To Whom It May Concern: Your video has provided me necessary context to support my husband who suffered a massive stroke in March 2022. His recovery was going remarkably well. Then, I and other family members would notice the jerking spasms (myoclonic), additionally, he seemed to 'space out,' in the middle of conversations and literally stare into the air without responding to his name being called or even being touched lightly (absence). Finally, at night he would have some light jerking (partial) that would transition into more violent convulsions (secondary general seizure). My husband states that he can't feel himself having any of these episodes; yet, there are times when he holds his hand or arm during the course of a myoclonic jerking/partial seizure. He says he can't recall ever having an episode (postical confusion?). His long-term monitoring study is coming up the week of Thanksgiving. This video has definitely afforded me quite the picture (literally) of what we may be up against. Thank you for your work in educating others on epilepsy and seizure disorder.
How is he doing now! My boyfriend is having similar issues! He zoned out and stares and starts kicking (4 or 5 sec) and then when he returns to his senses he says he doesn't remember anything! I am just concerned.
As a 4th year medical student I learned alottt from your comment even more than what my teacher explained in the class 🤦♂️😅😅 thnx 😇 hope your husband is all ok and get recovered soon✅♥️
I have absent seizures. However, I am awake and alert. There is always something on your mind whether it be words, music, things, etc. But when I have a seizure, there's nothing. No words. No music, things, sounds, or colors. nothing. I am still conscious, meaning I can see and hear things and I understand I'm having a seizure. I just can't say more than 1 or 2 words. It can last between 5 - 25 seconds. The really weird part is that my EEG didn't show anything. My doctor gave me seizure meds just in case and now I don't get seizures as often. It happens when I'm under a lot of stress but I'm normally a pretty chill person. There is a great video called "Absence seizure caught on camera" by MyEpilepsyStory Brogan. It is legit EXACTLY what I go through. It's the video that made me realize I get seizures. I always thought it was a memory problem. Edit: There was only 1 time that really scared me and I finally went to the doctor. I was driving home from college and there was a car a safe distance in front of me. I was just driving along when suddenly I had a seizure and I wasn't conscious. When I came to (maybe 5 seconds later?), I was really close to the car in front of me and I was about to drive off the road. That's when I realized I needed to see a doctor.
same here?? did an EEG back when I first had it and it showed nothing. had a seizure again recently so I had my EEG done today, let's see what the doc says but I'm not very optimistic + apparently u have to get it done really quickly so did u do that? I have the generalized tonic clonic seizure I think.
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Do you really need help to cure out your epilepsy, I can recommend you to a very powerful and spiritual man who can help you out with all kind of sickness ...especially epilepsy..
Do you really need help to cure out your epilepsy, I can recommend you to a very powerful and spiritual man who can help you out with all kind of sickness ...especially epilepsy..
Hello your videos are always very helpful. I'd just like to update, focal seizures are now subclassified based on effect of seizure on awareness. It's either "focal seizure with intact awareness" or "focal seizure with impaired awareness".
never You should’ve saw my face when I found out that my “daydreaming” is absence seizures. I’ve been like that since I could remember!!! The doctors were shocked no one ever realized.
Just got diagnosed with Epilepsy a few days ago, and i'm 20. Sucks because now my life at university might be put on hold as the medication i will be taking might lead to side effects.
Don't get surgery. Medication may not always work, but for me, it at least suppresses the severity and amount of occurrences. Try out some medications, and if they don't completely work just look out for improvements in severity. Unless you have a seizure where you almost die, don't bother with surgery.
This has been very helpful. I've had 2 grand mal seizures in the last 5 months. My poor tongue is so scared 😔 Anyway I'm finally getting an eeg in the next few days. Aeeg 72 hours . I'm not going to lie, kinda scared.
Do you really need help to cure out your epilepsy, I can recommend you to a very powerful and spiritual man who can help you out with all kind of sickness ...especially epilepsy..
Extremely interesting, as I suffer both kinds of epilepsy falling and losing consciousness and absences too, am now 52 years old, my mother said I have the seizures due to a forceps delivery at birth, but unfortunately this is not definite, they started when I was 6 years old, but little was know then as now, I had a number of eegs’ at that time, and have taken numerous medications over the years too, would to see more of your videos great stuff 👍🥇
I think I had seizure today. I haven’t had anything like this before. I was in online class when I started to zone out(or so I thought) and then I blacked out. I woke up because I thought my upper body was jerking but when I fully came back to my senses it had stopped. My head was light after this and didn’t know how much time had passed. I thought I would pass out again. I was very confused and frightened because I couldn’t remember passing out or at least feeling like passing out. Last thing I remember was spacing out. I still don’t know if it was seizure or I just spaced out( it’s what my parents said when I told them what had happened).
