visual signs people can be quite hurtful, completely lacking in empathy and have mo interest in even attempting to understand 😣
@cabanachronicles
@cabanachronicles 3 месяца назад
And even when you carry obvious visual signs! Once somebody tried to swipe my cane away from me, saying I didn't need it!!
@whereisyourfaith1454
@whereisyourfaith1454 3 месяца назад
Thank you for sharing. Betrayal and narcissism go together. I've been there. And they never understand why you finally leave. I'm happy for you in your new life.
@cabanachronicles
@cabanachronicles 3 месяца назад
Always the victim!! 🙄
@user-tm2vc6fj8q
@user-tm2vc6fj8q 2 месяца назад
Im glad i got MS...not glad to have it but i never would have gained back better health through learning about carnivore and the real science behind it and knowledge about vegs...fruits etc... stay strong Rebecca 😊❤
@cabanachronicles
@cabanachronicles 2 месяца назад
What an amazing thing to be able to say ❤I feel the same
@user-tm2vc6fj8q
@user-tm2vc6fj8q 2 месяца назад
@@cabanachronicles hi rebecca... YT - homesteadhow - cheat on carnivore? ..... todays date...go watch the girl being interviewed... wow...insane vital new info for carnivores about the gut microbiome 🤍
@Audifan8595
@Audifan8595 3 месяца назад
Rebecca, thank you for opening your heart and sharing your stories with us. I really wanted to give you a hug for this one! I got really emotional listening to this as it echoes so many things I experienced when I was chronically ill, especially the loneliness. For me, it's been sometimes frustrating trying to tell people how much carnivore helped me, even people in my own family, because my illnesses were invisible. I was mainly psychiatrically disordered, and there was a great deal of shame that spurred me to hide my condition...but the fatigue and brain fog was on another level, and I caught a lot of contempt from people when I would bring it up, to the point that I began to believe that it was normal for depressed people and I was just exceptionally weak for being unable to handle it. Turns out I was just way sicker than I realized. Anyway, I am so, so happy that you've come out the other end swinging. Your strength and determination is genuinely inspiring to me. I won't compare suffering, I had mine and you had yours, and now we are both trying to make our lives vibrant and beautiful and full, and that brings me immense joy. I love seeing proof that there is happiness and serenity after suffering, and I know you are going to make your life amazing, because you've come way too far and you're way too strong to settle for anything less. I can see in your eyes that you're never going back to that dark place, that you're going to push forward no matter what may come. You have a gentle heart, to walk through all that fire alone and not turn around and set everything else ablaze. I hope that when I tell people my story, and in the actions I take each day, that others also think this about me. That's what I strive for. Edit: Near the end, you refer to a comment someone made about grieving their old self-- I don't read every comment others leave so I may be mistaken, but I think you might be talking about the comment I made on your video about qutting smoking? I was really surprised to hear you expand on that concept and I'm glad you did. I was thinking a lot recently about gratitude versus grief and I find that the grief shrinks day by day while the gratitude only grows and grows. I do sometimes feel pangs of grief, but the more time I spend relentlessly pursuing a meaningful life now that I'm healthy, the less I feel inclined to be upset about the time that I lost. I don't have time to mope, I have too many things to do! 😂
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you for your kind words, and the hug! So sorry you went through the same❤Yes gratitude is deffo something to hold onto, good to be reminded. Great to hear you're doing so well now!!!!
@HazelRobertson-y3u
@HazelRobertson-y3u 2 месяца назад
MS has shown me the real people in my life. My mother uses my illness as a way to get sympathy from others, so now I tell her nothing. My old friends message me asking how I am but really they don't care just a way to tell me they are none stop in life, holidays they have ahead. My brother says I don't try hard enough as a girl he knows has MS and walks 8 miles every day. I laugh it off cause if I didn't it would eat away at me everyday. My one true friend visits me she makes me laugh and is my hero I'd be lost without her
@user-tm2vc6fj8q
@user-tm2vc6fj8q 2 месяца назад
If i had a brother who said that he would have a fall downstairs and told you get up and walk 8 miles. No 2 MS cases are the same at the same time... similar symptons but different levels and effects at different times ❤
@jekim3
@jekim3 3 месяца назад
It's Amazing how someone can think coming out of ICU presumably with an upward trajectory is the same as someone dx with a prog neurological condition.. im always dumbfounded how my "smart" friends have no smarts at all or maybe no empathy at all😮
@kalicanterbury8085
@kalicanterbury8085 3 месяца назад
Word
@ianbown3543
@ianbown3543 3 месяца назад
what a cruel world we live in, you have had to put up with so much it really is testament to your own personal strength of character. Thanks for sharing & I hope some people that wronged you in the past watch this and it makes them realise their mistakes....
