Does Young Onset Parkinson's Disease Mean My Life is Over?  

you are so strong! im only 15 but i go through parkinson's disease too, its a nightmare for me but thank you for this comment! this motivated me to keep going and prioritise my health! ❤️‍🩹

​@@xonoraa. Hello.. Im 16 now, i havent consulted any doctors yet What i face is slight shaking in my fingers when i keep them at rest.. like you know when its cokd your fingers shiver.. Like that.. Especially when i get nervous/anxious they shiver a lot.. Should i consult a doctor? Or wait a bit more?

FMT into the Transverse colon only will cure it. Google fecal matter transplant.

See a neurologist. Don't delay.​@@adithyannair922

Medical marijuana comes in many forms and can help your symptoms greatly. Lots of studies on this for relief. 10 years ago my grandfather passed from Parkinson’s at 77 but they didn’t have that as an option yet.

Thank you for your comment, John. Every challenge you've described is, unfortunately, common in Parkinson's disease. The positive to be taken from that is you will never be alone in these experiences. Have you tried speaking to your healthcare team about treating these symptoms or speaking to others with Parkinson's? We have some other videos on our channel that you might benefit from on similar topics which I'll link here for you: bit.ly/BadPDDay_YT, bit.ly/EmotionalHealth_YT, bit.ly/SupportPD_YT

I pray for you

In the case of Parkinson's, I completely disagree with this. Dopaminergic drugs have given me about 10 years of my life back with minimal side effects. When I have off medication periods I realise what life would be like without the drugs - difficult and miserable. Sure, they may not last forever but like many people I have responded well and they have vastly improved my quality of life for many years. I totally understand the instinct not to rely on medication, but I'm glad I got over that some time ago... Jodie

Difficult to say. If he hasn't done so already, he should try to see a neurologist rather than a general practitioner.

Thanks for your comment! A head tremor is not a typical symptom of Parkinson's, although definitely not unheard of. You may find this research paper useful which describes five cases where head tremor appears to be present in Parkinson's ➡ bit.ly/HeadTremorPD

Yes, I used to care for an older woman & her head rolled constantly. Sometimes her neck would end up hurting.

You're absolutely right. Everyone's experience is completely unique and is affected by a huge number of factors.

@@LivedHealthParks thanks. It would be nice to see a version of this made by people who have pd that is progressing quickly. How do they feel and what are they still optimistic about? All the late-stage videos ive seen online are almost uniformly about sad and defeated people who cant be told their lives arent over, and they never say their disease doesnt define them. It is easy to have a good mindset when youre not that sick and dont need 24 hr care.

Thank you so much! Yes that's a fantastic idea, since your last comment we've actually planned to do some more content with members of the community who are in the later stages of PD. It will be really interesting to see what they have to say. Thanks again for reaching out! It's very much appreciated.

@@LivedHealthParks thanks for replying, i wasnt sure whether my previous reply had been too pushy. If possible, please include young onset pd with fast progression and/or are in late stage.

@@antondelacruz9362 Absolutely no problem. We're hopefully doing a filming day with some members of a young onset pd group in November where I think we'll be able to make this happen. We will, at the very least, try. In the mean time if there is anything at all you'd like to see, do drop it in the comments of our vids. We're sometimes a little slow to reply but generally we'll always get back to it :) Thanks again