DYSTONIA: 7 Years until full DIAGNOSIS! 

💡Play back speed ⚙️1.25 because of my slow speech due to health. How was your experience getting a (hard) diagnosis, as this can happen to other conditions, how did you get your diagnosis? I was on both keppra and clonazapam at first not only clonazapam.*

my story is similar. i have generalized dystonia which came on quite rapidly and I've been dealing w/ it for 4 years. I have a condition called Ehlers Danlos Syndrome. My neurologist believes this condition has messed up my proprioception which causes dystonia. We're managing it w/ daily dose of klonopin and a muscle relaxer if I have a bad attack. It's a difficult journey. I was told it was psychiatric at the early stages too, but they now see it is Dystonia. I'm sorry your going through so much, hang in there. I do have good days and bad days. I hope you start having more good ones.

في صباح اليوم الجمعة أخذتني خوارزميات اليوتيوب لقناتك ولعلها كانت منحة لي لأتشرف بكتابة هذه الكلمات وادعو الله العلي القدير أن يلبسك ثوب الصحة والعافية ويمد في عمرك وأنتي في تمام السعادة والحياة الطيبة، أختي العزيزة الدقائق التي قضيتها في قناتك ألهمتني فأتمنى لك الاستمرار. تقبلي تحياتي.

My goodness this is ALOT to deal with for so many years I really hope you will soon see some improvements 💜

Thanks for sharing your experience 💖 it's such a life changing diagnosis I really hope you will get better with the new treatment 🙌🏼🙌🏼🙌🏼🙌🏼

That's absolutely nuts 🫥🫥🫥🫥🫥🫥🫥🫥

I'm very sorry it was so hard to get the Diagnosis 😩 😮 it's shameful 😖😖😖

I hoped it'd get better 😢 still hoping 🙏🏼🙏🏼

Goodness me 😮 that's awful I'm sorry hope you are doing better ❤

That's nuts 😯😯😯😯😯😯😯😯

شو هالجنان كتير هيك