Great info & presentation. About a year ago I went to sleep one nite with my normal 75 yr old hearing & mild bilateral tinnitus. But I woke up the next day with a unilateral loss of hearing in my left ear at the frequency of a digital watch beep, with a substantial increase in the volume of my left ear tinnitus & feeling of unreleased pressure, again in my left ear. Whereas, my right ear hearing felt the same as when I went to sleep. I sleep mainly on my right side. The pressure in my right ear can be equalized by yawning, chewing gum, blowing my nose, etc. My right ear eustachian tube seems to function fine. Yet, my left ear is unaffected & it still feels as if there is a pressure build-up, even a clogged-with-cotton kind of feeling. As if my left ear eustachian tube were plugged. Here's a little back story: I suffered from sinusitis/ear infections well into my early 30's. I developed BPV (Benign Positional Vertigo) which has stayed with me. My hearing has always been great. A visit to the audiologist, a stent with a PT (Physical Therapist) to determine if I had loose crystals & a follow-up with an ENT showed I had a loss of hearing in the frequency range of a digital watch beep along with BPV, & a suspected nerve issue where the ear channels info to the brain. No scope exam was performed. Hearing aids were prescribed by the ENT...End of story (ummm, not quite since I found this RU-vid video) I have renewed hope to regain at least some of my left ear hearing. But I also am resigned to the fact I will probably need a hearing aid. So a 2nd opinion is in the works & I will ask for the scope test, mention what was presented in this video & take it from there. If the commenters here feel an update is warranted, I'll be back with an update...
This is an excellent, informative video, that helped me know what step to take next, medically. Thanks for making it. We are living in a new age medically, where you can be informed on your symptoms, online, by no less than John’s Hopkins and then visit a specialist knowing what to ask and what to watch out for. Again, thank you.
I healed my ETD. here is how. first of all. your body can heal anything. just have faith. secondly. most health issues is caused by food, our dietary and lifestyle choices. my opinion for this issue is mucus and infections and solution is DETOX and mucus free diet. it's been 5 years since I became vegetarian and right after vegan, then raw vegan and fruitarian. I am healed now. 80% of my diet is fruit, the rest veggies or cooked foods if I don't have ripe fruit. Only healthy diet and a KEY for properly functioning body is Whole food plant based diet. (no oils like olive or coco and as much fruit as possible) So get a juicer and juice the f*ck up. and FYI don't be afraid of fruit sugar. sugar in its natural form as fruit is healthy in any amount. on the other hand processed sugar is different... so it took me few years to heal my ETD but if I did some extreme fasting protocol right away, it would take few months in my opinion. btw I don't reckon long water fast. only juice fast or 100% fruit diet. Fruit heals, fruit is nature's gift which have cellular-repairing properties that heals damaged DNA.
Hello, can a blocked eustachian tube cause dizziness ? It is my main symptom . When i try valsalva maneuver, my right ear didn’t pop? I wanna ask , when my ear will be open the symptoms like dizziness and pressure will be gone ?
I was told ssnhl....then possibly Menierès, but now I think eustation tube since my hearing is perfect while in a pressurized tank doing hyperbaric oxygen treatments.
I have the "open" variety. It's happened a few times in the past year, lasting for hours each time and nothing I can do helps. It seems to have to resolve on its own. Meanwhile, I'm pretty much unable to speak. The sound of my voice is so loud it's literally deafening, even if I speak softly. It starts when I yawn and speak at the same time, as I sometimes do when I'm at the computer writing something. The eustachian tube opens and remains open.
Hi, if you would like a second opinion at Johns Hopkins Medicine please call 855-695-4872. Please note, many of our offices are reaching out to patients to reschedule appointments as video visits; this will depend on visit type and currently, these are only available for existing patients. Please call the above number to learn more about what options may be available for your specific situation. You can see more on our patient and visitor guidelines at www.hopkinsmedicine.org/coronavirus/index.html#patient-visitor-alerts
My doc or even specialist couldn't diagnose what is probably my PET i hear my breathing loud sometimes my heart and more. Just have to live with it then I guess
You should get checked for pulsatile tinnitus and Patulous eustation tube disorder. If you hear your heartbeat/blood pumping that can be alerting you to a serious issue. (Not necessarily, but it could be a warning sign)
I also have PET to the extreme and have had it now for at least 25+ years. I'm 42 and remember being in elementary/middle school when I'd lose all pressure in my left ear to the extent that not only could I hear my own voice, breathing, heart beat, etc. unbearably loud, but also any other slight noise in the room becoming so loud and garbled that I couldn't understand or distinguish the difference between someone talking from the air conditioner fan running. Every noise or voice that is heard when my ear is depressurized sounds like someone removed the lows and mids from the sound, I'd guess from it that anything below 7k hertz is unheard when it happens. If you want to get a rough idea what it sounds like, get a decent set of headphones, adjust your equalizer by turning the volume and your highs(treble), 7k Hz or higher, all the way up and everything else down fully. I've discovered a temporary relief by either breathing in really hard with my nose only, which is extremely embarrassing, loud, inconvenient, and disgusting to anyone around, or, pinching my nose shut with my fingers and sucking in until I got as much pressure as possible back in my ear. It started out manageable, only occurring roughly 9-10 times a day, however, it has gotten exponentially worse to now occurring every time I swallow anything. For me personally, I swallow saliva at a rate of 2-4 times a minute so that's 2-4 times every minute that my ear depressurizes. Initially, other than the auditory inconveniences and embarrassment of adjusting pressure, I didn't pay much attention to it or think that it was abnormal because everyone experiences ear pressure changes at some point. Within the past 5 or so years I've begun experiencing unexplainable pain in my ear canal about 10% of the time in addition to everything else mentioned. I