DEBUNKING the idea that ME/CFS, Long Covid are JUST Nervous System Issues

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All around RU-vid, creators - often selling excessively expensive courses - are claiming that illnesses like ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome) and Long Covid are JUST hypersensitive nervous system problems, i.e. conditions in which the only problem is dysautonomia/a maladaptive stress response and that there is NOTHING else going wrong physiologically in the rest of the body. In this video, I debunk this claim, drawing on the research into these conditions so as to share 20 evidenced-based findings about biomedical problems in the bodies of these patients, problems that are all characteristic of these kinds of illnesses. Patients with these illnesses deserve access to accurate information about their condition and this video aims to change the narrative.
My name is Patrick Ussher and I am an ME/CFS patient. I have written a book on POTS and also one about thirst in ME/CFS, POTS and Long Covid.
Personal website (including details about consultations service): www.patrickussher.com
My (free) book on thirst in ME/CFS, POTS, LC: www.themythofprimarypolydipsia.com
NB: This video is for educational purposes only - please always consult a doctor about any health issues or changes.
Links mentioned in this video:
Pretorius, microclots and endothelium damage study - www.mdpi.com/1424-8247/15/8/931
Visser, Van Campen blood volume study -pubmed.ncbi.nlm.nih.gov/30525...
Hurwitz study on low BV - pubmed.ncbi.nlm.nih.gov/19469...
Scheibenbogen, Wirth, autoantibodies paper - www.sciencedirect.com/science...
autoantibodies and severity - www.ncbi.nlm.nih.gov/pmc/arti...
spinal issues in ME/CFS - www.ncbi.nlm.nih.gov/pmc/arti...
heart preload - www.omf.ngo/heart-preload-fai...
low nitric oxide - pubmed.ncbi.nlm.nih.gov/35074...
low carbon dioxide - www.ncbi.nlm.nih.gov/pmc/arti...
cellular issues, high sodium, reperfusion injury etc pubmed.ncbi.nlm.nih.gov/33882...
www.ncbi.nlm.nih.gov/pmc/arti...
adrenal glands smaller - pubmed.ncbi.nlm.nih.gov/10451...
collagen issues - publications.aap.org/pediatri...
low serotonin - www.ncbi.nlm.nih.gov/pmc/arti...
www.sciencedirect.com/science...
Normalyte (most helpful supplement I've ever found for ME/CFS) - affiliate link: normalyte.com/?ref=ftveadx3
DNRS Brain retraining (helped me recover from my first round of illness and still very much recommended) affiliate link - retrainingthebrain.com/?wpam_...
Timestamps:
1:28 problems with simplifying ME/CFS
5:00 low blood volume
5:43 microclots & endothelium damage
6:23 autoantibodies
8:42 heart preload failure, reperfusion injury
10:37 low NO & CO2
11:32 cellular & muscle issues
13:52 spinal problems
14:38 collagen issues
15:27 low serotonin
16:07 adrenal shrinkage
16:44 final reflections

Опубликовано:

2 апр 2024

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Комментарии : 47

@barryrobinson6023 2 месяца назад

Only people i know who been seriously ill or died in the last few years all have 1 thing in common.

@me-cfs-strategiesforhealing 2 месяца назад

They'd have had to hold me down....

@brownsey1 2 месяца назад

You know that's absolute nonsense given that the one thing in common, which I'm assuming you are alluding to, was not even out there for the vast majority of people to take in that first year. I wonder what those who died or got seriously ill before that had in common?

@ashleyogarro2686 2 месяца назад

Pork and Meat eaters got hit the Worse...stop eat the dead ,and avoid all dairy products..firstly!...I know yhos sounds impossible,but you must try my knosis...

@alecaleblues 2 месяца назад

@@brownsey1in common they had old age with 2 or 3 ilness on going , second the protocols used and pushed by w.h.o.

@tekamin Месяц назад

@@brownsey1they all had 'died with' in common 😂

@corrinneloudon525 Месяц назад

Thank you for this! As a 25+ years veteran of ME, this has explained so much.

@me-cfs-strategiesforhealing Месяц назад

I'm so glad the video is of help, Corinne. Having this kind of research to demystify the illness is half the battle.

@domsa_ Месяц назад

Thank you for saying this. They say it's all nervous system dysfunction because it fits with their 'recovery' grift. Saying 'there is no disease' is plainly wrong, and it's insulting.

@me-cfs-strategiesforhealing Месяц назад

Thank you for the kind words and I very much agree. If we think of how bad ME/CFS is, or its exercise intolerance, how could it possibly make sense to explain such symptoms as JUST the result of an 'excessive stress response'?

@lessons9745 Месяц назад

Hi Patrick ! I hope you are doing well today !

@dkav5427 2 месяца назад

Thanks for the video I have suffered Pfs syndrome for 2 and half year and the symptoms are very similar

@noeldoyle4501 2 месяца назад

Thanks very much for your great work.

@me-cfs-strategiesforhealing 2 месяца назад

Thank you for the kind words.

