Jeremy I have two children in their 50s and two children in their 40s …I’m pushing 80, going on 25…I feel like I’m 20 something in my mind while my Parkinson’s makes me feel 115 years old when I’m OFF and not ON.
Im 57, just diagnosed inlate July, as stated in my comment on your other video. One of my biggest disappointments with this disease, so far, is having to give up riding my motorcycle. I’ve been riding since I was 18 and loved to travel via motorcycle. Last trip from here in Texas was through TN, KY, OH, WV etc. I’ve lost a lot of coordination, have depth perception problems, balance issues etc. Basically all the senses you need to safely ride, as you know. Bike is still in the garage but Im starting to accept those days are over. I have great memories covering 35+ states, over my 10( over the years) different bikes I’ve owned. Thanks again for your channel
You have a youthful outlook and the wisdom of a seasoned veteran, Jeremy. That is why you have a strong following. That injury concern scares me from physical activity.
Parkinson's is like the Autobahn to old age....no fun. And you are smart and so right to be careful about risky activities when getting hurt could cost you the ability to exercise. This is the best part of old age, the wisdom that comes with it 🥰
J...I am 63 going on 102! It's been 5 years since I entered the wonderful world of PD. I also have given up playing bass, sold my bike and pretty much thrown in the towel. When I play my bass it feels like it weighs 120 pounds. My main issue is balance. 5 years ago when I would fall I would land gracefully like a cat. Now when I fall I land like a ton of bricks! I have to watch every step I take like the next fall might be the last. I watch your RU-vid channel all of the time. It takes me a long time to type a message. I too miss blockbuster. I have all the classic PD fun and waking up SUCKS! Keep up the good work your stuff is entertaining and informative. Let's me know that I am not alone. Peace and love from the home of Harley Davidson ,where we put them together 😊 York Pa.
Kyle, it’s always incredible to hear that someone enjoys what I do! Just know that there are many other people just like you who struggle endlessly with the same issues. I look back at pictures and videos of my old self and feel a sense of loss and can be overwhelmed by grief at all that I have lost. My only advice is find something that you love that Parkinson’s can’t take away. I love movies and find myself forgetting, even if for just an hour or two at a time, that I have this awful disease. Stay in touch, bro!
This is a beautiful community of supportive people! The difficulties with PD you all describe here, has me in awe of human strength! Your strength! I am here because my dearest life friend has recently been diagnosed, and I want to understand better so I can be supportive . I am 61, she is 65. I thought she was going through a psychological problem through the loss of her mother, but then, the diagnosis came. I was so shocked, and could only try to imagine it was happening in my body. I have always admired her for so many ways of being, but to witness her strength now … I have no words, just amazing! Thank you for this very helpful community! ❤ Sending love
Yep! I can relate to this. I like to joke that the only thing that has improved with me getting older is that my sense of humour is improving! So laugh lots. Smile if you can. Share jokes and never lose your sense humour. And by the way, your wife was right about the glasses! Cheers.
Hi Jeremy, I've concluded that our bodies age, but our personalities age very little. We get older and wiser, but the desire to have fun never disappears, which to me, is a good thing.
Never been a runner. I have been stiff since I was about 12. My parents reminded me of my lack of agility all their lives. I started to feel physically old in my 40s. I have sons, ages 40 and 44. I will be 69 in a couple of weeks. My mind thinks I’m 49 and my body says I’m over 80. I’m having a more difficult time wrapping my mind around my age than having Parkinson’s.
Hi J, I am 69 next month. I have been saying “I’m not 25 anymore for north of 20 years more than you….you young whippersnapper…BUT, I have a bucket list, written down and sitting on the coffee table in front of us whenever we are watching BBC murder mysteries.AND the list is getting longer. Anywho, the one thing that I can’t do anymore, no how, no way, is climb ladders or anything that has me looking up while attempting to maintain balance. This seemed to be enough to not be invited along on a ride that was kinda a large thing. The Continental Divide ride from Montana to New Mexico. In all reality, it probably was never going to happen, but my 37 year old son decided it prolly wasn’t a safe thing for me to do, and another word was never said, even though I hinted that even driving the support vehicle with the trailer was ok. Any way, they are on the ride now, and I am ok with not being there (even though my 18 year old brain inside my 69 year old head was saying “put me in coach”) And about the runners, I’ve seen too many of them not able to walk or dropping dead before they get to a ripe age. No judgement, that’s just why I don’t run. I guess now it’s “ I can’t run”….i fall down, go boom! Keep on trucking’ brother! Mike from Texas
That’s a bummer to have sit out such an adventure, but it was the smart move. I have had to come to terms with my limitations lately and it’s not easy. Thx, Mike!
I was diagnosed right at a year ago and I can really feel it in my legs too. Feel like my balance has gotten a bit worse but I try to focus on it as much as I can. I try to stay active but it is a challenge for sure.
Hey man, I’m 67 and have a lot of the same interests, especially guitars and motorcycles. Luckily I can still do both but have noticed some changes the past couple of years. I just chalked it up to getting older but now after learning so much more about PD and talking to my doctor i am on that long road of finding a diagnosis. Still 4 more months before I can get in to see a neurologist. Don’t let age scare you though, remember - don’t regret growing older, it’s a privilege denied to many.
My father used to say “ it’s better than the alternative “ , putting things in perspective helps , but it’s also good to be understanding with yourself that the fear of growing old is understandable, especially with PD ❤ (you know this already, I’m just sending support).
I used to be a fully active human. I rode bicycles and motorcycles. Rollerbladed with my kids and coached my son in hockey. Was a scout leader and soccer referee. That was in my off time. For work I was a technician in the telephone industry. Yes, including climbing telephone poles and repairing cable. Overtime I slowed down at work. During the last approximately fifteen years my Dr. asked if I was retired yet. Not yet, I needed six years to retire. I was having symptoms like insomnia, neuropathy, aches and pains slowness of walk. Some of you know those symptoms of Parkinson‘s. I finally retired eight years later I got my official diagnosis of PD. I firmly believe that all the serious work and play i did delayed my diagnosis. Stay active and live for today and do the best with it.
I've always hated running! lol Being forced to do it in the military made it even worse. ha! I get frustrated that I don't have the same motivation to workout like I did when I was younger. I think because more pain is involved now, especially with weightlifting. BTW, you still look like a young whipper snapper! ;-)
Jeremy. Love listening to you. I was diagnosed at 51 but after hearing about all the early symptoms went back to 40. I’m 66 now & it’s starting to get very real! Keep fightin the fight and spreading the word. You are authentic & genuine & make a difference in this world for so many who come across you ! 💪😊
You are so true. I’m 60 and a case of water is now much heavier. I was the best runner in my Army unit. Ran a mile fast in 5:15. Loved running. Can’t do that no more. I want to be young again and go to Las Vegas and ride the ZIP LINE above Fremont street. Never hurts to DREAM
J I love that you discuss this. Obviously we have skated together many times and went on many skate trips. I’ll be 45 this year and haven’t skated in over a year. I have a brand new joint set up but at this age Parkinson’s or not you’ve got to train hard to skate good. I’m stil trying to figure out if I want to again. I took a fall one night skating flat and wasn’t sure if I could get up. Phones in the car and I’m like a 100 yards from it in a secluded area which was really fucking kinda scary. I really love what your doing the podcast is great! Tell your wife I said hi and I hope your son’s doing great! Catch you in the next one!
Yes, Wesbob, we did indeed have some great times skating! I think of what might have happened if one of cracked our skull open on one of night skates in NoCo. We were crazy 🤪!