also experience extremely loud whistling/crackling about 50% of the time as I feel the pressure dropping. On many occasions, the whistling/crackling was bad enough to trigger mild to severe headaches and dizziness. I've seen 3 doctors so far and heard it's a sinus infection, it's normal pressure changes my ears are just sensitive, or that there is nothing wrong it's all in my head. After thorough research I've determined my best course of action is find an ENT that is aware of PET diagnosis because most of them know little to nothing about it at all. I'm very sympathetic to anyone with this condition and I totally understand your pain, agony, frustration, and overall feeling of hopelessness. I know dealing with PET can and will most definitely drive anyone completely batshit crazy, eventually leading to irrational thoughts and/or behavior for a brief moment of relief. I've honestly had thoughts of bashing my head off a wall or desk and knocking myself out to have a break from pain and discomfort more times than I can count! I'd never injure myself of course, but, the symptoms are beyond ignoring any longer. I'd greatly appreciate any recommendations that have provided any kind of relief for someone, even if only temporary relief given the frequency and severity of my symptoms. The only relief I've found that works 75%+ for me is to completely seal my ear canal with my pointer finger, it has to be 100% air tight, before, during, and immediately after swallowing keeps at least half of the existing pressure in my ear instead of feeling fully open right away. Also, if there is anyone who lives in or around south central Pennsylvania (Pittsburgh, Johnstown, Altoona, Somerset, State College areas) or around the Cumberland, Maryland (Frostburg, La Vale, Cresaptown, Rocky Gap areas) who has an ENT that is familiar with PET, please pass along their contact information. I'd love to get this all to finally stop, or at the very least, reduce my symptoms to a tolerable level before I completely lose my mind, sanity, and reasoning to not act on my self injurious thoughts!
I also have PET to the extreme and have had it now for at least 25+ years. I'm 42 and remember being in elementary/middle school when I'd lose all pressure in my left ear to the extent that not only could I hear my own voice, breathing, heart beat, etc. unbearably loud, but also any other slight noise in the room becoming so loud and garbled that I couldn't understand or distinguish the difference between someone talking from the air conditioner fan running. Every noise or voice that is heard when my ear is depressurized sounds like someone removed the lows and mids from the sound, I'd guess from it that anything below 7k hertz is unheard when it happens. If you want to get a rough idea what it sounds like, get a decent set of headphones, adjust your equalizer by turning the volume and your highs(treble), 7k Hz or higher, all the way up and everything else down fully. I've discovered a temporary relief by either breathing in really hard with my nose only, which is extremely embarrassing, loud, inconvenient, and disgusting to anyone around, or, pinching my nose shut with my fingers and sucking in until I got as much pressure as possible back in my ear. It started out manageable, only occurring roughly 9-10 times a day, however, it has gotten exponentially worse to now occurring every time I swallow anything. For me personally, I swallow saliva at a rate of 2-4 times a minute so that's 2-4 times every minute that my ear depressurizes. Initially, other than the auditory inconveniences and embarrassment of adjusting pressure, I didn't pay much attention to it or think that it was abnormal because everyone experiences ear pressure changes at some point. Within the past 5 or so years I've begun experiencing unexplainable pain in my ear canal about 10% of the time in addition to everything else mentioned. I also experience extremely loud whistling/crackling about 50% of the time as I feel the pressure dropping. On many occasions, the whistling/crackling was bad enough to trigger mild to severe headaches and dizziness. I've seen 3 doctors so far and heard it's a sinus infection, it's normal pressure changes my ears are just sensitive, or that there is nothing wrong it's all in my head. After thorough research I've determined my best course of action is find an ENT that is aware of PET diagnosis because most of them know little to nothing about it at all. I'm very sympathetic to anyone with this condition and I totally understand your pain, agony, frustration, and overall feeling of hopelessness. I know dealing with PET can and will most definitely drive anyone completely batshit crazy, eventually leading to irrational thoughts and/or behavior for a brief moment of relief. I've honestly had thoughts of bashing my head off a wall or desk and knocking myself out to have a break from pain and discomfort more times than I can count! I'd never injure myself of course, but, the symptoms are beyond ignoring any longer. I'd greatly appreciate any recommendations that have provided any kind of relief for someone, even if only temporary relief given the frequency and severity of my symptoms. The only relief I've found that works 75%+ for me is to completely seal my ear canal with my pointer finger, it has to be 100% air tight, before, during, and immediately after swallowing keeps at least half of the existing pressure in my ear instead of feeling fully open right away. Also, if there is anyone who lives in or around south central Pennsylvania (Pittsburgh, Johnstown, Altoona, Somerset, State College areas) or around the Cumberland, Maryland (Frostburg, La Vale, Cresaptown, Rocky Gap areas) who has an ENT that is familiar with PET, please pass along their contact information. I'd love to get this all to finally stop, or at the very least, reduce my symptoms to a tolerable level before I completely lose my mind, sanity, and reasoning to not act on my self injurious thoughts!
Why at night i feel my eustachian tubes dysfunction more and i feel more crackling popping What position should i sleep? I think i might have just small amount of fluid there not enough to see thru the eardrum. This happen after having two upper wisdom teeth for too long i removed them now and felt relief but i think i might have small fluid left there. What is beat option for me please?
Im bilateral Patulous and im ready to give up. Tired if ever day being the sameand spending 100s on nasal drops from patulend. Patulous Eustachian tube is a terrible disorder and needs to be recognized and cured not managed.
Same man... just had surgery 4 days ago in both ears with fillers... so far its worse than before + tinitus.. god bless everyone with this terrible problem