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you 🙏
@Baabaabelle
@Baabaabelle 3 месяца назад
Thank you for sharing what was clearly painful at times, I've never been in a situation like yours but happy to learn from your hard won experience and try and be that better person with empathy and understanding for others. Found your channel when you came up in the carnivore space and have loved seeing you claim back health and happiness ever since. You are a beautiful person and I enjoy your videos.
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you! ❤🙏
@denisekyle6603
@denisekyle6603 3 месяца назад
I understand what you are saying, also am chronically ill, and have no energy from about 9:30 am on , so unable to manage friendships except with a few people who don’t expect anything from me, we get together on zoom once a week in the morning, no longer have people over for dinner or visits , just manage early morning grocery shopping, and a few chore , better to protect myself than deal with others who have unrealistic expectations of me. Love that you shared your experiences with us, prayers and well wishes for you 💞
@bernadettemcenteehart5901
@bernadettemcenteehart5901 3 месяца назад
I think, from your description, you have read her (the person in the first anecdote) motivations correctly. It takes courage to accept the harsh truth that others (that we thought valued us highly and who we valued highly) can view us as so valueless in their eyes. I also realised facts about my own motivations of which i had previously been unaware. This is the gold for me from these experiences. During the recovery from the shock of that, which is taking years, the experience is becoming a valuable one as I have lost a dangerous naivety regarding others true motivations. An increment of wisdom has accrued that is a greater clarity about what motivates me and others. That is my experience of dealing with and still dealing with such carelessness on the part of others and i value you sharing these ,painful for you, details here hoping that this sharing proves to be part of the process of enrichment for you.
@cabanachronicles
@cabanachronicles 3 месяца назад
❤❤❤
@rogerjohnson9946
@rogerjohnson9946 3 месяца назад
Nobody should have to go through what you've had to. You've emerged the stronger and the wiser for it. Thank you for sharing these deeply personal experiences.
@destinedtodevinespiritualc119
@destinedtodevinespiritualc119 3 месяца назад
What i realised when i became chronically ill is no one gaf Since going carnivore 3 months ago i now have my life back and im being selfish Ive cut all my family off and ive also drawn back on my wife duties in a house full of grown men TMJ is horrible because you get a massive run arou d if you female men get the much needed operation relatively quickly and for free but NHS basically said go pay hundreds for exrays at the dentist and run about between hospitals and dentist's and oh here have some depression meds Such a joke So glad your doing well you look amazing keep going
@LeslieandtheWord
@LeslieandtheWord 3 месяца назад
Thanks for explaining this
@Charbythedesert
@Charbythedesert 3 месяца назад
You’ve been forged in fire! Empathetic people draw narcissists. They feed off their compassion and enjoy gaslighting them. Can be charming and difficult to spot until it’s too late.
@equatorialjourney4478
@equatorialjourney4478 3 месяца назад
Stop running, Rebecca . Don’t let anyone or anything drive you out of Galicia . Time to catch your breath , ‘smell the roses, enjoy the coffee ‘ & remember the wise words ‘ everywhere you go you ALWAYS take the weather w you ‘. We can’t out run our heads, thoughts , our past & our cumbersome emotional baggage . Exhale, accept & let go of all the past hurts as soon as you are able so u can restore your full physical strength . You have such a good heart and are so intelligent …harness all your gifts xxxxxx
@cabanachronicles
@cabanachronicles 3 месяца назад
I'm not running from trauma when it comes to Asturias. I just didn't like the community and the ex pats were literally harassing me. Banging on my front door, calling the police etc. Intolerable. I also didn't need to live on the mountain anymore as it had many accessibility issues. It was a rational decision, and the best one. Galicia makes much more sense and the community is lovely.
@equatorialjourney4478
@equatorialjourney4478 3 месяца назад
@@cabanachronicles 👏⭐️…it looks lovely ( albeit , lots of work ! ) You’ve got this xx
@bengoodes1581
@bengoodes1581 3 месяца назад
Yes if you don't have a support system it's extremely hard. Most people are so judging. You inspiring others( I'm one) . Just know that. Keep going. 🥩🌄💛✔️.
@user-tm2vc6fj8q
@user-tm2vc6fj8q 2 месяца назад
Wow those group of crazies...how sad their lives must be that they wish to live off your private life. Sounds like that ' friend' pregnant with twins claiming to be disabled seemed to want to be seen so much as broken just to get half the attention your private life got... sad sad sad 😮❤❤
@juliehebbe9091
@juliehebbe9091 3 месяца назад
That’s awful, you definitely weed out who are true caring friends that’s for sure. I’m so sorry you had to go it alone mainly. Praying for you and carnivore truly is a eye opener to everyone. They are creating a show called the proper human died with heaps of stars ,in my world anyway, in it. Dr ken berry anthony chaffe the old lady Maggie on the farm who is physically like in her 30s. Check it out it’s through homestead how with Kerry
@jekim3
@jekim3 3 месяца назад
I had a narcissistic boss..I'd never seen one up close b4-they are horrible and scary
@cabanachronicles
@cabanachronicles 3 месяца назад
They are dangerous individuals!!
