Dr. Amy Proal, PolyBio Research Foundation, Medford, USA. Recorded at the Swedish ME Association (RME) 2023 conference at the Stockholm County Council.
Absolutely appalling that only a handful of people have seen or watched this hugely interesting and important update. Thank you so much for presenting it in a way that a layman can just about keep up. Me, I'm a long hauler and can identify with so much that you talk about. I find Herpes flareups , erratic heart rythm, fatigue, erratic blood pressure, muscle akes etc, and all these can come and go in terms of severity singly and in combination..
Thank you so much for publishing the research information. My ME/CFS symptom path started after contracting Viral Meningitis in 2009. In hindsight, it was mild/moderate over the years. In 2017 I ended up with Systemic Envenomation caused by a Redback (Black Widow Spider) bight and was severely ill for 6 weeks. This caused severe ME/CFS symptoms. Following the Covid Vaccine in 2021 I relapsed. In 2022 I was finally diagnosed with ME/CFS, PEM, and POTS. This year I ended up with a relapse caused by Covid and thought I wouldn't make it. All in all,I have been bed & house-bound for most of the time since 2017. The new research gives hope that a cure can be found for this horrible disease.
I understand this is far fetched, but "IF" the GI tract pans out to be a prime reservoir and "IF" a reliable method is developed to localize the reservoir, perhaps gastrectomy, segmental colectomy or small bowel resection could prove to alleviate the horrendous symptoms.
