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Esperanza's Cavernous Malformation Story 

Alliance to Cure Cavernous Malformation
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12 сен 2024

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Комментарии : 3   
@SunsetDreamms
@SunsetDreamms 8 месяцев назад
You are not alone. You are amazing and so brave. I too had a stroke and left with symptoms. Unfortunately I couldn't get the surgery. I'm in NYC. Thank you for sharing your story. I wan to help bring awareness to this, I just dont know where to begin.
@hannatodoer9707
@hannatodoer9707 8 месяцев назад
You are so brave to put your story out there only a year after your surgery. I had mine in 2002 when I was eight, and I didn't want anything to remind me. I just wanted a normal life. I first joined the Alliance because something big happened in 2021, and I now wanted to help people with CM. I am so proud of you for taking that step in the right direction!
@kellyburton3839
@kellyburton3839 8 месяцев назад
Thank you for sharing your story. In Australia there are no “centres of excellence”, the alliance is the main source of support for me. Showing my family other people and their stories helps.