@musoseven8218 2 месяца назад

Great video - well done👍✌️😊💜 I still believe although there are commonalities every sufferer can be different (because the causes are varied, although there tends to be common threads). I see your point though and Im open to such, because to lump these conditions together as MASR is clearly myopic and inappropriate. Although splitting hairs, CFS from PVS (viral infection), is almost normal and far, far removed from extreme, long term, cases of M.E, FMS or Acute Long Covid Syndrome. Chalk and cheese in fact. Also in the west many have B1, B12 deficiency (perhaps even inherited) - often that masqurades as many other illnesses, that pharma drugs treat and unenlightened GPs prescribe in a way akin to the old lady who swallowed a fly - then over time the death ceremony ensues. Im sure that certain quarters know this. My M.E and FMS had similar starting points to my Acute Long Covid Syndrome - however, whether age related or not, I have lost lots of muscle tone and suffered from viral malnutrition. I also had a 'SARS Like Virus' a year to the day before contracting Covid Alpha/Wuhan Strain. 'Brain retraining' - various types of course - but in rough terms, 33% get better, 33% stay the same, 33% get worse. In other words, the same, as near as damn it, stats for those left untreated. Certain treatments (NLP, CBT, Hypnotherapy, specific types of counseling - including trauma mapping and trauma therapy) can help take the edge off, as opposed to being a cure, although I have seen some cured using such. One cause, in recent times, is spike protein, its in most of us now (via a certain virus and its 'cure') to a greater and lesser extent. We all need to get shot of it. Its a complex set of conditions, trauma and viruses can be triggers, causes too, often those related to herpes type viruses. Good work. Its tiring though isnt it, soul destroying too at times. Plus our governments have abandoned us! In recent times the CCP et al should be in the international law courts - but our governments are bought and paid for, treasonous, shills.

@me-cfs-strategiesforhealing 2 месяца назад

Amen!

@martinmcevoy8308 2 месяца назад

Very good'thank you'it would be very helpful if you could suggest some possible remedies for these conditions 😊👍

@me-cfs-strategiesforhealing 2 месяца назад

Hello, Martin - thanks for the kind words. I'm still recovering but you could check out my 'recovery progress' update video for some things that have helped me so far.

@MorganMedia23798 2 месяца назад

Thank you for your work!

@me-cfs-strategiesforhealing 2 месяца назад

My pleasure!

@eckyx9019 2 месяца назад

@@me-cfs-strategiesforhealing Tell me..if the so called vaccine doesn't stop you contracting the virus or spreading it, what's the point in taking it.

@me-cfs-strategiesforhealing 2 месяца назад

I would say there's no point in taking it. There.... we agree on that.

@katarinakovrlija3372 Месяц назад

FANTASTIC video!!!

@me-cfs-strategiesforhealing Месяц назад

Thank you very much!

@monicali2608 Месяц назад

Don't forget the influence of micro parasites. Holliday souvenir or from your pet or insect bite. Unknown Lyme for instance.

@me-cfs-strategiesforhealing Месяц назад

Good point, thank you for raising it.

@gwilkins4617 2 месяца назад

I wish I had known this before I spent money on treatments that didn’t work

@me-cfs-strategiesforhealing 2 месяца назад

I understand fully. Not to say that these programs might not help some people, but they give a totally misleading impression about what ME/CFS involves. And occasionally, they are run by some real sharks.

@nataliebutler 2 месяца назад

Reducing stress will always help your body to heal. It's rare that anything 'works' for CFS though. It's generally a gradual process and each thing contributes a bit.

@littlemiss4041 Месяц назад

Louder sound, please (politely asked to be considered) - hearing issues. Best regards,

@me-cfs-strategiesforhealing Месяц назад

Yes, thank you for mentioning that. My upcoming videos have addressed this problem

@martinmcevoy8308 2 месяца назад

Thank you'so how do access.video'im not really great on social media

@me-cfs-strategiesforhealing 2 месяца назад

You are welcome Martin. Underneath the video on the left-hand side, you will see the channel name 'Understanding Myalgic Encephalomyelitis' - click on that to take you to the main channel page. Then click on 'videos'. Then scroll down until you see a video titled 'How am I doing now? Recovery efforts update from ME/CFS...' It's only the sixth most recent video, so it is up near the top. Let me know if any trouble finding it.

@tamiwigginton7137 Месяц назад

Its lyme and co infection!!!!

@me-cfs-strategiesforhealing Месяц назад

Some have that problem.

@eckyx9019 2 месяца назад

Long covid my ass.

@me-cfs-strategiesforhealing 2 месяца назад

No doubt you'd have said that about Multiple Sclerosis or Parkinsons when people thought they were signs of hysteria.

@eckyx9019 2 месяца назад

@@me-cfs-strategiesforhealing Known and well studied afflictions....Long covid my fucking ass.

@me-cfs-strategiesforhealing 2 месяца назад

My point was that at the time decades ago, illnesses like MS and Parkinsons were not well studied because the assumption was that they were psychosomatic, so why bother with them..... Eventually, researchers copped on and studied them properly so that now, yes, they are well studied. Medicine goes through so many hubristic errors like this. ME/CFS is just another one of them. The research is clear that this is a devastating and biomedical illness. Unfortunately, mainstream medical profession hasn't caught up with that yet for the most part due to the psychosomatisation narrative that became embedded for years. But things are changing. The ship always turns slowly.

@bazlogan8679 Месяц назад

It's the jab.

@me-cfs-strategiesforhealing Месяц назад

It can be triggered by jab or virus.

@katebehrend9783 2 дня назад

@bazlogan8659 Symptoms consistent with ME/CFS (and no other known illness) have been documented at least since the nineteenth century, and more carefully studied since 1955, beginning with Dr Melvyn Ramsay’s studies of patients affected by the London Royal Free hospital ME ‘outbreak’. As commented by the video poster, ME can be triggered by any vaccination/virus/other toxin exposure, and the disease is almost certainly as old as the hills (though likely much more predominating in more recent times due to the increased number of relevantly existing ME-causing stressors and potential triggers).