@LifeofBrianP
@LifeofBrianP 3 месяца назад
That's a big yupper....got divorced, ridiculed, fired, fired by doctors, on and on... Guess I should have chosen conventional treatments and be dead by now so I could be liked. Can't believe she still says it is all in my head after 8 years. Good riddance! I'm afraid for many it is much worse when u are older. All I wanted is to know how to get my health improved so AFTER the treatments my cancer cannot come back. How dare I ask basic questions and solve my prediabetes and much more on my own. I've had a lost decade. At least now I am on the 'fire ALL my doctors diet'. Now my big question is, can I afford to live another 40 years. I think that is a much better problem to have.
@annettebode9318
@annettebode9318 3 месяца назад
☀️🫶🥰❤️❤️❤️♾❤️❤️❤️🥰🫶☀️
@jekim3
@jekim3 3 месяца назад
Sounds like melb for me; toxic, career gone, friends gone, nice 2 get a fresh start somewhere better with more sun
@leeboss373
@leeboss373 3 месяца назад
Your reality is only within your own mind, how you perceive external influences is solely in your own head.
@leeboss373
@leeboss373 3 месяца назад
I.E You can’t control what people do and say but you can control how you perceive them. Negatively or positively
@leeboss373
@leeboss373 3 месяца назад
Don’t burden others with your illness, they don’t care. They’re only interested in themselves, sooner you learn that the better.
@jekim3
@jekim3 3 месяца назад
Wow pregnancy is a disability😂😂 some people have no fffff ing idea..
@cabanachronicles
@cabanachronicles 3 месяца назад
IKR 🙄🤯
@SuperMom.001
@SuperMom.001 2 месяца назад
They see Im a young person with a walker and then they roll their eyes or making a sly comment
@cabanachronicles
@cabanachronicles 2 месяца назад
Sorry to hear that :-(
@karennogare2549
@karennogare2549 2 месяца назад
Gee I've never been pregnant was telling my husband of the comment stated to you of pregnancy is a disability my husband said it is isn't it I got MS I was in tears replying MS a disease pregnancies are not a disease
@cabanachronicles
@cabanachronicles 2 месяца назад
I mean, nobody's saying that pregnancy is easy... but jeez 😖😭🤢
@karennogare2549
@karennogare2549 2 месяца назад
@cabanachronicles you inspiring me I started lion diet it day 21 I've been strict 110% I got relapsing remitting MS progressing but I refused DMD'S . I basically bedridden 2 years hardly can walk etc. I was misdiagnosed told it anxiety it stress no one believed me until I got 2nd opinion saying ataxia symptoms then March 2023 MRI demylenation. I got old lesion in pons part of brain amongst other lesions. Tried Dr Swank MS diet, OMS, vegan and keto nothing got worse. As you've said brain 🧠 is fat it 60 or 70% fat. I determined to heal. 3rd week Lion diet improvement in couple things already of my hands. I've given up on Drs stuff me up, we moved to country rural, my husband and I in South Australia 🇦🇺 and wouldn't have moved if found out as got basically sick as soon as moved. I 56. Would love to connect in communication further with you. THANKS 😊
@cabanachronicles
@cabanachronicles 2 месяца назад
@@karennogare2549 so pleased you are starting to see improvements ❤being in a rural environment should help reduce inflammation as well, I think? much respect for your determination and for making your own decisions!!!
@adgermatthews8313
@adgermatthews8313 3 месяца назад
Is this a British thing? How do the Spanish people compare? There are always going to be bad people but I find most people are kind here is the United States.
@cabanachronicles
@cabanachronicles 3 месяца назад
Thank you Adger🙏🙏🙏You are too kind!! ❤❤❤ And yes, I do believe this is a British thing. The culture is rotten. Although maybe also an age thing - I tend to talk to older Spanish people as I live in a rural area, and they are empathetic, but they've had hard lives themselves and experience of illness. I have also found Americans to be very kind. Sad the way the UK is going. Monolingual culture/Island mentality combined with social media, rampant consumerism, too much alcohol and horrible weather is my best guess.
@leeboss373
@leeboss373 3 месяца назад
You should research stoicism
@leeboss373
@leeboss373 3 месяца назад
ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-RHc8mn6hnw0.htmlsi=_8MXYNee7PMkpXEq
@puzzletherapy4u
@puzzletherapy4u 2 месяца назад
Why didn't you go live with your wonderful dad when you were struggling to take care of yourself
@cabanachronicles
@cabanachronicles 2 месяца назад
It wasn't an option for reasons I can't discuss🙊
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