Every individual is entitled to one seizure in a lifetime so mostly it is observed and drugs are administered if it reoccurs. You can however check it in with your doctor to be on the safe side because one thing about absence seizures (“zoning out” seizures) is that, the individual is mostly unaware of the incident. They’re often informed by observers. It’d be best to consult your physician 😊
Thank you for such a detailed video. Now i understand more abt why n how i m experiencing wht i m experiencing. Its so much helpful to know cause, symptoms and everything related.
Do you really need help to cure out your epilepsy, I can recommend you to a very powerful and spiritual man who can help you out with all kind of sickness ...especially epilepsy..
Dr Ross Hauser has good results from fixing the neck curve. Watch his videos on a few patients that have great results. Now with cell phone use getting much more prevalent in neck pain it’s worth looking into certainly.
I was seizure free till, 56 years, then had a severe generalised. Hospital, coma and meds followed. Now for 10 years I have occasional simple partials every week or so. I also have complex partials, and have noticed they follow the lunar cycle, often happening 2 days after a full moon. I’ve kept a diary for 9 years and there is a very strong correlation. Question - has anybody else seen similar patterns?
Please don't get panic over this...u all can recover and even cure if u have a belief in whatever medicine u are taking... Just take good diet be stress free and take good sleep.. U all can be seizure free
I firmly believe this I was able to be 2 yrs seizure free with stress free,good sleep and a well diet up until I had a car accident recently I was slammed into a light pole and two weeks later it caused me a seizure due too emotional and physical stress/trauma, stress and anxiety can be hard to deal with if we are prone to seizures
I haven’t been seizure free in over 10 years and end up in the ER 1-2 times a month. Tried brain surgery and medication. It’s not the belief that cures it. There isn’t a known cure only a way to manage it.
@@BrendaLopez-sc4zx Im still hoping to be healed by my seizure disorder since I was 21 years old. Experienced something that leads me into seizure disorder. I don't know what to do if ever nd its 1 of my wishes to be granted by GOD
I was diagnosed with epilepsy when I was 16. I had my first seizure the summer before my 17th birthday. I've only had a handful of tonic-clonic seizures. Mine are usually absence or myoclonic. I can't tell you how many times I've fallen and/or dropped stuff. Food was wasted, plates and cups were broken. Even broke a couple Brita pitchers. My knees are in bad shape. I'm a mess.
I was diagnosed with a seizure disorder at 2, told I would grow out of it by 10. However that changed when I was 11 and spent 2 weeks in KU med. center for more studying because nothing was working. I have had tonic-clonic seizures as well as absence seizures most of my life, though I have been dealing with myoclonic for at least 10 years now, I always felt like it was caused by my epilepsy but my neurologist always brushed it off as just regular muscle spasms so I haven't thought much on it since. However I noticed the muscle twitches were getting worse and decided to do some of my own research and came across your video. I just want to thank you so much for helping me feel less crazy! As well as getting this information out there, seizures can be deadly if not properly monitored and so many people don't have a clue how to handle a person having a seizure, could you make a video on that? I would love to be able to show my co-workers and my bosses they have been asking me for information on how to help and seeing as I'll be the one having the seizure I don't really know how to explain to them what to do.
@@glitzyx4x852 I call bullshit on that since I also have both Tonic-Clonic seizures as well as absence seizures. Absence seizures merely feel like you are about to pass out, but you retain consciousness. When they happen to me my vision usually disappears and my head starts to feel "floaty". Whenever I stare off in space, deep in thought, everyone around me is asking "are you having a seizure?" Tonic-Clonic seizures are when I go completely limp and fall. I had a bump on my head for a month after falling backwards and hitting my head on the corner of the armrest of the couch. Didn't feel a thing during the seizure. I occasionally have those every once in awhile, but they don't go to that extent anymore because my medicine suppresses it, though my medication doesn't stop me from having seizures completely. So yes, you can have both. Not much more I can say.
A very informative video, very many thanks. I have experienced all types of seizures during my life, depending on what’s going on, stressed, worry etc. However, I just wish someone could explain why I also suddenly have seizures whereby I’m completely conscious, but experience an awful burning, either in my head or stochastic or chest? When it’s over I just can’t stop crying, sometimes for an hour or more. Any help would be gratefully appreciated
My mom says I used to have epilepsy and constant seizures until i was 4. I think it became milder since then but I do remember still having seizures until I was 9. But since that, I have been perfectly healthy and most of my symptoms just disappeared. I went into an MRI a few years ago and the doc said my epilepsy was gone. I still wonder why and how it disappeared out of nowhere.
