Elaine Biles on caring for her husband with FTD

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Our journey so far, (7 plus Years and counting )
Elaine Biles shares how life has changed for her and her husband since his diagnosis of fronto-temporal dementia (FTD), her wait for diagnosis and how they are facing their challenges.
Filmed by Educational Media Services, University of Oxford at the Alzheimer's Research UK Oxford Network Dementia Information Day 2017 at the John Radcliffe Hospital.

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23 апр 2017

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Комментарии : 17

@carolpoole7277 4 года назад

What a sweet lady and courageous lady. My husband has FTD, your story is my story. I am a woman of Faith and my glass is always 1/2 full, but I am struggling . My husband is not as far along as Steve, but close. Some days are better than others but they are coming fewer and far between. I so admire you sweet lady, prayers for strength 🙏❤️🙏

@dogdonut3 3 года назад

Prayers and love for you.

@gwynethgrove772 6 лет назад

A great record of the decline with FTD. This poor lady needs a break and have better health herself. I hope she continues to get the help she needs.

@nancyschaefer9748 2 года назад

Just starting down this path with my 86 year old husband and learning so much.

@carersoxfordshire2897 5 лет назад

What a wonderful lady I spoke to her today her talks help people understand about FTD and importantly what caring for someone with FTD is like - I take my hat off to her. brilliant

@michellesammut4309 4 года назад

My mum has FTD my heart goes out to you as your story parallels mine it's so hard it takes alot from you and more

@weepingwillows21 5 лет назад

This poor lady has been through so much. She's breathing like my Gram does when she needs her inhaler, I hope she's taking care of herself

@ronniedianefowler7648 Год назад

I understand because we have also been there. God bless you!

@SophieBird07 2 года назад

Oh yes. I remember eventually keeping the car keys in my purse under my bed, after many situations, not the least of which when he flew across the country and got married for a week; the police called saying his wife was looking for him! But he could always answer to the day of the week, his age, etc (I’m not sure I could at that point), so no one thought he had a problem.

@ladylilo6044 4 года назад

Thank you Elaine, by far the best video on FTD...my mum was recently diagnosed with Dementia, we are now going through all tests to determine which type...my mother seems to have a little bit of symptoms, from each type!☹️

@amylaird6181 4 года назад

What a beautiful soul you have.

@aquiem5339 4 года назад

Thanks for sharing.

@paulwarren796 Год назад

I REALLY WANT ELLIE-ELIN JOHANSSON-ALSO . SHE IS SUCH A HAPPY LITTLE BEAUTY AT TIMES.....

@lindauribe6872 5 лет назад

I do not know how you get through this . My husband had Lewy Body dementia but because of so many health problems he stopped walking and I had control of money. He passed away in December.

@dogdonut3 3 года назад

I'm so sorry.