Diagnosed with Transverse Myelitis 

Joy, in 2020 I had almost an identical experience and was finally diagnosed with idiopathic transverse myelitis which affected my cervical spine at C3-7. I could not walk or do anything with my arms and hands. I was grateful that I could speak normally but someone would have to feed me. In addition to the tests and treatments you had, I also had 5 days of plasmapheresis which removed 60% of my blood and cleaned it then was returned to my body. It has been a long journey but I am now about 80% recovered. I still have issues but my primary care and neurologist have prescribed medications that help with the pain. Transverse myelitis is rare and not curable but I have a great husband who has cared for me and I live a fairly normal life. My fine motor skills are the most affected now and probably will take much longer to improve. My best wishes for you, Joy, to continue improvement for your recovery. Thanks for sharing your story. Linda

I am just amazed by your peaceful positive spirit through this trial!! Sending prayers your way and keep us updated on your progress!

Oh my! I am so sorry to hear this. Praying for you! 💛

I had an episode of TM back in Oct. 2012. It was really awful, I couldn't comprehend that they were telling me I only had a slim chance of recovery. I had 2 young children and that just wasn't acceptable. I worked really hard to overcome the nerve damage, I had a slow onset over about 3 weeks. The diagnosis was very frustrating bc it was idiopathic, a "virus" maybe...? No good answers which has always made me wonder if it will happen again. I got better over about a 6 month period, but continue 7 yrs later to have nerve pain (the lesion was on my cervical spine) and numbness in my palms. I'm very grateful for all the recovery and thank God every day that my life is mostly "normal." Keeping my faith strong got me through so many dark days. I pray for people going through this, and other terrible health conditions. God bless you.

Thank you so much for the update! Your joyful, steady spirit is truly an amazing testimony of the woman you are Jesse. Will absolutely continue to pray for you. Love you sister, hang in there! You’re doing an amazing job and will get through this!❤️❤️

Praying for your Progress Jesse!

Hi Jesse, I’m so sorry you are going through this! You are so positive and have your faith where it needs to be. Thank you for sharing this with all of us. You are in my prayers for a quick and safe recovery! Sometimes we can’t see why something would be for good but the Lord has his plans for us. You are very loved! Take care and fight hard! ~Nikki

Hey! I had the exactly the same story as you. Intense pain in my legs and urine retraction and I couldn’t stand or walk at all. I’m in hospital now. Hopefully you’ve recovered!!

I love you sweet friend! Your grace and attitude throughout this whole journey has encouraged me so much! After I go visit you, my face always hurts from your contagious attitude and smile. You are an amazing Godly woman and I’m so thankful God allowed our paths to cross and we became friends 😘 praying for you!

Oh my goodness! You have been through so much! I can only imagine how scary this must have been. Wow. Prayers for your recovery.

I wish you a speedy recovery. I was diagnosed with Transverse Myelitis back in October 2021 . I had all those test you had done. I was on a wheelchair for 2 1/2 months then transitioned to a walker . I feel very fatigued and a numbness and tingling sensation from my waist down. Burning sensation within my inner thighs. And an excruciating back pain. I’ve been doing fairly well with my physical therapy and little by little started to gain my balance. Although it’s not 100% there yet . Haven’t been able to feel my feet I feel like they are buckled and with tightness.It’s so hard just to know this is something that literally happened overnight. Since my diagnosis I have pain all day everyday at times I feel a burning sensation. Just taking it one step at a time. I also been doing a lot of research about this diagnose . That’s how I came upon your channel. I love your good spirits and positive vibe. I hope you are recovering well and keep doing videos of your Journey with Transverse Myelitis it’s not an easy one but will get through it in God’s name.

Found your channel ty so much. I was diagnosed with TM almost two years ago and am still trying to walk/stand.. going for an appointment with my Neurologist in a few wks. This came on little by little then was worse. I spent 10 mos in the hospital and 3 months in rehab which I can now sit up by myself and move my legs, which I couldn’t do that before..so I have faith that I will eventually walk