A friend of mine had a stroke last weekend during a game of Evolution, which is a board game with cards. The interesting thing is, he's only ever had 3 seizures in his life, 2 of which now happened while we were playing Evolution, which we do not play very often. My best guess is the first occurrence was random, and the second was somehow triggered by the memory of the first. However, the alternative would be that there is something inherently seizure inducing about the game. I'd love to hear some more informed opinions on which of these is more likely, and what could potentially be seizure inducing about a card game like that. We have banned him from playing the game, because we believe this can't be a coincidence, and even if it was, we shouldn't risk it regardless.
How epilepsy related with sleeping time table and environmental changes because I have this kind of disorder mostly common replied me for information thanks
@@ytggv316 I heard the word seizure for the first time on knowing that was his death cause.which shook me and made me enthusiastic to know in detail of what took him too soon.
Can I ask something?my daughter's diagnosed epilepsy..before seizures she knows how to talk but now almost 2 months she couldn't speak..before she knows mama and papa kuya ate..the Pediatric Neurologist requires MRI with contrast the result is normal..my daughter is 2yrs old and during seizures her hands is jerking ang legs
I've come out of a left template lobe surgery in February last year, I had 33-35 a day, after the epilepsy surgery I am still having them up to 9-12 a day, although some days I have none.. I take 4000 epilem, and 1000 lamotrogen per day. Puss some others, I really want to try to off them but not sure, some say different to others. I've had the whole kit and caboodle in this so nothing I haven't tried or done.. I'm 33 and can have no kids as these tablets cause higher risk to myself and child when born, I've been told what the child could get as not many are 100%
Oh wow I'm almost 33, and when I was 14 right before I started HS, that summer I started to have grand mal seizures. They found it was coming also from my left temporal lobe. They tried different meds for 2 years 1st, and even raised it up to having me on 3 different ones at once. I was taking them them 2 times a day on the highest dosages, and every night about an hour after for about 6 months at 1 time I would get double vision, feel dizzy and vomit. Eventually I myself had brain surgery in that area. After surgery when I came to, I remember the surgen and neurologist said I may have more seizures for a while. But that was because my brain was healing due to the trauma it went through. That surgery was almost 17 years ago. In the end for me it "sort of" helped, but did not do as much as what we hoped. It came with both good and bad things. It did let me lower my dose of meds I was taking, but I'm currently actually on 4 different types of seizures meds now, but they aren't as high a dose. 1 is actually lamotragine which I take 150mg twice a day. And now I don't have grand mal seizures regularly. I only have them if I go without rest for a long time or ware myself out. Or if I spend time out on a very hot day in summer that's in the high 80s or warmer, or if I physically do to much work or exercise and get extremely hot and tired. However I still do get other kinds of seizures multiple times a week fairly frequently, they are the simple partial seizures. Sometimes I may just stair out for 10 or 15 seconds and no one may notice. Other times it may get worse and I may start to salivate at the mouth but try to keep it in, although sometimes I can't. And rarely I may start to get a bit of a shaking right arm, but usually settles down. Afterwards from the worst ones it may take me a few minutes to be able to respond or be able to read a sentence. After a simple kind of staring out for just a few seconds I can respond perfectly fine. Since the surgery happened during my HS years I had to miss a year and it actually caused some problems. But if I had a choice I think I would do it again. I really wish you the best of luck! It must be a lot tuffer for you having so many more seizures. I know this is a late reply, but I hope things improved!
I think I've had multiple seizures this year and in the past, so I went to the doctor after one. He gave me a referral to see a neurologist, but the earliest appointment available was three months out. So now I'm stressing because I don't know if something is wrong or not and I have to wait 3 months to find out.
Your seizures were 2 years apart, so you have a good prognosis but statistically each seizure increases the chance of having another one. However you’re on medication, so it should be fine. Don’t stop the medication without consulting your physician.
I originally was having tonic clonic seizures then after a few years on seizure medication they changed to partial seizures. If I have to choose one or the other I would rather have the tonic clonic where I lose Consciousness I hate being awake and alert during the seizure that's the worst thing ever.
I have both Tonic-Clonic and Absence seizures. I absolutely hate the absence seizures. My head hurts like hell throughout the whole thing and afterwords. At least with a Tonic-Clonic seizure you don't have to feel the pain the whole way through. A small headache afterwards is far better than being aware, but sometimes losing my vision.
@@whydoyoucare8168 well I will have what feels like a clonic tonic seizure where I will stiffen up and start shaking but I keep Consciousness I even feel myself gasping for air and choking. I've even lost control of my bowels while having a seizure and I even felt that happening but there was no way to stop it
