Doctor’s top resources for CFS + Long Covid - pacing, crashes, supplements

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Dr Jennifer Curtin from RTHM shares helpful resources for chronic fatigue syndrome and Long Covid patients
Dr Curtin had ME/CFS for nine years. She talks more about her healing journey and RTHM, the clinic she founded, in this video
ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-4bc5oYJc-Uk.html
0:00 Intro
0:34 Pacing guide
1:30 Visible app
2:12 Planning for a crash
4:15 Going to the ER
5:18 Supplements
6:15 RTHM Community
6:51 Outro
❇️ ME Action Pacing Guide www.meaction.net/wp-content/uploads/2023/02/Pacing-Guide-Clincians.FINAL2_.pdf
❇️ Visible app www.makevisible.com/download
❇️ Bateman Horne Centre’s Crash Survival Guide batemanhornecenter.org/wp-content/uploads/filebase/crash_care/Dark_Blue_Survival_Guide_Complete.pdf
❇️ Bateman Horne Centre’s Emergency Room Information for Healthcare Providers batemanhornecenter.org/wp-content/uploads/filebase/education/top_resources/ER-and-Urgent-Care-Considerations-for-MECFS-1.19.22-005.pdf
❇️ Supplements & studies
Acetyl - l - carnitine
NADH
Co Q10
Oxaloacetate
Study 1 www.ncbi.nlm.nih.gov/pmc/articles/PMC9057907/#B12
Study 2 www.ncbi.nlm.nih.gov/pmc/articles/PMC10181316/
Study 3 me-pedia.org/wiki/Dr_Lapp%27s_supplement_recommendations
❇️ RTHM Community community.rthm.com
❇️ ORGANISATIONS MENTIONED
@RTHM_Health
@MEActNet
@batemanhornecenter
❇️ CONNECT WITH DR CURTIN
RTHM: rthm.com
Join the RTHM Community community.rthm.com
RU-vid: @RTHM_Health
Instagram: rthm_health?igsh=MW02em9uNDZsZmM0dw==
❇️ LIVING WITH ME WEBSITE
livingwithmecfs.co.uk/
❇️ CFS RECOVERY PROGRAMS
Free downloadable guide to 6 of the most popular recovery programs
livingwithmecfs.co.uk/me-cfs-recovery-programs/
❇️ SHARE YOUR STORY
If you would like to make a video sharing what has helped you recover, or significantly improve, from ME/CFS or Long Covid email charlotte@livingwithmecfs.co.uk
Living With ME CFS
We share practical tips, helpful resources and recovery stories for people living with myalgic encephalomyelitis chronic fatigue syndrome and Long Covid.
Whether you identify as a spoonie, chronically ill, disabled or as having an invisible illness you are welcome in our community. Think of us as on online chronic fatigue support group.
We share alternative treatments for chronic fatigue syndrome. This includes chronic fatigue syndrome therapies which are holistic and scientific.
People talk about the CFS symptoms they experienced and the chronic fatigue treatment they tried. They share how to cure chronic fatigue syndrome naturally. Their ME CFS recovery story will inspire you with your chronic fatigue recovery journey.
We understand healing chronic fatigue is your priority. We do our best to provide tips for everyone from those living with mild chronic fatigue to those with severe ME CFS.
And let's not forget about chronic fatigue in children. Losing your childhood to this debilitating illness is one of the cruelest things that can happen. Hopefully some of the advice we share will help facilitate their recovery from chronic fatigue syndrome.
#cfs #chronicfatigue #chronicfatiguesyndrome #mecfs #myalgicencephalomyelitis #cfsrecovery #mecfsrecovery #longcovid #postcovidsyndrome #covidlonghaulers #covidlonghauler #postviralfatigue #pacing #postexertionalmalise #pem

Опубликовано:

22 май 2024

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Комментарии : 10

@Jade-bf5we 26 дней назад

Pamela Roses fatigue rescue courses was a lifesaver for me

@livingwithmecfs 25 дней назад

Pamela is great! I have heard lots of good things about her courses. She actually wrote an article about resting strategies for the Living with ME blog livingwithmecfs.co.uk/2023/06/20/resting-strategies-for-cfs/

@irenes6627 Месяц назад

Thank you ❤

@livingwithmecfs Месяц назад

You're welcome 😊

@jonathanjenkins2368 Месяц назад

Can most severe mental illnesses and severe insomnia also cause chronic fatigue syndrome? I have generalized anxiety disorder, depressive disorder, obsessive-compulsive disorder, and insomnia. All of them are very severe. I can go to sleep throughout the night and wake up not feeling well-rested. I constantly feel tired and have had a headache and brain fog for about 1-2 months. It's harder for me to complete my daily activities, read books, and so on. Right now, I am taking a new sleeping medicine called Lunesta. It isn't working at its lowest dose. It's really frustrating to deal with so many medical adjustments for my mental health and insomnia. I find reading to be one of the hardest things to do because my brain can't function properly at all.

@livingwithmecfs Месяц назад

Sorry to hear you are struggling. I will preface my advice by saying I’m not a medical professional, Dr Curtin was guesting on my channel. I have had ME/CFS for 17 years and sleep deprivation will definitely cause a deterioration of my condition. Several functional medicine practitioners I follow say sleep is one of the key things you need to fix before you can really begin to regain your health. So while insomnia may not be the sole cause of CFS it can definitely be a contributing factor

@AlitaGunm99 Месяц назад

I found Visible was way too much hassle. The wearable has to be charged every single day (!), and can't be charged while in use. They recommend charging it while you sleep. This means it can't track sleep, and in order for it to be useful you have to remember to put it on right when you wake up every single day.

@livingwithmecfs Месяц назад

I can see how that would be annoying. I have a Garmin watch which tracks HRV and sleep and that only has to be charged once every few days

@keithdagnall7686 Месяц назад

Sadly ME Clinics and GPs are still offering no real advice

@livingwithmecfs Месяц назад

Yeh mainstream medicine has a long way to go in terms of educating doctors and offering good advice to patients but there are some knowledge doctors out there, like Dr Curtin, and that gives me hope