Dr Ian Kamaly-Asl - Risk with Activities for Patients with Cavernous Malformations 

The Implications of Screening for Cavernous Malformations and Risk with Activities for Patients with Cavernous Malformations with Doctor Ian Kamaly-Asl, Professor of Paediatric NeurosurgeryRoyal Manchester Children’s Hospital.
Mr Kamaly discusses what options there are for screening of both patients with known cavernous malformations and family members who may possibly be affected. He then went on to give a very useful discussion on participation in sport and other activities for patients with known cavernous malformations.
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people - enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
For more information about Cavernoma Alliance UK, please visit cavernoma.org.uk/
This is a recording of one of our webinars given by our members, guests and medical experts throughout 2021.