I’m so relieved to know that you are my sister in Christ! My husband & I are Canadians living in Sarnia Ontario.....on the border of Michigan. We belong to an evangelical Baptist fellowship. I’m 73 & was diagnosed with TM 8 1/2 months ago.....mid-January of 2019. There’s never been a point where I couldn’t walk. It initially destroyed my sense of balance. But I could walk hanging onto the handles of my walker.....which I bought a few years ago (second-hand & in new condition).....just in case I might need it in the future!! I am inclined to believe now that God was inspiring me to buy it......because He knew I would. ❤️ When I collapsed early one morning, when I got up to use the bathroom, my husband called 911. Less than half a minute later I experienced permanent amnesia. My memory tells me that the next second after he called for an ambulance,...I became aware that two paramedics were carrying me out of our apartment to place me on their stretcher waiting at the door. Then I experienced aphasia (not able to speak) when, after one paramedic told me I was talking nonsense when they entered our apartment, he asked me a question. I opened my mouth to answer him....& discovered I couldn’t talk. Days later, after being transferred to another hospital an hour away, a neurologist asked me my date of birth. I discovered with shock & confusion that I couldn’t remember it. Then he asked me our address. I couldn’t remember that either. I’ve been watching a number of videos of people telling their story of being diagnosed with TM. No one else has experienced amnesia & aphasia. I was eventually transferred to rehab in the hospital in our city. I eventually learned there, from a nurse, that I had fainted in the bathroom in the other hospital. I still don’t remember doing that. But I did eventually remember my date of birth & our address. I will soon be visiting a neurologist & am eager to talk with him about my brain dysfunctions. None of the doctors whose care I was under months ago had time to explain those episodes with me. Experiencing them frightened & upset me. I couldn’t continue the exercises the physical therapists taught me.....because the exercises exhaust me. Now I’m rather short of breath all the time.....& far worse with just a few minutes of activity on my feet. But my balance improved somewhat. I only need to use my walker whenever I leave our apartment. Our nearby grocery store has one of those battery-charged grocery carts that can be sat on & driven around in the store....with a large wire basket on the front....which is how I’m able to do my own shopping. My condition is worsening every day. My skin is numb from just below my breasts & on down to, & including, my toes. It feels like my skin turned to rubber. Every day my “rubber” skin becomes a little tighter.....& a little thicker! Now, 8 1/2 months after my diagnosis, it feels like partial paralysis will happen in the very near future. If God allows that to happen I will immediately have to be placed into our local hospital.....where I will remain until there’s space enough for both my husband & myself in one of our nursing homes here. I am not afraid. I’m not nervous....or anxious. I’m trusting God......because I believe God is glorified through our suffering. God is in complete control....as always. He doesn’t cause disease.....but He CAN use this disease in me to bring glory to Himself. He wants only His best for me. He wastes NOTHING! I am actually thanking God for allowing this rare neurological disorder to happen to me.....because it put me in the right place at the right time to lead a fellow patient in the hospital to Christ. I trust God because I can’t think of one logical reason NOT to trust Him! ❤️

You are so positive about all of this! I am going to be praying that you’ll be walking and functioning like you used to! Hang in there girl the lord is in control.

I really needed This..Thanks for sharing it!!! Hope you feel better soon :)

I have Transverse Myelitis too and got diagnosed 4 months ago, but mine happened straight away with no warnings, but I can walk again for short distances and I wish you the best recovery xox

God bless and be with you during your healing process.🙂

I am a survivor of transverse myelitis as well. While your story is different from mine I love your spirit about it. I was fully paralyzed and I am almost fully mobile now minus the use of my right arm. I want to say that it will get better and I pray that full mobility is restored to you ❤️

God bless you! Keep praying God will give you complete healing. Stay happy, and keep that positive attitude. It must be hard to be away from your family. But, know you will be reunited soon.

Prayer for your recovery

May God continue to keep your faith strong as He gradually reveals His plan for your life. May He continue to look after the needs of your whole family! May He continue to help you focus on His constant blessings still raining down on the heads of you & your family. May He continue to give you wisdom to appreciate those blessings & to ignore the negatives....which do not come from God. This struggling season of our life is NOT our “forever”! May you feel God’s loving arms wrapped tightly around you. Thank you, God, for Your agape love! Thank you for Jesus! One verse that keeps coming to mind is a command that we believers find frequently difficult to obey......with God telling us NOT TO FEAR TOMORROW! Before my diagnosis I found that command impossible to obey much of the time. NOW......I find it EASY to obey! ❤️

Thank you for this video! I've been diagnosed with MT 3 days ago. Been in the hospital for 10 days now. This helps, so thank you. 😘

I was diagnosed in 2013 after I took a flu shot with transverse myelitis. And it's been a struggle.

Can you provide us with an update? It would be appreciated.

Diagnosed over 2 years ago🙃❤️

Hi i am from italy. I have adem almost the same to the myelitis. I had this 17 years ago.now i walk with a cane..if you have any question feel Free to ask anything.

Did you take any oral medication after the IV steroids? And are you still on any? Xx

my wife has transverse myelitis and can walk fairly well with a walker but has urinary and bowl problems which seems to be persisting. Were you able to regain function with that?

Mines was caused by influenza A.