Why am I not surprised that being a neurologist with neurologist colleagues that they still dismissed you and didn’t even check. Sad world. People like us suffer and suffer even with an mri and 45 doctors in. I’m personally stuck in Canada with 0 doctors who understand this at all!
I’ve recently been diagnosed with CCI, Neuro Myelitis Optica, Lyme Disease, and a few other co-infections. Been in the hospital for two months and my doctors here in Jacksonville don’t acknowledge what you are speaking of…and I can’t move my neck or spine, though they want me to do physical therapy in-spite of it making me worse. I pray I can get moved to a specialty location before it gets worse. I’m suffocating and having atrophy all over. Intense IH and so much more.
Any recommendations for who to see in Colorado? Bedridden 3 years now after my car trunk came down on my head. Nothing had been seen in my imaging. Living in agony.
I know a MD who is alternative,out of MD-hospital--medicare/gov systems. He believes ME/CFS is caused/likely caused by vaccines ; looks for ways to treat the additional additive problems, eg mold so as to treat
