Sarah Fischer lives with an incurable genetic defect called FOP. Her body replaces injured muscles with bone rather than tissue. Bruises or injections at the dentist trigger ossifications and cause those affected to stiffen over the course of their lives. What is it like to live with this rare disease? What can be done about it? How far has medical research progressed with the development of a drug? And what would Sarah Fischer wish for if she had one wish?
29 фев 2024
